Gluten, aspritame, food coloring and chemicals

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Callista
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12 Sep 2012, 8:40 am

Hey, I never said it was "all in the mind". I just said that it could be, and you had to make sure it wasn't before you restricted your diet any further. Even when something originates from a placebo effect, it can still have very real physical consequences. With so many people recommending cutting out this thing or the other thing, I feel like I have to offer the balancing perspective--that while it can be dangerous to eat something you can't tolerate, it can be equally dangerous to restrict your diet too much, spend too much time obsessing over it, and end up with malnutrition.

You're right that I had some experiences with this in the past. My mom's obsession extended to me, and I'm pretty sure my growth wasn't as good as it could have been due to that. But my own past doesn't make my opinion invalid. I feel it gives me relevant insight.

I'm not saying that you should never exclude from your diet things that don't agree with you. In fact, that is one of the most straightforward treatments for allergies and digestive intolerance. What I am saying is that this treatment is not without its dangers and side effects, and that you must be careful to balance the risks and the benefits, just as you would when considering any other form of medical treatment.


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Surfman
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12 Sep 2012, 4:10 pm

Are you studying law?



smudge
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12 Sep 2012, 4:18 pm

Visha9000 wrote:
Does anybody else have problems with Gluten, aspritame, food coloring and other chemicals/sents? I find that they ether change my perseption of reality,my personality and or mental state.
Does anybody else have these things hapen to them due to the afore mensioned items?


YES. Sodium benzoate numbs my mind, and I'm beginning to suspect wheat/gluten does too. Pepsi and anything like Coke numb my mind too. Flavourings also do (which Coke and Pepsi contain as well as even "organic" products). I haven't noticed any difference with colouring, except Wotsits used to make me very angry when I was a kid. That could be anything.

I'm allergic to a load of preservatives, including an unknown one that turns my face red and gives me very bad skin for a few weeks afterwards.



Kaelynn
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12 Sep 2012, 8:14 pm

I am gluten free and dairy free. I hate it! Tasteless food...



Mummy_of_Peanut
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13 Sep 2012, 3:41 am

smudge wrote:
YES. Sodium benzoate numbs my mind, and I'm beginning to suspect wheat/gluten does too. Pepsi and anything like Coke numb my mind too. Flavourings also do (which Coke and Pepsi contain as well as even "organic" products). I haven't noticed any difference with colouring, except Wotsits used to make me very angry when I was a kid. That could be anything.

I'm allergic to a load of preservatives, including an unknown one that turns my face red and gives me very bad skin for a few weeks afterwards.
Smudge, If you're allergic to sodium benzoate, you're probably allergic to all these too (the E number is a European standard for food additives):

E210 or Benzoic acid
E211 or Sodium benzoate
E212 or Potassium benzoate
E213 or Calcium benzoate
E214 or Ethyl 4-hydroxybenzoate or Ethyl para-hydroxybenzoate
E215 or Ethyl 4-hydroxybenzoate, sodium salt or sodium ethyl para-hydroxy-benzoate
E216 or Propyl 4-hydroxybenzoate or Propyl para-hydroxybenzoate
E217 or Propyl 4-hydroxybenzoate, sodium salt or sodium propyl parahydroxybenzoate
E218 or Methyl 4-hydroxybenzoate or Methyl para-hydroxybenzoate
E219 or Methyl 4-hydroxybenzoate, sodium salt or Sodium methyl parahydroxybenzoate

Are you allergic to parabens too?

You might also have an issue with cinnamon. I wasn't specifically told to avoid cinnamon, but I know of other people with a benzoic acid derivative allergy who have been advised to avoid it too.

I have a problem with some unknown substance too, which makes my face and neck red. It might be cinnamon, as I haven't been trying to avoid it and not actually checking ingredients list for it.

BTW I'm OK with Pepsi and Coke, but not the diet varieties. Last time I accidentally had Diet Coke (someone ordered on behalf of everyone and if anyone had asked for Coke, they just asked for Diet Coke), I felt like I had flu for 3 days.


