ASAN vs. Autism Speaks

If I offered you my toll free number and you phoned would you get fired as the moderator? How strict is ASAN? Is it like other groups that if you disagree you get the boot?
Nah... I don't think the group I am with cares. I fully intend to work WITH Autism Speaks in anyway that I can to support the "good" things about what they do. I can speak against the bad things they do in an intelligent way. Right now I haven't facts to do either so I can only state my intentions. So what do you do for Autism Speaks? I thought they did not have Aspies on board.
I run my own advocacy organization that has reached thousands in my local area with concern to autism and DD opportunity. I work with government contracted agencies and the Regional Center system. I have no affiliation with ASAN and none with Autism Speaks. I work with media, broadcasting and related. My study of the issues is to find the faults and find improved ways to handle public relations.
Then why in the world would you presume that ASAN would fire me from moderating for contacting you? Their beef is with certain things that Autism Speaks does NOT with advocacy? You have a really werid view of what ASAN is me thinks.
Did you see the video I posted of ASAN and my original post? My job was to establish my own organization whose self-advocacy component is democratic. Later I will not own it but will have unique bylaws to insure consumer say. I am simply figuring you people out for now. Some weird stuff going on online and offline. The purpose was to grab peoples attention with the protesting. Well they got my and others attention and the response might not be what they want.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
To note.
It is not uncommon for pride based groups to ban members for not having a pride view. Not having a pride view is called bigotry, hate and intolerance. If you disagree your a detractor. It reminds me of cults but is not the same thing.
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The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
Seems to me that some of the time, people learn to agree with those who have a lot of power over them, as a sort of self-defense strategy. I don't know if this is you; but learning to be agreeable and not demand rights for oneself or others can be a survival strategy in an environment where the powerful people have declared that you do not have those rights. It can be a way to get what they will still allow you to have, if you don't make too much of a nuisance of yourself. But it comes at the cost of self-respect. I had this problem... I still do, to some extent.
But true equality can't be had without some sort of conflict; people who have declared themselves superior often don't want to give up that position. If we are lucky, the conflict will be mostly limited to the natural resentment of people who feel they have to "go out of their way" to treat "Those People" like human beings... if we are lucky, it will mean that we've successfully shown the general public what autism actually is and taught them not to fear it or hate it; and the no-longer-ignorant general public will teach the truly bigoted minority that they can't run over others' rights with impunity. If we're lucky, that's what will happen. But if we're not lucky, and we do have to get pushy about it, isn't it worth it in the end?
Capture bonding or The Stockholm Syndrome describes liking your captors
From Wikipedia, the free encyclopedia
In psychology, Stockholm syndrome is a term used to describe a paradoxical psychological phenomenon wherein hostages express adulation and have positive feelings towards their captors that appear irrational in light of the danger or risk endured by the victims, essentially mistaking a lack of abuse from their captors as an act of kindness.[1][2] The FBI’s Hostage Barricade Database System shows that roughly 27% of victims show evidence of Stockholm syndrome.[3] The syndrome is named after the Norrmalmstorg robbery of Kreditbanken at Norrmalmstorg in Stockholm, in which the bank robbers held bank employees hostage from August 23 to August 28, 1973. In this case, the victims became emotionally attached to their captors, and even defended them after they were freed from their six-day ordeal. The term "Stockholm Syndrome" was coined by the criminologist and psychiatrist Nils Bejerot, who assisted the police during the robbery, and referred to the syndrome in a news broadcast.[4] It was originally defined by psychiatrist Frank Ochberg to aid the management of hostage situations.
What does that have to do with the statements?
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
It would seem based on my brief research that anti-societal beliefs are part of this comparative captor syndrome and autism. There is no absolute truth in believing society is oppressive, ignorant and or indifferent. I can understand this feeling if you are isolated and need help and are not helped. To be fair however I think these ideas need to be discussed. Many comparative notions as realities are put forth in pride movements. Everything from concentration camps, Nazi's and to believing other people are the KKK for having a point of view about autism as a group. Though I will admit there are some pretty freaky cure people, callus psychiatrist and those who lack compassion in our society. Just the same there are extremes within the self-advocacy movement to.
Tell me more about the extremes perceived by self-advocates whom claim to be liberating me as well?
