AS-D The view to "Disorder"
Also, you might want to look at this.
http://www.tonyattwood.com.au/pdfs/attwood10.pdf
The thing is, disorder explicitly inclues the "living in a world designed by and for NTs. Disorder is comparing to the culture you're in.
If ASD people were the majority, and NT people were the minority then it'd not be a disability, because then we'd not have the problems. Similarly, if there was the assumption that everyone used a wheelchair, the requirement of using a wheelchair wouldn't be a disability.
This is like a fish saying "I can breath fine except when I am under water".
Exactly. Saying that I'm impaired is like saying a fish is impaired because it doesn't have lungs.
Seriously. It's a fish. It doesn't need lungs, there's nothing wrong with it.
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Remember, all atrocities begin in a sensible place.
You're assuming the fish has water to swim in. Autistic fish don't. The best we can do is buy ourselves fish bowls and occasionally poke our heads above the water, gasping for breath, until we have to submerge again.
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This is like a fish saying "I can breath fine except when I am under water".
Exactly. Saying that I'm impaired is like saying a fish is impaired because it doesn't have lungs.
Except that a fish must live in the water just as an autistic must live in an NT world. I cannot make the world different than it is no matter how much I try. The world is dominated by a neurology that is different than mine. My neurology impairs my interactions with the vast majority.
Calling myself "different" because it feels better than "impaired" is of little value to me. I make progress when I realistically assess my strengths and weaknesses and use the knowledge gained from that assessment to adapt to my environment. I feel better when I DO better, not when I play games with labels.
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When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
Wrong. I am not low-functioning (I am mid-functioning or severe high-functioning...whatever you want to call it) and I have a disability that prevents me from moving out independently, maintaining ANY friendships, working full-time, etc.
I don't have a mental disorder either. I have a neurobiological disorder. Aspies do too.
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Diagnosed with classic Autism
AQ score= 48
PDD assessment score= 170 (severe PDD)
EQ=8 SQ=93 (Extreme Systemizer)
Alexithymia Quiz=164/185 (high)
Except that in a society where the majority had ASD, many of us WOULD still be disabled. How would I get around? How would I support myself? Who would take care of me? How would I get food?
Also, some of us ARE ill due to ASD. I'm a gut girl- I have a lot of ASD-related gut issues that cause behavioral issues. My mom and I didn't believe that going GFCF would do anything but fix my GI problems, but I'm a whole different person when I eat right for my body. When I'm going to the bathroom 20+ times a day, banging my head because it hurts, scratches holes in my body because of the burning, you can't say I'm "just differently wired." No, I'm sorry, but I was sick.
In such a society things like getting around would be assumed to be a problem is how I was viewing it. There would still be people with more difficulties than others of course, but not all ASDs would be disabilities because things like "How would I get around?" and "How would I get food?" would be dealt with.
This is sophistry.
ASD's are NOT in the majority. The number of people on the spectrum that are self sufficient are a minority within a minority.
Reality is harsh, but denial is harsher still as reality always imposes itself on denial.
_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
This is sophistry.
ASD's are NOT in the majority. The number of people on the spectrum that are self sufficient are a minority within a minority.
Reality is harsh, but denial is harsher still as reality always imposes itself on denial.
Um, I never said that ASDs aren't a disability. You are misquoting statements that were supporting that they /are/ a disability. It's the same as the fish example. If a fish functions fine as long as its out of water, and all fish function out of water, then its fine, but the fact is that fish live in water. And the fact is that we function in an NT-based society. The arguments that we aren't disabled if we don't have to interact with others are only saying that if we were ASD-dominate, then we'd not necessarily have disability (some would some wouldn't), and don't say anything about the situation we /are/ in..
What is supposed to be the key difference in Asperger's and mental retardation (and the other two) that makes one "not an disorder" and the other a disorder?
If you can't think of positive aspects or so-called strengths that people with mental retardation can have, you should check that out. It's always possible to work as a volunteer in Germany to get to learn about people with other disorders - or even others with Asperger's. There aren't enough people in this country who know how to get along with autistic children and adults.
Back to the topic on hand, you should note that you also cannot have Asperger's and not be impaired.