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smudge
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13 Sep 2012, 12:44 pm

Mummy_of_Peanut wrote:
smudge wrote:
YES. Sodium benzoate numbs my mind, and I'm beginning to suspect wheat/gluten does too. Pepsi and anything like Coke numb my mind too. Flavourings also do (which Coke and Pepsi contain as well as even "organic" products). I haven't noticed any difference with colouring, except Wotsits used to make me very angry when I was a kid. That could be anything.

I'm allergic to a load of preservatives, including an unknown one that turns my face red and gives me very bad skin for a few weeks afterwards.
Smudge, If you're allergic to sodium benzoate, you're probably allergic to all these too (the E number is a European standard for food additives):

E210 or Benzoic acid
E211 or Sodium benzoate
E212 or Potassium benzoate
E213 or Calcium benzoate
E214 or Ethyl 4-hydroxybenzoate or Ethyl para-hydroxybenzoate
E215 or Ethyl 4-hydroxybenzoate, sodium salt or sodium ethyl para-hydroxy-benzoate
E216 or Propyl 4-hydroxybenzoate or Propyl para-hydroxybenzoate
E217 or Propyl 4-hydroxybenzoate, sodium salt or sodium propyl parahydroxybenzoate
E218 or Methyl 4-hydroxybenzoate or Methyl para-hydroxybenzoate
E219 or Methyl 4-hydroxybenzoate, sodium salt or Sodium methyl parahydroxybenzoate

Are you allergic to parabens too?

You might also have an issue with cinnamon. I wasn't specifically told to avoid cinnamon, but I know of other people with a benzoic acid derivative allergy who have been advised to avoid it too.

I have a problem with some unknown substance too, which makes my face and neck red. It might be cinnamon, as I haven't been trying to avoid it and not actually checking ingredients list for it.

BTW I'm OK with Pepsi and Coke, but not the diet varieties. Last time I accidentally had Diet Coke (someone ordered on behalf of everyone and if anyone had asked for Coke, they just asked for Diet Coke), I felt like I had flu for 3 days.


Thank you very much for the list. I also can't have Calcium Propionate, found in bread. And, there's a preservative they use in Pizza Express that keeps turning my face red, and gives me badly dry, sensitive, itchy skin for a few weeks afterwards. Do you have any idea what it might be?

As for parabens, I don't think so. I avoid them anyway because of that breast cancer scare.



Mummy_of_Peanut
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13 Sep 2012, 3:45 pm

smudge wrote:
Thank you very much for the list. I also can't have Calcium Propionate, found in bread. And, there's a preservative they use in Pizza Express that keeps turning my face red, and gives me badly dry, sensitive, itchy skin for a few weeks afterwards. Do you have any idea what it might be?

As for parabens, I don't think so. I avoid them anyway because of that breast cancer scare.
I wonder what the mystery substance can be. Come to think of it, the last time I had a red neck and face, I had just finished eating dinner at my parents' house. We had pizza, from a supermarket. It might be the same thing that's causing your skin problem. My Mum bought 2 and put the other in her freezer. So, I'll check the ingredients list next time I'm over.

The reason I mentioned parabens is because they are chemically related to the food preservatives, i.e. they are derivatives of benzoic acid. When I had my allergy testing, they were grouped alongside the food preservatives. I know a few people with the same allergy and they have to avoid parabens too. The only difficulty I have in avoiding them is when I wash my hands in a public toilet, so I have to carry a bottle of soap with me.


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smudge
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13 Sep 2012, 4:38 pm

Mummy_of_Peanut wrote:
smudge wrote:
Thank you very much for the list. I also can't have Calcium Propionate, found in bread. And, there's a preservative they use in Pizza Express that keeps turning my face red, and gives me badly dry, sensitive, itchy skin for a few weeks afterwards. Do you have any idea what it might be?

As for parabens, I don't think so. I avoid them anyway because of that breast cancer scare.
I wonder what the mystery substance can be. Come to think of it, the last time I had a red neck and face, I had just finished eating dinner at my parents' house. We had pizza, from a supermarket. It might be the same thing that's causing your skin problem. My Mum bought 2 and put the other in her freezer. So, I'll check the ingredients list next time I'm over.

