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SylviaLynn
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05 Dec 2011, 9:57 am

It's problematic, but not necessarily impossible. The thing is, for SSDI purposes there's no way they're going to go back that far. For other purposes such as medicaid waivers they would possibly take into account the nature of the disability.


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SylviaLynn
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05 Dec 2011, 10:04 am

Hanyo, are you seeing anyone? Doctor, therapist, case manager? I understand that it is difficult to call people, but maybe you can email? Or write a letter? It sounds like you really need an advocate to help you. If your mother can't or won't please don't give up. I know there are people in my state who could help, and my state is kind of backwards. PM if you like.


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hanyo
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05 Dec 2011, 10:13 am

I don't see anyone. I don't have insurance or money and haven't been in any kind of therapy or anything like that since I quit school at the age of 16 so I've been out of "the system" for a long time. I have no diagnosis and don't even know how to get started.

I'd only be eligible for ssi because I have 0 credits for ssdi but I did get ssdi until I was 18 because my father died when I was young.



Verdandi
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05 Dec 2011, 10:17 am

Hanyo, if you don't have a diagnosis, SSA does have you see one of their doctors to evaluate you.



hanyo
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05 Dec 2011, 10:18 am

Verdandi wrote:
Hanyo, if you don't have a diagnosis, SSA does have you see one of their doctors to evaluate you.


Yes but I can't help but think they'll do their best to not diagnose me so they can deny me.



Verdandi
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05 Dec 2011, 10:34 am

hanyo wrote:
Verdandi wrote:
Hanyo, if you don't have a diagnosis, SSA does have you see one of their doctors to evaluate you.


Yes but I can't help but think they'll do their best to not diagnose me so they can deny me.


Possibly. It depends on who you get. I know someone who went in, saw the SSA doctor, and got approved first try. That's really rare, though, and you can get things started and moving toward appeal.

Also, it's possible your state has services available for people with disabilities. I know in Washington, they evaluated me for disability and concluded I was "an obvious case," which got me onto medicaid, and I am required to push for SSI due to my situation. I do not know what other states offer.



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05 Dec 2011, 11:06 am

I want to clear up a few things from your post OP. SSDI is Social Security Disability income. It is for people who have worked & paid enough into the system. Those benefits start from when you became disabled & the day your disability began is at least a month after you last worked so you can not get backpay from when you were working.
SSI is Supplemental Security Income. It is a poverty program for people with disabilities who cant get SSDI because they haven't worked or haven't worked enough to qualify for SSDI. SSI backpay goes from when your case was opened. You will not get backpay from 19944 because your case was closed when you were rejected then & you opened a new case when you applied recently. If you don't appeal that decision & you start a new case; your backpay will start from when your new case was opened.
Also even thou you were disabled when you were a kid; you can NOT get benefits based on your parents income if you are over 21(I'm not sure about 18 to 20). SSI is based on your parents income when you are a minor but it goes by yours 1ce you become an adult.

I know about how things work because I was born with a few disabilities including a very rare genetic low vision disorder that was not identified till my senior year of high-school. The eye specialist recommend I apply for SSI & said the process should wait till after I turned 18 & graduated high-school because SSI would be based on my parents income & they both worked so I wouldn't be able to get on it. I applied after I graduated & they did not look at any of my medical evidence because I had too much income & resources; my dad had put my name on a mural funds account he set up when I was a kid that I could use for money for college or something. SSI considered that a resource & would NOT consider my application unless the account was closed.I could NOT get my name taken off the account without closing it out because of the way it was set up. The stock market had just started to go down(I graduated high-school in 2001) & I had NO desire at all to go to college & wanted to get a job so my dad insisted that I should leave the account open because I wouldn't be on SSI 1ce I started working & that was the time to be putting more money into the account sense the stock market had just started going downhill; him like most others that time thought the stock market would of started going up soon. Anyways... I had no luck finding a job & I had a mental breakdown with I was close to 21. My dad let me close the account & I wrote him checks & said they were payback for expenses I had incurred after I gradated high-school. I was approved the 1st try & AS was listed as my primary disability because the 1st psych I saw said I had it even thou she couldn't test for it & AS was ruled out in favor of Schizoid Personality Disorder when I was officially tested for AS by someone else. I had some jobs after I started getting SSI & my case was reevaluated a couple years ago after I wasn't working & they had me apply for SSDI because I had paid enough into it. I was approved after Social Security had me see a doc & randomly selected my case for quality review. My SSI was dropped because SSDI was more & I had got backpay for the difference from a few months after I had lots my last job


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ADoyle90815
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05 Dec 2011, 4:43 pm

From what I've experienced, the application is always denied, and it usually takes a lawyer to help you win on an appeal. At least, that's been the case for me. I've even heard of cases where the disability was completely obvious, and the person was still denied and had to have a lawyer help them win the appeal.



