The reason the notion of autism spectrum should be offensive

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kraftiekortie
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19 Jul 2018, 2:00 pm

LOL....you're one of the few people, period!

I've never known anybody who was free and clear on their home before age 50.

A great accomplishment!



MalchikBrodyaga
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20 Jul 2018, 2:27 pm

League_Girl wrote:
I say this has to be the calmest discussion ever on this topic I have seen. I like it. Also the OP seems to be open minded with his questions. I sense no questioning or judgment in them. The OP didn't start this topic to argue and be right.


Thank you for saying it. I am glad you appreciate the points I am making. I felt attacked at first, but now that you say "its calmest discussion ever" I guess its not about me but about the topic.



Joe90
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20 Jul 2018, 2:52 pm

I'm not saying the OP is wrong or anything. I'm just saying that usually when a thread has lots of pages within a few days of the birth of the thread, it ends up getting derailed into something slightly different to what the OP intended, until attacks start, then after a couple of weeks the mods end up locking it.

It's just a pattern I see on this board often, a bit like the one about Goldfish's diet.


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League_Girl
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21 Jul 2018, 10:59 am

The reason why these get heated is because some people are adamant with their opinions they will argue and be right and not listen to other people. They are so convinced they are right, they dismiss other peoples experience. I think people in this thread might have been skeptical when the OP started this thread because they thought he would be one of those people.


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MalchikBrodyaga
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23 Jul 2018, 11:45 pm

rowan_nichol wrote:
Thank you to the OP for starting this discussion.

I would like to submit a very different perspective.
I find the notion of Autism Spectrum anything but offensive.

The notion of a spectrum appears to be the best approximation to what is observed and experienced, very many differences in degree, severity, but still coming down to the sensory, social, deep rather than wide, one thing at a time rather than multitasking, very different communication profiles compared to the population as a whole.

However, I do find the notion of writing off, or distancing self from peoples whose presentations of Autism, or for who the severity of the difficulties it presents or the needs for support are very different from ones own is rather offensive.

There are rather too many people who want to write off or worse people whose neurology is rather different to the population as a whole. There are some, for example, who use their position as the parent of such a person to reveal most inappropriately very personal information about their child in book. I take some grim satisfaction that the book in question has received many negative reviews from people across the whole wide spectrum of Autism. That parent recieved an important lesson all bullies need to receive. They picked on someone powerless only to find lots of people wading in and calling them to account.


Okay, have you heard of shaddow symptoms of various disorders? I believe autism has shaddow symptoms too: and introverts might be shaddow autistics. But then I can go even further. There is no such thing as 100% introvert or 100% extrovert, everyone is a little bit of both and, therefore, everyone is autistic for having their introverted side. This being the case, autism spectrum should extend to cover the whole population. And, indeed, they already designed AQ test, and you wont' find anyone with zero AQ, so everyone is on the spectrum.

What I am trying to say is this: if you like an idea of a spectrum, then include everyone. If you want to "segregate" by having some people autistic and others not, then why not segregate different parts of the spectrum from each other too -- particularly since the difference between an aspie and severe autistic is far greater than the difference between an aspie and NT, so if aspie and NT are labeled differently, then an aspie and severe autistic should be labelled differently too.

If you say "okay they are labelled differently because of the modifiers in the brackets", then why not just get rid of the label, assign everyone AQ scores, and say NT-s are different from severe vegetbale-like autistic because of their AQ score. Don't like that? Well, then why are you okay with separating aspie from severe autistic just by one small modifier in the brackets?



Last edited by MalchikBrodyaga on 23 Jul 2018, 11:54 pm, edited 1 time in total.

MalchikBrodyaga
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23 Jul 2018, 11:49 pm

League_Girl wrote:
EzraS wrote:
KoC also wrote: "have been diagnosed with learning disability [UK definition of intelectual disability]". So in that case intellectual disability used in that way may not have meant IQ under 70 the way it does in the US I guess. I would probably have a similar diagnosis in the UK if that's how it works. Academically I range from above average to below average depending on what I'm being tested on. In math especially I test below average. Reading and writing is above average. Or was as I've probably caught up to that level age wise.



Because people with severe autism are often misdiagnosed as having a intellectual impairment, I can see why someone on here would be skeptical about that diagnoses and she took it personal. I guess that diagnoses means so much to her she felt attacked and called a liar when it got questioned. Even people with learning disabilities get misdiagnosed as being slow so people would also question their IQ as well if they seemed too intelligent. My mom even had a student who had a MR diagnoses but my mom didn't believe it because he was too smart by how he thought and processed things and how he talked so she taught him to read. The problem was he was just illiterate and because he was so smart, he was reading at the 3rd grade level by the end of the year and thanked my mother for helping him. He was in 6th grade. His mom actually cried when she found out he was just illiterate. Can you imagine how many years was wasted because of that diagnoses? I hope he turned out well despite the lack of education he was given over the years. Hopefully after that he was finally given the right to a normal education like his peers and he still did special ed to catch up on his education that was lost like I did. It would be all thanks to my mother.

