how i feel whenever i hear that 'they' are working on a cure

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Joined: 9 May 2012
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22 May 2012, 4:06 am

"They" could test the "it" on themselves & their children for a generation or 2, then post the results on a neutral solar system. Don't be the reason someone isn't singing, is my advice.

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CaptainTrips222
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22 May 2012, 4:13 am

Diamorphine wrote:

CaptainTrips222 wrote:

Diamorphine wrote:

CaptainTrips222 wrote:

So how would a cure work? Rewire the neurology with a pill? We don't even know what causes autism. Don't worry so much- for better or for worse, they ain't gonna come up with a cure no time soon.

I don't there there will ever be a total, one time permanant cure like a vaccine. I'm talking about a drug that fixes most/all of the problems AS causes, similar to adderall fixes every last one of my ADHD symptoms.

But I don't think we can even treat it. It's pervasive, and has many symptoms. What aspect would get treated?

Well, ADHD is just the brains inability to produce enough dopamine, and adderall releases dopamine, so it's kind of a one pill cure all. With AS, since it works on more systems, they'd need a combination of drugs.

I guess we're going in circles with this. But like I said, they really don't know what it is. They don't know what causes it, so they wouldn't know how to treat it.

Diamorphine
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22 May 2012, 4:14 am

CaptainTrips222 wrote:

Diamorphine wrote:

CaptainTrips222 wrote:

Diamorphine wrote:

CaptainTrips222 wrote:

So how would a cure work? Rewire the neurology with a pill? We don't even know what causes autism. Don't worry so much- for better or for worse, they ain't gonna come up with a cure no time soon.

But I don't think we can even treat it. It's pervasive, and has many symptoms. What aspect would get treated?

I guess we're going in circles with this. But like I said, they really don't know what it is. They don't know what causes it, so they wouldn't know how to treat it.

They don't know what causes a lot of treatable diseases that are treatable. You don't need to know the cause to know the cure.

Moonhawk
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22 May 2012, 4:32 am

Since when is any form of ASD a disease :x? I don't remember seeing my own diagnose as a disease, its just a part of me.

Diamorphine
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22 May 2012, 4:44 am

Moonhawk wrote:

Since when is any form of ASD a disease

? I don't remember seeing my own diagnose as a disease, its just a part of me.

You don't need to think of it as a disease, some people with AS do like having it. But to many others, it is by definition a DISEASE. (abnormality in the body that decreases quality of life or shortens lifespan) (AS being the former)

glider18
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22 May 2012, 6:40 am

I believe if such a cure existed, then those who wanted to take it---fine. But for me, I would refuse it because I am happy with having Asperger's. Sure, I have challenges---like everyone else in this world. But autism has given me gifts and talents that I use on a daily basis. Except for my family, I don't like hanging around with people (I prefer my interests), so the social awkwardness aspect of autism does not bother me. I have fun with my interests.

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22 May 2012, 6:47 am

Diamorphine wrote:

Moonhawk wrote:

Since when is any form of ASD a disease

? I don't remember seeing my own diagnose as a disease, its just a part of me.

It's a matter of perspective. What defines quality of life? Different definitions exist, depending on whom you ask. Some people are miserable for whatever reason.

CockneyRebel
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22 May 2012, 3:58 pm

I feel the same way. We don't need a cure. We need acceptance. I don't wish to be cured. I'm proud of my AS and my quirky differences. I hope that there's never a cure for autism and AS. My biggest fear is that the cure would be forced on all of us, whether we want one or not.

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Ellingtonia
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22 May 2012, 11:24 pm

Diamorphine wrote:

Ellingtonia wrote:

Diamorphine wrote:

If they do invent a cure for AS, no one says you HAVE to get cured, similar to how a cancer patient could elect to not recieve chemo. I still support a cure being found for those who want to be cured.

An important difference between AS and cancer is that AS is usually diagnosed in childhood. Hypothetically, should parents be able to force a permanent cure on their children?

