Tequila wrote:
Because they're curebies funded with quite a decent sum of money. That spells danger for most autistics.
There is a schism between the parent- and professional-lead organisations like Autism Speaks and many people on the autism spectrum. Our challenging behaviours just get worse as we age, and we are terribly ungrateful! These organisations have a poor record of involving people with autism in any decision-making, and a history of promoting the parental motives of cure and normalizing therapeutic interventions, including some interventions that are unpleasant and / or harmful (chelation for your kids, anyone?
http://www.autismspeaks.org/search/apac ... /chelation).
The position on genetic selection is unclear - which is a big problem in Ireland where Pre-implantation Genetic Diagnosis (PGD) is now available (
http://www.rte.ie/news/2012/0117/fertility.html), not subject to any regulation other than safety (
http://www.rte.ie/tv/theafternoonshow/2 ... on876.html) and already covers a wide range of conditions including
deafness (
http://www.genesisgenetics.org/testing.html). The genetics of autism is a hugely important topic, but the research focus appears to be towards PGD, not diagnosis, aetiology and health interventions.
This conference appears to have a bias towards the same parent and professional focus (e.g.
http://www.nuigalway.ie/psy/abaresearch.html), and virtually no involvement of people with autism, especially adults living with autism.
For those outside Ireland, there have been some traumatic court cases in which parents (Sinnott, O'Cuanachain) have sued the state for failing to provide suitable education for autistic children, but have insisted on one specific form of support (ABA), and cases where schools (Lucan Educate Together) have sued to uphold the right to reject autistic children. The state has probably spent more defending itself and pointlessly suing parents for the state's legal costs than has been spent on autism education. These cases, along with parental support for Andrew Wakefield, have been the defining face of any 'autism movement' in Ireland.