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auntblabby
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22 Feb 2016, 7:30 pm

more proof you've got protective genes. thank your lucky stars and your family lineage for that.



ImAnAspie
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22 Feb 2016, 7:36 pm

auntblabby wrote:
more proof you've got protective genes. thank your lucky stars and your family lineage for that.


I'd like to think so but my father died of synovial sarcoma 3 weeks before I was born aged 27.


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auntblabby
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22 Feb 2016, 7:40 pm

am hoping he was in that case an outlier in terms of your genetic luck.



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22 Feb 2016, 7:43 pm

auntblabby wrote:
am hoping he was in that case an outlier in terms of your genetic luck.


I think so. I think it skipped a generation and I got lucky.

His father lived to be 99 and his father lived to be 103 or 107 (can't remember - it was over 100 though). But he spent the last of it in bed and just wanted to die.


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ImAnAspie
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22 Feb 2016, 7:45 pm

I've got to tell you though, when I got around the 26 - 27 year mark, I was so scared.


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ImAnAspie
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22 Feb 2016, 7:47 pm

ImAnAspie wrote:
I've got to tell you though, when I got around the 26 - 27 year mark, I was so scared.


But as it turns out, Synovial Sarcoma isn't hereditary - THANK GOD!


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Learn the simple joy of being satisfied with little, rather than always wanting more.



ImAnAspie
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22 Feb 2016, 7:48 pm

Knowing my luck, if it were, I would have got it.

I smoke like a chimney and drink like a fish!


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ImAnAspie
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22 Feb 2016, 7:54 pm

Synovial Sarcoma


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auntblabby
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22 Feb 2016, 7:55 pm

^^^was he depressed, or was he suffering from various disabling/painful ailments?



auntblabby
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22 Feb 2016, 8:00 pm

ImAnAspie wrote:

did this result in amputation or fusion of a joint?



ImAnAspie
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22 Feb 2016, 8:04 pm

auntblabby wrote:
^^^was he depressed, or was he suffering from various disabling/painful ailments?


He never got depressed right through it apparently.

He went to the doctor's after an accident at work. The doctor said, "If you want the day off work, just say so

He insisted he had a problem with his foot so the doctor sent him for an x-ray.

When the results came back, the doctor said, I'm sorry but you've got a real problem.

Shortly later, the bones in his foot crumbled. They amputated his foot. Later on, they amputated at the knee. After that, they amputated his whole leg and said they were 99% sure they got it.

Next thing, he got a lump in his neck and that was it. He went into a coma and shortly later, died.

Apparently one day, he was out the front with his crutches helping Mum with the gardening and a spastic boy that lived up the end of the street was walking past and said, hey mister, what happened to your leg and my Dad said, "Shark got it!"

He never lost his sense of humor.


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ImAnAspie
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22 Feb 2016, 8:08 pm

ImAnAspie wrote:
auntblabby wrote:
^^^was he depressed, or was he suffering from various disabling/painful ailments?


He never got depressed right through it apparently.

He went to the doctor's after an accident at work. The doctor said, "If you want the day off work, just say so

He insisted he had a problem with his foot so the doctor sent him for an x-ray.

When the results came back, the doctor said, I'm sorry but you've got a real problem.

Shortly later, the bones in his foot crumbled. They amputated his foot. Later on, they amputated at the knee. After that, they amputated his whole leg and said they were 99% sure they got it.

Next thing, he got a lump in his neck and that was it. He went into a coma and shortly later, died.

Apparently one day, he was out the front with his crutches helping Mum with the gardening and a spastic boy that lived up the end of the street was walking past and said, hey mister, what happened to your leg and my Dad said, "Shark got it!"

He never lost his sense of humor.


I was born 3 weeks later, after he died.

At one time when he was in hospital, he went to sleep leaning on Mum's tummy and woke up and said, I shouldn't be leaning on you. He then said, this one's got to be a boy! :D ME


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Formally diagnosed in 2007.

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ImAnAspie
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22 Feb 2016, 8:10 pm

My sister's 3½ years older than me. She barely remembers him.


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ImAnAspie
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22 Feb 2016, 8:11 pm

Now, my Mum has dementia and soon, she won't remember him.

Life is cruel!


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auntblabby
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22 Feb 2016, 8:13 pm

god bless him :thumright:



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22 Feb 2016, 8:16 pm

auntblabby wrote:
god bless him :thumright:


Thank you auntblabby. He was a very strong person. So was Mum, raising 2 kids on her own.

As weird as I was, she never did anything but praise me and taught me to love myself, although she didn't know I was Autistic, she knew I was different but she accepted that and never ridiculed me. But she didn't like it when I would stim in public.


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Formally diagnosed in 2007.

Learn the simple joy of being satisfied with little, rather than always wanting more.