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Prof_Pretorius
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13 Jul 2009, 3:49 pm

You have to learn to cope with your problems. When I was going to Uni, I worked as a cleaner. We went into office buildings late at night to sweep up and empty the rubbish and so on. I pretty much worked by myself in empty buildings. It was late at night, so I slept afternoons. If you have such pronounced sensitivity problems, you can get a job where your environment is quite controlled. Or you may be able to do such services as pet-sitting where you drop by people's homes to doggie sit.
You're not stuck ! ! There are measures you can do to help yourself ! !!


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just-me
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14 Jul 2009, 11:24 pm

pensieve wrote:

I've never actually been successful enough to get past a job interview, so even though I don't want a job I can't get one.

I was able to get a job, actually I got it out of about 100 people applying. I had to quit after 2 weeks because the stress was so immense.

pensieve wrote:
It does sometimes make me feel pathetic when other people can work, but I just tell myself that one day I'm going to make it. I think self-employment or working out some other way to make money.

Yes I just keep telling myself it will all work out somehow.

pensieve wrote:
Your sensory issues sound really severe. Have you tried any music therapy for that?

Yes my sensory issues are very bad. What is music therapy?



just-me
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14 Jul 2009, 11:44 pm

SteveeVader wrote:

Firstly I am a student but before a levels from 12 to 17 I worked mostly because
1, money
2, a bit of self worth and differential from other, I am autstic, almost blind, death in one ear and dyslexic and dyphraxic so for me making a name for myself is important I find because I am technically multi disabled and in my travels I have met some insperational people for example at uni my disability advisor is quadra phaphelegic except from being able to move his right hand and hea and he is an overseer for the disability team so if he can do I can certainl do it if you understand my angle.
I think work help aspies gain idependence and come out ther metaphorical shell


I cant possibly work I cant really say why i just know its impossible for me. To put it this way, responding to all these post is near overwhelming to me. For me working makes me worse alot worse in every way.

I think its great you can. its a great achievement that your able to.
SteveeVader wrote:

In terms of confidence with aspergers I feel no self differece I feel it s a gift I could be like joe bloggs and just come home to his beans and chips everyday but that is boring I'd rather do narrow interests and be a bit nuts.


I see it as a gift. I love being eccentric because it fills my life with so much happiness to be able to immerse myself in my head and my imagination. I see normal people cannot do this and so of there lives are very hollow.

On the flip side, I feel I am letting everyone down by not doing as much as everyone else.
I have come to realize this is because I'm trying to be perfect. I'm not Jesus and I think I should not strive to be as perfect as him cause it is not gonna happen.

SteveeVader wrote:

In terms of aspergers flaring up it does and it doesn't it usually if I am at uni doing some work and in a middle of a touch essay and I just switch off for the day lol


How do people react to this? do you have to explain to them why your acting different or why your not able to do things as well? What sort of social consequences do you have from it if any?


SteveeVader wrote:
Why do you fear to act weird it is only self evident if for example you go running around waving your genital infront of someones face which I doubt you do, when on buses for example I constantly rub my hands and no one notices just block people out they don't matter what are they goig to do to you if you slightly flail your hands? its a free world/country


I am not really shure. I'm guessing its because I had a lot of bad things happen to me for acting odd in the past.

SteveeVader wrote:
As in terms of bra find what material is most comfortable for you it does a wonder just changing materials and theres no need to stress a lot of normal women find their brsas uncomfortable my normal friend maria is constantly complaining about her bra but in privacy of course and she adjusts frequently if it is merely a strap like you said all ou need to do is have a quick wrist action to adjut it a lot of women try to master it and they succeed


Well the problem is Ive been trying to find the right kind of bra. Ive found a place that sizes you every time and they help you find eht exact bra for you. I spend about 80$ to 90$ for 2 bras. I cant afford it and it still is uncomfortable.

