Accepting anxiety as a feature of being a woman with ASD

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Amity
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30 Sep 2019, 8:25 am

Ashariel wrote:
swordrat32 wrote:
Thank you to everyone who has contributed to this thread. It has felt connecting to read and feel some commonalities with some of you.


Seconded - I really appreciate the perspectives here, on a topic that most of the time we feel we must keep silent about. It helps to understand what others have been through, and know that I'm not alone.

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I've been struggling with tension and anxiety for as long as I can remember, though like some of you mentioned I didn't necessarily know to name them that, I just thought I was a bad person


It's depressing that this is the conclusion we draw, from our life experiences as autistic females. My own perception is that I've always been a hated, despised misfit, since my earliest memories - and after a while it becomes a self-fulfilling prophecy, and I contribute to making that pattern repeat itself, because "it's who I am".

I think it is possible to change though - and I've gotten to the point where I have to. I have both autistic and schizoid traits - with the autistic side of me caring about people, wanting to connect, but feeling anxious - and the schizoid size giving up entirely, convincing myself that I don't care, I prefer isolation anyway.

But life is forcing me to face this anxiety. I live with my parents (which is not entirely healthy, but at least it's a roof over my head, whereas so many autistics and schizoids end up homeless, if they can't get along with family or housemates, and aren't functional enough to live independently.) I see that danger looming in my future, and it's hitting me - I have to learn to quit shutting myself off from everyone, if I hope to have any quality of life at all.

And that means facing the anxiety, and not just running away, every time I feel overwhelmed by hopelessness. So thanks again for this thread, and all who have contributed. It helps so much, to be able to talk about these things.

Agreed I am finding it cathartic to write about this and to have my suspicions confirmed that I'm not alone, I wouldn't have that feeling without other people sharing their experiences. Many thanks to all.

I have similar fears for my future, I know I'm on borrowed time with my ability to remain independant. I have too many rational anxieties about being reliant on others, not sure I could trust my wellbeing in the hands of someone else, perhaps though I could trust another person on the spectrum to look out for me and vice versa. Have often thought that a pooling of resources could be an option, perhaps a two person alternative to a group home, with outside support as needed. Sharing the cost of living makes sense to me.



SharonB
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30 Sep 2019, 11:01 am

Amity wrote:
Have often thought that a pooling of resources could be an option, perhaps a two person alternative to a group home, with outside support as needed. Sharing the cost of living makes sense to me.

Thank is an excellent idea!



swordrat32
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01 Oct 2019, 6:11 pm

Ashariel wrote:
It's depressing that this is the conclusion we draw, from our life experiences as autistic females. My own perception is that I've always been a hated, despised misfit, since my earliest memories - and after a while it becomes a self-fulfilling prophecy, and I contribute to making that pattern repeat itself, because "it's who I am".


I do this too in various ways, and it feel so hard to push back against it without beating myself up for it. Like, yes I do play into these things because of my expectations/etc., but that doesn't mean they're not real in the first place and that doesn't make me a bad person!

It also feels so hard for me to navigate the line between trying new things/getting outside my comfort zone (good) and forcing myself to keep doing things that make me miserable (bad).

Ashariel wrote:
And that means facing the anxiety, and not just running away, every time I feel overwhelmed by hopelessness.


Yes, so much of what I'm trying to do now centers around feeling my fear/embarrassment/sadness/whatever instead of just shutting it out with tension and sometimes physical pain. But it's still hard every single time.

Sending good wishes for you and figuring out your living situations into the future Ashariel and Amity!



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01 Oct 2019, 6:20 pm

I think I have always felt I needed to push and struggle at the things I find difficult. Over the last decade or so, I lean more toward spending my time at things I do well, or at least enjoy...something in which the process of learning and figuring something out is absorbing and, to my surprise, anxiety-free.


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kraftiekortie
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01 Oct 2019, 6:21 pm

That makes lots of sense to me.

You're not hurting anybody else. You're doing what you want to do.



Amity
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02 Oct 2019, 5:13 am

Thanks swordrat

blazingstar wrote:
I think I have always felt I needed to push and struggle at the things I find difficult. Over the last decade or so, I lean more toward spending my time at things I do well, or at least enjoy...something in which the process of learning and figuring something out is absorbing and, to my surprise, anxiety-free.


