The earlier you're diagnosed the better the outcome ?
I think my mum was disappointed with me being on the spectrum. She was understanding and supportive with me, but secretly she wished I was "normal" like all of her nieces and nephews.
You see, my mum has a sister who has 2 children that are basically me and my brother in a parallel universe. The son is the same age as my brother and the daughter is the same age as me. But both me and my brother have Asperger's that has held us back from being happy and achieving what we could have achieved, and our 2 cousins are both very extroverted NTs with lots of confidence, are both popular and are both into sports, and have well-paid jobs.
And being so my mum has always been close to her sister, it's hard NOT to compare her children to her sister's children. My mum has experienced me and my brother suffer with depression and low self-esteem, while her sister has experienced her children succeed socially, emotionally and academically.
And no, it's not due to "bad parenting", because my parents weren't bad parents. My 2 cousins were just born to be confident, as it's hardwired into their personalities. Me and my brother were born depressives.
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You see, my mum has a sister who has 2 children that are basically me and my brother in a parallel universe. The son is the same age as my brother and the daughter is the same age as me. But both me and my brother have Asperger's that has held us back from being happy and achieving what we could have achieved, and our 2 cousins are both very extroverted NTs with lots of confidence, are both popular and are both into sports, and have well-paid jobs.
And being so my mum has always been close to her sister, it's hard NOT to compare her children to her sister's children. My mum has experienced me and my brother suffer with depression and low self-esteem, while her sister has experienced her children succeed socially, emotionally and academically.
And no, it's not due to "bad parenting", because my parents weren't bad parents. My 2 cousins were just born to be confident, as it's hardwired into their personalities. Me and my brother were born depressives.
I have the exact same story, Joe -- except that my brother and I didn't have diagnoses. I was always bullied by my mother and ridiculed for being abnormal. She compared me to my cousins all the time, but because I didn't have a diagnosis she just called me "useless" or "lazy" or "pathetic". To make matters worse I was born on the exact same day (and year) as one of my female cousins (on my mother's side) who is exactly as you describe. My cousin was extroverted, enthusiastic, athletic, interested in clothes and fashion, etc. She was and still is, the golden girl superstar of the family. I was always second fiddle to her, especially because we were born the same day and our developmental trajectory was so different. I wonder if I had a diagnosis, if my mother might have had more empathy for me. I guess I'll never know. My superstar cousin continues to show off her successful life and perfect achievement every year in her Christmas letters, and I dread them to this day.
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How does autism worsen with age?
It seems to me that my ability to tolerate what I now understand is detrimental to my health has decreased.
But is my neuro-diverse wiring any different? I don't know.
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And sky is the refrain - Gordon Lightfoot
Sometimes the medical establishment sees the kids as "cash cows." Insurance will pay for various treatments and therapies so why not get all of them at once! Early treatment is best! Kids get stressed out by way too much too soon.
Parents don't seem to realize that going to the doctor or therapist is a big source of stress.
Sometimes the medical establishment sees the kids as "cash cows." Insurance will pay for various treatments and therapies so why not get all of them at once! Early treatment is best! Kids get stressed out by way too much too soon.
Parents don't seem to realize that going to the doctor or therapist is a big source of stress.
Yeah, I know. I have a friend who's mother in law was constantly pestering them that their 3-year-old (non-verbal, on the spectrum) should be in 8-hours-a-day therapy to teach him to "be normal"
(Fortunatelly, they didn't follow the "advice")
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I thought about this when I started investigating the possibility I was on the spectrum.
I could not decide either way.
I mighf have avoided one or two difficult times because I migjt have had better self knowledge.
I might have ljved down to the label and missed out on some of the su cesses I xid achieve.
I think I would have benefited from knowing the stronv points I had and the blind spots more than I would have bdnefitted from having a label, especially one which would likely be used against me by any bullies.
Do kids really get told that info? There are lots of stories about parents hiding diagnoses from kids. Do parents let their kids read their full diagnoses? Every page of a long document? And explain what it really means in terms they can understand?
^ The kids know something is wrong and it is called autism. They know it makes their parents act strangely toward them. They know they have to take "special" classes or treatments.
Firemonkey, I am pretty sure it is worse to have the over-controlling parents. Their never escape.
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The river is the melody
And sky is the refrain - Gordon Lightfoot
I was told about my diagnosis straight away, but I was only 8 at the time and wasn't mature enough to handle it. My mum thought it was for the best if I were told rather than keeping it a secret.
It wasn't explained to me in a very accurate way though. Basically the implication was "Asperger's means you don't talk to people properly". It wasn't until I came to WP that I learned more about Asperger's and autism. My mum had a couple of books about it, but it didn't completely explain my experience. It just rambled on about how socially awkward we are, how bad we are at friendships, how brilliant we are at maths and science, etc. This was the 90s though.
