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finallyFoundOutWhy
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14 May 2012, 5:10 pm

zeldazonk wrote:
D.         Symptoms together limit and impair everyday functioning..


I meet the rest of the criteria, but by age 46 now i have managed to cobble together a set of scripts and off-the-shelf behaviours that mimic NT behaviour well enough that my everyday functioning isn't impaired - i seem natural socially

my assessing psychologist said that he wouldn't have given me the diagnosis except the tests showed 5 standard deviations of something or other... he says that i should be highly impaired given my testing results. but i'm not, i learned how to avoid getting beat up for being "weird" or "stupid"

i kind of resent the suggestion that all my work over the years to be able to function in society would strip me of a diagnosis that i found quite comforting - you see, once i had the diagnosis i wasn't just a f**k-up any more. there was an actual issue and i could relax and breathe instead of believing i was just incompetent or a f**k-up like so many teachers, kids at school, and my family told me for all those years


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14 May 2012, 5:51 pm

I fit the new definition like a glove, meeting all areas under A and B. I would be considered a level 1 autistic under the DSM V.

I need help with stuff (mostly because of anxiety and sensory overload and executive dysfunction), I know how to do all activities of daily living, but I have trouble actually doing them (initiation problems with executive dysfunction). But I do not need help like a person on the low functioning side, not that there is anything wrong with needing different levels of help.


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14 May 2012, 6:21 pm

No.

Try not to fall down the stairs and die at Minds & Hearts. :P (Kinda makes you wonder why they have such there when the people they see are often pathologically clumsy.) They don't use the DSM, just FYI and all. They use Gillberg's Criteria for Asperger's (well, that's the list the lady had with me).



zeldazonk
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14 May 2012, 8:37 pm

finallyFoundOutWhy wrote:

i kind of resent the suggestion that all my work over the years to be able to function in society would strip me of a diagnosis that i found quite comforting - you see, once i had the diagnosis i wasn't just a f**k-up any more. there was an actual issue and i could relax and breathe instead of believing i was just incompetent or a f**k-up like so many teachers, kids at school, and my family told me for all those years


I can totally relate to that and, with a good diagnostician, I don't think you would lose your diagnosis because they understand that we can develop coping strategies & appear pretty NT. I am quite high functioning and was worried that the pych at Minds & Hearts wouldn't see past my NT persona but she saw through it right away.

I'm unsure about the non-verbal communication criterion.
I think my facial expression can be lacking. I remember thinking as a child that i didnt know how to smile & practicing in front of the mirror. I think I've taught myself to do reasonable eye contact but I'm not sure. My psych says I have learnt how to do it passably well. I got a high score on the eyes test though.

Best, Zel.



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14 May 2012, 11:15 pm

I am not too sure. I feel I would and wouldn't because I still need support. My husband has to support me to help me out and I struggle through life because things get too stressful for me. But I don't feel impaired everyday. If I need help in some areas such as when it comes to learning, does that count as requiring support? My AS dx got me the help I needed through school and it was the support I needed and the work accommodations. Plus it kept me from getting punished for my meltdowns and behavior for when I get frustrated.

I also have anxiety so that could be causing me the impairments than autism. I may just slip through the cracks again. I don't think SCD would explain everything and ASD does but if I won't be meeting the new criteria, I am in between again.

I will still say I have AS or ASD after the new criteria comes out just like I say I have ADD than ADHD and I am not even sure if I still meet the criteria but I have traits of it.



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15 May 2012, 12:33 am

Yes I would loose my diagnosis. Out of criteria A, I fit 2 criteria and 1 is probably questionable. Out of B, one is questionable. I think what fits me better out of the DSM 5 diagnosis is Social Communications Disorder. Heck, labels change all the time.



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15 May 2012, 6:15 am

I'm wondering how they will differentiate between what is now considered PDD-NOS and Social Communication Disorder. Anyone know?


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15 May 2012, 6:35 am

Aimless wrote:
I'm wondering how they will differentiate between what is now considered PDD-NOS and Social Communication Disorder. Anyone know?


Far as I know PDD-NOS is going bye bye.



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15 May 2012, 6:40 am

I'm a self-diagnosed AS and I doubt I'd qualify to be on the spectrum in 2013. May as well enjoy the experience of being autistic for 6 more months.



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15 May 2012, 6:55 am

Rascal77s wrote:
Aimless wrote:
I'm wondering how they will differentiate between what is now considered PDD-NOS and Social Communication Disorder. Anyone know?


Far as I know PDD-NOS is going bye bye.

Yet I've heard that PDD-NOS constitutes the largest portion of the diagnosed and they also say if you are diagnosable under the DSM-IV, then you wouldn't lose your diagnosis. This is my big problem. What exactly are they saying is the etiology of social communication disorder? Is it a personality disorder? Will they view it differently if the subject presents symptoms since infancy?


