The earlier you're diagnosed the better the outcome ?
^ I agree with you. I think we learn things when we are ready to do so. Not as a opinion, but as in a level of maturity on the inside. (This is one of the reasons I am opposed to treating all children the same...ie, you must learn to read by kindergarten, you must be able to solve algebra problems by high school.) Different people learn at different rates and at different times.
_________________
The river is the melody
And sky is the refrain - Gordon Lightfoot
So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
Some of us mask well enough to hide it without being overly stressed.
Last edited by BTDT on 08 Feb 2020, 8:31 am, edited 2 times in total.
So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
Some of us mask well enough to hide it without being overly stressed.
Exactly. And the earlier you're diagnosed the better equipped you become to "mask".
So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
Some of us mask well enough to hide it without being overly stressed.
Exactly. And the earlier you're diagnosed the better equipped you become to "mask".
It can be very effective to attack those who try to make your autism an issue. Not just trying to hide, but exposing the issues of coworkers who try to bring you down. This is easier to do if you don't have a label. You see this in politics. Some politicians will try to pin labels on their opponents. If you don't have a label people may just dismiss your odd behavior as a quirk, rather than associating it with a disorder.
So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
You are told what you can do and what you cannot. You are told what are your (expected) abilities-disabilites, even before you could get a chance to develop them.
Depending on social/political context, you might have to attend certain schools/institutions and be excluded from others.
Add to this the fact that autism is still poorly understood as not two autistic people share the same difficulties-strengths.
Who we become, our abilities and difficulties are not set in stone from the beginning - environmental fators such as expectations and feedback play a huge role. People do change their behaviour depending on what their environment expects from them, consciously and subconsciously. This is true for autistic people and neurotypicals too, although some might say that autistic people are oblivious to expectations but if they truly were, why would most of them have very low self-esteem?
_________________
Being obsessed with Asperger's Syndrome is a very Escherian place to be at right now.
If you're on the mild end of the spectrum, you're probably better off not being diagnosed, because you will carry a label the rest of your life. I see this on WP where some people have said they want to deny their diagnoses. It's true you'll get support if you're diagnosed, but then everybody needs to learn the same skills for coping with life — with autism it's a bigger challenge but you'll have to learn them or you won't succeed. Knowing you have a "condition" doesn't make you any more likely to learn those skills, in fact it could give you and others an excuse for not learning them, which might make life easier in adolescence but will bite you in adulthood.
I was diagnosed at 11 and was lucky enough to get to go to a special middle school for a few years, where I had peers who didn't shun me and staff who didn't suspend me for melting down. Without that incredible experience, I think I would have missed some vital social development. (Before that, I had gotten to the point where I didn't know anyone in my class and I spent all my school time alone.) People say that a stigma can follow you, but I don't tell anyone I'm autistic unless it comes up, which it almost never does. My current job doesn't know. (Although I wonder if I should tell them because I think they would get some kind of tax break for employing me if they knew. But I don't think I'll tell them hahah..)
Also...
I don't think it's the low expectations that give us low self-esteem, I think it's probably all the social rejection. My self-esteem has improved a LOT since I learned to interact successfully. But I love what you're saying in the rest of the paragraph. Nobody knows what their potential is until they go there. And you can't let things psych you out and stop you from going there.
_________________
"You gotta keep making decisions, even if they're wrong decisions, you know. If you don't make decisions, you're stuffed."
- Joe Simpson
ASPartOfMe
Veteran

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 37,924
Location: Long Island, New York
So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
You are told what you can do and what you cannot. You are told what are your (expected) abilities-disabilites, even before you could get a chance to develop them.
Depending on social/political context, you might have to attend certain schools/institutions and be excluded from others.
Add to this the fact that autism is still poorly understood as not two autistic people share the same difficulties-strengths.
Who we become, our abilities and difficulties are not set in stone from the beginning - environmental fators such as expectations and feedback play a huge role. People do change their behaviour depending on what their environment expects from them, consciously and subconsciously. This is true for autistic people and neurotypicals too, although some might say that autistic people are oblivious to expectations but if they truly were, why would most of them have very low self-esteem?
