why are self-diagnosed aspies considered "posers?"

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hanyo
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05 Jul 2012, 3:42 pm

Venger wrote:

People with other undiagnosed disorders like schizophrenia or ASPD probably sometimes claim to have autism since autism has obvious positive aspects to it.


I'm not afraid of being diagnosed with something else if I do have something else and I didn't pick aspergers because there are positive aspects. I picked it because it seemed to fit. I could have something else.

I just don't have any way to get diagnosed with anything. I don't know how they never diagnosed me with anything as a child. I even did a 30 day evaluation.



lostgirl1986
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05 Jul 2012, 3:51 pm

Venger wrote:
Self-diagnosed people are probably afraid of being officially diagnosed with a different mental disorder that isn't AS.


I'm not worried and I'm seeking out a professional diagnosis starting next week. My psychiatrist is finally coming back.



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05 Jul 2012, 3:56 pm

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Last edited by SpiritBlooms on 09 Jul 2012, 6:54 pm, edited 1 time in total.

edgewaters
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05 Jul 2012, 5:06 pm

SpiritBlooms wrote:
But about those who self-diagnose. I say I'm self-diagnosed, but I don't in any way take that self-asessment as seriously as I do a professional diagnosis, and I'm not going around telling people I have Aspergers. I only mention it here on this forum, and to a few others I mention the possibility - people very close to me. I don't say I have AS even in that case. I say I think maybe I do.


I do exactly the same thing. I guess it's just a semantical difference, really.

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But it explains a lot about me, and especially with my spouse and me we both see answers in this to so many things we've come up against in our lives. Things that were just confusing and frustrating before are now explained. "Oh, that's what that is!" It's something of a relief, let me tell you.

The more I read about AS the more, rather than less, revelations I have, and the more convinced I am.


I know so much what you mean. It's been tangibly useful to me in certain ways, to have some sort of metric to go by, and to have it confirmed in practice and in history as explaining why people have reacted to me the way they have and why I function (or not) the way I do.

This still isn't quite enough for me, though. There are a few things I don't relate to, things I'm not sure about, when I read explanations of the triad of impairments; I meet about half the things under each category of the triad, in my estimation. I don't seem to see myself quite the way others do, though, so I don't know.

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But still, I'm retired, and I don't see what good a diagnosis would do me, even if I could afford and could get one. It's an explanation to me about me. That's the best thing I've gotten out of learning what AS is. Before I learned about it, I just knew there was some undefined something wrong with me all my life that introversion and shyness didn't quite cover and which made me strange, outcast, and at times lonely. Lonely because I thought I was supposed to have more people in my life. Now that I know I probably have AS I've let go of that assumption and I feel relieved to just be me and think well, that's me. I don't have to have friends. I'm okay with it.


Even if I accept a diagnosis of something else, I will always relate to it. And I'll never let myself be defined by it, if I do accept it. Sometimes I see some of the younger people around here almost striving to stay within the lines of what is or is not "aspie". To me it's a tool to try and have a more fulfilling life and be a more useful member of society. The reason I seek diagnosis is mainly to rule out other things, and to have some vehicle for things like job accomodations, perhaps useful therapies if I can get them, etc. I don't need the diagnosis to relate to it and benefit from understanding certain aspects of myself, in fact, the diagnosis and the label are both completely irrelevant to that.

Also, well, my functional deficits are pretty bad. I need some help. I am not in crisis (suicidal or a threat to others or breaking down in tears all the time), I don't seem to have any delusions or bizarre types of thinking, but my functional deficits are pretty much as bad as any schizophrenic, in terms of social relations, employment, ability to take care of myself, and so on. So, diagnosis becomes necessary at some point, even without a specific crisis. I'm vulnerable enough that I can't really afford to wait for a crisis, I could easily end up homeless or something.



SpiritBlooms
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05 Jul 2012, 5:31 pm

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Last edited by SpiritBlooms on 09 Jul 2012, 6:57 pm, edited 1 time in total.

tall-p
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05 Jul 2012, 10:37 pm

edgewaters wrote:
I am a little worried about being officially mis-diagnosed with the wrong mental disorder. Particularly if they want to medicate it. But I'm not worried if someone who knows what they're doing has an alternate diagnosis.

I'm an old man, but when I was growing up, people with mental problems, serious problems, were hospitalized. Autistics were sent off to their own "special schools."

Psychologists and psychiatry have turned into pill pushers for the most part. They don't cure people, they try to improve their moods with medication. There is NO medicine for ASD, BUT they will give you something to try, if you present with anxiety, or depression. Then you come back and tell him/her how that worked for you. This relationship can go on forever. But I agree, they can, and often do misdiagnose.


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06 Jul 2012, 1:08 am

Venger wrote:
Self-diagnosed people are probably afraid of being officially diagnosed with a different mental disorder that isn't AS.


I've also self-diagnosed and sought confirmation on major depression and ADHD. While I didn't agree with it, when my mother pointed out that she thought I had fibromyalgia, I sought that diagnosis as well. I am not opposed to receiving diagnoses other than AS, but I want them to be accurate. Which is why I thought PTSD was a possibility until I spoke to a professional and found I didn't have enough symptoms to actually have it.