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
If I author a thread I post in it to create conversation. People try to get people to think things all the time and even try to force them or else they can no longer be part of a group of a certain ideology. Are you now the victim of me? Am I now the bully? Am I a danger to you as text? If you don't like what I say and I don't like what you say are we abusing each other? I am saying this in hopes you will reject what I just said.
This kind of thing happens allot in online autism self-advocacy.
The ASAN groups seems to have played so many PR games and pride based advocacy seems to have made themselves the victim so many times over little things I don't think the public is going to go for it. I really believe there are better ways and that does not mean what works is oppressive. I just don't believe in confrontation as if the world is the bad trying to get me.
I want to get to the bottom line of this.
When self-advocacy groups fear democracy within other self-advocacy groups it is kind of weird.
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
Me thinks you have an over-inflated view of yourself. You can no more divide "us" in to me and them or us and them and be effective than the two groups can divide and be effective. There is nothing to figure out about "you people" (I assume you mean anyone associated with ASAN) We are all individuals (just as you are) trying to raise awarenss RE Autism. We happen to be ASD and are trying to come together to advocate for ourselves. The people in the video were very clearly protesting certain aspects of the Autism Now group. They were doing it in a peaceful manner. I honestly do not see where you think that this is either such a big issue or that your spin-off can do so much better by talking trash and dividing.
Good luck with it though...
Good luck with it though...
LOL.
You slay me.
Your aspie directness is so ... well ... direct.

_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
Me thinks you have an over-inflated view of yourself. You can no more divide "us" in to me and them or us and them and be effective than the two groups can divide and be effective. There is nothing to figure out about "you people" (I assume you mean anyone associated with ASAN) We are all individuals (just as you are) trying to raise awarenss RE Autism. We happen to be ASD and are trying to come together to advocate for ourselves. The people in the video were very clearly protesting certain aspects of the Autism Now group. They were doing it in a peaceful manner. I honestly do not see where you think that this is either such a big issue or that your spin-off can do so much better by talking trash and dividing.
Good luck with it though...
Quite nice to say I have an over inflated view of myself when others tell me more inflated things of myself and parents think I am the most wonderful thing. I am told I am going to help so many people and so on. I constantly deflate it in others and there is a balance. Envy seems to be a common thing some supporter of ASAN give to me.
Remember ASAN is representing themselves but influencing potentials for myself, the young and while doing so at times being very mean. The public needs to understand should the time come ASAN is not the only autism self-advocacy platform and that the tactics used at times other self-advocates want no part in.
As for trash talk I am not going to banter to defend myself. It would seem the name calling, put downs and propaganda is ASAN's not mine. Even other ASAN members agree with me at times. I suggest observing what I do with the public and learn. I've studied ASAN and Autism Speaks and have learned. I like compost not trash.
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
Good luck with it though...
LOL.
You slay me.
Your aspie directness is so ... well ... direct.

So what your saying is in-spite of agreeing with with me in part the unfounded accusations because of this shared aspie idea you agree? After-all I do not subscribe to the aspie social framework and people that hold fast to it find it threatening. More then 99% of people with autism know nothing about it. Yet I am dividing you when the framework itself commonly divides itself from the rest of the worlds thinking justifying it as the N.T's and wanting it's own world-view to serve an ideological premise. It seems much of the dividing is self-chosen and not my doing.
This reflects a future paper. I am very direct and analytical. I am very reasonable and nice. I am also very successful at what I do because of how I do it. I think people with autism and parents deserve to understand a different view of what is going on in some small parts of self-advocacy that just might be the wrong approach?
Democracy in a self-advocacy model where individuals vote in the president and the board who are members is not division but freedom.
I do offer free consults to other groups and do so from time to time as it is.
As for trash talk I'm simply the compost compared to allot of this Aspie ideology vs. N.T stuff. I'm an organic mind. I say organic because I tend to rely on my natural before diagnosed with autism mind frame.
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
You slay me.
Your aspie directness is so ... well ... direct.

So what your saying is in-spite of agree with with me in part the unfounded accusations because of this shared aspie idea you agree?.[/quote]
You need to be careful. I said exactly what I meant. That I found her directness amusing. I did not characterize the accuracy of her statement. Why do you jump to that conclusion? You aren't being defensive, are you?