Okay, here is the problem:
If you are not impaired, you are not qualified for a diagnosis of Asperger's syndrome/Asperger's disorder.
Asperger's Syndrome was created to mean a disorder.
Hans Asperger, the guy who gave Asperger's Syndrome its name, described impairments (that equates to Einschränkungen, Beeinträchtigung in German) he observed in his patients. Besides their impairments, he also described their individual peculiarities and their individual strengths. Some of which seemed to be shared by some of his patient, thus may be linked to Asperger's Syndrome.
Asperger's Syndrome is the term used to mean exclusively those with an impairment who meet the criteria of AS. That's as restrictive as it sounds.
It means that those who do not meet the criteria do not have AS. Even if someone who doesn't meet the criteria is found to have a similar neurological make-up as someone who does meet the criteria, only one of them has this thing called "Asperger's Syndrome".
(One a side note - I really do think that they should acknowledge that there people who have coped with their AS and do not present as impaired - not feel impaired anymore. If something happens to strip them off their coping strategies and messes up their lives so badly their AS does impair them again, it's unreasonable that they would not receive help.)
Asperger's is merely a name to mean that collection of traits with at least one impairment. Asperger's Syndrome does not describe a special neurological wiring.
Why is that anyway?
That's worth a thought, I think. Remember that there are always people who happen to not quite meet one or two criteria, but even if they can't get the label AS, they're definitely not as normal and as non-autistic as other people.
Wouldn't it be more useful to actually pay attention to the special neurology and call everyone with it an "aspie"?
Probably, but there is no common cause known to this date that leads to a special neurological. Those with AS and those who would have it, if they were impaired or met all of the criteria, are not found to have one common neurology. As with everyone else on the spectrum, no matter whether they qualify for diagnosis or not, the causes for autism spectrum disorders are extremely diverse (vielfältig).
Two people with Asperger's Syndrome may have vastly different disorders. Or, if you'd prefer to say it like this: Two people with Asperger's Syndrome may have vastly different brains. How would two people with similar behaviours but different reasons for their behaviours be thought of? Are they alike because of their behaviours or are they different because of their brains?
Two people with Asperger's Syndrome can be different in how mild or severe they are. I know by now that specialists (not just in Germany) like to think that AS = mild autism, but truth is, there are plenty of people with a diagnosis of AS or who would qualify for a diagnosis of AS who are not mild. At the same time, there are people with classical autism who're milder than those with AS. There are people who're not as mild as someone else may be, but who present more high-functioning. Someone who is mild can even give people the impression he or she is low-functioning.
This is really a complicated topic you talked about.
Not only are there a lot of details to be read-up, but these do not give a very accurate picture of what AS (and all of the autistic spectrum) are without the experiences of all those who consider themselves on the spectrum. Official diagnosis or not, few traits or all the traits, mild to severe, they pretty much all have something to contribute about what broader autism phenotype, AS, classical autism and atypical autism/PDD-NOS are like.
I tend to agree, but there is a potential problem - is that many people with as ASD are diagnosed in an age where is not really possible to see if they are impaired (an example - a child who spent all time in the playground alone living imaginary adventures could be considered "impaired" by parents and teachers, even if he feels perfectly happy).
This is sophistry.
ASD's are NOT in the majority. The number of people on the spectrum that are self sufficient are a minority within a minority.
Reality is harsh, but denial is harsher still as reality always imposes itself on denial.
Um, I never said that ASDs aren't a disability. You are misquoting statements that were supporting that they /are/ a disability. It's the same as the fish example. If a fish functions fine as long as its out of water, and all fish function out of water, then its fine, but the fact is that fish live in water. And the fact is that we function in an NT-based society. The arguments that we aren't disabled if we don't have to interact with others are only saying that if we were ASD-dominate, then we'd not necessarily have disability (some would some wouldn't), and don't say anything about the situation we /are/ in..
This makes no sense to me. We don't get to speculate about a universe without gravity except in science fiction, fiction being the key word. We must accept gravity as real and a universe without gravity as imaginary. Reality imposes itself on us, we do not dictate the conditions of the real. Talking about hypothetical societies where ASDs are the norm is just speculative, and wishful, thinking.
