Page 2 of 3 [ 40 posts ]  Go to page Previous  1, 2, 3  Next

aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 66
Gender: Male
Posts: 12,325

11 Apr 2011, 11:22 pm

anbuend wrote:
Verdandi wrote:
Vineland II tests functioning in multiple areas. Autistic people tend to score fairly low on this - in the same range as people who have intellectual disabilities.


Also the ABAS (Adaptive Behavior Assessment System), is a similar thing. They basically ask someone who knows you (in my case, it was a staff person) a bunch of questions about what you can and can't do, basically how often you can do any particular thing. It divides it up into several categories (such as self-direction, communication, functional academics, etc.) The whole thing is based on what you can do in the practical world rather than what you understand, so if used right it can be much more useful than the sorts of tests that assume that understanding something is being able to do it. (For instance, functional academics isn't about what academic level you've achieved. It's about your ability to apply those in real-life situations.) It also has some serious problems (I'm told it has a very low ceiling), but it's not a bad test in some circumstances. It gives scores in each specific area, and then an overall score that resembles the IQ system in what the numbers look like (100 for average, etc.).

(In my case, I kept hitting the floor in various areas and then even my better parts brought my overall score to just several points above the floor. And that was many years ago when I could do more, so I don't want to know what my score would look like now.)


I got three degrees in the things I enjoyed learning about; anthropology, Health, and Social Sciences Interdisciplinary. But, with poor speaking and writing skills, I had lots of knowledge, but lacked the necessary tools that would have been required as a researcher or teacher. I was very fortunate to find somewhere to land in the workplace.

I wonder if the GAF is used more as a functional assessment for people that are diagnosed on the Autism Spectrum later in life, rather than these tests, because they have established a history of functionality.



aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 66
Gender: Male
Posts: 12,325

11 Apr 2011, 11:36 pm

anbuend wrote:
Verdandi wrote:
Vineland II tests functioning in multiple areas. Autistic people tend to score fairly low on this - in the same range as people who have intellectual disabilities.


Also the ABAS (Adaptive Behavior Assessment System), is a similar thing. They basically ask someone who knows you (in my case, it was a staff person) a bunch of questions about what you can and can't do, basically how often you can do any particular thing. It divides it up into several categories (such as self-direction, communication, functional academics, etc.) The whole thing is based on what you can do in the practical world rather than what you understand, so if used right it can be much more useful than the sorts of tests that assume that understanding something is being able to do it. (For instance, functional academics isn't about what academic level you've achieved. It's about your ability to apply those in real-life situations.) It also has some serious problems (I'm told it has a very low ceiling), but it's not a bad test in some circumstances. It gives scores in each specific area, and then an overall score that resembles the IQ system in what the numbers look like (100 for average, etc.).

(In my case, I kept hitting the floor in various areas and then even my better parts brought my overall score to just several points above the floor. And that was many years ago when I could do more, so I don't want to know what my score would look like now.)


I got three degrees in the things I enjoyed learning about; anthropology, Health, and Social Sciences Interdisciplinary. But, with poor speaking and writing skills, I had lots of knowledge, but lacked the necessary tools that would have been required as a researcher or teacher. I was very fortunate to find somewhere to land in the workplace.

I wonder if the GAF is used more as a functional assessment for people that are diagnosed on the Autism Spectrum later in life, rather than these tests, because they have established a history of functionality?



Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 56
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

11 Apr 2011, 11:52 pm

aghogday wrote:
I wonder if the GAF is used more as a functional assessment for people that are diagnosed on the Autism Spectrum later in life, rather than these tests, because they have established a history of functionality.


The Vineland II is used for people of all ages.

Also, as an undiagnosed adult without an established history of functionality, I am not sure reaching adulthood shows that. I mean, okay, I am not dealing with the same degree of difficulties as Pensieve, but I have not done significantly better, either. Not that I totally lack functionality, but how much I do function as an adult is expected to function within society is pretty minimal.