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15 May 2012, 7:23 am

I have an Asperger's diagnosis, so yes, I will lose that diagnosis. As far as whether I'd qualify under the new overly generic "ASD" criteria, I really don't know. I feel that, like most ASD stereotypes, it focuses too much on social problems and not enough on the other deficits. I am not horribly socially awkward. I can "fake" being social well enough to hold down a job and such. What interferes with my life is sensory issues and hatred of change and not being able to tolerate neurotypicals for too long. And I'm very special interest-oriented with my AS, as well. When I got my initial AS diagnosis, I didn't know if I truly fit the AS criteria, either. Same goes for the DSM-V criteria. It is broad and generalized and uses too many terms that have extremely ambiguous operational definitions.

In addition, why in the world are sensory issues under "repetitive behaviors"?! While the only DSM-V change I applaud is finally including sensory issues, it has NOTHING to do with the other criteria "B" examples. I fit all of criteria "B." No idea about criteria "A." So, again, what does the DSM-V say is wrong with me, when clearly, criteria "B" interferes with my daily functioning?


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15 May 2012, 9:04 am

zeldazonk wrote:
Just wondering if you feel you would be diagnosed with ASD using the criteria from the current proposal?
I'm not sure I would, mainly because of the requirement of meeting all three criteria in section A.
I'm attending an information session at Minds and Hearts (Tony Attwood) tomorrow night so I'll ask the question there.

 
Autism Spectrum Disorder
Must meet criteria A, B, C, and D:
 
A.    Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:
1.     Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction,
2.     Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures.
3.     Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and  in making friends  to an apparent absence of interest in people
B.    Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of  the following:
1.     Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases). 
2.     Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).
3.     Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
4.     Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).
C.    Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities)
D.         Symptoms together limit and impair everyday functioning.

Best, Zel.

Yay, finally a list!

I'm dx'ed with AS, so yes, I'll lose my current diagnosis, but going by that list I'll 'remain' autistic. I fit those criteria.


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15 May 2012, 9:35 am

I'd LOVE to lose my diagnosis. There doesn't seem to be anything anyone can do to help me, or anything anyone can teach me to help me help myself. They tell me how wonderful I am, how high-functioning I am, blah-blah-blah, s**t on a cracker.

And I understand that my struggles are relatively minor in the scheme of things.

I also understand that they're mine.

And that one of my struggles is the tendency to impose limitations on what I'm going to be allowed to do, what I'm going to be believed to be capable of, and how much people are going to bother to help me learn.

I hoped it would help. Shed some light, get me some specific training from someone who understands people like me.

But it's been nothing but a threat to the life I've built. Nothing but another knife that can be held to my throat when people want to manipulate me or desire to harm me from some ulterior motive or because I don't fit THEIR definition of "a good person."

I was "a bad person" or "a weak person" or "a stupid person" before. Now I'm all that, and "an incapable person who cannot _____________________ and should not be permitted to try (for her own good, really)" besides.

I was afraid this would happen when I sought diagnosis. I hoped I was wrong.

Autistic persons tend to be fatally naive.


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15 May 2012, 9:48 am

I think I would lose the autism diagnosis but my current psychologist has said that I wouldn't though. My brother was also just diagnosed and in a way I think he is more autistic than I am. Here are the criteria I meet/ don't meet:
I don't think I will meet A 1. I can initiate and hold a back and forth conversation. Not as a child though.
I do meet A 2 and 3. All my friends are not appropriate to developmental level. Most are my parent's age although one is a little younger than I am. No interest in developing a actual relationship for marriage though. Too paranoid about that for real reasons that I won't get into here. My eye contact ranges from not enough, just right, and intense staring into another person's eyes. Not consistent at all. My affect is the opposite to most people with an ASD. It is exaggerated. Not flat.
Criteria B I meet all 4 of them completely. Not a problem with that and even worse when I was a child. Of course I meet C because right after I was born there were abnormalities.
Yes, it limits my daily functioning. I also have severe sensory overload with sound. it literally HURTS my ears and have to wear earplugs in most loud places. The thing that is getting worse with age is actually the sensory overload and rocking back and forth. Also hand flapping and doing other weird things.



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15 May 2012, 10:23 am

Ravenclawgurl wrote:
i fit this criteria better than the current asperger's criteria


Me too, so I would likely still be diagnosed.



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15 May 2012, 11:56 am

I would not be considered "autistic" or "aspergers" under that DSM V. I may have a sensory processing disorder, but that is it. I am glad because I can avoid being put in services that are for people that are more impaired, when they do not apply to me. I can avoid social skills groups, which I do not need because the social skills issues (very mild) that I had have been gone for over 25 years (I am 33). I think they need to get rid of the "history" because many of us who had the correct therapies to where we no longer have symptoms should no longer have the label "autism" affecting our lives.
Basically, just like medicine can cure curable illness to where they are no longer considered "ill", the therapies could have helped one get rid of the issues of autism to where the person should no longer have that label. Even if someone has just the sensory issues, that should be downgraded and off the autism spectrum.
Labels are dangerous, especially when one could be placed in inappropriate services, services for issues that no longer have. That happened to me to where I was placed in an autism program, where I did not need any of the social skills or anything they offered. It had caused me severe depression. I had to fight out of them and was able to go into service that only looks for employment without the inappropriate programming. Today I am a college graduate who is looking for a job as a research assistant.
I am very grateful for the change. I wish they would have done this with the DSM-IV. I would have avoided such awful experiences being considered having a diagnosis that no longer applies to me.