A powerful and graphic video about having AS

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I would say that a lot of people (both on and off the spectrum) might not be into such things. I've personally been into strange sound collages, graphic surrealism, and such for years, so I guess to me it basically comes naturally.

I believe that the creator of the video is trying to convey to NT’s the isolation, alienation and the pain of being misunderstood because of her AS, not that this represents her life experience on a day to day basis.

When I try to explain to an NT just how much I have to overcome to appear somewhat normal, words alone just aren’t adequate. They just can’t comprehend that I don’t experience normal things normally and that I’m always struggling to comprehend social interactions that they take for granted.

Again, the video is jarring and I’m sure the video was meant for the NT’s in her life, not for others with AS . The imagery and soundtrack bring an intensity and urgency to her message that words alone could never convey to an NT.

Hi i'm the creator of the installation/ video.

It's really interesting to see all your comments. This is not meant to dictate what AS is like for everyone, it was for my own understanding of my sister and to give others an insight into her experience.

Interestingly my sister did not like the crying either, however those who do not have AS found it more powerful in illuminating my sister's frustration. The sounds and visual experiences are meant to be exaggerated in order to try to simulate to someone who doesn't have AS what some things, such as turning on the radio suddenly, might feel like for my sister (this happens to be a particular experience of my sister, who screams if the radio is suddenly turned on).

i am currently deliberating how to construct a more positive insight into AS, however i am struggling as my sister's experience has not been all that positive. Any advice would be greatly appreciated.

Also what is a NT?

Many thanks

Natalie

Was that at least written by your sister? If not you might want to write that somewhere in the video. I had no idea the video wasn't done by an autistic person through and through.

That was written by my sister and it does say that in the information about the video directly below.

I definitely get the message, hits me hard right now. I am at odds with my whole family, in my mind, they have no idea. I am someone they are ashamed of, embarrassed for the association. I meet people they know and they can't believe they've never heard I exist in this family. I don't fit in their perfect picture. The craziest part about it is I am considered successful by the general population. I have a great job, a miracle story, but not worth mentioning by my family. I also don't have any issues on the outside. I don't look or dress noticibly different. They are ashamed of who I am.
The background noise, the crying-screaming-babbling, is the noise of how upset, frustrated, and hurt my soul is that I'm not known, not desired to be known.

Open up if you can and get past the literal (unless the sensory is too much--it is chaotic--but it expresses the torture too)and let yourself feel the total experience...if it doesn't mess with your medical issues--always hugs to those with those issues

<hugs alone> When you say this, I know you very well.

In my context in this thread, someone who isn't on the autism spectrum.

Well... a window is best if it doesn't give you migraines or seizures from looking through it.



Well... I don't know if it's illuminating the right thing. I hear sounds like that and I know that pain... but a lot of the time talking to NTs they say it's just somebody trying to get their way or whatever. If NTs actually understood that kind of noise, they would not be nearly so callous.



I can tell you that I have auditory hypersensitivities and this doesn't remind me of them at all. This (played at the same volume as I play everything, which is to say, just barely audible) is very... what is the word for something that makes you hurt, but specifically for someone else, but not so much compassion or pity, just ouch and feel sorry they have to deal with that? Well, now I've described it I guess I don't need the word. Anyway, what it is NOT is in any way reminiscent of overload. Too emotional, too beautiful, too flickery, too... stuff. Um. So what worries me is that you might get across the amount of upset, but the wrong kind.



Oh, my! There are many people who've written many positive things... but off the top of my head I cant think of the ones I ought to link you to.

How old is your sister? Is she on this site?



Neurotypical. Definitions include:
1. Anyone non-autistic
2. Anyone with a normal brain
3. Anyone without autism or any type of atypical body language. Atypical perceptual experiences either not present or very simple things (e.g., just hypersensitive to noise)



You're welcome. And speaking of welcome, welcome to WP!

Well, the quality and technique is HORRIBLY POOR, so I don't think it is worth trying to get past network problems I am having on this network. WHY did they do that in such a DUMB way? I mean they could have had a larger computer generated font, etc.... Even so, why not make HTML pages?

MAYBE people should look at http://www.youtube.com/watch?v=jmOSMc2S ... re=related

IT was created the RIGHT way!

Steve

Possibly - but the main difference is that what you link to is a straightforward documentary-style list of facts, where the original video is an artistic rendition, intended to create an impression.
Either/both could be educational - only the style differs. And that was the point of the original video.

thank you DandelionFireworks and please do send me the links, would really appreciate a positive insight. Amy is 22, no she isn't on the site, but i have told her to join.

Thank you to the comment above (Cornflake) , really appreciate that you understand what i am trying to create. This definitely is not a documentary.

It also is meant to be experience and seen in real life, however it was hard to gain access to people so i uploaded a video of it.

I'm really glad i came into this forum, it's really interesting to hear different people's experiences and opinions

I am also glad you came to this forum.

Here are some links, none of them precisely what you were going for, but probably things you'll be interested in:
In My LanguageTen Things Everyone Should Know About Autism
"So what's it like having autism?"
The REAL Voice of Autism

Also check out these blogs:
Ballastexistenz
Existence is Wonderful (this one has a lot of other stuff on it, too)

These places also link to other interesting stuff, so follow the links as far as you want.

thank you for the links, they were really interesting.

I don't know if it's just me, but i've found that AS is not really known about. I think it's a shame as i think NTs may find they can relate to some of the symptoms. My sister was also diagnose at a later stage, if it was more in the public eye she might have been diagnosed at an earlier age and gotten more support.

For me: Too crisp, too distinct, too identifiable. You can tell where one sound ends and the next begins, and perceive meaning from those sounds. When I'm overstimulated, I'm still processing previous sounds when new sounds impinge, filling my brain with a chaotic overflow of noise until I shut down. If I'm not pushed to the point of shutdown, any or all of my senses can become even more sensitive and even stimuli that normally doesn't bother me can be painful and that can push me into shutdown.