Is it just me or does this girl seem more AS or schizophreic
Analyzing.
All of these animals she speaks of.
They all live in Calalini is the border of "my world and your world (this world)"
Jani Likes Calalini better than this world.
Her father wrote in his blog:
http://www.furiousseasons.com/archives/ ... _girl.html
""We tried everything. Positive reinforcement. Negative reinforcement. Hitting her back (I won't tell you how many people told us that all she needed was a good beating). We took all her toys away. We gave her toys away. We tried starving her. We did EVERYTHING we could to try and break her. Nothing worked."
Cat 400- bad friend
24 hours- a person
Monday-Sunday
Wednesday - is the worst one because she tells her to hit.
Sycamore- cat
When the girl told Oprah NO I DON'T WANT TO TALK, the father asked "what about Wednesday?" Jani replied, she's still here swimming. Then he asked "What about 400?" Jani replied "No she just left".
Could she have associated Oprah as 400 the bad friend and everyone she thinks of as a bad friend as cat 400 or is Cat 400 the girl's bad friend alarm?
Monday-Sunday. 24 hours. Drugs and a person.
Wednesday the rat, the worst one. Is she put on a medication that makes her violent?
I noticed that the dad makes sure she has similar routines and a dry erase board the same as the hospital she goes to. Sameness and routine.
She's on the drugs:
Clozaril- 200 mgs a day
Lithium- 600 mgs a day
600 minus 200= 400.
"Clozaril is the last resort for adult schizophrenics" the mother said.
She seems to speak in codes. When she visited the other girl in the hospital, both had imaginary friends with numbers assigned. Both had stims.
The girl named Becca. She spoke of an imaginary dog named 40. Becca is also put on anti-psychotics. When asked if they get rid of the shadows that she sees she replies no.
I think both are speaking in code relating to actual experiences of their lives and have assigned imaginary characters and number associations to what is really going on in their reality.
Perhaps Calalini, the world in between both her world and this world is actually the drug world.
I am not sure what's really going on. She could be autistic. She could be schizophrenic. She could be having a worse time on these drugs. She could be trying to give a message in her own way that she's not happy with her home life could be a combination of scenarios. She's trying to say something and it's not good
Childhood schizophrenia is rare. The parents thought she had a bunch of imaginary friends and had a hyperactive imagination. They didn't start doing anything until she got violent at age five. So they started taking her in and she got diagnosed at age six.
When you watch the whole video, you see it is schizophrenia because the parents explain the animals tell her to do things. The thing is, she doesn't like it either and what they tell her to do but she can't get rid of them like normal kids can with their imaginary friends. She hit a kid on the playground because her hallucinations told her to and she didn't want to hit the boy but she did because she was told to.
Autistic people don't have hallucinations and they don't do things because the voices told them too. This little girl can't get rid of all these animals she sees because they're all real to her. Normal kids can get rid of their imaginary friends but this girl can't.
I get the impression Jani is being exploited, abused and driven crazy with meds. She may have really had aspergers but now is dealing with parents who suffer from Munchausen by Proxy. The father got a book deal too. The father wrote in his own blog in the about me section before he took it down:
http://www.januaryfirst.org/www.january ... ut_Me.html
"We tried everything. Positive reinforcement. Negative reinforcement. Hitting her back (I won't tell you how many people told us that all she needed was a good beating). We took all her toys away. We gave her toys away. We tried starving her. We did EVERYTHING we could to try and break her. Nothing worked."
"The violence became so bad that at times Susan and I both lost it and hit Jani as hard as we could. We hit in impotent rage.
We got a referral to a psychiatrist.
Two months later, Janni was hospitalized for the first of what has since been four times, but in truth will be many more times.
Today, Jani is no longer a brat. Today, Jani is schizophrenic."
Anytime there is any responsibility involving Jani, Jani is taken back to a shrink or the psych ward. Did her parents even want her?
http://advancedcognitivepsychology.blog ... -with.html
On Thursday, June 25, Jani's blood test results came back. Her thyroid levels were abnormal and there was blood in her urine. She complained of constant itching.
