Is WP attracting too many of the wrong people

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Dinosaw
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06 May 2011, 4:27 pm

Luci wrote:
Beabe wrote:
I think if you think you might have it then you should just get yourself checked. You may think you have it but you are not a doctor. Plus if you get checked and have it then you can get help with thing within the syndrome that cause you problems. There is also the chance that you may not have it and have something else or nothing at all. I don't really get why people will claim for years they have it but go undiagnosed. I mean there is just as much chance you could be wrong. Self diagnosing of the internet or books isn't the best. Its like people having a cough checking the symptoms online and thinking they have tb. Not as bad as that but I don't really believe in Self diagnosis.


People here have many times explained why they don't get an official diagnosis - the most common reasons have seemed (to me) to be:
- It's expensive
- The doctor could be less knowledgeable on the subject


Another reason cited for not getting a diagnosis is being, or wanting to be, a parent. Apparently an Aspergers or austism diagnosis can lead to one's fitness for parenting being called into question.


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06 May 2011, 5:08 pm

And also if you're in the UK, they can take your kids so the only way to prevent that is don't get diagnosed.

Also I have read that you aren't allowed to adopt if you are on the spectrum.

And of course if you don't want to deal with ignorance, don't get diagnosed.



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06 May 2011, 5:17 pm

League_Girl wrote:
Also I have read that you aren't allowed to adopt if you are on the spectrum.
If that's true, then that's not fair at all.


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06 May 2011, 5:18 pm

MathGirl wrote:
League_Girl wrote:
Also I have read that you aren't allowed to adopt if you are on the spectrum.
If that's true, then that's not fair at all.


Only in the UK.



nemorosa
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06 May 2011, 5:54 pm

League_Girl wrote:
MathGirl wrote:
League_Girl wrote:
Also I have read that you aren't allowed to adopt if you are on the spectrum.
If that's true, then that's not fair at all.


Only in the UK.


Wherever did you hear that? It may be a further complication in the assessment process but it isn't a certain disqualification.



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06 May 2011, 6:28 pm

Ah, diagnosis supremecy.

http://www.wrongplanet.net/postt149999.html

Why isn't that thread stickied? It seems to me that it would reduce these kinds of threads, which is good both for practical reasons and for the fact that it's REALLY annoying. If you want to know my views on getting a professional diagnosis, it's here:

http://www.wrongplanet.net/postp3338783.html#3338783

That's not to say that I'd never get a professional diagnosis. In fact, I likely will before 2011 is out. This is only because something has arisen that means that there's a practical reason for me to get a professional diagnosis. Before, there was none, so I simply did not do it.


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06 May 2011, 6:29 pm

nemorosa wrote:
League_Girl wrote:
MathGirl wrote:
League_Girl wrote:
Also I have read that you aren't allowed to adopt if you are on the spectrum.
If that's true, then that's not fair at all.


Only in the UK.


Wherever did you hear that? It may be a further complication in the assessment process but it isn't a certain disqualification.


Someone on AFF said it.



MyWorld
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06 May 2011, 6:54 pm

League_Girl wrote:
And also if you're in the UK, they can take your kids so the only way to prevent that is don't get diagnosed.

Also I have read that you aren't allowed to adopt if you are on the spectrum.

And of course if you don't want to deal with ignorance, don't get diagnosed.


League-Girl, I've read an article here on WP about how some woman in UK who had Aspergers had her child taken away because they thought she would neglect and abuse her. I did not think that that situation was that common in UK. I live in US, so I don't know what laws in UK are related to people with autism spectrum disorders.



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06 May 2011, 7:54 pm

MyWorld wrote:
League_Girl wrote:
And also if you're in the UK, they can take your kids so the only way to prevent that is don't get diagnosed.

Also I have read that you aren't allowed to adopt if you are on the spectrum.

