Ok, so it seems there is a range here. Some definitely know it’s the sound (volume, pitch, etc), others just have the sensation that something is not right but not necessarily can pinpoint the source.
My impression so far of what happens to my son is the acoustics, like if sound is reverberating inside a closed environment. Like screaming and crowd noises in a gym, and crowd shouting inside the theater. He doesn’t like high pitch noises either, but I don’t think he loses control if it’s like an alarm for a brief period of time.
It is so hard to prepare/prevent/understand what’s going on when he can’t really explain it to me...
For me, if I’m in a very big crowd and they are randomly walking (like in an amusement park), I get a bit anxious. In my mind I sort of block them. I don’t lose control, but it prevents me from taking pictures a lot of the times. And I love taking pictures. But with lots of people walking next to me, getting my phone out to take a picture feels like a huge ordeal. If I’m able to recognize that this is what’s happening, then I can make myself take a deep breath and do what I actually want to do (take pic, stop, whatever it is). But I don’t always recognize the source of stress/anxiety, be that crowd, sound, etc.
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- RAADS-R: 134 (cut off for ASD diagnosis is >=65)
- CASD: 20 (cut off for ASD >=14)
- SRS-2: T score = 68
Diagnosed with ASD Level 1 on 10/28/19 (Better late than never)
Mom to 9 y/o boy diagnosed with ASD and ADHD on 11/15/19