Question about rights and wrongs of researchers using WP .
Like I said I don't want to do the paranoia thing so I'm asking is it Ok to let them know there is a SS_CS post grad trained tracker around with a hunting instinct ? Maybe someone just warn them . Like I said this is complex and I think WP is our social space not a potential cognitive science lab.
I have no idea. I can't even think of what you would do. If somebody is doing covert research, how would you know what they were researching? I am guessing you want to somehow invalidate this hypothetical data with posts that invalidate it or mess with it...somehow. Biut how do you do that if you don't even know what is being researched? And what if the "covert research" is actually simple data mining such as seing how many people self identify on their profiles versus how many are formally diagnosed (not that I think this would be useful data but I am trying to think of data that could be mined).
Spoof posts sound fun (or whatever your plan is) but what thread would you put them in? How would you even know where to spoof?
I have no idea. I can't even think of what you would do. If somebody is doing covert research, how would you know what they were researching? I am guessing you want to somehow invalidate this hypothetical data with posts that invalidate it or mess with it...somehow. Biut how do you do that if you don't even know what is being researched? And what if the "covert research" is actually simple data mining such as seing how many people self identify on their profiles versus how many are formally diagnosed (not that I think this would be useful data but I am trying to think of data that could be mined).
Spoof posts sound fun (or whatever your plan is) but what thread would you put them in? How would you even know where to spoof?
Also, now that you have alerted all the covert researchers that you are on to them, they are going to be ready for it.
But what if they are carrying out covert testing without prior informing us they were doing so?
Are you talking about actively doing experiments? I don't see how that's even possible. There's such a limit to what experiments could be done covertly on a messageboard (especially with scientific validity) that I can't imagine any researcher doing it.
_________________
not aspie, not NT, somewhere in between
Aspie Quiz: 110 Aspie, 103 Neurotypical.
Used to be more autistic than I am now.
Like I could be doing one now, but I'm not . I ask you an ethical question. Part of my "pathology"
( Like I'm a pathology!) ,according to them I don't always see right an wrong . So I ask you guy's is it ethical for them:
A) To be open about coming here and asking questions- I say no problem if we have the choice to participate or not, and if it's really worthwhile we'll help you out if you can , hey we'll even help you develop models to make sense of your findings/data. They might be kind of weird models sometimes because you are asking AS guys , they might be totally original flashes of brilliance but that's the chance you take.
B) Is it ethical to do covert , blind testing . I say to me this is a primarily a social resource where we come not to be judged tested etc. It is not an extended research facility, OK, so have some respect please. I you want to do A I have no problem
C) I I then ask is it ethical to try to find a response to them that we can all agree on. My own personal response is to go in there and start playing with them. But this might not be the right thing to do because I have just passed outside the morality field which I use to get by with. I have no criminal record by the way , but this gets my back up.
See ?
It could be an Do AS have an sense of right and wrong/ethics?- well to some extent we do but this is our "clubhouse" and you have to ask us first if you want ask that question, would be my personal answer.
Meme
Last edited by memesplice on 06 Jul 2011, 4:57 pm, edited 1 time in total.
I'm just saying "what if" , not trying to cause paranoia . Leave the tracking to me and I'll deal with them quietly.
Now the question is it ethical for me to prevent them doing covert research?
Check the title of this conference- Man If someone calls me a pathological illness that gets my back right up and then I get this instinct ... can't help it. I got issues.
http://www.interacting-minds.net/Sted/C ... ER9TH.html
Pathological is being used here as a scientific term to describe neurological biological differences outside of the norm that affect communication and cognition in Autism and Schizophrenia. It's a common scientific usage of the term in biology, not one intended to degrade or offend anyone.
Schizophrenia is considered a mental illness, but Autism is considered a disorder at this point in time from a psychiatric point of view. So they are not suggesting that anyone with Autism has a pathological illness.
