IsabellaLinton wrote:
Sounds like you're on top of it.
It's incredible how doctors can change their tune.
He knows you're onto him, so keep it up.
Demand nothing but the best of care.
I hope she also has a Gastro doc for endoscopy, gastric emptying tests, etc.
Touch wood she's never had gastro problems which might have been the reason she wasn't taken seriously.
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Big hugs to you both for showing us all how to love.
I mean that.
Pass the sick bucket, I mean it.

*Gobby shouted from across the room , try putting up with him for 20+ years, you'll soon change your tune*
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PS:
Is there an EDS thread here?
If not, there needs to be.
Dunno, I vaguely remember posting something EDS related - ???
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Another man's freedom fighter, one man's terrorist is - Yoda (probably)