Restrictive diets not appropriate for autistic kids [NYT]

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ouinon
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31 Jul 2009, 11:05 am

makuranososhi wrote:
ouinon wrote:
ouinon wrote:
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GI symptoms can be completely absent.[ in coeliac disease ]
Gastrointestinal symptoms are not a reliable indication of whether gluten is a problem for someone.
I had no idea that I was intolerant of/sensitive to gluten until I was 29 years old, when I tried an exclusion diet/fast. I had experienced only "normal" amounts of G.I. problems over the years, and didn't realise that my descent into manic-depression/mood disorder and breakdown, was a symptom of gluten intolerance. Chronic anxiety, irritability, fatigue, over-exciteability, etc, aswell as depression, have faded away the longer, and more consistently, that I exclude gluten.
How is that relevant to the finding of the study that such a diet did not have a relevant effect on children on the autistic spectrum?

The study quoted in the opening post does not show that a gfcf diet had no effect on autism; it shows that non-autists apparently suffer as much/as frequently from gastrointestinal problems as autists. As coeliac disease/gluten intolerance is frequently not accompanied by obvious gastrointestinal disturbance the study has not shown that such diets are inappropriate for autists, ( just that NTs are as likely to have G.I. problems as people on the spectrum, which is not the same thing! :wink: ).

I don't believe that gfcf diets can cure autism, as such, but there is a lot of evidence that they, and other dietary changes, can alleviate, even completely cure, many of the problems that autists experience and which are too often treated as if they were an integral/inevitable part of our "condition/disorder", like depression, chronic anxiety, poor cognitive function, poor memory, mood disorder, overexciteability/hyperactivity, impaired concentration, brain fog/confusion, floaty/spaced-out feelings, poor executive function, some aspects of overload and sensory processing difficulties, fatigue/lethargy, disturbed sleep cycles, etc etc etc.

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Callista
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31 Jul 2009, 3:08 pm

Celiac disease is pretty easy to diagnose--biopsy of the small intestine shows damage if it's present.

It's also not more common among autistics than NTs.

Ouinon, if you have gluten/casein intolerance, you feel worse when you eat those things, and if you feel worse it makes it hard to cope with a world that isn't built for autism.

Gastrointestinal problems are just not any more common for autistics than non-autistics.

BTW, the original study does show a lack of connection. Even if gastrointestinal problems only show up for half of the people who are intolerant to food substances, the other half would be enough to raise the numbers if that intolerance were more prevalent in autistic people than in non-autistics.

Yes, if you have that kind of food intolerance, you should stop eating the problematic food; but that's only as connected to autism as any other physical health issue; for example, if you have migraines and autism, your autism will pose much more challenges if you don't find ways to control and/or treat your migraines. That doesn't make them connected in some mystical way. It's just that anyone who is healthier will function better, autistics included.


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31 Jul 2009, 5:15 pm

sg33 wrote:
I just want to point out that it is not necessary to ingest animal milk products in order to be healthy. Lactose intolerance is prevalent among many groups: 75% of African Americans and 90% of Asian Americans are lactose-intolerant, as are 90% of Chinese, and 98% of Southeast Asians and Thais. Milk is clearly not a "perfect food" if entire ethnic groups cannot digest it.


It's calcium that we need, not milk. I don't think there is anything wrong with the gluten/casien free diet whether the person on it has an ASD or not. Besides, what's healthy about consuming another species baby feeding formula? Eww!


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mgran
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31 Jul 2009, 5:19 pm

ouinon wrote:
AnAutisticMind wrote:
YOUNG GROWING MINDS NEED THE GLUTEN FUEL TO GROW AND EXPAND, THEY NEED IT.

That must be why it was the societies which started eating glutenous grains soon after they first appeared, ( after a chance mutation in grasses at the end of the last ice age, 17,000 years ago ), in the Fertile Crescent, ( the so called "cradle of civilisation, in ancient Irak and Iran ), were the first ones to invent fixed agriculture, rectangular houses, writing, money, monotheistic religions, etc. It did something to their brains ...

Whereas people in countries/areas where glutenous grains didn't grow naturally, and weren't cultivated, until relatively recently anyway, like southern Africa, the Americas, Australia, and Eastern Asia, ( where they ate corn, rice, manioc, and other non-glutenous grains ), didn't develop/acquire most of these things until much later, often only after being exposed to wheat by empire-building peoples from the Middle East, India, Europe etc.

Children who grow up without gluten don't develop the same kind of intellectual capacities. We need gluten to maintain the thrust of western-style civilisation. ( "Young minds" fed on rice, corn, and manioc, don't "grow and expand" satisfactorily! )

:wink:
I'm probably being very obtuse, but is that a joke?



