Something Went Wrong with My Assessment, I Think

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As I said in an earlier post, I went there because I needed to find a place that would assess an adult and also take Medicaid. Other places would do one but not the other. Easter Seals did both, so they seemed my only option. I don't know if Medicaid would cover getting a second opinion, even if I could find another place that would do it. That's part of why I'm so upset by this whole thing.

She's on Medicaid and her options are limited - as she said earlier (or in a blog post) she hasn't been able to find someone who works with adults and takes Medicaid.

Yeeouch! Sorry about that ...

Another option might be to contact a local university's psychology department and ask for advice.

I think my evaluation that gave me my NVLD diagnosis specifically didn't wanna diagnose me with Aspergers. They gave me an NVLD plus a schizoid personality diagnosis, but the problem was, I was 17 at the time of the diagnosis, and according to most psychologists everywhere, 17 is too young to diagnose someone with schizoid PD. They said I was basically "almost but not quite" for Aspergers. However, my eval was taken because of legal stuff I was going through, and I think there was more or less pressure not to diagnose me AS for that reason. That, and I wasn't trying to get any sort of diagnosis at all, I wanted to be perceived as normal as possible, and still came out with that. So I just completely disregarded that diagnosis entirely, for giving me the schizoid PD thing. So, for me to even entertain the possibility of my NVLD, it took a therapist I worked with for a year to get me to even consider me having NVLD (they thought the schizoid thing was stupid, though) and then I finally ran similar IQ tests as they gave me during my first diagnosis online, and they came out the same, and then I did reading online about NVLD, and everything said about it fit me exactly.

So I guess it went wrong, but...screw it.

I'm on Medicaid as well, and I kind of lucked out. But even so, I want a second more thorough opinion, and finding someone to provide that hasn't been easy.

If only doctors could be trusted to do thorough evaluations, we wouldn't have to worry about it like this... It's just so frustrating when you go to a doctor and they have less of a clue than you do.

There are some doctors that have their own perceptions of what autism is. If you don't follow their own personal criteria you don't have it. Sorry you had to go through that.

The evaluation was rushed even with two IQ tests. I didn't even take one. I wrote everything down and handed it in because I never could remember what to say.

Some of your stims sound like tics. The shoulder thing for example. The tongue one sounds like a stim though because I do it too. Had to stop because it made my teeth hurt.

pensieve, I think I'm not clear on the difference between a stim and a tic. Could you help me out with that, please?

Verdandi, I noticed your post about fibromyalgia in another thread. I'm glad you finally got a proper diagnosis there. I got diagnosed at 19. Even though most people around me didn't understand it back then, it was still very helpful to understand myself and be understood properly by doctors. I've been glad for your sympathy and understanding of my situation, as it seems the diagnosis aspect is reversed, as to which one each of us was able to obtain and which one got missed or denied.

Fnord, your suggestion about a university's psych department is a good one. That's one of the options I'm going to explore. I'm not going to take this whole thing lying down. Also, if you missed what I'd said in that one post, others might have, as well, so don't be too sorry about your comment. It caused the point to be made more clearly, and it led to your posting of the suggestion you made. I've appreciated your posts. The points you've made have been worthwhile for illuminating this subject. Thanks!

If all else fails, I might have a peek at that link I saw posted about a NYC study that people can participate in and get a free evaluation. I've never had an MRI, but I could try it, as part of the package, just to get the evaluation. I'd have to find a way to get there, though. I could probably stay with my aunt while I'm there, but I'd have to explain what it was all about. That might be okay, and then there'd be an opening for discussion about my dad. Otherwise, it would be awkward to decide whether and how to talk to her about her very frustrating brother! (I haven't even decided what to tell him about myself, if I get a diagnosis. My sisters and I will probably discuss it if that finally happens.)