Five Things You Would Want NTs To Know

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DrowningMedusa
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16 Dec 2006, 12:25 pm

SteveK wrote:
1. The social problems that gave it its name. I think people with AS, and many HFA people see this not so much as a problem or disability, but a difference.
2. Some physical quirks. Again, for the most part, they are differences.
3. Physical disabilities. I think most would be happy curing this. They are not necessarily autistic anyway.
4. Mental retardation. I think most would want to cure this. They are ALSO not necessarily autistic. HECK, let's just try to cure mental retardation as a whole! Improved delivery regulations, and prenatal care can probably go a LONG way towards this! Failure to do so means LOTS of legal problems coming down the pike. The flood gates are ALREADY starting to open.(Primarily because of palsies, but palsies ARE a kind of mental retardation. They are caused by destruction of part of the motor centers of the brain.)

(...)BTW I hope your son starts living up to any expectations you ever hoped to have. It IS possible. One person here told me about how he was LFA, not very responsive, etc.... and today is very HFA! So he started out from a point that was probably worse than your son! Everyone is different, but you never know. The more normal you treat your son, and the more options you give him to improve, the more likely he is to actually improve.


Some very good points here, couldn't have said it better...

Phil:

This thread got me curious and I just watched a video of you interacting with your son Jake on YouTube.
He's a really cute kid, I love the way he says, "yeeeup!"... :)

He reminds me of my cousin a bit when he was that age, his mannerisms, except he was less high functioning, in the sense that he is pretty severe ADHD as well.
And the driving thing, although I am much more high functioning HFA and show only a bit of ADHD I was very obsessed with my dad letting me sit on his lap and steer his red dodge Ram! I used to love that he would indulge me in my love affair with it... My cousin was also obsessed with cars.

I can understand why you wouldn't want to change him. :)



Tequila
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16 Dec 2006, 1:33 pm

philcommander wrote:
snip


If you really are prepared to look past our differences and faults you'll find many potential allies in us - not dissimilar to how many people with Asperger's Syndrome form friendships with gays. Taking the piss out of people is much easier than actually beginning to engage with them. Criticism is healthy and democratic - it shows up things we may have missed. The main thing is that we have to talk to one another. It is the only way.

You did wrong. You can make amends. After that, it's up to you. Talking, understanding and maybe even some kind of friendship is much better and healthier for both our communities than hatred, hostility and bigotry.

I look forward to you eventually seeing sense and coming onboard, philcommander. :)



solid
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28 Dec 2006, 11:13 pm

with what philcomanders saying i don't believe it should insult anyone whatsoever becuase of corse instead of curing autism he just wants to get rid of the bad elements which will make his sons life much more easier like social skills and with parents being like this, including my mum (go mum lol) makes us able to communicate with the world easier and no offense but i believe this is the reason u hate nt's so much becuase they can't understand your needs as you express only in a way which people close to you know. of corse social skills and indipendance skills are needed to beable to cope in life and that really is the reasion your not coping. I only get on with a very small number of aspies and of corse they are the ones who have the same social skills ability as me and have the same difficulties as me, this is one of the reasons why i hardly post here because of corse i believe that you guys have more complex problems than me becuase you haven't been given the training which you need to excel in life which should have been implimented. If any of you are insulted by this then i'm sorry but it isn't meant to be offensive, just informative and by the way if u r wondering why i speak in shorthand form, it is becuase its the kind of way people from my generation do and of corse like all of you, i want to fit in and at the moment i am which i am glad for and thats y i wonder y u have problems with nt's when most are pretty caring its just the certain few who of corse would be classed as bullies which of corse the world will always have and remember they don't just pick on you so don't get yourself down about it. opps i've gone a bit off topic lol. btw youtube rulez :!:


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walk-in-the-rain
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28 Dec 2006, 11:53 pm

I have watched some of christschools stuff - I saw there was something going on between you and christschool but figured it was probably the same old, same old between ND/curebie.

It can be confusing when you are a parent - and even confusing when you are a parent who is on the autism spectrum also because you know the difficulties you encountered as a kid. One of the things that I find so very disappointing among parent groups is the condescending attitude towards those who are on the spectrum as if they have nothing of value to say or any insights to offer. I have sensory issues and told one parent (very nicely) that a different approach might work with her son and she immediately said that would only teach him to be avoidant, ect. A "knowledgeable" therapist on the group agreed with me - so then the advice was right (lol). Another parent said he does not care what anyone who is autistic thinks because they are not the ones making the desicions in society. Simply amazing really if you think about it - on one hand he is insisting that "society" treat his child equally, yet he doesn't think valuing what those on the spectrum have to say is important. Stuff like that makes me wonder who really has the issues here - those on the spectrum or those who claim to be oh-so-NT.