SteveeVader wrote:
Finally to sum up how do we or I bother to be honest I don't care if I stress about myself and all my disabilities I would be a wreck and I have seen people do this and it makes me sad for them you just gotta think meh you know, I guess I am lucky being a care freed natured soul but if you stress and worry all it does is magnify the problem and turn it into a viscious circle

hope you manage to answer your questions

I need to try to care less and accept myself the way i am. Ive been trying to do that but its still a work in progress.



just-me
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14 Jul 2009, 11:49 pm

seebert wrote:
I'm diagnosed Aspergers, have many of the same sensory issued you do, and I do work. I'm able to from a combination of medication (amitryptyline nightly, Imitrex and/or SalonPas/Ice Packs when I get a migraine) and employer accommodation (I'm a software engineer who doesn't have to work in public- so when at the head office I can work in an office with the lights off and/or wear a hat to cut down on the light).

I'd suggest finding a good GP doctor who is willing to experiment with drugs with you and is willing to trade perscriptions for computer lessons :-). Anyway, that's what finally worked for me. Still have some problems- not sure at all if I'll be able to hold down this contract, but that's normal life.


Oh meds really don't work for me. I was on them from age 3 till i was 18. I find my sensory issues makes me very sensitive to there effects. I never got any bennifet from them and i was on almost all of them.

I'm glad they work for you but they don't help me at all. In fact they do a lot of harm. I ended up needing surgery because of one med side effect.



just-me
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14 Jul 2009, 11:52 pm

Prof_Pretorius wrote:
You have to learn to cope with your problems. When I was going to Uni, I worked as a cleaner. We went into office buildings late at night to sweep up and empty the rubbish and so on. I pretty much worked by myself in empty buildings. It was late at night, so I slept afternoons. If you have such pronounced sensitivity problems, you can get a job where your environment is quite controlled. Or you may be able to do such services as pet-sitting where you drop by people's homes to doggie sit.
You're not stuck ! ! There are measures you can do to help yourself ! !!


I was thinking that once I'm able to, I will start writing songs and selling them on I-tunes. Or a simmer site.
I would get to overwhelmed by that at the moment but I plan to do that once I'm able.

I don't know how much money that will bring in but it is a start. I owe that idea to another member of this site actually.



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14 Jul 2009, 11:55 pm

willmark wrote:
I don't think that I would qualify for Aspergers, or else I manage to compensate enough that no one would find impairments. My sensory sensitivities are always always always on loud, but I have learned to compensate most of the time. I have glasses that turn dark in sunlight, I have extra dark sunglasses for when I drive, and I use ear plugs when the around me becomes too much.

I have other issues, one in particular is word recall, particularly names and nouns, usually direct objects in sentence structure, another is forgetting to finish tasks, or being unable to remember what I intended to do next, that fluctuate. I have discovered that these in me tie into getting enough rest, and whether I have had enough protein to eat. The latter is more important than the former. Not having enough protein can make me feel like I need sleep. When word recall is bad enough, it gets to where I have great difficulty forming sentences because though I can form part of the sentence, it's really hard to communicate when you can't plug in any direct objects. When this gets really bad, I sit in front of the computer unable to enter my password, or the names of any programs that I use on a daily basis. Fortunately for me, I can usually fix this by eating some pecans, or almonds, or a piece of cheese, most of the time, unless my problem is lack of rest. Another strange problem I have when I lack rest, is my memory will begin to form illogical associations, that I get to have a good laugh about when I get enough rest to untangle them.

You might see if you can observe a pattern, or what might be causing your problems to flare up. There might be something you can do to prevent this.


Yes that is a good idea. How did you notice what things caused your problems? Ive been trying to figure out how to do this .



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14 Jul 2009, 11:57 pm

AspE wrote:
I find it can be easier to sleep at night if you get used to a fan going, or some constant mechanical noise. A friend of mine uses a CD of digital "pink" noise (like white noise, but digitally generated). This tends to drown out other noises that can keep you awake.


I would do that but i hate white noise and i need quiet to sleep. Perhaps I'll try it again though to see if it has changed.