If someone with Autism were to read the headline without a description of what they were doing, I could see how it could objectively be taken as offensive. And regardless, many probably still would, pathological has a very negative connotation in our culture, when there is any psychological connection,
I suppose if someone were to really do research here, they would expect some of the anonymous users to not cooperate with the intention of their research. It's evident it already happens among members here, when a topic is controversial.
Since there is no requirement for honest answers here beyond the rules, that is a personal decision for you to make. Hypothetically, if you were to find a way to actually prove whether or not covert research was going on, you strongly disagree with covert research, and you feel it is your ethical duty to thwart the efforts of covert research, that sounds like it would be a personally correct ethics decision for you to make for yourself.
I can understand why someone who doesn't agree with covert research might want to make an effort to skew the results, but again, it wouldn't be of much consequence to the researchers, because that potential factor would already be weighed in any study done, for any reason, on an anonymous website.
So, yes, I could see that as an personal ethical decision; there would probably be a significant number of people that could relate to it as ethically correct personal behavior.
I don't see it has having a significant impact on any potential research that would be done here, though.
We have no rights regarding anything posted here. Only the owner does, so it would be a request to him, not the researcher. Beyond that per rights and copyright info., listed on the site and quoted below, a researcher would not legally be able to copy any information from posts here for publication elsewhere without the written consent of the owners. And, per legal rights, the owners under their discretion could provide the information posted publically here to researchers if they wanted to.
So, the website owners have control of everything you post here. I think your information is in good hands.
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I do not believe any researchers are posting on this forum whilst posing as a legitimate Aspie and/or autistic person. Please resume your interesting Aspie conversation and forget this conversation ever arose.
Wallrus I suggesting for a moment Ahogday was doing this. He has interesting and valid stuff to share, he has deep thoughts and gentle balanced view on stuff.
It comes down to this regarding researchers, for me.
A. If you grow up and don't have a clue what normal feels like and you have to guess what normal feels like, then approximate it to get by, how do you know if your social behavior is
normal is whatever group or culture you find yourself? Normal has a whole bunch of feelings and cognitive states and balanced social relationships that goes with it. Without that internal datum line you have no internal means to calibrate anything with in a social environment.
B. By coming here to some extent and not being judged or studied and given loads of leeway when you get stuff that would be 'wrong' in NT society , you get a very basic idea of normal, You can then use this to build up an internal model of normal-feeling and use it outside WP because you now have even the vaguest sense of the internal state of normality.
C. It is not normal to be studied by people who think you are a pathology in NT society. If you fall inside that golden line of normality you have the ticket and anyone else can suck lemons.
I particularly dislike these kind of guys at the moment because I have been helping devise a model for a friend who is applying for a Ph.D researching health care in the UK, drawing together all her knowledge in this field. The professor knows I'm helping her but goes all NT when it comes to talking to me . He gets slightly red and angry in the face when I ask him stuff. He likes the info and the models but ignores me in conversation. I do a menial job and this guy would be happy for me to come and lay his drive for him but not to talk about the stuff I have given him via my friend by which he makes part of his living. This is not responses to questions but actual models for analyzing the data and making sense of a complex set of problems which are not AS related.
This makes me feel like a sub category of a pathology and if I measure his verbal and non responses against those when he's interacting with my friend I can tell this is far from normal. He keeps making it clear he's only talking to me because he wants the developed models, after that I can FO out of his face and go back to whatever mindless job he thinks I'm suited to.
So right now excuse me if this research thing is outside my morality field because it makes no sense to me when I'm here.
Anyway I'm going to stop talking about this. There are more interesting conversations.
I'm not into paybacks but if anyone of these guys tries it on here and talking to me like I was a pathology I might start going into tracking mode . I can't help this. Tracking is time consuming for me and I'd rather be chatting about interesting stuff as it Happen. ( yep you read that right if you guy's are here, just to let you know.)
Meme.
It comes down to this.