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06 Jul 2012, 10:10 am

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Last edited by SpiritBlooms on 09 Jul 2012, 7:03 pm, edited 1 time in total.

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06 Jul 2012, 10:34 am

Jtuk wrote:
I'm really unsure wether to take the next step. My current personal circumstances are close to optimal, but a small slip could be disasterous. If this happens I won't have the opportunity to get a diagnosis in time to help. This is an awkward situation.


In the UK it can take months or years to get a diagnosis just because of the slow processes of the NHS. To that end it would be appropriate for you to start the process before a small slip becomes disasterous....

My diagnosis was initially carried out by a psychiatrist with an interest in ASDs in adults. It took 5 months from when I first saw my GP to ask for a referral until I received my diagnosis - prior to the diagnosis I saw the psychiatrist 4 times over 3 months, When he gave me my diagnosis (which was of an unspecified Autism Spectrum Disorder) he said it was obvious from when he first met me. I recently had to have a second evaluation by an autism specialist as I have been have been having significant difficulties in my life and am in need of support. From my psychiatrist referring me to the date I was seen was 3 months. The autism specialist said he had never seen someone who ticked so many boxes but hadn't been diagnosed with an autism spectrum disorder before adulthood - he refined my diagnosis to Asperger Syndrome, though I prefer to continue to use the term ASD because of negative connotations associated with Asperger Syndrome (the whole "faker" thing). I think that this time span was actually pretty quick in terms of UK diagnosis ... so definitely best to start the process sooner rather than later.

Until I received the first diagnosis my label here was "I'm not sure if I have it or not" as to claim I had it if it wasn't professionally confirmed seemed very wrong.


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Last edited by YellowBanana on 06 Jul 2012, 10:46 am, edited 1 time in total.

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06 Jul 2012, 10:41 am

I would be 'self diagnosed' but it's not like I spent 10 minutes on Google and figured it out. In fact, when I first heard the term it sounded like my brother (since he has a sky high IQ, zero common sense and works in an niche industry notorious for having a large % of Aspies). It was only later that I stumbled upon this http://wiki.answers.com/Q/What_are_sign ... s_Syndrome when researching my mother's health issues. It literally described me perfectly but I wanted to seek some professional opinions not some unreliable wiki. Bottom line I checked the library and was shocked that I was literally reading my own autobiography. Literally everything suddenly made sense! I honestly thought there was NOBODY like me in the world.

So, while I've never received a formal diagnosis I do know several people who deal with Mental disorders for their career and all have told me it's very likely I have it and mentioned behaviors I never even considered. Since there's no 'cure' (I've already adjusted most of my behavior) and Doctors have been consistently wrong throughout my life, it seems pointless to get a diagnosis. If I'm offered one great but it's not worth the time and money since I know even if I don't have AS I have almost all the symptoms and forums like this have helped a lot.

One thing I would like to point out. For a professional guideline, the DSM IV is incredibly subjective and open to interpretation. Therefore it's possible that I might not be diagnosed now even though as a child I was a textbook example of an Aspie and you obviously don't outgrow it.



edgewaters
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06 Jul 2012, 10:44 am

tall-p wrote:
Psychologists and psychiatry have turned into pill pushers for the most part. They don't cure people, they try to improve their moods with medication. There is NO medicine for ASD, BUT they will give you something to try, if you present with anxiety, or depression. Then you come back and tell him/her how that worked for you.


Yeah I am getting the picture that is what they are probably going to do. Even my GP was on all about moods and drugs etc. There's no mood problem ... unless you count rarely ever having any lasting mood of any kind, good or bad.

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This relationship can go on forever.


The relationship won't last long if that's all they got.



viv
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06 Jul 2012, 11:08 am

I've been using this thread to help me think about whether I should get professionally diagnosed. My final answer is no, never, under no circumstances. I think most high functioning Autistics would feel the same way. Here's why:

1. I have a job and my future job prospects look very good. I worked hard for this. What would happen to my job prospects if I were to be diagnosed with a mental illness?

I appreciate that some people on here believe that Asperger’s has positive aspects. But let’s not get carried away, you can attach famous names and achivements to just about any disorder. However, this does not matter. To most people DSM means crazy and I doubt trying to highlight the positive aspects of AS to employers and potential clients would in any way offset that. People are not eager to trust important matters to those who are diagnosed with a condition like AS. Perhaps there are exceptions for the more common ones like depression or bipolar - but I doubt Autism would fall under that category

2. Today people mostly seem to think I’m a nice, normal, (albeit quiet, private) person. This is very, very good. Growing up and into my higher education, I was consistently called weird and crazy and avoided by most people. I have worked very, very hard, and continue to work very hard to get things to where people see me as mostly normal. Now I’m supposed to just give this u get professionally diagnosed with a mental disorder? Why would I want that label permanently attached by a mental health professional? No way. I will not go back to the way things were. For all outside intents and purposes, I am an NT and that is exactly what people around me will see.

