Is self-diagnosis okay/valid/a good thing?

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Is self-diagnosis okay/valid/a good thing?
Yes 68%  68%  [ 100 ]
No 32%  32%  [ 47 ]
Total votes : 147

Persimmonpudding
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08 Dec 2014, 3:35 pm

NiceCupOfTea wrote:
Persimmonpudding wrote:
NiceCupOfTea wrote:
People wouldn't even be able to self-diagnose themselves with autism if it weren't for those pesky NTs who recognised and defined Asperger's/autism originally.
Hans Asperger had ASD-related traits himself. You didn't know this?


Evidence please.

And by evidence, I mean real evidence, not just somebody's personal speculation on an autism blog or something.
http://www.thefamouspeople.com/profiles/hans-asperger-592.php

http://kolahun.typepad.com/kolahun/2012/02/has-asperger-md-1906-1980.html

http://www.claytonbehavioral.com/did-hans-asperger-have-asperger%C2%B4s-syndrome/

And his obsessive interest was poetry.



Persimmonpudding
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08 Dec 2014, 3:44 pm

btbnnyr wrote:
Persimmonpudding wrote:
NiceCupOfTea wrote:
People wouldn't even be able to self-diagnose themselves with autism if it weren't for those pesky NTs who recognised and defined Asperger's/autism originally.
Hans Asperger had ASD-related traits himself. You didn't know this?


A lot of people have autistic traits and are still NT.
A lot of people carrying the AS diagnosis probably just have bipolar disorder or some form of schizotypy or PTSD. This works both ways.

I take a diagnosis with a grain of salt unless it's done by a high-polish clinic equipped with the kinds of high-precision empirical tests that are suitable for making a solid diagnosis. I highly recommend that people with access to such services take advantage of them, but the concept that any teenager in Middle America can just walk into the office of a dime-a-dozen "let's talk about your feelings" quack and get reasonable care is kind of dim.



Last edited by Persimmonpudding on 08 Dec 2014, 3:49 pm, edited 1 time in total.

btbnnyr
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08 Dec 2014, 3:48 pm

Persimmonpudding wrote:
btbnnyr wrote:
Persimmonpudding wrote:
NiceCupOfTea wrote:
People wouldn't even be able to self-diagnose themselves with autism if it weren't for those pesky NTs who recognised and defined Asperger's/autism originally.
Hans Asperger had ASD-related traits himself. You didn't know this?


A lot of people have autistic traits and are still NT.
A lot of people carrying the AS diagnosis probably just have bipolar disorder or some form of schizotypy or PTSD. This works both ways.

I take a diagnosis with a grain of salt unless it's done by a high-polish clinic equipped with the kinds of high-precision empirical tests that are suitable for making a solid diagnosis.


There are no high-precision empirical tests commonly in use for making autism diagnosis.


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NiceCupOfTea
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08 Dec 2014, 3:49 pm

All three links are speculative.

Never mind. I probably shouldn't have even asked. You'll believe whatever you want to believe; after all, some autism activists have co-opted Newton and Einstein onto their side - why not Hans Asperger as well? There's nothing after all this time to prove or disprove the speculations.



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08 Dec 2014, 3:51 pm

Persimmonpudding wrote:
I take a diagnosis with a grain of salt unless it's done by a high-polish clinic equipped with the kinds of high-precision empirical tests that are suitable for making a solid diagnosis.


Can you name these tests, what they measure and how this is used in making the diagnosis?

All the diagnosticians I have talked to directly have said that most of their diagnoses are made primarily on the basis of their direct observation of the person being assessed.

I am very interested in empirical tests.



Last edited by Adamantium on 08 Dec 2014, 3:54 pm, edited 1 time in total.

btbnnyr
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08 Dec 2014, 3:51 pm

Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.


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babybird
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08 Dec 2014, 3:52 pm

Oh well, I think I'll go and have a nice cup of tea.


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Persimmonpudding
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08 Dec 2014, 4:01 pm

NiceCupOfTea wrote:
All three links are speculative.
I said that he had ASD-related behaviors, which I substantiated.



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08 Dec 2014, 4:04 pm

blueblahbleh wrote:
r84shi37 wrote:
Fnord wrote:
Also, there may be other existing conditions that could mask symptoms or alter subjective perceptions and cause the person to render an incorrect self-diagnosis.

Finally, if any institution, corporation, or government grants special treatment or benefits to a person on the Autistic spectrum, then official documentation from the aforementioned mental-health professionals may be required.

