littlelily613 wrote:
aghogday wrote:
I was diagnosed at 47 with Aspergers, and then diagnosed with PDD NOS when the psychiatrist found out I had a speech delay until age 4.
Just out of curiousity...and perhaps I am getting a bit too nosy now....but are you aware why they gave you PDD NOS rather than classic autism in light of a speech delay?
My psychiatrist was a major in the Airforce reserves. I don't think he considered Aspergers as a limiting condition for me because I had been able to hold down a job on a military installation as a civilian for 23 years, and at most thought it was mild; in midlife people see what you have accomplished and what you look like on the outside, not the internal struggle you have gone through your entire life.
I could show you pictures of when I was young, after the smile went away in the baby picture, and it is obvious that there was something wrong and I was lost in the world. However, I managed to get the spirit back of that happy baby for the majority of my life and after forty years finally got fairly comfortable with verbal communication.
I think he was convinced I had mild Aspergers and could not keep me in that criteria when he found out about the speech delay. I'm assuming he didn't think I met all of the other criteria for Autism because of my accomplishments and the field I was in, that required skills in social interaction, so he put me in the PDD NOS category instead.
It was absolute hell, doing my best all my life to act normal, losing my ability to do it, and then having to admit I was not normal. The severe anxiety was what he treated; there wasn't anything he could do for my underlying neurological condition. I was also diagnosed with Alexithymia, and ADHD, as comorbid conditions. And, auto immune issues that have been harder to deal with.
I had extreme tactile sensitivity all my life, and always wondered why; this was my only hint that I might have some form of Autism. Back in 1960-64 my doctor just told my mother don't worry about the speech delay; he doesn't talk because you give him everything he needs. I guess he too, like the psychiatrist, thought I looked to smart to have much wrong with me.
I haven't been officially diagnosed but I had all the symptoms of hyperlexia too, but that condition wasn't recognized until 1967.
I keep hoping I can bring back the spirit of that smiling baby.
And another point that is perhaps the most important point about Autism; caring parents and family make all the difference in the world. Temple Grandhin's mother was alot like mine. She never gave up on me and neither did my sister. My sister has Aspergers, and did not have the speech delay or extremely odd behavior that I exhibited during my youth. She was also diagnosed in adulthood.
My mother was extremely social and happy unlike my father who was unable to show emotion and did not speak to her during her three year marriage; I still have never had more than a paragraph of conversation with him. He left and all I had was the overwhelming social influence of my mother. She literally saved me from being institutionalized for life when I was young.
After that it is my wife who has saved me for 21 years. There aren't too many people that are as lucky as I was in the family that I had; no one as lucky as far as I can see.