I don't want outside Help - I don't want to be treated different - I want people to treat me like I'm a normal person!! ! I don't know if some people on here have noticed - but there's a social stigma attached to being in the spectrum.

I like that I can come here and find a place where I can relate, and find people who seem to have similar experiences to mine. I’m even interested in advocacy and community meetings so long as people I know or work for don’t ever find out about it. That being said, this self-diagnosis is staying as private as possible.

I can't imagine many other high functioning Aspies feeling any different. So - if you limit functioning in the community and advocacy only to those with a professional diagnosis, you will get rid of many of us high functioning ones who have little to gain and lot to lose. It will unrealistically schew the spectrum and perpetuate a flawed image of all Autism. Consider what losing most of the high functionings leaves us with in terms of Autism self-advocacy? It leaves us with an advoacy dominated largely by families of low functing Autistics and mental health professionals (which to my eyes looks alot like the situation now - Autism Speaks anyone). Any notion that families and mental health professionals will act and advocate in the best interests of the Autistic is completely contrary to what we seen in the history of mental illness.



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06 Jul 2012, 11:21 am

viv wrote:
I've been using this thread to help me think about whether I should get professionally diagnosed. My final answer is no, never, under no circumstances. I think most high functioning Autistics would feel the same way. Here's why:

1. I have a job and my future job prospects look very good. I worked hard for this. What would happen to my job prospects if I were to be diagnosed with a mental illness?

I appreciate that some people on here believe that Asperger’s has positive aspects. But let’s not get carried away, you can attach famous names and achivements to just about any disorder. However, this does not matter. To most people DSM means crazy and I doubt trying to highlight the positive aspects of AS to employers and potential clients would in any way offset that. People are not eager to trust important matters to those who are diagnosed with a condition like AS. Perhaps there are exceptions for the more common ones like depression or bipolar - but I doubt Autism would fall under that category

2. Today people mostly seem to think I’m a nice, normal, (albeit quiet, private) person. This is very, very good. Growing up and into my higher education, I was consistently called weird and crazy and avoided by most people. I have worked very, very hard, and continue to work very hard to get things to where people see me as mostly normal. Now I’m supposed to just give this u get professionally diagnosed with a mental disorder? Why would I want that label permanently attached by a mental health professional? No way. I will not go back to the way things were. For all outside intents and purposes, I am an NT and that is exactly what people around me will see.

I don't want outside Help - I don't want to be treated different - I want people to treat me like I'm a normal person!! ! I don't know if some people on here have noticed - but there's a social stigma attached to being in the spectrum.

I like that I can come here and find a place where I can relate, and find people who seem to have similar experiences to mine. I’m even interested in advocacy and community meetings so long as people I know or work for don’t ever find out about it. That being said, this self-diagnosis is staying as private as possible.

I can't imagine many other high functioning Aspies feeling any different. So - if you limit functioning in the community and advocacy only to those with a professional diagnosis, you will get rid of many of us high functioning ones who have little to gain and lot to lose. It will unrealistically schew the spectrum and perpetuate a flawed image of all Autism. Consider what losing most of the high functionings leaves us with in terms of Autism self-advocacy? It leaves us with an advoacy dominated largely by families of low functing Autistics and mental health professionals (which to my eyes looks alot like the situation now - Autism Speaks anyone). Any notion that families and mental health professionals will act and advocate in the best interests of the Autistic is completely contrary to what we seen in the history of mental illness.


Very well stated



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06 Jul 2012, 11:29 am

viv wrote:
I can't imagine many other high functioning Aspies feeling any different. So - if you limit functioning in the community and advocacy only to those with a professional diagnosis, you will get rid of many of us high functioning ones who have little to gain and lot to lose.


Low-functioning is not synonymous with diagnosed - there are many on the high functioning end who are diagnosed. If you're completely functional, I agree - you don't need a diagnosis. I'm not sure why that means you couldn't come here and relate to people, or do advocacy. You don't need a self-diagnosis or a professional diagnosis to do either of these things. Why do you assume you do?



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06 Jul 2012, 11:38 am

If I do tell someone about it I'd say I'm pretty sure I have it. That certainty came from talking to a coworker who has a background in psychology. She asked if I had AS. I didn't know what it was at the time.
I talked to a friend who has a doctorate in occupational therapy and who used to do behavioral therapy for autistic kids. I've known her for 6 years and she said she thought for many years that I was on the spectrum.

After that I spent nearly all of my free time for a week reading about ASD.

I sent my mom an eamil about all this and she agreed that I have many of the symptoms of AS.

I do want to get a professional assessment to get some conformation. My big obstacle at the moment is money.

Not knowing "for sure" is driving me insane!
My OT friend is the closest to a professional with a background in ASD that I've talked to and she's pretty sure I'm an aspie.


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Jtuk
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06 Jul 2012, 12:40 pm

YellowBanana wrote:
In the UK it can take months or years to get a diagnosis just because of the slow processes of the NHS. To that end it would be appropriate for you to start the process before a small slip becomes disasterous....


You are right, although Wales seems much better resourced. I'll give it a couple of weeks, then make a GP appointment.

Jason