As an adult, what services would you want?

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TeaEarlGreyHot
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14 Oct 2011, 12:02 pm

Sophist wrote:

TeaEarlGreyHot wrote:
For be personally, I think I would benefit tremendously if someone came over once a week or so to help me with any paperwork and things of that nature that I have to do. I'm like a distracted 5 year old with paperwork. Embarassed


If an autism center were able to offer this help but on the center campus, would this also be helpful? At some point we might be able to have social workers who travel to homes, but for the interim we could perhaps have something like this at the center itself.


Definitely. As long as the help is available, it would be a big plus.

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TeaEarlGreyHot wrote:
Also, assistance getting places would be nice. My sense of direction is non-existent and often times just the thought of going somewhere I haven't been a hundred times can cause me to shut down.


Understood. There might be a similar difficulty in providing this service without off-campus workers; however, is there something on-campus that workers could help with in these regards that could improve your familiarity with your local area? Help with organizing travel plans, working with maps, etc.?


This is what I was thinking, actually. I understand that having someone go with you to new places just isn't feasible. Help figuring out how to get there, though, would be much appreciated.

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TeaEarlGreyHot wrote:
I hate searching for a place. Not only does it involve a lot of phone time (really dislike the phone Sad ) I am not making much progress. Every time I think I have found a place, I am told I don't make enough money.

Buttholes.


Do you mean searching for a place to live?


Yes, but I actually posted this in the wrong thread by accident. :oops: It appeared to be relevant, however, so I just left it.


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hyperlexian
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14 Oct 2011, 12:02 pm

moved from Adult Autism Issues to General Autism Discussion


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hanyo
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14 Oct 2011, 12:10 pm

I have no idea what help if any is available in my area or where and how to get it, especially considering that I have no insurance or money.

For me I think helping me get and keep a job or helping me apply for disability if I just can't work would be the most helpful.



Grisha
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14 Oct 2011, 12:21 pm

hyperlexian wrote:
technically it fits though this forum has a naughty flavour. :wink:


I categorically refuse to tell you what popped into my mind when I saw a thread about "adult services" in this forum... :wink:



hyperlexian
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14 Oct 2011, 12:34 pm

Grisha wrote:
hyperlexian wrote:
technically it fits though this forum has a naughty flavour. :wink:


I categorically refuse to tell you what popped into my mind when I saw a thread about "adult services" in this forum... :wink:

i categorically refuse to admit i thought the same thing!! !


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14 Oct 2011, 12:38 pm

Tequila wrote:
How about dressing so that people don't stare at you? Doesn't bother me too much but it does some others.


One problem that could come from this (aside from having to figure out how to provide the person with money for clothes) would be telling the person what to wear and what not to wear. While some might appreciate fashion guidance, it would have to be done with a great deal of tact such that one wouldn't be overtly criticizing how s/he does currently dress.

Perhaps classes which would involve helping the person to become more aware of his/her appearance, whether it brings unwanted attention to him/her, and whether that's something s/he would like help changing. As I said though, it would be walking a fine line and would truly have to be helping the person change something they want changed.

It would also likely entail accommodating sensory sensitivity with regards to clothing and how to work around finding something sensory-acceptable.

It's a worthy suggestion, although it may be tricky to implement.

Tequila wrote:
Also, self-advocacy would be a good one - i.e. getting yourself out of danger when asked awkward questions by others or being suddenly dropped into uncomfortable situations with unfamiliar people?


Yes, so more of these conversation/situation practice sessions like have been mentioned earlier. But definitely, learning how to advocate for oneself is a highly valuable skill and one which many autistics could probably use some help with.


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Sophist
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14 Oct 2011, 12:42 pm

hanyo wrote:
I have no idea what help if any is available in my area or where and how to get it, especially considering that I have no insurance or money.

For me I think helping me get and keep a job or helping me apply for disability if I just can't work would be the most helpful.


There are some organizations in the US such as Vocational Rehabilitation that can help with certain aspects of job training, although nothing autism-specific to my knowledge. But it might be possible, if not to provide training directly, then to work with Voc Rehab in a coordinated effort.

In applying for Disability, there are various organizations that provide social work care; a case worker would be better able to help with all the ins and outs of that application process. Perhaps the center could be a means through which to funnel some of that social work expertise and put adults and families in contact with the social workers who can provide that.


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alexi
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14 Oct 2011, 6:32 pm

I long for an "escape space" that I can go to restore some sort of calm when I am having a hard time. In Europe they have Snoezelen spaces- Sensory spaces, currently mainly aimed at children with AS.

Many people can't use their home to get away from people if they live with others, or it is just the wrong type of environment. I have begun to sit in the lobby of one building in the city just because it is quiet, they have lounges and they turn the lights down low--- Not ideal, but it is more calming than anywhere else that I know.

I want somewhere I can just drop in at any time. Restore, feel safe, and then go back into the "real world".



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14 Oct 2011, 6:58 pm

Nothing. As long as people are reasonable, I'm fine. It would be nice to have someone wipe my butt, though. I'd do it myself, but I have more important things I could be doing.


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glasstoria
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14 Oct 2011, 6:59 pm

It would be nice to have information about getting a service dog.


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Tuttle
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14 Oct 2011, 7:32 pm

A sensory integration room focused on adults.

People to help with processes of applying for accommodations for various things and such.

Easy to find information about who is recommended locally for mental health for people with AS.

A library that is just accessible and something people don't have to worry about going to.



animalcrackers
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14 Oct 2011, 7:54 pm

Advocacy/liaison services for those of us with autism who, despite being coached and given multiple scripts, find themselves unable to make it through the conversations necessary to access community services outside of your center (i.e. someone who can make "heads-up, I'm sending this person your way and here's what you need to know" phone calls to smooth the way for people with communication difficulties).


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14 Oct 2011, 7:58 pm

People being more understanding of aspergers which also means jobs and bosses for people with aspergers. I am asking for more patience, tolerance, and understanding especially from bosses.



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14 Oct 2011, 9:12 pm

OT.

Teach people (parents, staff, clinicians, teachers) about AAC.



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15 Oct 2011, 12:31 am

Help getting a job....or at least the expirence I need to get the job I want. All the vets here don't want volenteers becuase the building their practice is in is too small. That's really all I can think of. I don't need help making friends because I don't need friends. My bearded dragon is my best friend and she's all I need. Everything else, I can handle on my own.


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15 Oct 2011, 8:42 am

Are there any kinds of services you'd like (or would have liked to have had when younger) that involve any co-occurring conditions, e.g., medical like epilepsy, GI problems, etc.?

Note: I'm editing the original post to include this question as well, for those who haven't read the thread already.


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