How to I get hospital staff to understand my needs?

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wavefreak58
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05 Jan 2011, 9:50 pm

PunkyKat wrote:
wavefreak58 wrote:
PunkyKat wrote:
Wouldn't the letter just give them an excuse to shoot me up with more Paxil when I get upset?


This may not be a bad thing in the short term. I say this only because a hysterectomy is major surgery and you don't need to have complications with your incisions and such. I don't know the details of your meltdowns but if they are at all physical, you could tear your incision. It might be better to be in a drug induced calm for a few days. Call it a mental vacation to la la land.


If I don't get a hystorectomy, I'm probably going to need an epic blood transfusion every month. I used to think most people were just big sissies but aparently I lack the ability to feel physical pain. Well, what normal people would call pain. I had to have blood drawn and the bandage bothered me more than the needle "jab". I had my wisdom teeth removed with a local and everyone kept telling me I was such a trooper. I thought they were just sissies.

I just tend to discoiate during my meltdowns. I'm worried something is going to be the straw that breaks the camel's back and my personality is going to split. I've tried taking drugs to make me calm and they did the exact oppiste of what they were supposed to do. I have to be extra careful about my paxil dossage because if it isn't just right, I have horrible panic attacks FROM the paxil. If I don't get panic attacks, I get horrible dizzy spells where I can't stand up without falling.


This is pretty important stuff for the hospital to know. If Paxil induces panic they need to know. My point is that the physical part of the surgery could be compromised if the wrong thing is done. From what you are saying, LESS medications might be the best path for you. You DON'T want a ruptured incision because they give you a medication that causes an atypical reaction.

Self advocating for this is tough. Is there anyone other than your mother that can help you out?


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DandelionFireworks
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05 Jan 2011, 9:51 pm

PunkyKat wrote:
You still have periods with birth control


Technically, you only have them if you go off the pill monthly, which is how most regimens are designed.

I'm sorry. When you said you had to beg your gynecologist, I assumed that was because he was a sane doctor and you were overreacting or unaware of the effect this would have on your hormones. From your clarification it seems I assumed incorrectly.


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PunkyKat
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05 Jan 2011, 10:09 pm

DandelionFireworks wrote:
PunkyKat wrote:
You still have periods with birth control


Technically, you only have them if you go off the pill monthly, which is how most regimens are designed.

I'm sorry. When you said you had to beg your gynecologist, I assumed that was because he was a sane doctor and you were overreacting or unaware of the effect this would have on your hormones. From your clarification it seems I assumed incorrectly.


Well, I'm keeping my ovaries. I wish I could sell my eggs and make some decent $$$ but my mom says they'd just use them to grow a baby and then kill it for stem cells. Do they grow to full term infants? Anyway, it's not like it is going to be tortured over and over like so many lab animals do and anyway if they do kill them, they only have to die once. I can't stand people who think abortion is worse than animal testing. At least the baby only has to die once. These babies grow up and become bullies or worse anyway. If babies stayed babies, perhaps I would a more pro life mindset and even if they did, just what is so great about human babies?

I could never remember to take the pills anyway.

I think I have such an aversion to hospitals because my mental scars of being in the booby hatch as a kid have never been allowed to heal. As much as I try to block them out, I just wake up screaming from a nightmare about it.

My mom just told me she plans to convince them I will need a private room when they call about the arrangements. I just wish she would have told me that when I was trying to ask her to but she just started screaming at me and threatned to have the whole thing cancled if I did not "behave myself".


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sinsboldly
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05 Jan 2011, 11:39 pm

PunkyKat wrote:
DandelionFireworks wrote:
PunkyKat wrote:
You still have periods with birth control


Technically, you only have them if you go off the pill monthly, which is how most regimens are designed.

I'm sorry. When you said you had to beg your gynecologist, I assumed that was because he was a sane doctor and you were overreacting or unaware of the effect this would have on your hormones. From your clarification it seems I assumed incorrectly.


Well, I'm keeping my ovaries. I wish I could sell my eggs and make some decent $$$ but my mom says they'd just use them to grow a baby and then kill it for stem cells. Do they grow to full term infants?


PunkyKat! think of what you are asking. Do you really think that there are baby farms like turkeys farms that they are raising human babies to kill them for their stem cells?

you are kidding, right?

Merle

PS I hope your surgery goes well, PK, and you get the hospital staff of your dreams and then wow them all by setting healing/recovery time records! :)


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PunkyKat
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06 Jan 2011, 12:05 am

sinsboldly wrote:
PunkyKat wrote:
DandelionFireworks wrote:
PunkyKat wrote:
You still have periods with birth control


Technically, you only have them if you go off the pill monthly, which is how most regimens are designed.

I'm sorry. When you said you had to beg your gynecologist, I assumed that was because he was a sane doctor and you were overreacting or unaware of the effect this would have on your hormones. From your clarification it seems I assumed incorrectly.