I went to mainstream school throughout my whole school life, and I am very thankful that I did, because if I was forced to go to a special school that would have been another thing I'd be ashamed about now and having to lie to everyone and say I was mainstreamed, due to the fear of people assuming I was stupid or something.
So attending the same schools that my NT friends and cousins attended did make me feel normal.
But despite receiving an early diagnosis, I never met another Aspie until I went to college. So all through my school life I felt like I was the only one in the world with Asperger's syndrome. I also believed that every Aspie gets diagnosed at around 7 or 8 years of age like I did. It wasn't until I was about 20 that I found out that like 1 out of 10 Aspies (mild/high-functioning) get an early diagnosis. ![]()
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Firemonkey, I am pretty sure it is worse to have the over-controlling parents. Their never escape.
My father was very much a 'I am the man of the house, and what I say goes' type . My mother was an alcoholic / problem drinker . They argued a lot ,often blaming me for doing so . My mother often described me as an 'awkward baby ,toddler ,child and teenager etc .
Both were totally blase when I went from doing better than boys who later got scholarships to public school , to bottom of the class in my last term at prep school . There had been a marked dip in how well I was doing from the age of 9.5 or so .
Neither thought there was anything going on with me beyond being an awkward child and being badly coordinated .
When things were deteriorating fast due to the onset of overt signs of mental illness my father was going into fantasist mode saying how he'd reward me if I got to Cambridge or Oxford .
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Socially drifted middle class
^ when the parents are totally incapacitated by alcohol, drugs, mental illness, etc., that is a whole other story. It sounds like hell, and I'm sorry you had to go through that. In that situation, I have no earthly idea how or if early diagnosis would have affected your life.
I was thinking primarily about the high functioning autists who are trapped in their parents' web of dysfunction; parents who continue to push/pull, control, manipulate, dismantle supports for the entire lifetime of the child. I have seen parents in their 70s still controlling their autistic "children."
Some autists don't get a bit of freedom to explore life until their parents die. Sounds harsh, I know.
So that is what I was thinking.
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And sky is the refrain - Gordon Lightfoot
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So you get "labeled". So what? You would get informally "labeled" anyway. So what difference does it make?
You are told what you can do and what you cannot. You are told what are your (expected) abilities-disabilites, even before you could get a chance to develop them.
Depending on social/political context, you might have to attend certain schools/institutions and be excluded from others.
Add to this the fact that autism is still poorly understood as not two autistic people share the same difficulties-strengths.
Who we become, our abilities and difficulties are not set in stone from the beginning - environmental fators such as expectations and feedback play a huge role. People do change their behaviour depending on what their environment expects from them, consciously and subconsciously. This is true for autistic people and neurotypicals too, although some might say that autistic people are oblivious to expectations but if they truly were, why would most of them have very low self-esteem?
Most of us internalize labels given to us especially as kids. Autism is a label that traditionally has been about deficits and impairments. Is it any wonder the the depression and suicide rates are so high? I am not saying internalized ableism is the only contributor, negative treatment from others for who we are and the disabling aspects of the condition and comorbid conditions also are important
Or so I thought. I did that consciously and subconsciously for decades without knowing exactly why I was different until I could not. I knew enough to know what acting professionally meant and to say hello and have a nice day.
I am going to write something I am loath to write because of the nature of this site and the over use of what I am about to say to accuse people. If a person truly learns to mask their autistic traits well enough that it is second nature and can do that for their entire lives without breakdown/burnout then they have are Broad Autistic Phenotype/extremely “mild” autistics/NT’s with stronger than average autistic traits.
Could you elaborate more on "until I could not"? I think I mask pretty well but maybe I should prepare for burnout if it's going to come. But I have been masking since I was 18 so I don't know what not masking would look like anymore.
I gradually stopped being able to do thing the things I used to able to do, and being employable. The work world demanded more social skills and natural aging slowdown was greatly enhanced by the buildup decades of pretending to be normal. At the the height of autistic burnout I was just focused on what I had to do day to day, no emotions, kind of robotic existence. Different from the end of 1970s and 1980s where I probably would not be diagnosed even by todays criteria.
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“Self Acceptance is a process not a performance”
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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
I was thinking primarily about the high functioning autists who are trapped in their parents' web of dysfunction; parents who continue to push/pull, control, manipulate, dismantle supports for the entire lifetime of the child. I have seen parents in their 70s still controlling their autistic "children."
Some autists don't get a bit of freedom to explore life until their parents die. Sounds harsh, I know.
So that is what I was thinking.
I wouldn't say my mother was totally incapacitated . After leaving my father she held a job as an assistant library manager for over 20 years . Things escalated when she retired , and had more time to drink .
My parents didn't totally control me , but there was a lot of high expressed emotion going on .
https://en.wikipedia.org/wiki/Expressed_emotion
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Socially drifted middle class
