ICD-11 and ASDs
If I am correct, something doesn't make sense to me.
It is confusing because the same term is used in different ways. In the DSM-V "autism spectrum disorder" is the actual disorder, a diagnosis that people will get diagnosed with.
But then only if they do not get the diagnosis of SCD, because that rules out the actual disorder ASD, correct?
In the ICD-11 however, "autism spectrum disorders" is the name of a category of several disorders and the category was formerly called "pervasive developmental disorders". It's not an actual disorder or a diagnosis, it's just a name to call a group of other disorders by. The diagnoses of autism, social reciprocity disorder, Rett's syndrome and disintegrative disorder are all "ASDs" according to the ICD-11.
But even if ASD is not described as an actual diagnosis,SRD falls under the "secondary" parent-category of...I call it now "being autistic"?
Well, I rarely ever heared Rett's syndrome and (childhood) disintegrative disorder called forms of autism before. Some health professionals and therapists who specialise in childhood autism, AS and atypical autism don't even know what Rett's and disintegrative disorder are.
The parent-category of DSM-V's disorder ASD and ICD-11's category of ASDs is both called "neurodevelopmental disorders", if I recall correctly.
Thank you for clarifying, Sora.
It is hard to find sufficient information and in German language I do not find any.
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English is not my native language, so I will very likely do mistakes in writing or understanding. My edits are due to corrections of mistakes, which I sometimes recognize just after submitting a text.
From what I understand of SCD, you're right on that.
I don't really know about that. I think you'd be right in talking about autistic people when talking about people with SRD but it might be different within the autistic community.
Difficulties with reciprocity are a major part of all forms of autism so people with SRD might identify with people who have the "full picture" of autism.
But as I said, if SRD would be considered a form of autism then girls (and the few boys) with Rett's would also have to be considered "autistic". The same goes for those who have disintegrative disorder, currently known as childhood disintegrative disorder and formerly known as Heller's dementia if I remember correctly.
I wouldn't mind that because some behavioural symptoms of Rett's and even more so of (childhood) disintegrative disorder are very autism-like and are treated the same as in ASDs (and I am fairly sure that there have been people with forms of Rett's on WP, I don't know about CDD). But I can imagine that some autistic people who right now do not want to be associated with others on the spectrum who have co-morbid intellectual disabilities or more severe symptoms will get upset about knowing that people with Rett's and disintegrative disorder will officially be called "autistic".
What I would like to know is what those people with Rett's who can communicate their thoughts think and what their families think about them being called autistic?
I haven't found any so far either. I am trying to imagine what they'll translate social reciprocity disorder into... Störung der sozialen Reziprozität oder Störung der sozialen Gegenseitigkeit maybe? It makes it sound so odd.
Whoever would think of a form of autism if they hear someone having a Störung der sozialen Gegenseitigkeit? I do hope that people with AS will get sorted into autism after all but that's to be seen.
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So the ICD-11 renamed Asperger Syndrome ---> Social Reciprocity Disorder?
Maybe they are doing something similar to the DSM-5. People who meet criteria for autism, both social and rrb, will get autism (ICD-11) or ASD (DSM-5) diagnosis. People who don't meet enough rrb criteria will get SRD (ICD-11) or SCD (DSM-5) diagnosis. There seems to be a subgroup of people on the spectrum who have mostly social/communication traits of autism, without a lot of rrb. The difference between ICD-11 and DSM-5 is that SRD is still under the autism spectrum umbrella in ICD-11, but a separate disorder in DSM-5.
I don't think that ICD-11 should have (Asperger Syndrome) next to SRD. That will just confuse things. They should just call it SRD to cover the people who appear to be autistic based on social and communication problems, but don't have a lot of rrb. Some people with AS will be diagnosed with SRD, and some will be diagnosed with autism. A lot of people with PDD-NOS will be diagnosed with SRD. It seems like researchers don't know what to call something like social/communication traits of autism without rrbs of autism, or whether that should be considered autism or not.
I rather have "social reciprocity (and communication) disorder" which falls under autism spectrum than (just) problems with nonverbal learning. It is important to classify people such as I as having ASD/PDD, not just as having specific developmental disorder(s) (such as learning problem). Scholastic area is my large strength. I may have also concentraton deficit disorder/sluggs cognitive tempo (it is not so well known). But I had marked problems with nonverbal communication (such as very poor eye contact).
It is interesting what I would receive according to ICD-11. I have quite large obsessiveness, but I do not liked sameness so much (things such as choosing always the same way during going to school looks purposeless and boring to me, I do not worry about it, even preferred different ways). I might have relatively good imaginational skills (about imaginative play (but I might not use it so often) or lying), but problems with social reciprocity and communication and atypical, "stereotyped", internally narrow interests and some hyperactivity (now it may relatively often "transform" to quite wild stimming when I am alone). I did not have speech delay. Some of my symptoms were highly peculiar, such as magical, "kooky" obsessive-compulsive symptoms. NLD is far too weak term to describe my bizarrities. My disorder may be named as "some type of autism", but not classical, "Kanner-like" one.
I know this is old, but the OP wanted the thread to be updated when new information came out.
I've been looking at the beta website and at present Asperger Syndrome is listed as a narrower term for Autism Spectrum Disorder (note, not "disorders"), although not as a synonym. Sensory issues have been added to the description compared to the ICD 10.
Synonyms
kanner's syndrome *
Autistic disorder *
Infantile: autism *
Kanner syndrome *
Childhood autism
autistic
autistic disorder of childhood onset
kanner
Narrower Terms
Infantile: psychosis *
Asperger's disorder *
Pervasive developmental delay *
child psychosis nos
childhood psychosis
infantile psychotic
Asperger syndrome
The source also shows an impressive list of ways ASD may impact and individual in ways the DSM 5 doesn't detail.
Also, if you look at the parent group for ASD under neurodevelopmental disorders then you will also be able to see that Aspergers is gone. Rather than renaming it, it seems to have been replaced.
Neurodevelopmental disorders
Disorders of intellectual development
Developmental speech and language disorders
Autism spectrum disorder
Childhood disintegrative disorder
Developmental learning disorders
Developmental motor coordination disorder
Chronic developmental tic disorders
Attention deficit disorders
Stereotyped movement disorder
Neurodevelopmental syndrome due to prenatal alcohol exposure
Certain specified neurodevelopmental syndromes due to disorders or diseases
Furthermore, the description more closely matches that the DSM 5, including reference to deficits not becoming apparent until demands exceed capacity, for example later in life.
Autism Spectrum Disorder is characterized by persistent deficits in reciprocal social interaction and social communication, and by a range of restricted, repetitive, inflexible patterns of behaviour and interests and sensory sensitivities that may change in intensity, frequency and focus over the course of development. These deficits are usually a pervasive feature of the individual’s functioning in all settings, although they may vary in degree according to the social, educational, or other context. In many cases, development is abnormal in infancy, although this may only become evident in retrospect. Symptoms usually emerge during early childhood, but for some individuals do not become fully manifest until social demands exceed capacities.
I've been looking at the beta website and at present Asperger Syndrome is listed as a narrower term for Autism Spectrum Disorder (note, not "disorders"), although not as a synonym....
I like it!
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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)