Well, I'm keeping my ovaries. I wish I could sell my eggs and make some decent $$$ but my mom says they'd just use them to grow a baby and then kill it for stem cells. Do they grow to full term infants?


PunkyKat! think of what you are asking. Do you really think that there are baby farms like turkeys farms that they are raising human babies to kill them for their stem cells?

you are kidding, right?

Merle

PS I hope your surgery goes well, PK, and you get the hospital staff of your dreams and then wow them all by setting healing/recovery time records! :)


I've always heard that they grow a "baby" for stem cells and then kill it when they are ready. My parents think that is horrible in itself but that's nothing compared to what is done to animals.


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DandelionFireworks
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06 Jan 2011, 12:42 am

At least people are sympathetic toward the furry ones. I mean, it's not much better, but it has to count for something that there are people who care about what happens to mammals. Even the ones who appreciate the lives and worth of furries don't seem to care about the horrors fish experience. :cry:


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sinsboldly
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06 Jan 2011, 12:50 am

DandelionFireworks wrote:
At least people are sympathetic toward the furry ones. I mean, it's not much better, but it has to count for something that there are people who care about what happens to mammals. Even the ones who appreciate the lives and worth of furries don't seem to care about the horrors fish experience. :cry:


yeah. . . fish and chips, for one.



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06 Jan 2011, 12:53 am

DandelionFireworks wrote:
At least people are sympathetic toward the furry ones. I mean, it's not much better, but it has to count for something that there are people who care about what happens to mammals. Even the ones who appreciate the lives and worth of furries don't seem to care about the horrors fish experience. :cry:


I'm against ALL forms of animal being tourtured. I couldn't read Plague Dogs because a scence where the dogs come across a tank of octopi which are given electric shocks. Some even had brain surgery to see if it would make a diffrence or not. I cried and cried because of that part alone and couldn't get past it. [youtube]http://www.youtube.com/watch?v=hV7LLs1czvQ[/youtube]
I can't watch this because of 0:46. I know it's a cartoon but this part bothers me so much. It's a horrible sequel anyway and raped the original. I was obsessed with the original and I wonder if that's what started my obsession with animal welfare.


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DandelionFireworks
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06 Jan 2011, 3:18 am

Cartoons don't bother me as much because I know they're not real, that's not really a real clip of real fish really being tortured.

Real-life cruelty (that isn't just made up) really bugs me, though.


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hesting
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06 Jan 2011, 5:34 am

Oh my.
Your situation with your mother reminds me so much of my own parents' behaviour.
All this patronizing. *sigh*

Your operation should be on the hospital's timetable already for at least one week (if not longer). Anything else sounds impossible to me.

Write a letter and give it to the personnel in a discrete way. Maybe you can just send your mother away after you've passed the entry procedure at the hospital.

Good luck!

P.S.: I'm wondering how your hemoglobine value recovers this fast if your period is so intense. I have a tendence to hypermenorrhoe too but if my Hb is below 11 or 10 it's not so strong. But I suppose that's off topic.



Felicity
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06 Jan 2011, 6:34 am

Hello. I don't know what to suggest but I wanted to wish you luck for your surgery. I hope it goes well, it's not stressful and the doctors respect your needs.


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anbuend
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06 Jan 2011, 10:28 am

wavefreak58 wrote:
PunkyKat wrote:
Wouldn't the letter just give them an excuse to shoot me up with more Paxil when I get upset?


This may not be a bad thing in the short term. I say this only because a hysterectomy is major surgery and you don't need to have complications with your incisions and such. I don't know the details of your meltdowns but if they are at all physical, you could tear your incision. It might be better to be in a drug induced calm for a few days. Call it a mental vacation to la la land.


Normally they use sedatives like Ativan. Paxil doesn't work like that in the short term. And Ativan is given even to many nondisabled people after surgery because surgery and anesthesia can both cause panic -- your body doesn't know the difference between surgery and being stabbed with a knife.


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wavefreak58
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06 Jan 2011, 10:30 am

anbuend wrote:
your body doesn't know the difference between surgery and being stabbed with a knife.