And of course if you don't want to deal with ignorance, don't get diagnosed.
League-Girl, I've read an article here on WP about how some woman in UK who had Aspergers had her child taken away because they thought she would neglect and abuse her. I did not think that that situation was that common in UK. I live in US, so I don't know what laws in UK are related to people with autism spectrum disorders.
But her child wasn't taken away.
It seems to be a non-story and as far as I could tell, appeared in one local newspaper with no further follow-up.
There are no laws in the UK wrt Autism and childcare; only laws concerning the welfare of children and suchlike generally. That is: they apply to everyone with responsibility for children's welfare.
If this woman was under any sort of investigation about her abilities as a mother then it would be for the same reasons as anyone else and quite probably the same reasons as exist in the USA. Drug taking, child abuse, no home, etc. etc.

Likewise in the UK, it's not relevant or even a requirement to 'confess' to being on the spectrum before being considered suitable to adopt a child.
There are many other more relevant and important things to consider first.

Lastly, being diagnosed is and remains a totally private matter in the UK.
Medical records are confidential here and not open for insurance companies and other interested parties to nose around in.


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06 May 2011, 9:08 pm

leejosepho wrote:
Meow101 wrote:
If you don't want to be called a troll, don't imply inane, inflammatory things like that I was the "wrong kind of person" for this forum in February of 2010 and not now. Oh, and if you want to STOP looking like a troll, please answer the above question.

Unless you are sure something had been specifically directed at you, it is quite presumptuous for something you happened to hear in some particular way to then be considered trolling.

I suspect there are many people who are not on the spectrum ending up here for one reason or another, and I believe the OP is simply concerned that some ill-informed or improperly-diagnosed people might end up here and cause some kind of problem ...

... but in fact, WP has so far "survived and thrived", so to speak, just fine in spite of anyone who ever came here!


I get *very* ticked by people crapping on those who, for whatever reason, are self-diagnosed. THOSE people, IMO, cause much more of a problem than someone who might have made a mistake in a self-diagnosis. It happens repeatedly and frequently, and even though I'm no longer one of the self-diagnosed, I was for long enough that it is offensive to me. There is NO reason to be hostile to someone because they haven't (yet) gone through the process, or worse yet, gone through it with an incompetent professional or one who is inexperienced with ASDs (or ASDs in adults).

This isn't some kind of "turf war" where WP has to be protected from those "posers" who try to intrude on "our turf". As you pointed out, it's done pretty well despite the occasional person who may have wrongly self-diagnosed. I consider the constant questioning and insinuations of "faking" and "diagnosis du jour" leveled at those who are self-diagnosed to be a MUCH worse influence and a form of hostility much more insidious and nasty than ANYTHING a self-diagnosed person has done over the year or so I've been here. Just my opinion, of course.

~Kate


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06 May 2011, 9:11 pm

I don't like being around people, don't fit in and am not emo.



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06 May 2011, 9:19 pm

Ai_Ling wrote:
I would suspect that many people are self-diagnosed because there seems to be a lotta "mild" aspergers going around here. So many people claiming to have mild aspergers. NTs can face difficulties in social situations and distress due to other reasons/conditions. Just cause someones NT doesnt mean they cant be ackward. Theres the thought, what is wrong with me? Then they read about aspergers and think they have aspergers.

I knew someone who had self-diagnosed themselves and it turns out they had a bad case of social anxiety


Yes, I think that is happens frequently. I do think a lot of people are right, but I also know a lot of people who have turned out to be wrong. A lot of the symptoms overlap with over conditions for different reasons. Also, some other conditions are misunderstood or more stigmatized (around here, it is probably more acceptable to be autistic than to have ADHD, anxiety, depression, schizophrenia, etc).



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06 May 2011, 9:33 pm

littlelily613 wrote:
Ai_Ling wrote:
I would suspect that many people are self-diagnosed because there seems to be a lotta "mild" aspergers going around here. So many people claiming to have mild aspergers. NTs can face difficulties in social situations and distress due to other reasons/conditions. Just cause someones NT doesnt mean they cant be ackward. Theres the thought, what is wrong with me? Then they read about aspergers and think they have aspergers.