Here's an explanation: http://www.come-over.to/FAS/VinelandTest.htm

I do believe it is a part of the normal diagnosis procedure for some. The "New Leaves Clinic" that kfisherx has linked uses it for people of all ages, as far as I recall.



anbuend
Veteran
Veteran

User avatar

Joined: 5 Jul 2004
Age: 45
Gender: Female
Posts: 5,039

12 Apr 2011, 12:33 am

I think the Vineland and the ABAS are used more when people are thought of as developmentally disabled, whereas GAF is used more for psych. Autism, overlapping both categories (we're both DD and we're within the domain of psychiatry), would involve all three depending on what was going on at that particular point in time.


_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 56
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

12 Apr 2011, 1:25 am

That makes sense.



aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 66
Gender: Male
Posts: 12,325

12 Apr 2011, 1:47 am

Thanks to both of you. This also makes sense to me. The Autism led to co-morbid conditions of anxiety and depression and may have played a part in autoimmune issues.

The only thing the psychiatrist could treat was anxiety and depression. A therapist was not very helpful with improving social skills that had broken down through burnout. This is the reason I probably got the GAF, instead of the other tests.

Therapy might have been helpful before burnout; preventing burnout might be the best course of therapy for those that try to mainstream with Autism.

I would guess that underdiagnosis for those in their 30's, and 40's and above is more prevalent than for younger people, considering the greater awareness of the condition in childhood, today, as compared to the distant past.

I don't think I would have ever gone for a diagnosis, if I didn't have severe issues with tactile sensitivity and found the association with Autism as a clue along with language delay. And, without the access to this information through the internet, I might not have ever connected the dots to go for a diagnosis.



CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 51
Gender: Male
Posts: 121,167
Location: In my own little country

12 Apr 2011, 5:50 am

Being able to live on my own without assistance, which I'm doing.


_________________
The Family Schlager


XLCR
Snowy Owl
Snowy Owl

User avatar

Joined: 22 Mar 2011
Age: 70
Gender: Male
Posts: 130

12 Apr 2011, 11:55 am

I always thought of my self as functioning poorly, but that was before I self-diagnosed. Now I see my life as a success, because I have a better idea of what I was actually up against. However, up until now I was always working with a net. My father was always there to give me moral and even financial support when I was up against it.

The real test begins now. My father is dead, my siblings dislike me and will do nothing to help if I go down. There is no one else. If I fail to manage on my own I have only the street to look forward to. It's unlikely in the extreme that I could get any kind of assistance, too 'high functioning'.



bumble
Veteran
Veteran

User avatar

Joined: 26 Mar 2011
Age: 50
Gender: Female
Posts: 3,073

12 Apr 2011, 12:24 pm

I am an NT (as far as I know lol but have never been assessed for ASD as far as I can remember) and am diagnosed with Social Anxiety, depression and Agoraphobia and there are probably people with HFA that function better than I do...

I am presently on Disability and am unable to work due to 'an inability to be able to cope with the social aspects of working and an inability to cope with sudden change'. Whilst I can do household chores (once I get around to doing them lol) I do have a support worker who helps with things like benefits, paperwork, and accompanying me to appointments etc.

I guess I would class high functioning as being able to cope with day to day stuff and maybe hold down regular employment of some kind.

Personally I have never lasted more than a few months at a job because of my social difficulties so have been without work for about 12 years now. I did return to work briefly a few years ago but only lasted about 3 weeks before I burst into tears in the middle of work, spent 2 hours crying locked in the ladies loo, came home and never went back again. I was working in a retail store and I just couldn't handle it.

I am waiting for CBT but as therapy and medication etc has failed me in the past, I'm not feeling all that hopeful. I will see if it helps though!



Magnus_Rex
Veteran
Veteran

User avatar

Joined: 4 Oct 2010
Age: 35
Gender: Male
Posts: 2,704
Location: Home

12 Apr 2011, 12:36 pm

Anyone who is able to live independently, if their income allows it.

