Aspies leaving WP due to percieved "tone"

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Are you aware of individuals on the spectrum that have a) decided not to join WP, or b) left WP, due to a percieved "tone"?
Poll ended at 07 Feb 2013, 5:16 pm
Yes, I don't know why (individuals) left/did'nt join 5%  5%  [ 6 ]
No, I'm not aware of anyone who left/did'nt join 54%  54%  [ 61 ]
Yes, they indicated they did'nt like "negativity" 21%  21%  [ 23 ]
Yes, they indicated that the site was too positive towards ASDs 1%  1%  [ 1 ]
Yes, they thought the site is too pro-cure 2%  2%  [ 2 ]
Yes, they thought the site did'nt take their interests into account 2%  2%  [ 2 ]
Yes, they felt awkward posting when they have had better life experences 2%  2%  [ 2 ]
Other/please explain in a post 13%  13%  [ 15 ]
Total votes : 112

nessa238
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26 Jan 2013, 6:08 pm

Jaden wrote:
YellowBanana wrote:
Tuttle wrote:
Elitism - either "autistic people are better than neurotypical people" or "Aspies are better than those with classic autism".

Also, people with more challenges being discredited and left out.


Also, I notice those who don't have so many challenges frequently having their diagnosis challenged and being made to feel like they are not autistic enough to belong here...


On that note, I've noticed (although didn't think much of it because it could just be encouragement) that people tend to downsize someone's problems as being solvable simply because such strategy worked for them. I don't think it's really a bad thing necessarily because it can be encouraging for some, but I would imagine solutions are different for everyone.


I think a lot of the time people don't post about a problem wanting suggestions for how to solve it - I get the impression many just want sympathy or people saying they feel the same. That's the impression I often get. In that respect it would probably be useful for them to make this clear. It's as if advice is the last thing the person actually wants. I don't often post on here myself asking for actual advice - I am far more likely to post just to express my frustration or anger with a situation, to see if other people have been in similar situations.

I tend to prefer to find the solutions to problems myself as I like researching things online and finding out how systems work.



Who_Am_I
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26 Jan 2013, 6:10 pm

Tuttle wrote:
Elitism - either "autistic people are better than neurotypical people" or "Aspies are better than those with classic autism".

Also, people with more challenges being discredited and left out.


They just need to be positive and all their challenges will disappear. :wink:


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cyberdad
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26 Jan 2013, 6:16 pm

Hi folks,

If you have (or develop) sensory issues relating to the tone of people's posts then it's best not to spend too much time on discussion forums in general.



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26 Jan 2013, 6:24 pm

YellowBanana wrote:
Tuttle wrote:
Elitism - either "autistic people are better than neurotypical people" or "Aspies are better than those with classic autism".

Also, people with more challenges being discredited and left out.


Also, I notice those who don't have so many challenges frequently having their diagnosis challenged and being made to feel like they are not autistic enough to belong here...


I have seen people argue that AS should be available as a diagnosis to people who have literally no challenges to validate their "autistic" mindset, however diagnoses for such reasons are probably one of the worst reasons to get a diagnosis.

I recall more than one Aspie who has argued that everyone with an AS diagnosis should be able to function as well as they do and if said people with AS diagnoses do not they are being lazy and/or stubborn, playing the victim, wallowing in self-pity, and various other negative characterizations frequently used to shame people with disabilities for not being able to do everything that abled people can do.

There is also a peculiar belief that circulates around here that not having a diagnosis as a child means somehow being more capable because one has never been limited by a label. I think there is some truth to the notion that parents can be overprotective because of a label, but I think that overall, being diagnosed in childhood can and often does mean having better access to supports and services that can make dealing with school and other necessities less of a trial than it might for someone who received no diagnosis and no support. It's not always the case that getting a diagnosis helps nor does not getting a diagnosis always hinder, but I think such a generalization is largely incorrect.



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26 Jan 2013, 6:46 pm

Why does the "reasons for" dx influence the condition. How unscientific is that?

Ive never met anyone with "literally no challenges" to be honest NT or AS



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26 Jan 2013, 6:50 pm

nessa238 wrote:

I think a lot of the time people don't post about a problem wanting suggestions for how to solve it - I get the impression many just want sympathy or people saying they feel the same. That's the impression I often get. In that respect it would probably be useful for them to make this clear. It's as if advice is the last thing the person actually wants. I don't often post on here myself asking for actual advice - I am far more likely to post just to express my frustration or anger with a situation, to see if other people have been in similar situations.

I tend to prefer to find the solutions to problems myself as I like researching things online and finding out how systems work.


I don't even like to post asking for advice on this or any other board. Even if I'm looking for advice and not sympathy people usually post advice that I either already tried or thought about and know won't work and then they get mad if I am unwilling or unable to follow their advice.



nessa238
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26 Jan 2013, 6:57 pm

hanyo wrote:
nessa238 wrote:

I think a lot of the time people don't post about a problem wanting suggestions for how to solve it - I get the impression many just want sympathy or people saying they feel the same. That's the impression I often get. In that respect it would probably be useful for them to make this clear. It's as if advice is the last thing the person actually wants. I don't often post on here myself asking for actual advice - I am far more likely to post just to express my frustration or anger with a situation, to see if other people have been in similar situations.

I tend to prefer to find the solutions to problems myself as I like researching things online and finding out how systems work.


I don't even like to post asking for advice on this or any other board. Even if I'm looking for advice and not sympathy people usually post advice that I either already tried or thought about and know won't work and then they get mad if I am unwilling or unable to follow their advice.