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14 Jul 2009, 11:59 pm

2ukenkerl wrote:
just-me,

I have sensory issues ALSO! I SWEAR, last night(OK, THIS MORNING, because I went to sleep around 1:30am), I had a HARD time trying to sleep because of a VERY LOW FREQUENCY noise coming from another room. It was almost like a huge diesel semi. On planes, I HATE the PAs, and most users voices. I can't even stand the sound of toilets flushing, ESPECIALLY the HIGH POWERED ones! I CAN get overwhelmed.

I WAS aprehensive about my first job, but didn't view it as a choice. I have a nice job, and this year is, ironically, my best year, so far.
How do people at your work place react when you do something odd or have a sensory overload melt down?



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15 Jul 2009, 12:06 am

[quote="Vanilla_Slice"]
I sometimes act odd as well and it's resulted in the loss of a number of friends.[/b]

I fear being alone because of my problems it is something I'm only now starting to get over.

OK, nothing wrong with going out with family or a friend until you get used to the routine of bus travel. Practice, remember?

Well I used to be able to go on the bus (my boyfriend came over from England to help me) but now my sensory issues are worse so Ive become more restricted.

You can do your best to cope and no more. As I said above work for me was a real struggle and now I just don't bother. Eventually you will learn to manage your AS and the fun stuff will come naturally.

Yes this is something I'm trying to learn. I push myself past my breaking point then get mad at myself for not doing more.



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15 Jul 2009, 12:09 am

Psygirl6 wrote:

With the whole going out in public and not be with family, I take what is called the para-transit bus. it is a specialized bus for people with disabilities who are not able to take the regular city bus. the great thing about it is that it is not crowded and is perfect for people like us, who can not handle the whole over crowding thing. Just recently, i am learning to take the city bus, but the thing to do is bring headphones or an Ipod and drown the noises out.


I'll have to get set up with one of these buses. Thanks for that advice. I use an ipod but it does not help with my tactile sensory problems so your specialized bus was a good idea.



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15 Jul 2009, 12:12 am

I'll reply to the rest of you a bit later. I had some extra time cause i cant sleep but I'm gonna try to get some shut eye.

Thanks for the advice everyone!

I'll post a bit more later in a day or so.



SteveeVader
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15 Jul 2009, 12:30 am

he just me thanks for annotating and replying

ou're sensory issues sound horrible, in the case for your experience as I imagine it would effect your stress levels highly maybe what a differet pster said about meds would benefit you I think if your extreme sensory issues were controlled I think it would drasticall change your stress leves because other than that there is nothing really to worry about remember in terms of interaction one rule I find that helps is just to take it slow and just take things as they come and try not to worry for me stress is the worst fasctor of AS because I constantl think about it I still do but its a lot better than it was when I was 16

iyou asked me about my friends reactions well luckily enough allmy friends well my three housemates have special needs I know it sounds crazy, my best friend Aspie and Adam is Dysphraxic and Martin is Dsdlexic I actually have talked to him and I seriously think he has AS the traits are very obvious
My 3 female friends Maria is visually impaired lik I am aand Claire and Chrissy are fine but they are very extroverted and love movies and comics which are y interests as does maria so in terms of friendship I think I was at the right place at the right time and they are the most enduring friends ever because when I stress I worry constantly and tak about the situation I think it annoys them but they calm me down an it works usually lol

I hope your sensory training goes well cus it must be daunting my snses pla up now and then especially with light but I am a really carefree person I get it from my father lol who is aspie I think but keep responding hehe I really want to see how its goes as I guess that your are in your 20s



willmark
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15 Jul 2009, 10:11 am

just-me wrote:
pensieve wrote:
Your sensory issues sound really severe. Have you tried any music therapy for that?

Yes my sensory issues are very bad. What is music therapy?

It is utilizing music and musical activities to accomplish therapeutic goals. Its a known fact that the nerve impulses of hearing enters the brain through the mid brain, so it is possible with many people to accomplish changes at a subconscious level. My college degree was in Music Therapy, but I ended up working as a computer programmer. At the time I graduated from college, but paid much better than Music Therapy. I am not sure how one would go about using Music Therapy to improve sensory issues. Maybe its about desensitizing you to it, or learning to not respond to it fearfully, I don't know.