It is difficult to know where the natural limits are, if you've only ever pushed yourself beyond whats reasonable, if you become conditioned to ignore warning signals of reaching your limits, if it's been necessary for survival, where is the natural or individually healthy base line. (More of a thought than a question :) )

I tend to prioritise this pushing of limits for basic living necessities, though I'm not sure that's sustainable.
One thing I'm doing more of is resourcing myself through activities I enjoy and are stress free.

It's like that idea of energy accounting or the spoon theory.
It helps put things into perspective.
Admittedly I've got room to improve on the quantity of entries, but making a record of my daily self care activities helps me to check if I'm actually being fair to myself. Like self parenting, its another therapy suggestion.



blazingstar
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02 Oct 2019, 5:27 am

^^^^^

I agree it is difficult to know where the limits are and which are important. It took a long time for me to sort those out and I am still sorting and probably will always be sorting.

That said, I have found I can let some tasks go...see how life goes in their absence...and then re-evaluate.

I don't need to know the answers to start sorting.


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Amity
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08 Oct 2019, 12:12 am

Anyone familiar with waking up anxious?
My sleep pattern on the nights before work have become broken and restless. I know waking up anxious has become a habit, based on bad work experiences in the past, plus other things I'm sure, but the work situation has changed and those worries are not relevent now.

It's not always like this, I sleep well for weeks at a time.

I'm trying to make more positive associations with the mornings, I think the habit part goes back to school mornings, I think I woke up anxious most of the time.
Broken sleep or light sleep doesnt help matters, but that's nearly always been a feature. I twitch a lot while asleep, it doesnt wake me, but can wake my bed partner.



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08 Oct 2019, 6:28 pm

I have a life change coming up and my dreams are now angsty. This morning I informed my husband I was at an agitation level of 4 right out of bed and 6 when I thought about it. Soooo, time for me to focus on "moving forward" tasks so I can tell myself: it's all in hand, reduce to DEFCON level 1-2.



Amity
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09 Oct 2019, 4:15 am

This morning I've woken up relaxed, had a solid nights sleep and multiple dreams which I've remembered, all segments of making sense of recent events. If I dream on a regular basis I dont remember it happening, if do know that I dreamt I usually forget them as I wake up.
Feeling much better for it today and some things are clearer.



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09 Oct 2019, 6:58 am

Excellent. :heart: I love it when a day starts well.


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Amity
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09 Oct 2019, 7:44 am

Today is a day for self care and forward planning :D



SharonB
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09 Oct 2019, 10:55 am

Amity wrote:
This morning I've woken up relaxed, had a solid nights sleep and multiple dreams which I've remembered, all segments of making sense of recent events. If I dream on a regular basis I dont remember it happening, if do know that I dreamt I usually forget them as I wake up.
Feeling much better for it today and some things are clearer.


Yea!! !!



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09 Oct 2019, 11:00 am

Agreed. I am looking forward also and when I can change dance partners, from anxiety to excitement, it is lots of fun! :)


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Amity
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10 Oct 2019, 5:52 am

Ok so I made some progress in therapy regarding my sleep patterns. There were segments of relevent information available to me at different points in time, but I had never held them all together in my mind to piece them together before.

I wont go into too much detail here, I will keep that for the members forum should I feel the need to write about it.

I knew the waking anxious was a habit learned from my early school years, or the light sleeping as a necessity.

What I've learned is that the waking anxious is also coming from the breakdown I experienced (even the strongest and most resilient would have had one in these circumstances... a normal human response to cumulative extreme/traumatic situations).

The morning fears are that people will realise that my outward presentation does not match my abilities. I've written before about the difference between skills and abilities. A few years after my brain flipped the safety switch and shut down parts of itself per se, I learned that I had previously mistaken learned skills for innate abilities.

The learned skills were something I grieved the loss of, also that so much energy, a short lifetime of it was wasted on transient skills.

On an aside and focusing on moving forward, I've narrowed down the options and I'm applying for further study to facilitate a career change (I'd rather not say what just yet)

Be well to anyone reading and thank you for the responses BlazingStar and SharonB :heart:



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10 Oct 2019, 8:08 am

Amity wrote:
On an aside and focusing on moving forward, I've narrowed down the options and I'm applying for further study to facilitate a career change


That's a really big aside which would apply to my situation also (if I narrowed down my options, which I haven't - hence my continued excitement which reads to me as anxiety :wink: ). The easy-going of my friends and family say all in good time. I am tempted to believe that.

Again, glad for the beneficial discoveries.