I feel like I have been overlooked by the medical community

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Nodiagnosis
Butterfly
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Age: 58
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Location: SW england

16 Jul 2014, 6:30 pm

Hi

I really struggle with life.
I think I have got some autistic spectrum traits, but when I had a test I was told I was not on the autistic spectrum.
I have got into trouble and bullied because I behave in a different way to others.
I don't have any special interests, but I do get fixated on odd things for a period of time, and then I move onto something else which I get fixated on.
I used to remember really useless information and had a fixation about vomitting.
I used to remember the dates that I vomited on for years.
I used to ask people strange questions about vomiting like what colour was their last vomit.

I need lots and lots of solitude.
I never fit in socially and would consider myself socially naiive.
I hate loud noises and bad smells.
If I am interrupted in conversations I cannot pick up where I left off from.
I have always rocked to comfort myself.
I hate working with others and prefer to do stuff alone.

I am very poor at recognizing faces and am often embarrassing myself by saying hello to strangers thinking they are someone else.
I can't remember a face until I have seen it a few times.

I've often been called eccentric.
School was very difficult for me, as I got into trouble and criticised by teachers because of my demeanour and what I said. I was also bullied at school.
I was often told I was 'in my own world'
I used to have attachments to inanimate objects, and these were really strong as a kid.
I spend ages on the web researching allsorts of stuff.

I miss the big picture and get hung up on small details.
If I am bothered about something that takes over and I mess other important things up as I am not attending to them properly.

I am very absent minded, and poor at concentrating, especially on things that don't interest me.
I am very clumsy and awkward, not just physically, but in speech and I make bad decisions.
I used to use big words when I was a kid and my grandfather called me 'little professor'
I was bright academically at school but a dunce in the playground.

I was 9 before I learnt to ride a bike on the path, I still can't ride properly and definitely not on roads.
I was the kid who couldnt catch the ball.
I hate anything sexual and cann't fathom out why. This has meant I am even more isolated and disconnected from people.
There's probably loads more traits that I cannot think of right now, and I have probably missed (typical of me)

I hate that I have not been recognised as having some special needs, and that my odd behaviours have always been seen as eccentric or to some, irritating and worthy of punishment.
Not having my needs acknowledged or not having a diagnosis makes me feel overlooked.
I feel like my difficulties have not been acknowledged by other people.

It would be so much easier if I had a label, as then, I would be able to tell people why I am the way I am, but more importantly, I would have, for myself, a reason why I behave the way I do.
As it is, without knowing what is wrong with me, I just feel a clumsy fool who keeps making mistakes in life.



starkid
Veteran
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16 Jul 2014, 6:43 pm

Have you tried getting evaluated somewhere else? And the place where you were told that you weren't on the spectrum, they didn't give you any other diagnosis?



Nodiagnosis
Butterfly
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Joined: 13 Jul 2014
Age: 58
Gender: Female
Posts: 12
Location: SW england

16 Jul 2014, 6:48 pm

starkid wrote:
Have you tried getting evaluated somewhere else? And the place where you were told that you weren't on the spectrum, they didn't give you any other diagnosis?

Hi Starkid

I live in the UK, so I only had the NHS specialists to test me.
They said I had problems with inference, but I think there is more than that.
I got the test 6yrs ago, when I was doing a lot of speed, as that made me feel more normal.
I think the speed might have caused a false reading though.

Unless I pay a lot of money and go private I am pretty stuck, because the NHS no longer has the resources to test me for autistic spectrum.

I did some tests from links on this site, but I am not really sure what the results mean.



Kaizer
Snowy Owl
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17 Jul 2014, 4:18 am

You may want to get a test done again.
As recently they have been doing more for aspergers in the UK.
Getting more qualified doctors than in the past.
I had to get re-diagnosed this year to try and get additional help and the doctor I saw was far more informed then 6-10 years ago.
You should really try again.



starkid
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17 Jul 2014, 5:46 pm

You could try just going to see a psychologist about the issues you listed in your original post, without mentioning ASD. The doctor may notice that your symptoms are ASD-like, and that may be a way for you to get another chance at an assessment. Even if not, it might get you some sort of help with whatever you need.