NathanealWest
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06 Dec 2011, 1:43 am

Verdandi wrote:
NathanealWest wrote:
I got through the steps pretty fast and I was approved the first time without representation but I was 22 and without a work history at all. What other benefits were you speaking of, Verdandi?


I forget what it's called. You get SSDI-like benefits based on your parents' social security payments. The person I spoke to at SSA said it was like SSDI, but anbuend told me it had a different name.


Yeah my mother gets disability too and they say it's the childs portion out of hers or something.



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06 Dec 2011, 6:30 am

I know this sounds wrong, but if/when you see a shrink just for this purpose go in there and turn all your finely learned filters OFF. Show them JUST how aspie you REALLY are , hell even play it up a bit to their expectations, if you can tell what they might be. Thats what works for me, and mostly because Im EXTREMELY socially outgoing, even though I just screw it up pretty much 99% of the time, and most peoples first thought of AS is that we mutter at our shoes in "asperanto" or some form of tone-language that no one else can comprehend.

The fact is that most of us know that its not what happens in the first hour of meeting someone when were focused on who we are that stop us that have such issues from being successful in the workplace. Its that need to stim RIGHT THEN , or the day everything is to Bright or too Loud, or whatever. They want to SEE it though, wich is only natural. So usually I just Emulate my worst days even if im having a great one.


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Verdandi
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06 Dec 2011, 6:33 am

SylviaLynn wrote:
It's problematic, but not necessarily impossible. The thing is, for SSDI purposes there's no way they're going to go back that far. For other purposes such as medicaid waivers they would possibly take into account the nature of the disability.


In my case, SSA did request records from that far back, but the records themselves no longer exist. It was someone at SSA who was handling my case who tried to help me get this information so I could have a plausible chance at it.

It's not SSDI, though, just described that way. I don't know what it's actually called.



WinningAspie
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08 Dec 2011, 10:37 pm

WinningAspie wrote:
I am trying to figure out if anyone else had the same problem with SSA and getting SSDI.

I was diagnosed in 1994 with Aspergers Syndrome, ADHD, Epilepsy and Tic Disorder NOS, and SSA denied me in 1994 when I was 6, because they didn't recognize it.


just got my entire file from SSA, and the dx from their psych is:

Phonological Disorder (MILD) :oops:
Aspergers Disorder (SEVERE) :o
Schizotypal Personality Disorder (MILD/SEVERE) :x
Obsessive-Compulsive Disorder (MILD) :roll:

The psych claims 'Best job is no contact with ppl, co-workers or supervisors.

BTW my GAF is 55.

Now I ask since I now have these dx will SSA Approve my Reconsideration for SSDI?


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Verdandi
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08 Dec 2011, 11:00 pm

WinningAspie wrote:
WinningAspie wrote:
I am trying to figure out if anyone else had the same problem with SSA and getting SSDI.

I was diagnosed in 1994 with Aspergers Syndrome, ADHD, Epilepsy and Tic Disorder NOS, and SSA denied me in 1994 when I was 6, because they didn't recognize it.


just got my entire file from SSA, and the dx from their psych is:

Phonological Disorder (MILD) :oops:
Aspergers Disorder (SEVERE) :o
Schizotypal Personality Disorder (MILD/SEVERE) :x
Obsessive-Compulsive Disorder (MILD) :roll:

The psych claims 'Best job is no contact with ppl, co-workers or supervisors.

BTW my GAF is 55.

Now I ask since I now have these dx will SSA Approve my Reconsideration for SSDI?


Probably not, because 10% of reconsiderations are approved. That doesn't mean you won't be, but it does mean no matter what your chances are not great.

A lot of autistic people also meet many of the criteria for schizotypal. You may not agree with it, but it will probably count in your favor for approving you for benefits. Personality disorders are generally considered fairly impairing and completely incurable.