Does services deliberatively not give correct diagnosis

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Country_Girl_Canada
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11 Sep 2011, 6:26 pm

To me its complicated. With a public system there is the problem of cost. In Canada things are covered but it can require a great deal of time. I don't believe the system is intentionally trying to mess with people but:

1 - The timelines are long so sometimes it just requires forever and that is frustrating
2 - Sometimes dx criteria and criteria for support are not the same. Sometimes the latter are much higher and that can seem unreasonable
3 - Sometimes parents are wrong about what they suspect and sometimes those parents get a private dx from someone inclined to give the dx the parent wants. In those cases as a public employee it is almost impossible to be straight with the parent because the parent has aleaady decided the agency is wrong.

I've seen all 3 of these.

A different example - I have problems with my wrists. I got permission to have special equipment ordered but it was 6 months before it came in. Who is at fault? Well a number of people were not prompt so it is really the way the system is set up - that I had to wait on 4 or 5 different people to do their job that caused the problem - if they wanted to be prompt (which they probably don't because they don't want to spend 500$ on every employees computer station) - they could have one person who does the approvals and the ordering for the entire company - but instead I had to jump through hoops with 1/2 a dz people - made more complicated by my undisclosed AS (that is dx).

So bottom line to me the truth is somewhere in the middle. Overall I do believe it is too hard to get support but I understand that the system is afraid people will use diagnosis such as AS to get services they don't deserve (b/c one can't pretend to have something with a clear genetic test but perhaps someone can pretend to have AS).



Annmaria
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11 Sep 2011, 6:37 pm

While I understand what you are saying, I think when a parent continues to fight and tries to get services/support for there child maybe its time to realise there is a problem. How does the services decide and if they get it wrong they have failed another child/adult.

Its also very different when you have lived it.

"It is better [one hundred] guilty Persons should escape than that one innocent Person should suffer".


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Jellybean
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12 Sep 2011, 2:49 am

Quote:
I was hoping after my son got the diagnosis that I would be able to go to the local services where I live. But they ignored this report, I had a long battle and as I said now they are under investigation of how they dealt with my son's case. They final agree on the dx.


That's exactly what happened for me too! Although I was 19 at this point so no longer with CAMHS. There was no investigation though for me, I wish there had been. I got my triple diagnosis at the Maudsley who's professor specifically said there was NO personality disorder present, then when I went back to the adult mental health service they said, 'we don't deal with your kind' then re-diagnosed me with personality disorder NOS. They completely refused to acknowledge the diagnosis from the professor. It took another three years before I got the help I needed.


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Annmaria
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12 Sep 2011, 3:46 am

Thanks Jellybean its good to find someone that truly understands, the unnecessary stress it causes to the family is horrendous.

I have got to where I am, and hopeful should get support fingers crossed see if my son can make it through school.
I think I am getting away from my original question, just really want to see how many others have suffer like this.

I will post when the investigation is complete let you know the outcome, hopefully its positive and if its saves 1 family going through what your family and mine endured that's a good thing.


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