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They plan to delete Asperger from DSM 5

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What do YOU prefer
I prefer aspies don't have any label at all 4%  4%  [ 8 ]
I prefer aspies be diagnosed with something outside autism spectrum 9%  9%  [ 16 ]
I prefer aspies be diagnosed as HFA 34%  34%  [ 62 ]
I prefer aspies continue to be diagnosed with Asperger 53%  53%  [ 97 ]
Total votes : 183

Roman
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29 Dec 2009, 5:08 pm

Psygirl6 wrote:
Roman wrote:
Psygirl6 wrote:
Higgs_boson wrote:
[



I am sorry they did this to you. I really hope you recover.

What country was that? I am asking because in USA you are not forced to have any services unless you apply to them -- the only exception is when you are in danger of hurting yourself or others. Also, in USA they can't "put" you into any classes -- you choose your own classes.

Did your PARENTS request these services by any chance? If so, it would be the problem with their attitude a lot more than the label itself. I am asking this because my own parents are very overprotective. They never got the system to do their dirty job, but I am sure it is simply because they didn't have any means to.


thanks I am trying to recover. This is in the USA. The therapist that my parents had sent me to was the one who convinced them that I needed those programs. The agency that was contacted had even convinced and made "promises" that looked good, but were just faked. The promised that I would have all the independence, which I did not. They made promises to both me and my family, which they not only did not give, but did the opposite by making my life hell. Then when I went to complain to my parents, the agency would tell them that I was lying and that I made up stuff. What made my parents realized what these people did, is that the agency themselves started to visible screw up to where my parents could see. I even involved my doctors in it and finally my parents sided with me. Now, the agency is trying to kiss my ass because I had a successful college semester because I am the first who went to college, and they need publicity and money. They did nothing, but try to hold me back in my endeavor for independence. I did it all myself. I will be getting the last laugh, when I am making money, graduating and no giving them a dime.


I am glad you are trying to recover. I am sorry they have delayed you so much -- you started at 1997, and you are still in school. How come your parents didn't see something so obvious? Are you still undergrad? How many years do you have till you graduate?

I am surprised something like this happened in USA. I know according to USA policy parents don't have legal authority over you once you are over 18. So how did they get around this?



millie
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29 Dec 2009, 5:26 pm

I am formally dx'ed with AS. But I do not mind the generic term "autism spectrum disorder" at all. And i even support it.
I think this is the case because of others in my family on the spectrum. I like the inclusion of all under the one banner.

That being said, one of the issues I do have with the change in name is that prominent AS specialists outside of the USA were not consulted on the alteration of the nomenclature. That smacks of undemocratic process and a lack of adequate and balanced consultation on the part of those compiling this part of the next DSM.

SO for me, the new term is not a problem. I am in favour of it.
But the arrival at it and the lack of adequate consultation IS problematic.


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Roman
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30 Dec 2009, 12:25 pm

millie wrote:
That being said, one of the issues I do have with the change in name is that prominent AS specialists outside of the USA were not consulted on the alteration of the nomenclature. That smacks of undemocratic process and a lack of adequate and balanced consultation on the part of those compiling this part of the next DSM.


You have to remember that DSM is only used in USA. Europe uses a different manual, which is called International Classification of Deseases (ICD). Thus, it is only logical that European doctors are not consulted in development of DSM, just like American doctors are not consulted in development of ICD. Of course, I don't know if the latter is the case, but I guess it should be.



millie
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30 Dec 2009, 5:10 pm

Roman, in practice (and not in theory) , the DSM is definitely used beyond the USA. It is referred to by clinicians all over the world. Many of the ASD specialists I know or know of, refer to it and/or have a working knowledge of it and use it as a reference. And their complaint is that they are not adequately consulted because of a kind of USA centric attitude...which is somewhat outmoded, given that some of the most interesting research into ASD's has been done in Canada, Switzerland, Australia and other places that are not part of the USA!

and yet, in saying this, I still agree with the change to the new terminology to ASD and autism


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Marcia
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30 Dec 2009, 6:06 pm

I'm in Scotland and my son was diagnosed with Asperger's according to the WHO ICD-10 criteria. At the assessment meeting I asked about DSM and was told that it was not widely used outwith the US. It does seem to be used in a number of countries outwith the US, though, judging from what I read here and presumably the changes to DSM will be monitored and considered by those who influence ICD-10.

My son has a number of sensory issues which were not considered as a part of his Asperger's, although in the US they would be, and they are to be assessed separately.

Those who made the diagnosis were quite clear that AS is an ASD and I refer to my son as having Asperger's or being autistic, more or less interchangeably.



Psygirl6
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30 Dec 2009, 11:34 pm

Roman wrote:
Psygirl6 wrote:
Roman wrote:
Psygirl6 wrote:
Higgs_boson wrote:
[
I am glad you are trying to recover. I am sorry they have delayed you so much -- you started at 1997, and you are still in school. How come your parents didn't see something so obvious? Are you still undergrad? How many years do you have till you graduate?

I am surprised something like this happened in USA. I know according to USA policy parents don't have legal authority over you once you are over 18. So how did they get around this?


I actually just returned back to school after 11 years. I actually dropped out in 1997, went back in 1998 for a semester, but I did not want to do art. I wanted something medical, but that did not happen. I ended up in that horrible day/residential program for almost 10 years. this year, i took back my life and now I got my parents to realize that this was not a good set up for me.I got re-evaluated and was definately found to have Asperger's and a high intelligence level, which made it very inappropriate to be in such residential/day programs. I returned back to school this past September, going to school for my passionate medical career. I am going to be a Histology Technician, preparing tissues from biopsies and studying human tissues. I actually had a great successful semester, with a GPA of 3.70, A in Human Anatomy, B+ in English Composition, A- in Chemistry skills (to prepare for General Chemistry next semester), and an A- in Algebra 2 for technology.



Callista
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30 Dec 2009, 11:59 pm

They are not going to "delete" Asperer's. They are going to merge it with Autism. If you are diagnosed Asperger's now, your diagnosis will simply change to Autism Spectrum Disorder.

I almost never use large fonts, but this really had to be said. Everybody keeps panicking over this for no reason and I'm quite tired of it.


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Claradoon
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31 Dec 2009, 1:05 am

Callista wrote:
They are not going to "delete" Asperer's. They are going to merge it with Autism. If you are diagnosed Asperger's now, your diagnosis will simply change to Autism Spectrum Disorder.


Well that doesn't sound so bad. I don't tell many people, but if I do, I'd like to use a term they've heard of.