"Self diagnosis" trends...source of ridicule
Risperidone is absurdedly expensive. A year or two ago, my psychiatrist prescribed a low dosage for sleeping (I'm allergic to most sedatives, I guess, and this was supposed to help), the pharmacy said it was $389 for one month's prescription. The generic was $150 a month. I told the psych no way.
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"Nothing worth having is easy."
Three years!
Risperidone is absurdedly expensive. A year or two ago, my psychiatrist prescribed a low dosage for sleeping (I'm allergic to most sedatives, I guess, and this was supposed to help), the pharmacy said it was $389 for one month's prescription. The generic was $150 a month. I told the psych no way.
You allergic to Benadryl? Best sleeping pill ever! lol And it's nice and cheap. Like $5 for a bottle of 100 of 'em.
Some people have issues being groggy in the morning with benadryl, but that's gonna happen with antipsychotics too.
Of course, Pfizer was just fined 2.3 BILLION dollars for actively encouraging doctors to prescribe drugs for uses and in doses that they're not approved for.
Risperidone is absurdedly expensive. A year or two ago, my psychiatrist prescribed a low dosage for sleeping (I'm allergic to most sedatives, I guess, and this was supposed to help), the pharmacy said it was $389 for one month's prescription. The generic was $150 a month. I told the psych no way.
You allergic to Benadryl? Best sleeping pill ever! lol And it's nice and cheap. Like $5 for a bottle of 100 of 'em.
Some people have issues being groggy in the morning with benadryl, but that's gonna happen with antipsychotics too.
Of course, Pfizer was just fined 2.3 BILLION dollars for actively encouraging doctors to prescribe drugs for uses and in doses that they're not approved for.
Benadryl does nothing for me, unfotunately. I should probably modify my statement somewhat; the ones I've been prescribed don't work until a higher dosage, at which point I loose the ability to walk in even a reasonably straight line. And while I do sleep then, I have an awful migrane the next day, no exception (even if I didn't take enough to sleep the night before). The over the counter ones flat out don't work, and I still get a migrane the next day.
Being fined for something like that kind of indicates a big problem. I hadn't heard about that.
_________________
"Nothing worth having is easy."
Three years!
I was self diagnosed before my diagnosis. I will admit, after reading of several people who were wrong, I was concerned. However, my suspicions were reaffirmed by my daughter's neurologists. The first came right out and asked if I was Autistic. I do believe he was on the spectrum himself. The second suggested an evaluation. Also, my close friends had mentioned some things that were off, but seemed normal to me, as I had been that way my entire life.
The life I'm living now is making my symptoms more noticeable, as I have little reason to practice coping skills. While in school, or working, I had to at least try to fit in with NTs on nearly a daily basis. Now, because I'm home with my children, because my daughter has so many medical needs, I'm very isolated. I only speak to doctors, teachers, and a few other people. The former two are easy, as medicine is my area of interest, and I can go on and on with my focus, and not have to worry. I also have an easy time talking to teachers.
My eye contact went from fairly acceptable, to terrible, and I stim and show other outward symptoms more often. I also have a harder time in conversations.
I often wonder if this is good for me, as I have very little stress, or bad for me, because I regress. It has nothing to do with this thread, just a thought.
I do not believe those who self diagnose are inherently wrong, as I know I wasn't. I do, however, think that some mistake another disorder for AS. That being said, it doesn't hurt me if they do.
Last edited by veiledexpressions on 27 Oct 2009, 4:46 pm, edited 1 time in total.
Electric_Kite
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Bleah. I wish the mods would just make a rule banning these 'self-diagnosed = faking it' posts and can the trolls who make them.
Here I am in an academic library with access to massive databases of scientific and medical journals, which update faster than they can print the paper journals. They contain tens of thousands of nicely searchable articles and research papers about Asperger's and not one mentions this terrible problem of these millions of self-diagnosed fake autists running around screwing up the research. 'Google it' says troll. I just 'googled' it with five different monsters that flatten Google when accuracy is a matter of interest.
Here I am in an academic library with access to massive databases of scientific and medical journals, which update faster than they can print the paper journals. They contain tens of thousands of nicely searchable articles and research papers about Asperger's and not one mentions this terrible problem of these millions of self-diagnosed fake autists running around screwing up the research.
I wouldn't imagine it could possibly interfere with research. Credible researchers would confirm the diagnostic status of the test subjects. I believe the only true qualms one could have with self diagnosing in some instances, would be sort of a watering down of AS. For instance, if someone sees someone who is simply shy claiming to have AS, but does not, it could create an image in their mind about AS.
Personally, I'm not terribly concerned about what others think, so I do not see that as a good reason for deriding others for their "status". Most of the diagnosed were self diagnosed at some point.
I really don't understand the hostility from the "diagnosis snobs", as I call them.
leejosepho
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To try to add some perspective here ...
Along with my self-diagnosed AS or HFA -- still trying to sort that out -- I happen to be a real alcoholic ... and in a completely different setting, some people considered me the equivilent of a "diagnosis snob" in relation to permanent recovery from chronic alcoholism. I certainly did not view myself as "special" or any "better" just because I am a *real* alcoholic (who also even happened to have a professional diagnosis as one), but I definitely did know my subject matter better than most, and I did not just shut up and encourage everyone along when I saw other real alcoholics getting hurt by bad information from mere social desperados believing (and even being professionally told) they had something useful to contribute.