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31 Jul 2009, 5:21 pm

Brittany2907 wrote:
sg33 wrote:
I just want to point out that it is not necessary to ingest animal milk products in order to be healthy. Lactose intolerance is prevalent among many groups: 75% of African Americans and 90% of Asian Americans are lactose-intolerant, as are 90% of Chinese, and 98% of Southeast Asians and Thais. Milk is clearly not a "perfect food" if entire ethnic groups cannot digest it.


It's calcium that we need, not milk. I don't think there is anything wrong with the gluten/casien free diet whether the person on it has an ASD or not. Besides, what's healthy about consuming another species baby feeding formula? Eww!

I think I spot another vegan. :D Greetings!



ouinon
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01 Aug 2009, 3:27 am

Callista wrote:
[ Celiac disease ] is not more common among autistics than NTs.

A very recent study shows that the risk of autism in people with coeliac disease is three times that for people with no auto-immune disease.

The study, with a large sample of a few thousand children in Denmark, shows a link between autism and mothers with auto-immune diseases.

Quote:
Autism Linked to Mom's Autoimmune Disease—Including Celiac Disease

* By Jefferson Adams
* Published 07/8/2009
* Autism and Celiac Disease

Celiac.com 07/08/2009 - Kids whose moms have autoimmune diseases such as type 1 diabetes, rheumatoid arthritis and celiac disease face a risk of Autism that is up to three times higher than that of the general population, according to a new study.

Although earlier studies have documented a connection between autism and a maternal history of type 1 diabetes and rheumatoid arthritis, this is the first study to document a link between autism and celiac disease, according to the study's authors.

A team of researchers led by Dr. William W. Eaton, chairman of the Department of Mental Health at the Bloomberg School of Public Health at Johns Hopkins University recently set out to review data related to autoimmune deficiency and autism.

Eaton's team collected data on 3,325 Danish children diagnosed with autism spectrum disorder, including 1,089 diagnosed with infantile autism. All of the children were born between 1993 and 2004, and their data was part of the Danish National Psychiatric Registry. Data on family members with autoimmune diseases came from the Danish National Hospital Register.

The data showed that children whose mothers had autoimmune disease faced a higher risk of developing autism spectrum disorder than children of mothers who did not have these conditions. Moreover, children with a family history of type 1 diabetes faced an increased risk of infantile autism ...

"The increased risk [ of autism ] for type 1 diabetes is a little less than two times, for rheumatoid arthritis it's about 1.5 times and for celiac disease it's more than three times," Eaton said. "That's enough to impress an epidemiologist"

... Eaton added that this finding "reinforces the suggestion that autoimmune processes are connected somehow with the cause of autism and autism spectrum disorder, and...may point a flashlight to areas of the genome that connect to autism."

There may be a significant overlap "in the genetics of some of the autoimmune diseases and autism," he said. "Autism is strongly inherited, but we don't have the faintest idea where...this finding is on the pathway of finding the cause of autism." Various environmental triggers may also affect the fetus, he said.

Lead researcher, Dr. Hjordis O. Atladottir, from the Institute of Public Health at the University of Aarhus in Denmark calls the findings important because they support the theory that autism is somehow tied to problems with the immune system.

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Last edited by ouinon on 01 Aug 2009, 4:20 am, edited 1 time in total.

ouinon
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01 Aug 2009, 3:57 am

Callista wrote:
Celiac disease is pretty easy to diagnose -- biopsy of the small intestine shows damage if it's present.

Celiac disease is just a subset of gluten intolerance/sensitivity. Studies are finding more and more evidence for gluten having a negative impact on the brain, nerves, etc, even when gastrointestinal damage is not present.

For instance studies have shown increased immune-system hyper-reactivity to gliadins, ( part of gluten ), in autists. The gliadin reaction is present in many people who have no obvious gastrointestinal problems.

For anyone actually interested in finding out about the subject the site at http://www.celiac.com/ is full of articles and research papers about the effects of gluten, as is the site "The Gluten File" ( which I linked to on the previous page ), at http://jccglutenfree.googlepages.com/

The extent of the gluten problem is becoming increasingly visible, and has been recently referred to as "The Gluten Syndrome".

Quote:
The Gluten Syndrome—Gut, Skin and Brain
* By Dr. Rodney Ford M.D.
* Published 10/22/2008 Celiac.com's Scott-Free Newsletter.

The Gluten Syndrome refers to the cluster of symptoms that you experience if you react to gluten.