I went through this situation in the past with a male friend who used to talk to me online seemingly only when he wanted to have a moan about his situation in life - ie 'I've got no girlfriend, I'll never find one as no woman will ever want me' - ad infinitum, despite him having had girlfriends in the past and his last relationship having failed as he thought the girl was too over-weight and therefore didn't fancy her - and she was really pretty too!

I'd come out with different ideas for how to either solve the problem or come to terms with his current situation but none of them were ever acceptable to him and after a while I realised he didn't want a solution - he just wanted to express his feelings. The trouble is, I'm not good at endlessly saying different permutations of 'There there, I know how awful this must be for you' - it's just not me. I used to get very frustrated by it all and often end up getting annoyed with him. So I understand how frustrating it is to offer advice and have all ideas batted away as well as being on the other side of the fence and not wanting the solutions other people suggest - which is why I rarely ask for advice - I like to deal with things myself.



Last edited by nessa238 on 26 Jan 2013, 7:00 pm, edited 1 time in total.

Verdandi
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26 Jan 2013, 6:58 pm

answeraspergers wrote:
Why does the "reasons for" dx influence the condition. How unscientific is that?

Ive never met anyone with "literally no challenges" to be honest NT or AS


If someone has literally no challenges related to AS then they do not need a diagnosis. That is in the criteria, where it says:

Quote:
(III) The disturbance causes clinically significant impairments in social, occupational, or other important areas of functioning.


If you have no clinically significant impairments, then you do not need a diagnosis.

Also, you misread my post: Someone can want a diagnosis for those reasons, and be impaired by their autism, and they can be diagnosed. If someone wants a diagnosis for identity reasons but has no autism-related impairments then they should not be diagnosed with AS, PDD-NOS, or autism. It's not the reason for a diagnosis that disqualifies, but not meeting the criteria in the first place. The idea that one deserves a diagnosis just to validate their identity is a rather entitled notion, and I do not think such diagnoses do anyone any good.



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26 Jan 2013, 7:09 pm

The perception and definition of "impairments" is highly changeable and highly subjective

What if someone met the criteria once but no longer does as in the person seeking "un diagnosis" in a thread here?

IMO dont let a book, a therapist, a parent, expert or anyone else tell you who you are.

I see you are pretty much using the Catherine Lord argument. Its no wonder as a group the APA think Aspies are an easy target.

I retain my view they are distinct and i have no doubt in my mind that will come clear with neuroscience not DSM

Thats just my view but getting off topic here and this thread should "set an example" lol



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26 Jan 2013, 7:18 pm

answeraspergers wrote:
The perception and definition of "impairments" is highly changeable and highly subjective


This is a terrible argument to base something like this on. Understanding of impairment is not quite so chaotic as you state here.

Quote:
IMO dont let a book, a therapist, a parent, expert or anyone else tell you who you are.


But you are arguing in favor of people seeking an expert to be told who they are.

Quote:
I see you are pretty much using the Catherine Lord argument. Its no wonder as a group the APA think Aspies are an easy target.


I did not get that argument from Catherine Lord. It is simply how the criteria are written and is an opinion I've held since before I ever heard the name Catherine Lord. I find it rather amazing that the notion that "If you do not have a disorder, then you should not be diagnosed with it" is considered a bad thing.



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26 Jan 2013, 7:24 pm

Its a fact and FLAW in the DSM model - its highly subjective - hence i want the brain scan diag that is now possible but not available.

I am not arguing that at all - you believe in DSM bibles and "disorders" - I believe its for profit and they are pretty clueless and dangerous

Even the DSM5 book is 200 dollars!

You are so far away from what I believe its too much work for me

I didnt say you copied her did i??

Please lets not argue. If you want to PM me and argue we can. This is clearly NOT the thread



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26 Jan 2013, 7:46 pm

The DSM is actually based on research. It is not perfect, and it is not the be all and end all, and I have never tried to propose it was. I do not believe it is "highly subjective" either, and I think that criticism lacks verisimilitude. It is easy to be all or nothing - either it is perfectly objective or it is "highly subjective" but I actually do think that current clinical practices do not lend themselves to highly subjective judgments. If anything, having a clear set of criteria to work from helps mitigate subjectivity and inject a certain degree of objectivity into the process.

I do think that we'll see more and more movement toward neuropsychology and neurology for virtually everything in the DSM and that will indeed be an improvement on the current process. However, this does not mean the current system is completely worthless.



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26 Jan 2013, 7:50 pm

Based on research means almost whatever you want it to mean.

I do believe that its highly subjective - do you have a copy of 4. We will go over it. What exactly is a "deficit" or "impairment" - how is this defined or measured?

They make efforts to mitigate but they are far from sufficient imo.

Its worse than worthless - its dangerous and damaging imo

We agree to disagree on the current but look the same way - I accept that :D



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26 Jan 2013, 7:52 pm

That was the last I had to say here, because you are right that this isn't the thread.

DSM-IV does have definitions for impairment somewhere in it. I'll go look and maybe post a separate thread later on.



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30 Jan 2013, 7:58 am

I will admit, I left the forum for a while because I perceived quite a bit of sexism in some of my favourite sub-forums and I do not handle sexism well.



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30 Jan 2013, 11:39 am

I agree that you tend to find what you're looking for - either negative or positive. Just like in the real world.

However, I have a friend who is autistic and learning disabled. He has a hard time with spelling and has been jumped on because of this. He has decided not to participate.