A friend of mine has a son with FOUR long lists of foods he cannot have (3 different hereditary diseases and one list of allergens). He has Cerebral palsy, Severe Autism, and one of his diseases is the same one my son has. Except his is the most extreme difficult to manage kind.
Anyway he is basically on a single formula by Nestle Called Suplena (not the carb steady one, the other one which is rarer and harder to get). Due to Factory contamination in October, there was a massive recall and the ones she had alreafy ordered were taken back.
They were promised it by November, now it's December still no pharmacy, shop or location carries it. USA nestle refuses to ship THEIR ones to Canada (which is inhumane in my opinion ESPECIALLY because NESTLE was at fault causing this emergency). Canada Nestle said they wd hsave it by this week, still don't. Now they're saying MAYBE January.
The kid is barely able to eat (he is just a milli-step above my son in terms of ability to eat). EG He cannot chew.
She has a very tiny list of foods she is allowed to give him but it doesn't compensate for the massive amounts of calories that Suplena formula gave him.
Basically Nestle has no backup plan and no other company makes it and this lady has nowhere to go because USA nestle is a bunch of sick disgusting ppl sticking to their arbitrary rules that should be removed for this emergency life threatening situation..
ONLY people carrying it is Amazon, and I dare anyone to check the prices. Going up to 500 dollars, and shipping is not guaranteed till four weeks (by which time the factory may have the Suplena back in stock).
I've asked XH to purchase on my behalf and remove it from child support. But if it's coming FOUR WEEKS from now, what's the point? The only point is that maybe if in a month Nestle again fails her and again fails to get it ready she will have a supply.
I hate Nestle. Evil company monopolizing and risking people's lives. The USA nestle thing is disgusting. I hate people.
_________________
Take defeat as an urge to greater effort.
-Napoleon Hill