My mom was the only one who looked at him as a person than the label and believed in him.

So in some cases, some people do truly have a low IQ and they may take it as an attack when anyone questions it. But it's the same as when anyone questions your autism and your level because of how well you write here and how articulate you sound. But it's all based on stereotypes when people make these assumptions and question your (the general your) diagnoses.


Thank you for sharing this story. This is actually one of the big reasons why I have issues with modern diagnostic system. If people weren't so quick to diagnose, they probably *would have* considered the possibility of that kid being illiterate a lot earlier. And this also applies to why I don't want to give people "severe" diagnosis if they are only "mildly" affected, since severe diagnosis can potentially damage someone's life, as it did to that kid. And thats why its a good idea to split autism spectrum in a way that stands out more than simply having different modifiers to the same word.



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24 Jul 2018, 10:36 am

There probably is a “autistic traits” spectrum that involves every human. But the DSM is a disorder manual and one should be impaired in some way to be labled “autistic”. Where “NT” ends and “Autistic” begins is never going to be an easy to define line. But that is true with a lot of non physical or mental conditions. when does “feeling a bit depressed” end and clinical depression begin? While labels will always be flawed that is not a reason not to use them and make them better, it is the “lesser of two evils” if done well.

The DSM in getting rid of the “Aspergers” diagnosis wanted to fix what they felt was an overdiagnosis problem. “Aspie Supremicists” wanted out of the manual and because they felt superior humans like themselves were not disordered and were not doing well as they should because the NT’s discriminated against their gifts in part because they were associated with those lower “autistic” people. In part the idea of “Aspie personality” vs autistic has taken hold, just not enough to satisfy those who hold that view. “Aspies” are more viewed as quirky socially ackward geniuses, the “moderate” intellegent people from the old diagnosis has been all but forgotten. In another important way the DSM has failed, the prevalence rate is still going up albeit a bit slower. Now people that would have been diagnosed with Aspergers are now diagnosed with ASD Level 1 with no cognitive or language impairments. It is mostly understood that these people are “Aspies” as the term Aspergers is still widely used. The clinicians get nice payments. We are not considered really autistic, curiosities to be fawned over ala Shelden or just people who have been diagnosed with fad diagnosis who should toughen up. And along comes people with your type of thinking agreeing with them in certain ways. If we are viewed as special and gifted there is no reason anybody should have empathy or sympathy for us. It will go back to what many of us in middle age have had most of are lives unreconition.

The above issues are due in part to the DSM. In creating a seperate Aspergers diagnoses it encoured people to think of themselves as not really autistic. That was a built in flaw. Lorna Wing in her paper proposing the aspergers diagnoses specifically stated that the diagnosis was a way of diagnosing people as Autistic without diagnosing them with Autism. Parents would be more accepting of a label that did not have a stigma. When the DSM under pressure from insurance companies and school districts panicked due to percieved overdiagnoses they made the problem worse because the “levels” subcatagories were so poorly thought out and predictably have been so poorly implemented.


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Slug on a Bike
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24 Jul 2018, 12:40 pm

The only reason
I don't like
"Spectrum,"
is that it doesn't seem
sufficiently complex.

A spectrum
suggests a
two dimensional gradient,
(How autistic are you?)
which doesn't nearly
account for
all the variations
and subtleties the
ASD population
exhibits.



MalchikBrodyaga
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25 Jul 2018, 12:04 am

ASPartOfMe wrote:
There probably is a “autistic traits” spectrum that involves every human. But the DSM is a disorder manual and one should be impaired in some way to be labled “autistic”.


Being or not being impaired is also a relative thing. I would argue everyone is impairred in some way -- if you find someone who isn't impaired, that would be a really happy person indeed.

ASPartOfMe wrote:
Where “NT” ends and “Autistic” begins is never going to be an easy to define line. But that is true with a lot of non physical or mental conditions. when does “feeling a bit depressed” end and clinical depression begin?


Thats precisely the point, and this is what people should seriously think about, instead of brushing it off.

ASPartOfMe wrote:
While labels will always be flawed that is not a reason not to use them and make them better, it is the “lesser of two evils” if done well.


And who defines what "done right" is? What makes you think that the way asd diagnosis is treated today is lesser of the two evils? Is the difference between aspies and severe autistic "less" than the difference between aspies and NT-s? If not, what makes you think its lesser of the two evils?

ASPartOfMe wrote:
The DSM in getting rid of the “Aspergers” diagnosis wanted to fix what they felt was an overdiagnosis problem. “Aspie Supremicists” wanted out of the manual and because they felt superior humans like themselves were not disordered and were not doing well as they should because the NT’s discriminated against their gifts in part because they were associated with those lower “autistic” people.


So why don't we hear their voices nowdays? Are you saying they all signed off of wrongplanet the moment they got undiagnosed?