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15 Jul 2009, 10:20 am

just-me wrote:
You might see if you can observe a pattern, or what might be causing your problems to flare up. There might be something you can do to prevent this.


Yes that is a good idea. How did you notice what things caused your problems? Ive been trying to figure out how to do this .[/quote]
For me it was just pattern recognition and observation. My wife noticed that I had my greatest problems in the late afternoon just before supper, and the meal almost always made the problem much better. Then I started observing what I ate when supper improved the problem, compared to what I had eaten when it didn't and the commonality was protein. Then I started testing my hypothesis to see if protein in fact would cause my problem rebound by eating protein when I am experiencing the problem, that kind of thing.



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15 Jul 2009, 10:55 am

Well, I don't have many of the things described in the OP to an extreme where it totally disrupts my day except for some little things like if I break a nail I have to smoothe it out before I can do anything or I go crazy, and nobody but my husband has really noticed that. But I will say my daughter has a hard time sleeping (that's all I seem to want to do). I've heard many people state that they have given Melatonin to autistic children who have difficulty sleeping. It does work, but I have to wait till my daughter is tired. I guess Melatonin is something your body naturally creates (especially in darkness which is why many people like to sleep in a dark room) that helps them fall asleep. It doesn't, however, make you tired. But they do sell it in pills and liquid (and I've heard of this mythical spray) in the natural pills area of the drug store (like where you'd find vitamins). But, this is in the States. I'm not sure what countries allow the sale and use of it. Either way, with my daughter, I don't give it to her every night, just nights she is beyond her tired moment and just having difficulty falling asleep. Oh, and I know adults take it too because the dosage is usually an adult dosage (5mg I think) whereas kids are halfed (2.5).

Just something you might want to try if you are having difficulty sleeping which is also something that I think the lack of can flare up some bad days. I speculate too that our nutrition has some effect on the kind of day we will have. With me, I noticed I have a bad day when I'm mentally exhausted and not alert (it's like trying to play on Xbox live with a slow internet connection). My daughter is bad when she's too hyper to think. Oh, and getting out and exercising kinda helps too. I had less bad days with my Aspergers (more due to my environment as opposed to my internal self) when I was in the military. I notice now even if I don't run out and PT 3 times a week, as long as I get out and do something (like swimming, taking the kids to the park, etc.) it kinda helps me. More I think about it, when I went away to this one college many years ago, I did fitness swimming and cheerleading, and I never made friends easier than back at that college and when I was in the military.

I should also add that everybody has a natural inclination to adapt to their environment. If your environment is always your home, then you will have a hard time adapting to the world outside of your home (like a workplace). Don't attempt to hit social environments full force... it really needs to be something you ween yourself to. I have noticed that being a stay at home mom for the last several years has made it very difficult for me to be in public situations. My best friend told me for years that I'm not Aspergers, but i was in the public more often than not years ago. Then I started staying home all the time when I had kids, but I was thousands of miles away from my friend for about 2 years, then I moved back home and we didn't hang out that much at first until about now. Now, she sees it, and I think it's because I'm not in the public that much, like being home all the time allowed myself to let a lot more of my qualities show.



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15 Jul 2009, 11:19 am

Re Melatonin, the laws differ. When I was a little girl ( 8 ) it wasn't legal in Aus, and it had to be brought in via loophole from another country.
Nowadays it's sold over the counter like vitamins, in a piss weak homeopathic formulation often mixed heavily with stuff that is meant to help like Vitamin B etc. But a medical strength formulation is available from a sleep specialist if you consult one.

Yes, for a long time I felt lazy/broken because I couldn't do things and would have to fib about occupation etc. Now I go to volunteer work at a library for one hour every week. It's hard because I feel nervous/awkward around people and it's often heated rather warm there, but I usually manage. When I'm sick or something big is going on I call in to say I can't do it.

I read something on here about ASDs having inconsistent depths and it made sense. To use a metaphor, I'm competent enough to knit my own socks on a good day - but if I'm having a bad day, I'm also capable of leaving the knitting on the floor, tripping on it and getting the needles stuck in my foot. So it really depends on the day and my level of functioning at that time, and what ways you've found to manage.