Please know I am not in any way defending any kind of snobbery here, whether fancied or real. I only mean to be suggesting things are not always as they might happen to seem.
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I began looking for someone like me when I was five ...
My search ended at 59 ... right here on WrongPlanet.
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Heh, yeh, hence why the diagnosis comes about, you have suspicions, you go to the doctor.
I don't see why it's snobbery to have a preference for doing things the right way.
I have a question for all the self-diagnosed who are going around screaming those who are a little hesitant on the whole self-diagnosing thing calling them snobs. Am I snob for merely believing that one should not say they have Asperger's or Autism without a diagnosis? Am I a snob for worrying that those who SD who seem more anept than I am then people expect me to be exactly just as functioning as one who is assuming or is quite certain they have an ASD even though they don't have it on paper? Am I snob because I don't think people who aren't diagnosed should go to a support group when they don't have a specific diagnosis and don't think they should get government help?
I have no problem with people who SD as long as they don't go around proclaiming they have it to the public, and by public I mean off the computer.. I have no problem with SD people here, I think some of them have tried to get a diagnosis but the psychologists or psychiatrists or whoever else is just not helping them correctly and making it more difficult for them. I'm starting to get a bit offended by people assuming I am a snob for having a belief such as what I stated in my first paragraph. I have stated i do not have problems with SD as long as they don't go around telling people they have it when they don't know if they do .. to other people. Like they can say "I suspect such and such", which is fine.
I am just irked by those who think just cause they have a slight stimming addiction that they are on the spectrum, when that's the only symptom.
I am not a snob, and I don't appreciate people stating those who believe that they should get a professional diagnosis before goign around proclaiming they have an ASD are diagnosis snobs. I just have a belief is all.
I have no problem with people who SD as long as they don't go around proclaiming they have it to the public, and by public I mean off the computer.. I have no problem with SD people here, I think some of them have tried to get a diagnosis but the psychologists or psychiatrists or whoever else is just not helping them correctly and making it more difficult for them. I'm starting to get a bit offended by people assuming I am a snob for having a belief such as what I stated in my first paragraph. I have stated i do not have problems with SD as long as they don't go around telling people they have it when they don't know if they do .. to other people. Like they can say "I suspect such and such", which is fine.
I am just irked by those who think just cause they have a slight stimming addiction that they are on the spectrum, when that's the only symptom.
I am not a snob, and I don't appreciate people stating those who believe that they should get a professional diagnosis before goign around proclaiming they have an ASD are diagnosis snobs. I just have a belief is all.
This is not what I meant by "snob". I understand, and I agree. I am referring more to a poster earlier in this thread. There was outright hostility, and there were also many unfair generalizations made.
I must admit is very difficult to get a diagnosis, at least in my area. I had called so many different doctors, from neuropsychologists and neurologists, to psychologists. Many said they only dealt with children, or were unfamiliar with AS. the closest doctor was 3 hours away, and did not take my insurance. It can be daunting, particularly to one on the spectrum.
Electric_Kite
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No, you're just anxious. But it's pointless. I am undiagnosed and have more functioning problems than a friend of mine who is diagnosed. People vary.
I don't think there is anybody self-diagnosed who thinks they ought to get government support for it. If I wanted that support and thought I could get it I'd get dxed. I haven't heard anybody say that it ought to be just fine to walk in and get disability benefits without any professional consultation.
As for support groups, what does it possibly hurt for undiagnosed people who want support in dealing with their autistic traits to join the group? If you don't like the support group, form a private one with the people you do like.
It is snobbish to figure that self-diagnosed people take something away from you just by coming to a conclusion based on self-analysis.
leejosepho
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Having a preference for doing things "the right way" when it has been irrefutably proved there actually *is* a "right way" equally available to all is definitely *not* snobbery. But until then ...
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I began looking for someone like me when I was five ...
My search ended at 59 ... right here on WrongPlanet.
==================================
Availability has nothing to do with the legitimacy of SD.
I can agree now that people who are unable to find someone qualified to diagnose them due to certain restraints (distance, money) should be free to participate on forums and in AS support groups if they truly suspect that they have it. But I don't think they should say "I have AS" or that they are on the spectrum, but they should be able to seek advice, comfort, whatever for their symptoms until they can be assessed. I don't think they should really give out advice either, they might not have AS and what works for them might be damaging for someone else on the spectrum.
I'm self-diagnosed but like others do not "broadcast" -- there is no reason for it. I shared the information with my girlfriend and it comes up from time to time and can be helpful in dealing with "issues." I mentioned it also to my family and they shrugged a bit; I don't think it was going to inform them of anything they hadn't learned was odd about me already from knowing me for my whole life. I'm "on the spectrum" by any diagnostic test but haven't felt the need to see a professional. I read every book on Autism in my local library when I first heard of high functioning forms of Autism and Asperger's several months ago. The huge differences in opinions on AS in general are enough to make the notion of a so-called concrete partition between normal and spectrum absurd. I've seen and read all sorts of information and diagnostics that range from vague and psychologically poetic/riddling to "scientific" and characterized by jargon to the point of absurdity. Somewhere in the middle is a relatively definable condition that many relate to, yet still there is controversy, and the most autistic of all can't speak at all about the issue so there is great absurdity to that as well.
