The Message You Want the World to Hear

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CockneyRebel
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23 Feb 2010, 11:50 pm

That we must all celebrate our differences, no matter what they are, and not to be afraid of the NT world.


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glider18
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24 Feb 2010, 7:32 am

Hi Hale_bopp. I agree with you. With my personal view of AS, I see it as a tool, and although we have challenges, so does everyone.

Hi CockneyRebel. It would be so amazing to have a celebration of differences. I agree with you. And very true---we should not be afraid of the NT world. And they should accept us.

Thank you, your voices will be heard.


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Delirium
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24 Feb 2010, 9:25 am

Quote:
i want the world to hear that aspergers is a label and people shouldnt use it as an excuse.


THIS.

Also:
- Don't act like you know what it's like to have ASD just because your kid has it.
- Just because your kid has an autism spectrum disorder doesn't necessarily mean that you have one,, so don't diagnose yourself with it. Sometimes, s**t happens.
- Stop diagnosing yourself with Asperger's and then using it as an excuse. The only thing worse than self-diagnosed people with Asperger's are those who use it as an excuse for everything. It's like if a non-disabled person bought a wheelchair and demanded that they get special privileges even though they're perfectly capable of functioning without it.
- While you're at it, stop trying to diagnose every fictional character and famous person with Asperger's.
- Stop ignoring low-functioning autistic people, especially when it comes to the question of whether or not to cure them. I can understand why you might not to cure Asperger's, but someone who's 25 and can't even function at a toddler's level is obviously in need of a cure.
- VACCINES DO NOT CAUSE AUTISM AND JENNY MCCARTHY IS FULL OF s**t.
- I don't want to be proud of having Asperger's. I can't stand it at all and I don't want to be proud of it. Stop trying to insist that I should be.


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Irisrises
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24 Feb 2010, 10:13 am

All the best, Glider.

This is my input: people are people.

For what its worth. :)



Kajjie
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24 Feb 2010, 12:21 pm

glider18 wrote:
Thank you Kajjie for your voice---it will be heard. I can understand your view of autism as a disorder with the terrible anxiety. I get some anxiety, but I can usually find ways to manage it a bit. I am happy that you see diversity as an important voice of autism. I agree that the world needs to understand autism since it does have the potential to make a large impact on society. And I am happy to see others that don't want to be normal. Autism is all we have ever known. Thank you again for your voice.


Thank you for asking + listening :)


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justMax
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24 Feb 2010, 5:09 pm

I would prefer to enable LFA afflicted to interact than get the idea that this is something you can just pop a pill and fix, it's a fundamental variation in the brain structure from the norm, it isn't just curable like an exterior sourced disease.

It's more akin to scoliosis, which is a fundamental variation in the bone structure, or dwarfism and related variations in growth rates.

There were connections that didn't get made, some that didn't get trimmed, some made to abnormal locations, so forth.

There is still a person in there, but where most of us are able to reach out somewhat, they are not, or to a far lesser degree, and generally through unconventional means.


I do agree about the self-diagnosis to have an excuse being the wrong way to go around things, and do not recommend self-diagnosis if you are assuming that your diagnosis is correct from the outset, rather than trying to disprove it.

If you can not prove that you are not wrong, it is best not to claim you are right.



jojobean
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24 Feb 2010, 10:35 pm

I believe that the project to prevent autistic births...is more than just selfishness. It is politically motivated because politicians don't like anyone upsetting the status quo. And as far as the world knows, true or untrue, "autism is on the rise". Autistic people in general tend to think outside of the normal parameters of life...which sometimes make our political viewpoint a bit radical by NT standards. The old guard is on the decent from their prime and they have to think about the future status quo. "The rise in autism" will in their minds upset that balance. It is more like an politically- based unborn genocide than anything. If you want to check and see if I am right...look into what politicians fund these programs or at least seriously donate to them. I know my message is not warm and fuzzy, but if it could be the one thing that I could say on our behalf...that would be it.


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glider18
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25 Feb 2010, 8:18 am

Thank you Delirium, Irisrises, Justmax, and Jojobean for your input. I can understand your points, and they will be well taken. You have given me a considerable amount of information about your views on autism. Your voices will be heard.

You're welcome Kajjie. I appreciate your views.


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anxiety25
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25 Feb 2010, 9:35 am

Hmmm... maybe that even though I can seem quite robotic at times, not to lose sight of the fact that I am human, all the same. I may not get wrapped up in social conversations on my own, but I might, if others would give me a chance and at least try to get me involved rather than just assuming I don't want to because I'm sitting on the outside of it all. Granted, I may not last long once I get into it... but it would be nice to be included sometimes, especially when I don't have much of a choice to be there.

I may prefer being by myself, but in situations where it is expected to be interacting, I just have no clue where to start.

Also, I'm not after sympathy. I don't want to hear "I'm so sorry to hear you have these struggles" or "it must be so hard for you". I ultimately want acceptance, and for my differences to be overlooked-even if some of them are obvious. Comment on them if you want, but don't assume that I am absolutely miserable just because I'm rocking back and forth. Ask me what's going on, but don't assume that you know what I'm thinking. Help is appreciated, sure, but it's not always help that I'm needing.

Hmmm.. one more thought, lol. (editing this one in)

Maybe to you, I seem like a puzzle that is missing some pieces. But sometimes, I might have a different perspective that can provide the missing pieces to a puzzle you are trying to solve.


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Lecks
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25 Feb 2010, 10:19 am

What I want the world to hear:

Where the hell is my mech suit?! Come on, science, you can work faster than this!


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dalekaspie
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25 Feb 2010, 10:27 am

now hear this, the planet is in control of the worm people!!


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CockneyRebel
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26 Feb 2010, 12:15 am

Be yourself in 2010! (Drum roll). 8)


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Danielismyname
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26 Feb 2010, 5:57 am

I hate you all.



b9
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26 Feb 2010, 6:27 am

i want the world to hear i am not interested.



glider18
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26 Feb 2010, 7:15 am

Anxiety25---You have made very valid points. I understand your thoughts on socializing and the comments on not wanting sympathy. I too get frustrated when people assume that just because we are different that we are miserable. I really like your missing puzzle piece quote. Your voice will be heard.


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Fo-Rum
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26 Feb 2010, 8:31 am

I find Asperger's to be a bit odd. It is "well known" but at the same time it isn't. There are so many people still who know nothing of it, that should. I don't mean the general public, but people who are in the position to help others.

Where I am at, nobody at the mental health care clinic had even heard of Asperger's Syndrome. I went and talked with a psychiatrist there and she asked me, "How would I tell if you were doing better?" If she can't see what is off right away, given that I didn't make eye contact at all during the process, then I question her ability to perform at her job. Needless to say.. I didn't contact them again.

So, what I think should be heard is that still so many people who SHOULD know about ASD's know little to nothing of them, and that this should be remedied so that actual support can be given. These people get paid to do their job, and they can't do their job if they don't know how to do it!


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