I consider myself very high functioning. Sure, I don't cook or clean the house, but I would be able to if I lived alone. Not only able, but maybe a little obsessed about it: I'm almost OCD when it comes to cleaning. But since I still live with my mother, I don't worry about it.
My greatest weakness is my lack of social skills. It's very hard for me to make friends and probably impossible to have a romantic relationship. I'm not only capable, but apparently meant to live alone. And even though I lack social skills, lately I've been doing great in job interviews. Out of 3 interviews last month, 2 are about to call me (probably this week) and the remaining one gave me no answer until now, even though the HR lady assured me I was the Messiah they were expecting for the job. :P

And yet, I still have fairly frequent episodes of depression. Fortunately, I barely show any signs of emotion to strangers. It seems there ARE some advantages to ASD, after all. :wink:



wavefreak58
Veteran
Veteran

User avatar

Joined: 26 Sep 2010
Age: 68
Gender: Male
Posts: 4,419
Location: Western New York

12 Apr 2011, 1:00 pm

I don't know that I would have ever been able to live alone. I did for a short while and as I recall it was one step above being homeless. A very meager existence. I have been very fortunate to land in situations where other people filled the holes in my deficiencies.


_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 56
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

12 Apr 2011, 2:04 pm

I feel similarly to wavefreak58. I have so many issues that I have trouble with that living on my own seems to almost be a recipe for disaster.



anbuend
Veteran
Veteran

User avatar

Joined: 5 Jul 2004
Age: 45
Gender: Female
Posts: 5,039

12 Apr 2011, 2:53 pm

It's always interested me... I know someone who's very similar to me in just about every important way, including having many of the same difficulties. Except... I get services through the state. She gets the same sort of help through her boyfriend. As in, she even has serious trouble crossing streets, and parking lots are death traps to her, etc. Guess which one of us gets called HFA and which one of us gets called LFA?


_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams


wavefreak58
Veteran
Veteran

User avatar

Joined: 26 Sep 2010
Age: 68
Gender: Male
Posts: 4,419
Location: Western New York

12 Apr 2011, 3:11 pm

anbuend wrote:
It's always interested me... I know someone who's very similar to me in just about every important way, including having many of the same difficulties. Except... I get services through the state. She gets the same sort of help through her boyfriend. As in, she even has serious trouble crossing streets, and parking lots are death traps to her, etc. Guess which one of us gets called HFA and which one of us gets called LFA?


Do I get a prize if I guess right?

I suspect if I had been on my own more than that short period of time (about 6 months, if I recall) I would have ended up a homeless half crazed derelict. I had very poor self care habits. Showers were by product of surfing, not a deliberate attempt at cleanliness. Eating was very haphazard. I did manage to pay my rent every month. But the larger things such as health insurance, planning for the future, and all the other normal life issues were not even in my mind - not just something I didn't care to think about, but literally not there. I was truly adrift. I was probably one major crisis or serious health issue away from a completely different outcome.


_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.


OJani
Veteran
Veteran

User avatar

Joined: 23 Feb 2011
Age: 52
Gender: Male
Posts: 2,505
Location: Hungary

12 Apr 2011, 3:51 pm

ZeroGravitas: I like the idea of 'robustness in life', as you describe it. I would add that giving help to sy with autism by giving advices, preparing him to cope better in the life by counseling (basically, teaching how to think, what to do in situations) might result in higher functioning in the long term without that buffer zone. This is a desire of me, as I don't know if I'll be able to live independently ever. I see my parents almost every weekend, no romantic relations (except for one ex), very sloppy and slow with my home (shambles is a good word), don't like cleaning and it took years to get my flat renovated, no financial problems involved.


_________________
Another non-English speaking - DX'd at age 38
"Aut viam inveniam aut faciam." (Hannibal) - Latin for "I'll either find a way or make one."


buryuntime
Veteran
Veteran

User avatar

Joined: 6 Dec 2008
Age: 88
Gender: Female
Posts: 3,662

12 Apr 2011, 4:19 pm

Having some form of reliable communication.