Susan stayed home in Bodhi's apartment while Michael turned off the lights in Jani's apartment and drove her to UCLA.
January Schofield was re-admitted to UCLA's Resnick Neuropsychiatric Hospital later that day.
"It was really hard to take her back," Michael says. "It feels like a failure. We really wanted to make it work."
Jani's doctors at UCLA have decided to wean her off her current medications and try Clozaril, a last-ditch anti-psychotic that carries the risk of severe side effects. In the meantime, the Schofields are completing paperwork seeking to have Jani admitted to a study on child schizophrenia at the National Institute of Mental Health in Bethesda, Md.
At least the parents aren't abusive anymore. They even said in the video they don't know what is normal behavior and what is schizophrenic behavior so they don't know when to discipline her because they can't tell the difference. It sounds like she no longer gets punishments because of her illness.
She takes pills three times a day and the parents say she is better on them and without them she is more violent.
They said she also has to be entertained and she can't do it herself because of her hallucinations. They distract her.
CockneyRebel
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http://www.januaryfirst.org/www.january ... ut_Me.html
She's going to be on the Discovery Health channel in a few days on a program about schizophrenia. The little girl in the comercials looks just like the one on the Oprah show and her name is Janaury. I assume "Jani" is short for that.
http://www.januaryfirst.org/www.january ... ut_Me.html
She's going to be on the Discovery Health channel in a few days on a program about schizophrenia. The little girl in the comercials looks just like the one on the Oprah show and her name is Janaury. I assume "Jani" is short for that.
It is.
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(Disclaimer: I didn't watch the whole show. But how many pills a day do we think she might be on?)
Edited to add: Yup, she's on lithium and clozapine. At 7 years old. That's the real travesty here.
I know when I heard that it just made me sick. It also upset me when she was saying she was bad because she has schizophrenia. That is so messed up and F-ing wrong. Who the Hell told that little child she was bad because she has schizophrenia?
My Münchhausen alert is slightly vibrating. I really wonder why they would be stupid enough to have another kid. Even if they didn't know she had an illness, she was obviously a handful before the brother was born. Was the second baby a contingency? Its like the first one wasn't quite right so they need a do-over. I wonder if the doctors ever checked her for poisoning?
I just did a search on this girl- the results are extensive. It is like the Jon and Kate BS only with a mental illness. I wonder when TLC will have a show on her, if they had not before.
I seriously hope Jani makes it through this alive.
Her parents are the ones who are crazy.
Just read some of this:
http://www.januaryfirst.org/www.january ... unds..html
When I got to the hospital tonight, Janni was screaming that she couldn't swallow and was crying. She had developed distonic symptoms again, which is when the muscles in the body begin to lock up from the effects of the Thorazine she is on (300 mg-enough to make Jeffrey Dahmer a vegetarian). It makes her look like she having a stroke. She drools and slurs her words as half her face falls. It's treatable with Benadryl but scary as hell. So the docs at UCLA Resnick Neuropsych reduced her Thorazine dose. Within minutes she is crawling along the walls of the psych ward and talking to animals in the sky. When we got there for visiting hours she was screaming she couldn't swallow. But she could. It was totally psychotic. I took her in my arms and sat in a office chair, sliding back and forth across her room and saying "wheee!" It was a desperate gamble that I could still reach her. That's how I know how psychotic she is. If I do something wacky or silly and she laughs, I know she is still with me. I didn't get a laugh tonight, but she smiled. She is still with me...
http://www.janisjourney.org/index.php?o ... Itemid=104
She'd been talking about the rats for awhile (she is back to insisting they are real-these are the rats in her head) but now the violence is back. 400 the cat has reappeared after a long absence, and 400 cat is a bad cat that tells her to hit and scream (which she is also back to doing).
She is on 300 mg a day of Seroquel is doing nothing. They need to up her Thorazine from 100 mg a day as that is the only thing that works.