LOL. I guess surgery is being stabbed with a knife. Just a very finely controlled stab. :lol: :lol: :lol:


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azurecrayon
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06 Jan 2011, 10:52 am

just to clear up a few points of misinformation...

no, they do not grow babies for stem cells and then kill them. not even from donated eggs.

you do not retain a period with all forms of birth control. some forms can remove it entirely or reduce the frequency. this depends on the form of birth control and your own body.



it is extremely rare for a doctor to agree to hysterectomy in such a young person and with no real medical cause (disruptive menstruation is not generally seen as cause for hysterectomy). hysterectomy is major surgery and carries all the risks of major surgery such as blood clots, infection, and even death. it also carries other risks specific to removal of the uterus such as failure of the ovaries resulting in early menopause.

for getting special requests about your care, someone else suggested utilizing the hospital social worker, which may be a good contact for you to try. also, i highly suggest not blindly signing all the forms at admission they will present you with (or if you pre-register, they give you those forms then). the blanket forms give them permission to treat you without getting your consent for individual things. that means they can give you additional drugs or treatments without talking to you about it. you are within your rights to cross those sections out and write in that you require they give you counsel and get consent for each individual treatment.

also, you can let them know you do not want to be used for teaching purposes. some hospitals use women under anesthesia as teaching subjects and allow multiple medical students to practice pelvic exams on the women. this is still currently happening, and also happens to males as well with rectal exams. this is done without knowledge by those examined, and is usually covered by that blanket consent form signed at admission that gives a hospital permission to use you in their teaching practices. make sure your surgeon knows whether or not you consent to this type of teaching exercise, and note any refusal on your admission/consent forms.


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06 Jan 2011, 1:26 pm

azurecrayon wrote:
just to clear up a few points of misinformation...

no, they do not grow babies for stem cells and then kill them. not even from donated eggs.

you do not retain a period with all forms of birth control. some forms can remove it entirely or reduce the frequency. this depends on the form of birth control and your own body.



it is extremely rare for a doctor to agree to hysterectomy in such a young person and with no real medical cause (disruptive menstruation is not generally seen as cause for hysterectomy). hysterectomy is major surgery and carries all the risks of major surgery such as blood clots, infection, and even death. it also carries other risks specific to removal of the uterus such as failure of the ovaries resulting in early menopause.

for getting special requests about your care, someone else suggested utilizing the hospital social worker, which may be a good contact for you to try. also, i highly suggest not blindly signing all the forms at admission they will present you with (or if you pre-register, they give you those forms then). the blanket forms give them permission to treat you without getting your consent for individual things. that means they can give you additional drugs or treatments without talking to you about it. you are within your rights to cross those sections out and write in that you require they give you counsel and get consent for each individual treatment.

also, you can let them know you do not want to be used for teaching purposes. some hospitals use women under anesthesia as teaching subjects and allow multiple medical students to practice pelvic exams on the women. this is still currently happening, and also happens to males as well with rectal exams. this is done without knowledge by those examined, and is usually covered by that blanket consent form signed at admission that gives a hospital permission to use you in their teaching practices. make sure your surgeon knows whether or not you consent to this type of teaching exercise, and note any refusal on your admission/consent forms.


I don't really care what they do with me when I am unconcious. My mom has promised to try and get a private room if she can and says a regular hospital stay is nothing like staying in it for mental reasons and if the roommate is truely obnoxious, they try and find another one. People here in Texas seem much nicer and considerate than back in Ohio. I swear they know something about flabotomy that they don't in Ohio because everytime I have had blood drawn I've felt nothing and have said, "That's it?" the flabotomist repies, "Yep. All done, sweetheart." As I said the sensation of the bandage bothers me more than the needle jab. Thank you for your concerns. Everything should go fine.


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06 Jan 2011, 4:36 pm

PunkyKat wrote:
wavefreak58 wrote:
PunkyKat wrote:
Wouldn't the letter just give them an excuse to shoot me up with more Paxil when I get upset?


This may not be a bad thing in the short term. I say this only because a hysterectomy is major surgery and you don't need to have complications with your incisions and such. I don't know the details of your meltdowns but if they are at all physical, you could tear your incision. It might be better to be in a drug induced calm for a few days. Call it a mental vacation to la la land.


If I don't get a hystorectomy, I'm probably going to need an epic blood transfusion every month. I used to think most people were just big sissies but aparently I lack the ability to feel physical pain. Well, what normal people would call pain. I had to have blood drawn and the bandage bothered me more than the needle "jab". I had my wisdom teeth removed with a local and everyone kept telling me I was such a trooper. I thought they were just sissies.

I just tend to discoiate during my meltdowns. I'm worried something is going to be the straw that breaks the camel's back and my personality is going to split. I've tried taking drugs to make me calm and they did the exact oppiste of what they were supposed to do. I have to be extra careful about my paxil dossage because if it isn't just right, I have horrible panic attacks FROM the paxil. If I don't get panic attacks, I get horrible dizzy spells where I can't stand up without falling. The only physical meltdowns are just when I have to teach some jerk to respect my personal space. This salesman would not stop following me and being persused creeps me out a lot. I was afraid he was going to follow me to the car and get in until I bought his sented oil. I showed him my middle finger and fourtunatly that got the message across. If it didn't, I was afraid I was going to have to kick him in the privates.


Hyster-operation topic

Congratulations on getting approval for this surgery. In your case, it is necessary. I hope you will not be in hospital long, so that there will not be any meltdowns. :thumleft:


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