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Cloudman
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27 Jan 2020, 3:02 pm

Do you believe that you are putting your self at risk by telling people you have autism who dont understand?


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ASPartOfMe
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27 Jan 2020, 3:49 pm

Yes.

EVERY decision involves risk.

Based on being on this board and reading reactions to people disclosing I can say there is no way to know how people will react. Members have gotten reactions ranging from "Of course, we knew it all the time" to "you are faking it", "stop using a label as an excuse" from being infantilized to being given accommodations and understanding.

It is a catch 22 if nobody discloses these wrong stereotypes will never be broken, but you do take a risk that will harm yourself with educating anyone.


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Fnord
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27 Jan 2020, 4:09 pm

Cloudman wrote:
Do you believe that you are putting your self at risk by telling people you have autism who don't understand?
Yes.  I once told a friend about the abuse I received as a child.  I've never again shared (in person) any details with anyone since.  Had I known that they were narcissistic and manipulative, I never would have said anything.  After a very short time, they started verbally abusing me.  I can only image how such a narcissistic and manipulative 'normie' would treat an 'aspie'.


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Benjamin the Donkey
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27 Jan 2020, 8:12 pm

Fnord wrote:
Cloudman wrote:
Do you believe that you are putting your self at risk by telling people you have autism who don't understand?
Yes.  I once told a friend about the abuse I received as a child.  I've never again shared (in person) any details with anyone since.  Had I known that they were narcissistic and manipulative, I never would have said anything.  After a very short time, they started verbally abusing me.  I can only image how such a narcissistic and manipulative 'normie' would treat an 'aspie'.

I'm sorry to hear that. That person was not a "friend".


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Benjamin the Donkey
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27 Jan 2020, 8:15 pm

Cloudman wrote:
Do you believe that you are putting your self at risk by telling people you have autism who dont understand?

Yes. I only share this information with the tiny number of people I really trust or--very rarely--if it's relevant to an important situation.


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Magna
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27 Jan 2020, 9:24 pm

I've only been diagnosed for a little over a year. I was so relieved and even elated right after receiving my diagnosis that I wanted to tell the whole world. I felt like I wanted to blurt out to total strangers such as cashiers at grocery stores: "I'm autistic!". I refrained from doing so.

I have been selective about who I've disclosed to. To date it's been my wife and kids, The IEP team at our children's school and the adults of autistic children support group. That's it. I haven't disclosed to anyone at work since I don't need any accommodations. I have favored "soft disclosure" at work. Meaning, telling people about my various sensitivities but not tying them to autism because there's no reason to do so.

I may expand the circle of whom I disclose to in the future, but I'm comfortable with my current situation at this point.



CarlM
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27 Jan 2020, 9:49 pm

Yes, it's sad that we have to be careful who we disclose to. I have been very limited in my disclosure and have not had any problems yet. The comments above have me concerned about some further disclosure I was considering.

You should probably be more specific about who you were thinking of disclosing to. The phrase "who don't understand?" could have several meanings.

I do envy those aspies you see on YouTube who proudly label themselves "autistic". If you do decide to disclose to someone who you think has little knowledge of ASD, try something like "I'm on the spectrum" and see if they know what you're talking about. I'm fascinated by the labels and the way people react to them but realize it might be painful to disclose too widely.


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PoseyBuster88
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28 Jan 2020, 12:56 am

I've generally had success with things like "loud noises give me a headache" or "I don't like large crowds" or "you need to tell me if that was a secret or if you want me to tell my family for you. I am not great at picking up on that sort of thing." You don't need to tell people you're autistic usually...and I wouldn't do that at all myself, since I am not formally diagnosed and only suspect I have it. I just tell people what they need to know about my struggles or differences if/when I think it would be helpful for them to know.

It can also be more helpful to describe vs. label because many people have a preconceived idea of what autism means, and that may not fit you. If they hear "autistic" and think of Rain Man or Sheldon from Big Bang Theory or their cousin or whatever, and you aren't like that, you haven't helped them understand you better.