However, we are frustrated because the staff and doctors seem to thinking that it is just her "imagination" again, and considering autism and Asperger's (even though this has already been ruled out time and time again). Yes, she "self-stems" as they call it, rubbing her hands together real fast....but that and the "autistic" behaviors went away at 300 mg of Thorazine. I don't know why in the hell they are so resistant to labeling her "schizophrenic" but yet so eager to label her "Asperger's." Is schizophrenia really so much worse? But she f*****g talks to animals and people who aren't there! And she is violent! That isn't autism! That's psychosis! I feel like we are just going around and around in f*****g circles here.
In conclusion, these parents WANT their kid to be labeled schizophrenic. They are making money off of her, the father already admitted to hitting her and starving her. The father wants this girl to appear psychotic for his own reasons. It's obvious. It's a shame that this little girl could die because of her dumb parents and they will of course blame it on her being "psychotic". I suspect they didn't want her, view her as a burden, want her to be psychotic and treat the little boy better than her which is why she started getting "violent" when he was born. They don't deserve this gifted child who most likely has aspergers and now will become psychotic thanks to the meds.
Their willingness to accept victim status as parents throws up some alarms too.
http://www.januaryfirst.org/www.january ... try_1.html
I know, and Susan knows, that we have had horrible fights over the past six years. Before I was on Lexapro, some of them were violent. I have had to recall a memory of once trying to throw Susan out of our moving car because I was so angry.
This requires some explanation.
Unfortunately, Jani saw some of my violent rages. She has seen me hit her mother and her mother hit me back. Surprisingly, no matter how violent or difficult she might be in the moments before I went off, she would always grow calm, almost maternal when I did. She would calmly tell me to calm down, parroting back to me all the things Susan and I would say to her when she raged. When that failed, and Susan and Jani had to leave, as they sometimes did, Jani would comfort Susan and tell her it would be okay, that "sometimes Daddy just gets angry."
So what would set me off?
It was always the little things. Perhaps something would spill on the floor (I did most of the cleaning). Perhaps we lacked money to pay bills (I paid the bills), but I am talking about not being able to make a credit card payment, not being put out on the street. Things that since then I have come to understand are no big deal. But then, before Lexapro, I could feel the anger building inside of me, but be unable to stop it. Even during my most violent rages, a small voice inside my head would be telling me "You are going to regret this, Michael." I could see the fear in Jani's eyes. I could see in the pain and anguish in Susan's eyes. But I could not stop. It was a bizarre experience. I was rational, yet not in control of my emotions. There was so much rage in me that I wanted to hurt. Because I was hurt. And I wanted the world to feel my pain.
I suspect that some variation of this is what Jani experiences.
I suspect that this is also what serial killers experience. The only difference between them and me is I eventually listen to that voice telling me what I was doing was wrong.
I do wonder whether she may not have more of a problem with impulsivity and anger control than anything else. Worse, she's been taught that when she does something impulsively, it's the disease and the solution is to take her meds. That's not the way to teach a kid to self-regulate.
I just did a search on this girl- the results are extensive. It is like the Jon and Kate BS only with a mental illness. I wonder when TLC will have a show on her, if they had not before.
Any decent doc will check kids her age for poisoning if they're acting funny. Kids get into the craziest things, and then there's always the possibility of lead paint or some other toxin that affects kids more because they're just smaller.
I do wonder why they treat her the way they do. It's as though they're desperate to turn her normal. Whether she has autism or schizophrenia (or perhaps something else entirely), it's like they're completely invalidating her experiences--"That's just the disease," etc., like her feelings aren't real; her desires aren't real; her misbehavior itself isn't real. It's like they're taking away her ability to choose for herself by saying "That's just the illness." I don't know if that makes any sense... It's like they will only believe that you exist if you're doing what they want you to do; everything else isn't you, it's an illness. I've had it done to me and it's about the most disempowering thing I've ever experienced--worse than being pinned to the floor for having a meltdown.
re. stims going away on antipsychotics: So did mine. I was too tired to move, and too tired to think. Stimming helps me think and process things, so when I was on antipsychotics, I didn't need to stim because I wasn't thinking.