I'm not sure what you mean by "aspie social framework". People in general dislike having cherished ideas contradicted. This holds true for me, you, and everyone else.
What a ridiculous assertion. It assumes first that autistics have little awareness of themselves and their condition and second that your knowledge of autism is both superior to 99% of autistics and sufficient enough to be able to make the claim.
Dividing me personally or are you using "you" in a general sense?
You presume too much if you think you understand my thinking on this. I am disinclined to think of autism in terms of 'aspie is better than NT'. I am more nuanced than that.
What is clear to me is that you are passionate in your advocacy. There are others that are equally passionate. Finding common ground between such passionately held ideas is a challenge.
_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
You need to be careful. I said exactly what I meant. That I found her directness amusing. I did not characterize the accuracy of her statement. Why do you jump to that conclusion? You aren't being defensive, are you?
I asked a question and was put in the position of defending myself but I do not feel to defend myself as what might be expected as I've looked at the issues for a great amount of time.
I'm not sure what you mean by "aspie social framework". People in general dislike having cherished ideas contradicted. This holds true for me, you, and everyone else.
I already knew you would say well something like it just a kind reference. Yet in reality while innocent it does have effects but beyond this simple notion it is used a great deal for politics and to define world-views that then others share I think becuase of common emotions. It's an idea framework within a political view within autism politics. The aspie political sphere is not hardened per say but has it's extremes like any political spectrum. I think it is important and ethical that these matters be understood and talked about but are at times resisted socially in discourse. The spirit of intellectual understanding must be mutually greeted otherwise those with autism will reject it.
What a ridiculous assertion. It assumes first that autistics have little awareness of themselves and their condition and second that your knowledge of autism is both superior to 99% of autistics and sufficient enough to be able to make the claim.
Assumption is a fascinating thing. Being aware of autism differs from viewing autism as an identity and social framework. It takes the insertion of a subscribed philosophy to modify ones self-view of oneself and then in other ways world view or else one is defined as akin to the N.T's. I am not an autism expert I am simply a person with autism.
Dividing me personally or are you using "you" in a general sense?
You presume too much if you think you understand my thinking on this. I am disinclined to think of autism in terms of 'aspie is better than NT'. I am more nuanced than that.
I am thinking for myself and this seems to divide you and or others. I do not find the Aspie and N.T conceptology compatible with my mind in how it works. I seem to reject it as if it were a mind virus and I'm naturally immune. Being fearful of how I think and how others think is not reasonable nor is it insulting. Both you and I presume it is part of discovery in science and being human (not alien).
What is clear to me is that you are passionate in your advocacy. There are others that are equally passionate. Finding common ground between such passionately held ideas is a challenge.
Alright so I will use the really bad word in this advocacy as a neutralization statement. Hitler was passionate as well. People of the aspie and N.T conceptology seem to call others Nazi's at times when they do not agree with a strict sphere of idea. My position is it is a potential that some self-advocates will influence more autism politics and create despondency with the public. My job is public relations risk management as well. I must conclude these matters so as to prevent worse case scenarios that are simply potentials.
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
why do you feel the need to defend youself from my post? I am only asserting that you are doing exactly that which you are chastising about with ASAN in your post. I do not know of all the underlying happenings of the organizations which you seem to think are unworthy and unproductive BUT I do know that the video you posted does not speak to me the way it does to you. ASAN protesters are peacefully showing up to state an opinion. I do not agree with their opinion (personally) but that doesn't mean that what they are doing is wrong. You are being too black/white my Aspie brother.
There is a whole history of posts here with concern to my views of ASAN. I've said at least twice they do good things to. Just I don't agree with the methodology at times and core opposition to a womens right to know when combined with service related pursuits as it is guilting the public. The idea that all members hold their own opinion when their views are not on the main site but dictated by someone not democratically voted in to lead the organization by it's members is faulty as well. Here where we live there is something called Peoples First and it is entirely member based democracy. Yet ASAN opposes people first language but that is not decided democratically?
Does ASAN hold elections and where is the past evidence of voting in it's president?
Opinion can be wrong yes because other people have opinions that it is wrong and the protesters have opinions others are wrong.
_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com
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