Depends how old the children are. 13+ definetly not. I do think, if all AS people were cured as babies, the vast majority of them would have had better qualities of life. Look at it like this, AS does a LOT more harm than good, and in my case of ADHD, a lot of harm and no good. Untreated, I was a D student in school and I only did the bare minimum to get by in life. If my parents gave me adderall/ritalin/similar as a child I could have gotten better grades, leading to going to a good college, to making a lot more money than I ever could untreated.

Whether or not you like having AS, you need to understand that most people don't and for 99% of people who get it, it significantly diminishes quality of life.

Sorry if I sounded hostile, but there was a little need to be when you're referring to scientists trying to improve the quality of life of millions as "they" like there's an organization out to defeat the great legion of people with autism.

I didn't even mention scientists, and I wouldn't characterise them like that at all.

Dp0p
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23 May 2012, 7:48 pm

i was gonna quote people but there are too many to quote so basically i dont like the guy who keeps calling it a disease I HAVE IT IT DOESNT LOWER MY QUALITY OF LIFE AND I ALONG WITH 3 OTHERS IN THIS POST DISAGREE WITH YOU! ALSO I DOUBT YOU HAVE AS OTHERWISE YOU WOULD HAVE SAID THAT YOU DISAGREED RATHER THEN SPEAKING FOR 'A MILLION' OTHERS WITH AS.
moving on i say let nature take its course4 dont cure it natural selection. we dont need a cure we need society to catter for us. if there was a cure we wouldnt have the nuke, electricity, the radio, computers, we wouldnt be able to read junk DNA and our gtreatestr inventions of this century wouldnt have happened WE ARE THE SCIENTISTS WE ARE THE INVENTORS MOST NT'S ARENT CAPABLE OF OUR LEVEL OF THOUGHT!. i love my brain what i want is a cure for ADD and asthma. OR CANCER WORK ON CURING CANCER NOT CURING US!.
the way the medication would work would be intesting. maybe a simple anti anxiety tablet i dont know but i must leave now. let nature take its course dont fight it work with it.
ive got more to say but alas i am out of time fare thee well strangers

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23 May 2012, 7:55 pm

Dp0p wrote:

Oh jeez, "normal" people are inferior

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friedmacguffins
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23 May 2012, 8:46 pm

No - different, strong points.

gs0
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23 May 2012, 9:30 pm

Diamorphine wrote:

Please don't compare Asperger's to cancer. That comparison is offensive and far from justified.

Diamorphine wrote:

There are many people who don't view Asperger's as a disease, hence the inconsistencies in the medical realm between calling it a "disorder" or a "syndrome." Whether it impacts on your quality of life or not is down to personal attitude.

I highly doubt a "cure" for AS will ever be found. The best we can possibly expect is medication to suppress the so-called undesirable aspects of the condition. If you want to bury facets of yourself and walk around with a mask on for the rest of your life... please, be my guest! It won't get you any further in life though; people will still gravitate away from you until you learn to adapt a more positive attitude towards yourself, and no, they don't have medication to do that for you.

NeueZiel
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23 May 2012, 9:34 pm

If they make a cure I want to be reimbursed for all those years of my life that kinda sucked. At this point I don't even see a point in a cure for myself, if I integrated in I'd still be at a huge disadvantage, but then again maybe a cure would just make me not care.

OliveOilMom
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23 May 2012, 10:00 pm

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I'm giving it another shot. We will see.
My forum is still there and everyone is welcome to come join as well. There is a private women only subforum there if anyone is interested. Also, there is no CAPTCHA. ;-)

The link to the forum is http://www.rightplanet.proboards.com

Last edited by OliveOilMom on 25 May 2012, 3:58 pm, edited 1 time in total.

TalusJumper
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23 May 2012, 11:36 pm

Dp0p wrote:

how i feel whenever i hear that 'they' are working on a cure

WE DONT NEED A CURE!

I agree. They can start working on a cure AFTER they start supporting families with mid to lower functioning ASD. I would much rather see the millions of dollars spent in support services rather than chasing a cure (look into the payroll of Autism Speaks). My son is 20, has mid functioning ASD and has never been to a therapist or had any support outside of his school ISP due to the expense.

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