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Raleigh
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16 Dec 2018, 7:26 pm

The public system is very stretched and time poor, so I shouldn't be so ungrateful.
I'd hate to be in other countries where I'd be racking up a huge debt.
It just gets really frustrating dealing with the system and their lack of knowledge of what's going on because you never seem to be able speak to the same person twice.
And honestly, some of them seem really, really stupid. 8O


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Raleigh
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16 Dec 2018, 7:54 pm

Earthling is back!


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Temeraire
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16 Dec 2018, 7:55 pm

I am lucky to have the same carer most of the time.

But I also have difficulties when they change the rota or she is off and I have to spend too much time explaining things to someone else.

My lovely lady only comes 3 times a week but what she provides I am grateful for too, especially in our economic climate.

I think the company has a high turnover of staff because they don't treat them with respect and fairly.



Temeraire
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16 Dec 2018, 7:57 pm

Raleigh wrote:
Earthling is back!


Is this a tv series?

Or a wp member?



Raleigh
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16 Dec 2018, 8:01 pm

It's a TV series about a WP member.

Not really.

It's a WP member who's been MIA for a couple of years.


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Temeraire
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16 Dec 2018, 8:02 pm

Oh lovely.



Kuraudo7777
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16 Dec 2018, 8:18 pm

Raleigh wrote:
Earthling is back!


Hooray!! !!


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16 Dec 2018, 8:22 pm

Hearing of a good and proficient nurse always brings me joy. Good nurses bring with them peace of mind.


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Raleigh
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16 Dec 2018, 8:22 pm

Temeraire wrote:
I am lucky to have the same carer most of the time.

But I also have difficulties when they change the rota or she is off and I have to spend too much time explaining things to someone else.

My lovely lady only comes 3 times a week but what she provides I am grateful for too, especially in our economic climate.

I think the company has a high turnover of staff because they don't treat them with respect and fairly.

This lady is from the public hospital, not a nursing service.
How I got her was I asked for a disability advocate -> they said they don't have one, only a social worker -> I told them I had a DA at the other hospital to help with communication etc. -> they looked at my records and saw I'm autistic -> they appointed a regular nurse to act as my DA -> hallelujah!


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cathylynn
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16 Dec 2018, 8:23 pm

Raleigh wrote:
I have a new nurse who actually listens to what I say and she seems to have an uncommon amount of common sense.
Can I keep her?


i hope so. can you ask for her?



Raleigh
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16 Dec 2018, 8:27 pm

^ apparently she'll be visiting 3 times a week, mon, wed and fri.


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cathylynn
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16 Dec 2018, 8:28 pm

[quote="Raleigh"]^ apparently she'll be visiting 3 times a week, mon, wed and fri.[/quote

YAY!



Temeraire
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16 Dec 2018, 8:37 pm

Raleigh wrote:
Temeraire wrote:
I am lucky to have the same carer most of the time.

But I also have difficulties when they change the rota or she is off and I have to spend too much time explaining things to someone else.

My lovely lady only comes 3 times a week but what she provides I am grateful for too, especially in our economic climate.

I think the company has a high turnover of staff because they don't treat them with respect and fairly.

This lady is from the public hospital, not a nursing service.
How I got her was I asked for a disability advocate -> they said they don't have one, only a social worker -> I told them I had a DA at the other hospital to help with communication etc. -> they looked at my records and saw I'm autistic -> they appointed a regular nurse to act as my DA -> hallelujah!


Oh, I thought they came to your house to support you.

I can see why listening to you and having common sense is so essential now.

There is a type of help I can get called a community navigator.

I have no idea what they do but I can have one if I want.

My friend has one up the road from me and I am waiting to find out what they actually do.



Raleigh
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16 Dec 2018, 8:53 pm

Temeraire wrote:
Raleigh wrote:
Temeraire wrote:
I am lucky to have the same carer most of the time.

But I also have difficulties when they change the rota or she is off and I have to spend too much time explaining things to someone else.

My lovely lady only comes 3 times a week but what she provides I am grateful for too, especially in our economic climate.

I think the company has a high turnover of staff because they don't treat them with respect and fairly.

This lady is from the public hospital, not a nursing service.
How I got her was I asked for a disability advocate -> they said they don't have one, only a social worker -> I told them I had a DA at the other hospital to help with communication etc. -> they looked at my records and saw I'm autistic -> they appointed a regular nurse to act as my DA -> hallelujah!


Oh, I thought they came to your house to support you.

I can see why listening to you and having common sense is so essential now.

There is a type of help I can get called a community navigator.

I have no idea what they do but I can have one if I want.

My friend has one up the road from me and I am waiting to find out what they actually do.

She will be coming to my house, I explain badly.

Community navigator sounds like GPS.
Maybe it's like the old community access where they help you with transport etc.?


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Temeraire
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16 Dec 2018, 9:24 pm

Raleigh wrote:
Temeraire wrote:
Raleigh wrote:
Temeraire wrote:
I am lucky to have the same carer most of the time.

But I also have difficulties when they change the rota or she is off and I have to spend too much time explaining things to someone else.

My lovely lady only comes 3 times a week but what she provides I am grateful for too, especially in our economic climate.

I think the company has a high turnover of staff because they don't treat them with respect and fairly.

This lady is from the public hospital, not a nursing service.
How I got her was I asked for a disability advocate -> they said they don't have one, only a social worker -> I told them I had a DA at the other hospital to help with communication etc. -> they looked at my records and saw I'm autistic -> they appointed a regular nurse to act as my DA -> hallelujah!


Oh, I thought they came to your house to support you.

I can see why listening to you and having common sense is so essential now.

There is a type of help I can get called a community navigator.

I have no idea what they do but I can have one if I want.

My friend has one up the road from me and I am waiting to find out what they actually do.

She will be coming to my house, I explain badly.

Community navigator sounds like GPS.
Maybe it's like the old community access where they help you with transport etc.?


I guess I will find out one day.

Need to go to bed now so I can be up for my helper tomorrow.

Night night.



SaveFerris
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16 Dec 2018, 9:28 pm

Raleigh wrote:
Temeraire wrote:
Raleigh wrote:
Temeraire wrote:
I am lucky to have the same carer most of the time.

But I also have difficulties when they change the rota or she is off and I have to spend too much time explaining things to someone else.

My lovely lady only comes 3 times a week but what she provides I am grateful for too, especially in our economic climate.

I think the company has a high turnover of staff because they don't treat them with respect and fairly.

This lady is from the public hospital, not a nursing service.
How I got her was I asked for a disability advocate -> they said they don't have one, only a social worker -> I told them I had a DA at the other hospital to help with communication etc. -> they looked at my records and saw I'm autistic -> they appointed a regular nurse to act as my DA -> hallelujah!


Oh, I thought they came to your house to support you.

I can see why listening to you and having common sense is so essential now.

There is a type of help I can get called a community navigator.

I have no idea what they do but I can have one if I want.

My friend has one up the road from me and I am waiting to find out what they actually do.

She will be coming to my house, I explain badly.



Can't of explained it that badly as I understood, but maybe crazies understand each other better :twisted:

Don't let Tem gaslight you :lol: <-- This is a f*****g joke before anyone takes it the wrong way


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