Most of us internalize labels given to us especially as kids. Autism is a label that traditionally has been about deficits and impairments. Is it any wonder the the depression and suicide rates are so high? I am not saying internalized ableism is the only contributor, negative treatment from others for who we are and the disabling aspects of the condition and comorbid conditions also are important
Or so I thought. I did that consciously and subconsciously for decades without knowing exactly why I was different until I could not. I knew enough to know what acting professionally meant and to say hello and have a nice day.
I am going to write something I am loath to write because of the nature of this site and the over use of what I am about to say to accuse people. If a person truly learns to mask their autistic traits well enough that it is second nature and can do that for their entire lives without breakdown/burnout then they have are Broad Autistic Phenotype/extremely “mild” autistics/NT’s with stronger than average autistic traits.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I am going to write something I am loath to write because of the nature of this site and the over use of what I am about to say to accuse people. If a person truly learns to mask their autistic traits well enough that it is second nature and can do that for their entire lives without breakdown/burnout then they have are Broad Autistic Phenotype/extremely “mild” autistics/NT’s with stronger than average autistic traits.
They could also be valuable enough to a company that a boss would be tasked with shielding them from social stress so they could do their job. And paid well enough to have a partner who would also shield them from stress. In the old days most companies had secretaries that acted as a line of social defense. You couldn't reach someone without going through their secretary.
ASPartOfMe
Veteran

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 37,924
Location: Long Island, New York
I am going to write something I am loath to write because of the nature of this site and the over use of what I am about to say to accuse people. If a person truly learns to mask their autistic traits well enough that it is second nature and can do that for their entire lives without breakdown/burnout then they have are Broad Autistic Phenotype/extremely “mild” autistics/NT’s with stronger than average autistic traits.
They could also be valuable enough to a company that a boss would be tasked with shielding them from social stress so they could do their job. And paid well enough to have a partner who would also shield them from stress. In the old days most companies had secretaries that acted as a line of social defense. You couldn't reach someone without going through their secretary.
But autistic people not only feel the need to pretend to be normal on the job but in the rest of their lives. Sure in a more autistic friendly society the autistic burnout could be delayed/eased/avoided but those places are few and far between.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I wasn't diagnosed early. I don't think it's possible to know which is better for an individual because no individual can have both experiences, in order to compare.
Here are some pros and cons I can think of, when I picture myself diagnosed as a child. Yes they are idealised because I don't know that the services would have necessarily been available in the 1970s, but one can dream:
PROS OF EARLY DIAGNOSIS:
My family would understand why I was different, and not bully me.
I would have a small classroom setting with fewer sensory demands and social triggers.
I wouldn't skip classes because I wouldn't be terrified of "all the kids".
I would have accommodation for my poor executive function, rather than failing classes.
My teachers would embrace my learning style and help me to develop strategies for weaknesses.
I might have met other children who were autistic or neurodiverse.
I wouldn't have hated myself or hated other girls (I always felt excluded by them).
If I had more female friends I would have learned social norms better, and not been victim to manipulation.
The list continues through University where I would have found a niche of autistic classmates.
The list continues through my employment where I could have sought accommodations, rather than burning out.
I wouldn't have been so naive or susceptible to sexual abuse, manipulation, extortion, or identity theft.
I would have been taught the skills to self-advocate when in peril, rather than having meltdowns.
I would have been taken seriously by doctors which would have helped my entire medical history.
CONS OF EARLY DIAGNOSIS:
I might have felt like a failure for having a label (but I don't know how that could be worse than my self-labels).
I might have been excluded from some opportunities by nature of being "disabled".
I could have developed learned helplessness (but I sincerely doubt it, with proper supports).
That's about all I can think of.
_________________
I never give you my number, I only give you my situation.
Beatles
So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
You are told what you can do and what you cannot. You are told what are your (expected) abilities-disabilites, even before you could get a chance to develop them.
Depending on social/political context, you might have to attend certain schools/institutions and be excluded from others.