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Biscuitman
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29 Jan 2020, 7:28 am

Diagnosed 3 years ago and only my wife, my boss & my employers HR department know, and that is how it will stay.



Dear_one
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29 Jan 2020, 7:45 am

Cloudman wrote:
Do you believe that you are putting your self at risk by telling people you have autism who dont understand?

Statistically, yes, but it reduces risk in a significant number of opportunities.



pyrrhicwren
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29 Jan 2020, 8:23 am

Fnord wrote:
Cloudman wrote:
Do you believe that you are putting your self at risk by telling people you have autism who don't understand?
Yes.  I once told a friend about the abuse I received as a child.  I've never again shared (in person) any details with anyone since.  Had I known that they were narcissistic and manipulative, I never would have said anything.  After a very short time, they started verbally abusing me.  I can only image how such a narcissistic and manipulative 'normie' would treat an 'aspie'.


Done the same. I worked with a bpd manipulator that would try to con me into doing their work. I drew a psychological boundary, said no, and it was met with anger.


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Joe90
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29 Jan 2020, 9:04 am

I never tell anybody. I'm too ashamed of it.


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Cloudman
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29 Jan 2020, 9:57 pm

ASPartOfMe wrote:
Yes.

EVERY decision involves risk.

Based on being on this board and reading reactions to people disclosing I can say there is no way to know how people will react. Members have gotten reactions ranging from "Of course, we knew it all the time" to "you are faking it", "stop using a label as an excuse" from being infantilized to being given accommodations and understanding.

It is a catch 22 if nobody discloses these wrong stereotypes will never be broken, but you do take a risk that will harm yourself with educating anyone.
your right there is no simple answer, but lack of knowledge of autism is in part from most people with it having to hide it unless they physically can't and making it very unknown for the masses. Great point you had


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Cloudman
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29 Jan 2020, 10:04 pm

Fnord wrote:
Cloudman wrote:
Do you believe that you are putting your self at risk by telling people you have autism who don't understand?
Yes.  I once told a friend about the abuse I received as a child.  I've never again shared (in person) any details with anyone since.  Had I known that they were narcissistic and manipulative, I never would have said anything.  After a very short time, they started verbally abusing me.  I can only image how such a narcissistic and manipulative 'normie' would treat an 'aspie'.
wow some people are so cruel. We have to realise with asd it's harder for us to read traits so we end up with the wrong people.these types of people should be avoided


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Cloudman
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29 Jan 2020, 10:08 pm

Magna wrote:
I've only been diagnosed for a little over a year. I was so relieved and even elated right after receiving my diagnosis that I wanted to tell the whole world. I felt like I wanted to blurt out to total strangers such as cashiers at grocery stores: "I'm autistic!". I refrained from doing so.

I have been selective about who I've disclosed to. To date it's been my wife and kids, The IEP team at our children's school and the adults of autistic children support group. That's it. I haven't disclosed to anyone at work since I don't need any accommodations. I have favored "soft disclosure" at work. Meaning, telling people about my various sensitivities but not tying them to autism because there's no reason to do so.

I may expand the circle of whom I disclose to in the future, but I'm comfortable with my current situation at this point.

I see that's wise often times people can think of it as a excuse when you tell them


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Cloudman
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29 Jan 2020, 10:16 pm

CarlM wrote:
Yes, it's sad that we have to be careful who we disclose to. I have been very limited in my disclosure and have not had any problems yet. The comments above have me concerned about some further disclosure I was considering.

You should probably be more specific about who you were thinking of disclosing to. The phrase "who don't understand?" could have several meanings.

I do envy those aspies you see on YouTube who proudly label themselves "autistic". If you do decide to disclose to someone who you think has little knowledge of ASD, try something like "I'm on the spectrum" and see if they know what you're talking about. I'm fascinated by the labels and the way people react to them but realize it might be painful to disclose too widely.
maybe people can understand and still be rude., but I meant for it to have several meanings, because for each person the situation is different. I like to be open is all


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