Gluten can affect your gut, your skin, and your brain. It includes celiac disease, along with the myriad symptoms that can be experienced throughout your gastro-intestinal tract in response to gluten. It also includes many other symptoms that do not stem from your gut. These include brain and behavior disorders, irritability and tiredness, skin problems, muscular aches and pains and joint problems.

Rapidly accumulating medical evidence shows that gluten is creating a massive health problem throughout the Western world. However, woefully few people are aware of the catalogue of harm that gluten is causing. ... Gluten could be responsible for one-third of all cases of chronic illness and fatigue. ... Gluten can cause malfunctions of the brain and neural networks of susceptible people. .
.

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01 Aug 2009, 8:42 am

ooOoOoOAnaOoOoOoo wrote:
sg33 wrote:
I just want to point out that it is not necessary to ingest animal milk products in order to be healthy. Lactose intolerance is prevalent among many groups: 75% of African Americans and 90% of Asian Americans are lactose-intolerant, as are 90% of Chinese, and 98% of Southeast Asians and Thais. Milk is clearly not a "perfect food" if entire ethnic groups cannot digest it.

It's not because milk is a bad product lacking nutrients. It's because their ancestors didn't drink cow's milk so they didn't evolve the protein and immunity needed to digest dairy products from cows. Low fat and skim milk are supposed to be good for you, if you are not lactose intolerant, that is ;)


Actually it was that there was no advantage to carrying the β-galactosidase gene.. :nerdy:



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03 Aug 2009, 11:02 pm

I'm glad that I wasn't put on a gluten free, dairy free diet. That seems like child abuse to me.


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04 Aug 2009, 6:38 am

I was suspicious of the stories that said that a gluten free diet or a dairy free diet is good for autistic people.



TobyZ
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05 Aug 2009, 10:16 am

tweety_fan wrote:
I was suspicious of the stories that said that a gluten free diet or a dairy free diet is good for autistic people.


If you are an adult, it's pretty damn simple. For me, I felt sick (drugged) all the time for years. I went gluten-free for at least 45 days... now if I eat regular bread I turn red and feel like crap (drugged).

I went on a diet where I would eat only one or twice a day. It made food preparation easier and allowed me to focus more on the meals. If you do it right with planning, skipping meals is not bad for your health - it has benefits. See: http://www.ncbi.nlm.nih.gov/pubmed/16529878

I'm not saying everyone is the same - but is it really that hard to try a diet change? It isn't hard for me to see my gluten intolerance. I've had accidental contamination (sauces like BBQ are pretty easy thing to have problems with) and gotten sick. And as soon as I take Benadryl the symptoms clear up within 5 minutes (especially the fast acting dissolving strips).

My point: If you are an adult... it really isn't that hard to shift to home cooked rice, beans, potatoes for a few weeks - then see if you behavior and "feeling" improves. Then try eating some bread for a couple days.

If you have anything serious, YOU WILL NOTICE.



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24 Feb 2010, 10:05 pm

*bump*


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25 Feb 2010, 1:24 am

ouinon wrote:
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"Classic" Celiac Disease presents with GI symptoms and wasting, but most Celiac Disease does not present in classic form. It is important to note that Celiac Disease can be 'silent'- totally asymptomatic, until the complications of malabsorption begin to set in many years down the road. Some adults suffer depression or anemia as their only symptom. Children's symptoms can be as mundane as stomach aches and canker sores. One can be tall and/or overweight and have Celiac Disease, counter to many physicians outdated beliefs. Twenty percent of those with Celiac Disease suffer constipation rather than diarrhea...and only 50% have diarrhea. GI symptoms can be completely absent.

Gastrointestinal symptoms are not a reliable indication of whether gluten is a problem for someone, so arguing that people on the spectrum don't seem to suffer from more G.I. problems than non-autists does not mean gluten-free diets are inappropriate.
I agree. I am on a GF diet, even though I did not have apparent GI symptoms (but I rarely felt clear-headed, so there was obviously something wrong) and I love the effects of it. But I'm convinced that I know many neurotypicals who would benefit from this diet. And they don't have to have celiac. Leaky gut syndrome can occur in anyone, especially when the gut becomes damaged over the lifetime (the most popular cause would be drinking alcoholic drinks, and also eating unhealthy foods).
Even though the GI effects may be absent, if you go on the GF diet for a month or so and then eat something with gluten in it again, you'll feel the reaction, because your body has been rid of the toxins already and it's not used to the effects anymore. I once ate a bag of pretzels after about 3 weeks on the diet, and I got very dizzy and almost fainted.


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