So, while you may suspect that you are on the Spectrum, it is better for you to obtain an official diagnosis than to give the impression to employers, teachers, and legal authorities that you are just pretending to be Autistic to fraudulently obtain those benefits that officially-diagnosed people both need and deserve.


This basically. Except I mean, you could say that you're suspicious... but even that doesn't mean much if you never plan to get an evaluation.


Who is pretending to be autistic to obtain benefits? How does openly identifying oneself as being on the spectrum without an official diagnosis even lead towards benefits? I'm not seeing anyone talk about forging fake documents.

Heck, where I live there are little to no benefits for adults on the spectrum. There is plenty of ignorance about ASD in my area, though.

Do I need to carry around an official diagnosis in my pocket just so people don't think I'm some fraud trying to game the system? Just kidding. :mrgreen:


I don't really see how one could fake autism to get any benefits, unless they actually forge a diagnoses document and other medical evidence and somehow slip it by but doesn't really seem worth the risk as there are heavy penalties for being caught doing that sort of thing. But for instance you won't get disability unless you have actual documentation of diagnoses that render you disabled.


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btbnnyr
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08 Dec 2014, 4:06 pm

I think 90% of the NTs I know have autistic traits.


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Adamantium
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08 Dec 2014, 4:07 pm

btbnnyr wrote:
Problems with professional diagnosis and diagnostic procedures currently in use don't legitimize self-diagnosis.


No. There isn't a logical connection there.

If a professional diagnosis is for some reason (e.g., economics, geographic or other logistical factors) not obtainable, and someone has come to believe that they are quite likely autistic on the basis of seeing a match between their own characteristics and autistic traits, then it would make sense for that person to try to find a way of living with those characteristics that might be improved by what they learn about autism.

But it doesn't make sense to take that tentative conclusion as having the same weight as a professional diagnosis, anymore than it makes sense to assume that a professional diagnosis is infallible.



btbnnyr
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08 Dec 2014, 4:09 pm

People can recognize that they have autistic traits and adjust their ways of living accordingly, but I think that they should not say that they have autism without official diagnosis.


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Sweetleaf
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08 Dec 2014, 4:10 pm

Venger wrote:
That Elliot Rodger mass-murder incident was a good example of something very bad that can result from a bogus self-diagnosis, which contributed to giving people with AS a negative rep. It only took one person too. :?


I think the ignorant people that would actually think that individual represents the majority on the spectrum...are doing a good job contributing to giving people with AS a negative rep, lots of people are causing that issue by being ignorant.

Also though I was not aware they where for sure 'self diagnosed' as having autism, thought it was simply speculated that they might have had aspergers.


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Sweetleaf
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08 Dec 2014, 4:11 pm

btbnnyr wrote:
People can recognize that they have autistic traits and adjust their ways of living accordingly, but I think that they should not say that they have autism without official diagnosis.



And how many times have you said this exact same thing now? I think everyone here by now gets the picture that you don't think people should not say they have autism unless they have an official diagnoses repeating it isn't going to make more people agree with you.


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hybridglitch
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08 Dec 2014, 4:12 pm

I wish I could have let myself be less officially diagnosed, but when my counselor suggested ASD I immediately went to a psych... who gave me pretty much the same tests I had taken online, went over the same family history questions, and was generally clueless about a lot of things important to my life. I didn't know about the cost, or the discrimination associated with being professionally diagnosed.

It didn't occur to me that if I ever, for some reason, want children, I'll likely not be allowed to adopt due to this diagnosis on my record. There's a lot of severe health conditions in my family; will the doctors still provide the best possible care?
How will I pay off this $900 bill that is now in collections?

I wasn't someone who thought "I have a lot of trouble with my life, and through research I've found that this is probably the issue". I was having trouble, went to a professional, after many months she suggested that I'm probably autistic, I got defensive, and then I started doing some research. I had effectively self-diagnosed before seeing the psychologist... and in hindsight, I sometimes wish I had left it at that.



btbnnyr
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08 Dec 2014, 4:14 pm

Sweetleaf wrote:
btbnnyr wrote:
People can recognize that they have autistic traits and adjust their ways of living accordingly, but I think that they should not say that they have autism without official diagnosis.



And how many times have you said this exact same thing now? I think everyone here by now gets the picture that you don't think people should not say they have autism unless they have an official diagnoses repeating it isn't going to make more people agree with you.


I think that you have also said many of the same things that you have said before, and I don't see what is the problem with me saying what I did.

My point is that recognizing autistic traits and adjusting ways of living does not require saying that one has autism when one is not diagnosed.


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Last edited by btbnnyr on 08 Dec 2014, 4:15 pm, edited 1 time in total.