_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
It's the same as talking about fish that live out of water. The point is that isn't the situation we're in and while we can discuss that situation that won't change that AS is a disability because it /isn't/ the situation we're living in.
This is like a fish saying "I can breath fine except when I am under water".
Exactly. Saying that I'm impaired is like saying a fish is impaired because it doesn't have lungs.
Except that a fish must live in the water just as an autistic must live in an NT world. I cannot make the world different than it is no matter how much I try. The world is dominated by a neurology that is different than mine. My neurology impairs my interactions with the vast majority.
I have mixed feeling about that; a side of me agrees; the other side thinks that, by a not much different reasoning, could also be argued that being black in Mississipi, 1951 (or white in Zimbabwe, 2011?), was a disorder.
A possible rule to decide if a difference should be considered a disorder - if the problems created by your difference require that "normal" people made special accommodations or special services to you, it is a disorder; if the solution of your problems requires only that "normal" people don't mess with you or don't treat you worse that they treat other people, it is only a difference.
Examples - if you need special time to do your tests in school, and/or people needs to talk to you in a special way, giving you detailed explanations, etc., you have (if your problems are severe enough) a disability/disorder; if your only problem is that you have an "eccentric" behaviour that attracts bullying, it is only a difference.
However, I suspect that these "rule" could be very ambiguous in practice.
For me personally, AS isn't any more of a disability than it is a disease. Although I'm usually the last one to finish my tests, it rarely ever becomes problematic. My scores on the SAT were average in reading and writing, but above average in math even though I didn't have near enough time. Sometimes I need clarification on instructions, but doesn't everyone from time to time? So then, why would I consider myself disabled?
Am I disabled because I don't move my arms when I walk?
Am I disabled because I would rather work alone than in a group?
Am I disabled because fidgeting with things and pacing helps me think?
Am I disabled because I prefer to be organized and have a routine?
Am I disabled because I can be obsessive with my interests?
Am I disabled because I prefer to be honest to people?
Am I disabled because I think the whole concept of social events is stupid?
Am I disabled because looking at peoples eyes makes me uncomfortable?
Alright, seriously. What about AS is debilitating? The only thing I can think of is an inability to read details in body language effectively.
_________________
Remember, all atrocities begin in a sensible place.
Well to start with what I need accommodations for: sensory issues.
Sensory issues can easily be debilitating. I have enough issues with my sense of smell that some days I can't so much as go to the grocery store because of the people smoking at the doorway (leading to migraine). I can't drive because sensory overload completely shuts down my brain and headlights are one of the most likely things to cause overloads. I can't clean my entire apartment because some cleaners cause migraines. Things that are "ultrasonic" similarly can give me migraines and shut me down mentally.
Difficulties socializing can easily cause problems finding and keeping employment. Ability to monetarily provide food for and shelter yourself is rather important. When you don't understand in office politics and this means you're fired for no good reason, or when you don't know how to read people and can't get through an interview despite being well prepared for the job both are issues.
Meltdowns on their own when they're occurring are rather debilitating
Even things like not liking change can be debilitating when they lead to meltdowns rather than just being uncomfortable, though I think to that level it tends to be more extreme than is labeled Asperger's.
Being unable to read body language makes it much harder to interact with people in person when you want to do so.
Being unable to read body language and viewing people as defaulting to honest can make it much easier to be taken advantage of.
Nevermind. You win.
Although, there is one thing I will say.
A difficulty socializing leading to a difficulty holding a job is total crap. If someone is to fire me for my social skills in a job where they aren't required, I'd say that's a flaw on their part. That makes as much sense as not using a robotic arm in a car factory because it can't make me a sandwich. It doesn't matter if it can weld a door frame to a chassis, it's the sandwich that's important.

Not everyone is going to be a people person, obviously. Not being a people person shouldn't have to be a disability. It's society's dysfunction if a person can't hold down a job without having excellent social skills.
Either I get a job as an engineer and use my knowledge to help make the world a better place, or nobody hires me and then they can all pay my SSI bill. It's not just me that benefits from having a job, you know. But if society doesn't want me to work, so be it. Society can suffer, see if I care.
_________________
Remember, all atrocities begin in a sensible place.
Last edited by SammichEater on 08 Aug 2011, 10:57 pm, edited 1 time in total.
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