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http://www.furiousseasons.com/archives/ ... _girl.html
I really don't think that letting a child voluntarily go two days without food is child abuse. They were trying to get her to eat a wider variety of healthier foods. They were doing what was suggested to them by a doctor. A child can certainly go without eating for a couple of days with no harm done. My kid has when she's been ill. And it's not like they were witholding all food, they were just witholding mac & cheese.
Posted by: Allison at July 16, 2009 11:45 AM
If this is what the father meant by starving their child, then it wasn't really child abuse. My mom has also sent me to bed on a empty stomach when I was little because I refused to eat my dinner. If I was hungry, she tell me to eat what she made for dinner.
One time I threw my brotworst (sp) in the trash when I was six and there was no more left on the plate so as a punishment I went to bed hungry and my mom wouldn't let me eat anything else until the next day. She go "You threw your brotworst in the trash" when I complain I was hungry. I couldn't take it out and eat it because it landed on my baby brother's used diaper.
There were times when she take dinner away from me as a punishment because that was what she read in a parenting book but then she decided that discipline was stupid because taking meals away from your child just makes them cranky and harder for them to behave because they're hungry.
It is not uncommon for parents to have their kids go hungry just because they refused to eat their food they made them. I would do the same for mine if they refused to eat what my husband made. If they complain about being hungry, I would tell them to have left overs. Either go hungry or eat what was made for dinner.
Even parents have tried this with their autistic kids and it didn't work because their child would end up not eating at all and they didn't want their child to starve to death so they ended up giving in. It never got their child to start eating what they made.
I need to look into that blog the father wrote.
http://www.januaryfirst.org/www.january ... _Life.html
When you are a first time parent, you sometimes listen to people you shouldn’t. That was a mistake we made but we don’t make that mistake anymore. Which is also why I don’t listen to some of you.
2. I have never "starved" Jani. Yes, I wrote that statement but it was taken entirely out of context by people who seem to selectively read my blogs. As I have written many times, Jani will refuse to eat unless she gets the food that she wants. Long before we got any mental illness diagnosis, more pediatricians and child behaviorists than I can count told us to serve her whatever the family was eating and if she didn't eat it that day, eventually she would get hungry enough and eat what was put in front of her. Unfortunately, she never did and lost about 7 pounds before we abandoned that plan. Jani will starve herself if she doesn't get the food she wants (although this seems to be abating a bit now with the Clozaril). So when I wrote that we "starved her" I meant we did what "medical professionals" told us to do.
Jani, on the other hand, still blames herself, or at least the voices tell her she is bad (we, on the other hand, constantly tell her how good she is-you can read in past blogs where Jani has screamed at us "I'm not a good girl!" and hit us when we told her she was. The voices don't like it when Jani is complimented. Jani has been known to attack if you tell her she has pretty hair. When she is under medication that is working, she does none of these things and has a very happy and positive outlook about herself.
Do you know what it is like to tell your child over and over again that you love them but they can't hear you through the voices in their head?
I have never blamed Jani for the way she is and I never will. Yes, at times I listened to bad advice. But we don't anymore. We listen to our hearts. And our hearts tell us that Jani is a brave little girl fighting against a terrible illness.
By way of information, we stopped locking her in room ALONE, because we eventually realized this was the worse thing we could do because it left her alone with her hallucinations and whatever they were telling her. Now, when she is at her home, she still goes into her room, but which ever parent is on duty goes in with her and we continue to talk her calmly inside the room. This seems to help minimize the length of time of the psychotic rage. Also it seems Jani, as she grows up, is learning to resist what the voices tell her.
Blah this is long. Too long to copy and paste here. Everything is in the link.
http://www.januaryfirst.org/www.january ... ting..html
It isn't what you think. Susan and I will be living in separate apartments, but not because we can't stand each other. I seem to vaguely remember saying to some girl I dated in high school "I would die for you." I wasn't being insincere exactly. As teenagers in what we think is love we say things without having any idea what they mean. What I actually meant is "I would die to get in your pants," which as a 17 year old boy was true. There was nothing else more important to me then.