A. If you grow up and don't have a clue what normal feels like and you have to guess what normal feels like, then approximate it to get by, how do you know if your social behavior is
normal is whatever group or culture you find yourself? Normal has a whole bunch of feelings and cognitive states and balanced social relationships that goes with it. Without that internal datum line you have no internal means to calibrate anything with in a social environment.
B. By coming here to some extent and not being judged or studied and given loads of leeway when you get stuff that would be 'wrong' in NT society , you get a very basic idea of normal, You can then use this to build up an internal model of normal-feeling and use it outside WP because you now have even the vaguest sense of the internal state of normality.
C. It is not normal to be studied by people who think you are a pathology in NT society if you fall inside that golden line of normality. I particularly dislike these kind of guys at the moment because I have been helping devise a model for a friend who is applying for a Ph.D researching health care in the UK, drawing together all her knowledge in this field. The professor knows I'm helping her but goes all NT when it comes to talking to me . He gets slightly red and angry in the face when I ask him stuff. He likes the info and the models but ignores me in conversation. I do a menial job and this guy would be happy for me to come and lay his drive for him but not to talk about the stuff I have given him by which he makes part of his living. This is not responses to questions but actual models for analyzing the data and making sense of a complex set of problems which are not AS related.
This makes me feel like a sub category of a pathology and if I measure his verbal and non responses against those when he's interacting with my friend I can tell this is far from normal. He keeps making it clear he's only talking to me because he wants the developed models, after that I can FO out of his face and go back to whatever mindless job he thinks I'm suited to.
So right now excuse me if this research thing is outside my morality field because it makes no sense.
Anyway I'm going to stop talking about this. There are more interesting conversations.
I'm not into paybacks but if anyone of these guys tries it on here and talking to me like I was a pathology I might start going into tracking mode . I can't help this. Tracking is time consuming for me and I'd rather be chatting about interesting stuff as it Happen. ( yep you read that right if you guy's are here, just to let you know.)
Meme.
Interesting comments, I can particularly relate to C: a proven commodity to the organization but not quite human like the rest of us. Your interaction with the Professor reminded me of that reference of my value to my workplace by a supervisor; the but not quite human like the rest of us was the interpretation I got out of the comment.
There won't be many people in the future to grow up with Autism and not realize they have it. Finding out I had it at age 47, and understanding what it was, made me realize that my whole life I was attempting to be part of a matrix drifting in at out of it, analyzing what I needed to do each day to be part of it, having no idea until the end, with an understanding of Autism, that there was no one around me having to do this every waking moment to survive.
I convinced myself I was like everyone else but noone was like me, except for immediate family members with similar conditions.
I remember so many times walking in a grocery store among other people sensing a vague difference, between myself and others, but dismissing it as imagination.
Also, at a younger age, having a feeling that I was part of a much smaller group in the world, identifying people in the general population that I could sense were similar to me. All before I had any idea that I had Autism.
Also the feeling that everyone could tell that I was different more than I could. Amplified, after I left the matrix.
It's a strange thing to think you have it all figured out for so long, and realize you never did. The illusion felt better than reality. I'm glad I never knew when I was younger; given all I know now the illusion was a better way of life, hard, but it worked well enough and I couldn't have imagined a happier life.
My type of Autism was closer to Kanner's type with a speech delay and verbal communication problems most of my life, I sense here, that the type of Autism I have is different than the Aspergers type with no speech delay. I still feel more like a computer and some of the others here seem more human, and part of a different matrix somewhere between Kanners' type and "NT".
I think everyone lives in different Universes colored by biology and experience, but some I think are much more different than others. I want to go back to that Matrix that everyone else seemed a part of, but with Autism once you leave it behind, I guess there is no way back, if it's not a natural part of an individual. Actually, I guess, what I thought existed, never did; complex visual/sensory constructs of an Autistic mind and memory.
Ha ha ha ha ha!
One problem for a researcher doing covert work on us would be ethical approval, which would be required if they wished to publish in the established literature. Of course that's less of a problem if they have other motives.
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