The reason I mentioned parabens is because they are chemically related to the food preservatives, i.e. they are derivatives of benzoic acid. When I had my allergy testing, they were grouped alongside the food preservatives. I know a few people with the same allergy and they have to avoid parabens too. The only difficulty I have in avoiding them is when I wash my hands in a public toilet, so I have to carry a bottle of soap with me.


Interesting. Goodfellows Friday Night pizza gave me a red face. There was one really odd ingredient in it called, "tomato crush". Not crushed tomatos - "tomato crush" has ingredients of its own. I looked it up on Wiki once, only to discover that I can no longer find it.

It would be great if you would tell me the ingredients of your frozen pizza. Thank you again! :D



Surfman
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13 Sep 2012, 4:47 pm

I'm electro sensitive too, fluorescent lighting, wifi, talking on a cell phone for more than 3-4 minutes

Maybe its time for us poor souls to get a home in the country with a garden and chickens....

The idea of a brand new home with new paint and new carpets, a new car with the new car smell, just gives me the willies.

I ride my scooter with a facemask on [it has 2 carbon filters] or drive the car only with windows up and air con on.

Sensitivity has its positives too I guess. If a wolf or bear was stalking me, I would probably have a better chance of survival.....

just as well I live in the city :?



musicforanna
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14 Sep 2012, 8:11 pm

Surfman wrote:
Callista wrote:
I have no problem with any of those substances. Well, except for the utterly vague "chemicals". In that case it depends on which chemical. I'm sure I have a pretty severe problem with arsenic, for example. :lol:

My mom is kind of a paranoid health nut--"chemicals" is equivalent to "dangerous" for her. She doesn't understand that "chemical" could refer to sugar or water or vitamin A or any number of things. You can literally make her sick by telling her she's just eaten something with a "chemical" in it. She'll say she's getting tired, stressed out, her head aches, her arms are sore... I'm not saying she's faking; what she feels is probably very real. It's just that she feels it because she expects to feel it.

Luckily, it's relatively easy to stop your brain from tricking you into thinking you are sensitive to something that actually doesn't bother you. Just get somebody else to prepare your food for a few days, some days with the ingredient in it, other days not, and get the taste and texture as identical as possible. If you can't tell when you've been eating whatever it is, then you're probably not sensitive.

And yet again I need to caution you against limiting your diet too much. Autistic people often have problems with restricted diets, and it is not unknown for us to suffer from malnutrition because of it. (And that's not just true of you skinny people, either. It's possible to be overweight precisely because your body is ramping up your appetite in hopes that you'll ingest some of whatever substance you're missing.) If you remove too much, reduce the variety too much, you'll end up with nutritional deficiency diseases, or even a form of eating disorder called orthorexia (not an official diagnosis, but a known phenomenon currently categorized under ED-NOS, in which people become too obsessed over eating exactly the right way, and often end up with health problems as a result). I know we have obsessive personalities, and I think we have to watch out for the tendency to let a natural, relaxing special interest turn into a fearful, harmful obsession.


I understand from this and your previous posts on these matters, that you have a personal crusade in this area due to your mothers dietary influences as you grew up.

But, Its just plain wrong to dismiss food intolerance as 'all in the mind'.

Your 'advice' in this area... may actually be harmful to many people, and I suggest you modify your crusade for the sake of others, here and elsewhere.

I accidentally bought cranberry juice with sucralose, made me feel funny for days

sucralose, aka crappy'ol splenda.

It never ceases to amaze me how many NEW things I'm seeing every day where they slip splenda into it without any other mention of it on the label except the "sucralose" on the ingredient list.



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14 Sep 2012, 8:55 pm

Kaelynn wrote:
I am gluten free and dairy free. I hate it! Tasteless food...


"Gluten-Free Girl (link)" . I highly recommend her book. It really helped me to like food again after I got diagnosed. It's sort of an autobiography, but it also includes recipes, which are also found on her site. I found the book very enjoyable.