I don't think I have actually ever said that to Susan. To tell the truth, we never had that kind of passion, even in the early years. We never lusted after each other. Our relationship was built on an incredible sense of comfort. With Susan, I have never had to edit myself, never had to lie, never had to be anything other than what I am. Susan has seen both the best of me, such as now, and the worst of me, before I was on Lexapro (an antidepressant), when I would fly into violent rages. I have hit her.
That was not easy to write. I am not sure why I did write it. Maybe I want you all to know that I am a deeply flawed individual. Of course, she hit me back. Susan takes no crap, which has helped her in dealing with the nightmare we now find ourselves in. Still, that is one of things I am most deeply ashamed by. The only reason I can deal with that shame now is because I have taken steps to better myself, the biggest being taking medication. It is the medication that stops me from being a violent a**hole, not any great character attribute in me.
Now I know what it means to say "I would die for you" because I am. So is Susan. We are both dying inside everyday that we watch the daughter we knew die. Every day we look for the tiniest sign that our little girl might be there under the psychosis. I did not see Jani today but Susan did. She reported Jani did reasonably well, even saying that she loved Bodhi "this much," indicating about a quarter inch between her thumb and forefinger. That quarter inch is all the hope we have.
I could never have the kind of relationship I have with Susan with anyone else. Relationship is too petty a word to describe it. Susan and I go to hell almost every day, but we go there with each other. We hope that one day we will be able to together as a family, but in the meantime we die together as a family. We no longer know where one of us ends and the other begins. There is only one.
I wrote last night about the birth of the idea to live apart, one parent with Bodhi and one parent with Jani. Fearing for Bodhi's safety and Jani's mental health if she is forced to live with him, I brought up the idea again last night on the way home from visiting Jani. Susan would take Bodhi and go to her family in San Francisco and I would stay here in LA with Jani. Why Susan with Bodhi and me with Jani, even though I have already been investigated once for potential sexual abuse? Because at the end of the day I am Jani's strongest link to our world. I have her wacky sense of humor. I teach her. I am ultimately the only one who can even try to make this world interesting enough for Jani to stay alive. I know Jani wishes she could connect with Susan. It is not because of Susan. It is because of Jani's mind. Jani does not see Susan as being "like her."
But Susan wants to be in the life of her daughter and wants Bodhi to have his father, so she came up with a brilliant idea. We will trade in our two bedroom apartment for two one bedroom apartments in the same complex. They will not be my apartment or Susan's apartment. They will be Jani's apartment and Bodhi's apartment. Susan and I will trade off, alternating nights between the two children, as if Jani and Bodhi were a divorced couple and we were the children. I went to see the manager of our complex today. She knows our situation and was very understanding. There are two one bedrooms in our complex facing each other from the parking lot. Susan and I can come out on the balcony and look at each other across 100 feet of asphalt. We plan to move in May if I can scrape together the money. Even Jani's doctor at UCLA thinks it is a good idea, although she wants us to wait and see if the lithium works.
Jani started lithium tonight. The doctors want to see if it can improve her impulse control. Lithium requires urine analysis to check for kidney function, blood tests to check for liver function, and an EKG to check heart function. All this sounds terrible, but you must know we would not do this unless the disease was so much worse than the cure. If lithium does not work, Susan and I have resolved to drug Jani into a stupor with Benadryl so that she can function without becoming violent. At this point we must make this horrific decisions like living apart in order to create the best life we can for our children.
Why do I feel like I am amputating one part of my soul to save the whole thing? Because I am. Because I would rather live apart from the love of my life rather than lose my children. Because if Jani ever seriously hurts or kills Bodhi, she will kill herself as well. We would lose both. Because the Department of Mental Health still won't return our calls and won't find Jani a placement in California. Because in the end we are alone and this is the only way to save us.
So the father had violent rages before he was put on antidepressant.