Add to this the fact that autism is still poorly understood as not two autistic people share the same difficulties-strengths.
Who we become, our abilities and difficulties are not set in stone from the beginning - environmental fators such as expectations and feedback play a huge role. People do change their behaviour depending on what their environment expects from them, consciously and subconsciously. This is true for autistic people and neurotypicals too, although some might say that autistic people are oblivious to expectations but if they truly were, why would most of them have very low self-esteem?
Most of us internalize labels given to us especially as kids. Autism is a label that traditionally has been about deficits and impairments. Is it any wonder the the depression and suicide rates are so high? I am not saying internalized ableism is the only contributor, negative treatment from others for who we are and the disabling aspects of the condition and comorbid conditions also are important
Or so I thought. I did that consciously and subconsciously for decades without knowing exactly why I was different until I could not. I knew enough to know what acting professionally meant and to say hello and have a nice day.
I am going to write something I am loath to write because of the nature of this site and the over use of what I am about to say to accuse people. If a person truly learns to mask their autistic traits well enough that it is second nature and can do that for their entire lives without breakdown/burnout then they have are Broad Autistic Phenotype/extremely “mild” autistics/NT’s with stronger than average autistic traits.
Could you elaborate more on "until I could not"? I think I mask pretty well but maybe I should prepare for burnout if it's going to come. But I have been masking since I was 18 so I don't know what not masking would look like anymore.
_________________
"You gotta keep making decisions, even if they're wrong decisions, you know. If you don't make decisions, you're stuffed."
- Joe Simpson
Here are some pros and cons I can think of, when I picture myself diagnosed as a child. Yes they are idealised because I don't know that the services would have necessarily been available in the 1970s, but one can dream:
PROS OF EARLY DIAGNOSIS:
My family would understand why I was different, and not bully me.
I would have a small classroom setting with fewer sensory demands and social triggers.
I wouldn't skip classes because I wouldn't be terrified of "all the kids".
I would have accommodation for my poor executive function, rather than failing classes.
My teachers would embrace my learning style and help me to develop strategies for weaknesses.
I might have met other children who were autistic or neurodiverse.
I wouldn't have hated myself or hated other girls (I always felt excluded by them).
If I had more female friends I would have learned social norms better, and not been victim to manipulation.
The list continues through University where I would have found a niche of autistic classmates.
The list continues through my employment where I could have sought accommodations, rather than burning out.
I wouldn't have been so naive or susceptible to sexual abuse, manipulation, extortion, or identity theft.
I would have been taught the skills to self-advocate when in peril, rather than having meltdowns.
I would have been taken seriously by doctors which would have helped my entire medical history.
CONS OF EARLY DIAGNOSIS:
I might have felt like a failure for having a label (but I don't know how that could be worse than my self-labels).
I might have been excluded from some opportunities by nature of being "disabled".
I could have developed learned helplessness (but I sincerely doubt it, with proper supports).
That's about all I can think of.
I think it would depend a lot on what kind of services are available, including therapists and teachers that understand autism and even more on the parents' attitude towards the diagnosis.
We have a lot of stories here by people (diagnosed as kids) who were traumatised by incompetent and uncaring therapists and plenty of horror stories of parents either being in denial and ignoring the diagnosis or seeing their kids as irreversibly damaged and flawed

_________________
"Facts do not cease to exist because they are ignored." Aldous Huxley
I agree, Bender. That's why I said I'm idealising. In reality, the only special education classroom I remember at my school was for speech therapy or literacy support. I actually did go to speech therapy, and my brother went to literacy support. His program had nothing to do with autism accommodations. I guess I'm being wistful and imagining my childhood could have been better, based on the types of school supports I see offered today. In all likelihood based on my generation I might have ended up in an ABA setting and that would have been pure Hell.
I normally say I'm proud to have navigated on my own and I suppose I am, but I do wish I had access to other autistic children so I wouldn't have felt like the only one on Earth.
_________________
I never give you my number, I only give you my situation.
Beatles
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