philcommander
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29 Dec 2006, 3:06 am

i agree that parents of children with autism are very dismissive of autistic individuals themselves. its a sort of denial. we dont want to think about our children growing up any other way than NT and when we confront individuals with autism we see them as the enemy or the slap in the face that this may be our childs future...this needs to change. but what a catch 22. are we to embrace individuals as equals while at the same time trying to make sure our children dont turn out like them? i think there needs to be an attitude adjustment on both sides...we need to find our common ground. but the truth is i dont know if we can. either side. i think that each side has such a wide variety of opinion that neither side will ever be able to fully satisfy the other side. it sucks. i wish i knew the answer. i dont. but whatever the answer is, it starts with respect. thats what i am working on.
and yes, even when i told parents in the past that they should look into this therapy or another therapy they would blow me off because i wasnt an expert or specialist...then i do videos on youtube and all of a sudden parents quickly write down whatever i say because if i can upload a video i obviously am some sort of expert whos opinion is very valuable!! ! lol...what a joke. im not an expert and never have claimed to be. people are funny. theres a saying that the quickest way to become an expert in something is to write a book. it means that before you write it you are just someone doing research, but once written you are now an expert!! !! lol
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philcommander
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29 Dec 2006, 3:06 am

i agree that parents of children with autism are very dismissive of autistic individuals themselves. its a sort of denial. we dont want to think about our children growing up any other way than NT and when we confront individuals with autism we see them as the enemy or the slap in the face that this may be our childs future...this needs to change. but what a catch 22. are we to embrace individuals as equals while at the same time trying to make sure our children dont turn out like them? i think there needs to be an attitude adjustment on both sides...we need to find our common ground. but the truth is i dont know if we can. either side. i think that each side has such a wide variety of opinion that neither side will ever be able to fully satisfy the other side. it sucks. i wish i knew the answer. i dont. but whatever the answer is, it starts with respect. thats what i am working on.
and yes, even when i told parents in the past that they should look into this therapy or another therapy they would blow me off because i wasnt an expert or specialist...then i do videos on youtube and all of a sudden parents quickly write down whatever i say because if i can upload a video i obviously am some sort of expert whos opinion is very valuable!! ! lol...what a joke. im not an expert and never have claimed to be. people are funny. theres a saying that the quickest way to become an expert in something is to write a book. it means that before you write it you are just someone doing research, but once written you are now an expert!! !! lol
phil



philcommander
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29 Dec 2006, 3:07 am



CockneyRebel
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29 Dec 2006, 4:34 am

1. I'm very Hippie-like
2. I have my fair share of social problems
3. The reason that I don't dress like most females my age, is because I don't like tight clothing
4. I have two main obsessions that have to do with transportation and the entire Decade of the 1960s, as I am very Hippie-like, I may need a gentle nudge in the right direction, if I do get carried away.
5. Despite the fact that I have some sort of Autism, I'm average or above in Intelligence and I live a very independent life. Don't get me wrong. I am willing to seek help where it's due. And no, I don't work. Hippies are natuaraly Work Shy.


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JulieArticuno
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29 Dec 2006, 5:45 am

Philcommander: 5 things I'sd like NT's to know?

1) Please understand that I can be very literal and can be confused by vagueness. Please say what you mean. Don't beat around the bush or hint, because I just won't get it.

2) if in doubt, ASK. If someone wanted to know how my AS affects me, in specific situiations, and asked, I would answer honestly.

3) Remember-body language and indirectness lust don'yt register. If I'm boring you, or
have said something you find offensive, please politely TELL me. Don't just go off and then start avoiding me-this seeming being-ignored-for-no-reason HURTS!

4)Do not expect me to be somebody I'm not, and don't try to change me into something i'm not. the end result is we'll have a huge argument and both end up feeling like crap.

5) I am also very loyal. Be loyal to me and 'll be loyal to you. Betray that loyalty and trust at your own risk-I may ask you to explain yourself at a later date I'm not the sort of person who will blow you off without giving you a chance to explain, but by God it had better be good.

And one more:

6) "Different" doesn't mean "Bad." I din;t have to like what you like or be seen as "sad" for not having your interests or priorities. I'm me. If you don't like that, tough. That's your problem, not mine. Accept me and I accept you


SteveK wrote:

4. Mental retardation. I think most would want to cure this. They are ALSO not necessarily autistic. HECK, let's just try to cure mental retardation as a whole! Improved delivery regulations, and prenatal care can probably go a LONG way towards this! Failure to do so means LOTS of legal problems coming down the pike. The flood gates are ALREADY starting to open.(Primarily because of palsies, but palsies ARE a kind of mental retardation. They are caused by destruction of part of the motor centers of the brain.)
Steve


Steve,

I have a friend with Cerebral Palsy. I take offense at the term "mental retardation" to describe her problem with brain/body communication. She is one of the most inelligent-and most understanding-people I knew. When I first heard of Asperger's, she went straight to a friend of hers I did not know about who has Asperger's, and got her to get an "Asperger's East Anglia" infopack and sent it to me to help with my search. I diodn't ask for this, she offered and went out of her way for me out if the goodness of her heart. Her philosophy is "I treat you the way you treat me." People treat her like crap, she does likewise. People do things for her, she does things for them, and we are very good friends. We went away to a sci-fi convebtion in October. At the food counter NONE of the staff there even OFFERED to help. If I had not been there, I do not know how she would have got ANY food!

If you could explain your above assertion that palsies are a form of retardation, i would be interested in hearing your theories/reasonings, as I do not wish to takew offence if I'm simoply misunderstanding how tou've put things.

JulieArticuno