Teredia
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25 Sep 2012, 6:21 am

Food colouring: Carmine/Cotcheniel (sp) AKA Red Food Dye:
I didnt think much of it as an allegery, just something that happend to me after i would have Red cordial/or red powerade. Instead of going hyper, I would go Hypo (under) become very dorwsie, and even develop a light headache, depending on how much i have had.
As I said i didnt think much of it untill my best aspie friend was telling me about his Red/Yellow food dye issues, and the same thing happends to him.
I am much more allert since ive stopped consuming thinsg with Red dyes in them.



musicforanna
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25 Sep 2012, 7:58 am

Teredia wrote:
Food colouring: Carmine/Cotcheniel (sp) AKA Red Food Dye:
I didnt think much of it as an allegery, just something that happend to me after i would have Red cordial/or red powerade. Instead of going hyper, I would go Hypo (under) become very dorwsie, and even develop a light headache, depending on how much i have had.
As I said i didnt think much of it untill my best aspie friend was telling me about his Red/Yellow food dye issues, and the same thing happends to him.
I am much more allert since ive stopped consuming thinsg with Red dyes in them.

the OTHER red food dye, aka the one with nasty crushed beetles, amiright?



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25 Sep 2012, 9:30 am

I figured out in college I'm allergic to sodium phosphates, a preservative in a lot of prepared foods, and oddly enough in toothpastes and mouthwashes. If I don't get a high dose the reaction to a little bit on accident isn't so bad (and benedryl helps) but if I don't notice it in toothpaste I'll get blisters usually. I seem to be fine with nitrates, another preservative used in foods in a similar way. People sometimes seem to think I can't have any preservatives when it's just combinations of this one. But it is simpler to buy preservative free lunchmeats and stuff to avoid it.
I used to have a terrible blinding migraine reaction to low number red dyes (#4,5,6) but they seem to have been taken off the US market years ago. I don't have the same problem with red 40, or 44, which is what is used now.
I do have a problem with sugar once in awhile, but I have diabetics on both sides of the family. Asparatame/equal definitely makes me more migraine prone. Saccarin's ok. MSG is another additive I avoid for the same reason, but I'm not obsessive about avoiding it when I eat out. However most of the things I choose probably don't have it. I don't keep anything with MSG in it around the house. Both MSG and asparatame make your nerves fire faster and having migraines that border on seizures I don't need that sort of thing in my food. They are also said to make pain more intense too, just like MSG doesn't have a flavor itself but it intensifies other flavors.

(edited here) I apparently set myself up this past week to realize that I am not a big bread and pasta eater because I may have a gluten-mood issue, but not a gluten allergy. I had thought it was casein (milk) protein causing the problem but I did something atypical and when I realized what I'd done I knew I'd done it on purpose subconsciously for some reason. I don't miss details like that on accident, ever. I ate pizza, and then I got all the gluten out of my system...WOW, what a difference. And I thought I didn't have a gluten problem because I'm eating cereal with no issues...but I checked and it's *corn* cereal...no gluten! I've been sorta avoiding bread and pasta and most things gluten for a long time and it never occurred to me (consciously) that it might've been because I didn't like the way they were affecting me emotionally. So now I get to try this theory out and see how it works. The good news is I drank my vitamin/protein mix in milk last night and it didn't cause problems. So I might have been mistaken about the source of those problems all along.

Callista, you have a good point with the diet restrictions causing their own problems! I've realized lately that I haven't been doing it on purpose, and recently it's not so much through food avoidance but lack of appetite, but I haven't been eating right...enough to steadily lose weight. The lack of proper nutrition is affecting how I think and feel. Part of the problem was taking not 1 but 2 meds that wreck my appetite. 1 started causing problems in multiple areas so it had to go, and I'm just starting to get a little bit of appetite back. I almost need to set a timer to remind myself to eat, and I've studied nutrition enough that eating the right things shouldn't be a problem if I would just do it.
A multivitamin is also on the agenda, because I realize no matter how hard I try I'm stuck on 1 medication that suppresses my appetite and I have sensory issues with some foods, so I need something to fill in the gaps I know are going to be there.



Last edited by phyrehawke on 25 Sep 2012, 11:18 am, edited 1 time in total.

forkful_of_soup
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25 Sep 2012, 9:34 am

I get headaches from aspartame, and I'm lactose intolerant. Other than that I have no food chemical sensitivities as far as I'm aware.


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09 Nov 2012, 4:50 am

I am electro sensitive which I see as part of my general sensitivity ( I see sensitivity as my central issue, as described in intense world theory ).