I knew someone who had self-diagnosed themselves and it turns out they had a bad case of social anxiety


Yes, I think that is happens frequently. I do think a lot of people are right, but I also know a lot of people who have turned out to be wrong. A lot of the symptoms overlap with over conditions for different reasons. Also, some other conditions are misunderstood or more stigmatized (around here, it is probably more acceptable to be autistic than to have ADHD, anxiety, depression, schizophrenia, etc).


Oh, damnit. I'm autistic, have ADHD, anxiety, and depression.

Am I fashionable or unfashionable?



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06 May 2011, 9:34 pm

MyWorld wrote:
It seems that there are a lot of self-diagnosed people who claim that they don't fit in anywhere. I wonder is some of those people are just emo and dislike people around them for whatever reason which is why they have trouble making friends. Lots of people without ASD have had trouble making friends in their lifetime. Nothing in life is easy for everyone.


If you'd like to help me pay for my diagnosis, I'll be happy to go figure that out for you. Until then, I guess I'll have to just be an outcast here as well since I can't afford the doctors myself.



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06 May 2011, 9:38 pm

Meow101 wrote:

I get *very* ticked by people crapping on those who, for whatever reason, are self-diagnosed. THOSE people, IMO, cause much more of a problem than someone who might have made a mistake in a self-diagnosis. It happens repeatedly and frequently, and even though I'm no longer one of the self-diagnosed, I was for long enough that it is offensive to me. There is NO reason to be hostile to someone because they haven't (yet) gone through the process, or worse yet, gone through it with an incompetent professional or one who is inexperienced with ASDs (or ASDs in adults).

This isn't some kind of "turf war" where WP has to be protected from those "posers" who try to intrude on "our turf". As you pointed out, it's done pretty well despite the occasional person who may have wrongly self-diagnosed. I consider the constant questioning and insinuations of "faking" and "diagnosis du jour" leveled at those who are self-diagnosed to be a MUCH worse influence and a form of hostility much more insidious and nasty than ANYTHING a self-diagnosed person has done over the year or so I've been here. Just my opinion, of course.

~Kate


Thanks Kate! :)



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06 May 2011, 9:48 pm

shadowchyld wrote:
MyWorld wrote:
It seems that there are a lot of self-diagnosed people who claim that they don't fit in anywhere. I wonder is some of those people are just emo and dislike people around them for whatever reason which is why they have trouble making friends. Lots of people without ASD have had trouble making friends in their lifetime. Nothing in life is easy for everyone.


If you'd like to help me pay for my diagnosis, I'll be happy to go figure that out for you. Until then, I guess I'll have to just be an outcast here as well since I can't afford the doctors myself.


This is the kind of thing I'm talking about. This happens on a regular basis around here, and nobody seems to say boo. Telling other people they're "the wrong kind of people" to be here seems to be fine and dandy, but let me point out how crappy that is and I'm "presumptuous" and just "hearing things a certain way".

I'm sorry, but it is insulting, unjust, and just plain mean to keep insinuating that people who can't afford, or for some other reason haven't got a "professional" diagnosis, are "just emo", or "want to fit in" or are otherwise "posing" and don't deserve the support that "real" AS people get here, and if people want to tell me I'm presumptuous or whatever for calling this what it is, fine. Even a health care professional is not qualified to diagnose someone over the internet. No one is, so it is totally BOGUS for *anyone* to sit there and judge who "really" has AS/ASD and who doesn't. To go a step further and claim they're the "wrong kind of people" to BE here is MUCH more presumptuous than ANYTHING I've said or done, and I think the OP should back it up with something real (factual) or just friggin' apologize for the rush to judgement of a substantial fraction of posters here.

~Kate


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