PDD-NOS?

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29 Mar 2013, 2:18 am

I wonder if a 1 thru 10 system would work?

With 1 being lowest functioning and 10 being highest functioning...

I'd say I'm about a 6.

cyberdad
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29 Mar 2013, 3:58 am

briankelley wrote:

I wonder if a 1 thru 10 system would work?

With 1 being lowest functioning and 10 being highest functioning...

I'd say I'm about a 6.

There are three severity levels for ASD each of the two sections: i) social communication and ii) restricted interests and repititive behaviors

Level 3, requiring very substantial support, Level 2, requiring substantial support, and Level 1, requiring support. Under each section and level, are provided explanations and examples, to assist the application and provide some consistency.

Most aspies would fall under level 1 for sections i) and ii)

Makes thing simpler...leaves more allocated support for those on severe end of the ASD scale who really need financial support

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29 Mar 2013, 4:29 am

PDD-NOS is currently the most frequent diagnosis of autistic spectrum disorder. One of the biggest upsides of DSM-5 is that NOS will no longer be listed separately, bringing everyone within the ASD diagnosis.

The latest CDC prevalence report lists the following diagnostic breakdown (in Table 3):

Autistic - 1,158 (44%)
PDD-NOS - 1,230 (47%)
Asperger - 239 (9%)
TOTAL - 2,627

(From "Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008 Surveillance Summaries. March 30, 2012 / 61(SS03);1-19 http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6103a1.htm)

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29 Mar 2013, 3:02 pm

StuartN wrote:

All right. I feel something is wrong, as with only 9% of the spectrum most books, the media, the internet, this very forum, along with many other resources focus only on Asperger's (or autism). I was (and still am) so obsessed with all this and my feeling of being left out with an unknown diagnosis (PDD-NOS) in an autistic world where seemingly the large majority is AS.

DVCal
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29 Mar 2013, 3:05 pm

OJani wrote:

StuartN wrote:

The reason is the vast majority of people with PDD-NOS are low functioning and wouldn't be able to participate in places like this, that is why you do not notice them much. The reason AS seems so prominent is because we are the ones who are most often able to communicate, and express our selves so others can understand. Most people with Classical Autism and PDD-NOS just sit around unable to communicate with no little cognitive thinking going on.

Anyone who is able to communicate on a place like wrong planet is not low functioning, maybe mild functioning, but not low. So low functioning people are left out.

cyberdad
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29 Mar 2013, 5:46 pm

cyberdad wrote:

As of January 1 2013 PDD-NOS and Aspergers are a redundant diagnosis. It's like a black person discussing what kinds of racist names their ancestors used to be called when walking down the street.

Sorry correction...1 May 2013...you guys can keep calling yourselves PDD-NOS

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30 Mar 2013, 5:41 pm

OJani wrote:

Yes, it is a problem, and maybe an imbalance that DSM-5 will even out. Surveys have always shown that PDD-NOS is the most common diagnosis, yet the literature divides between "classic" autism (or some similar term, depending on your locality) and Asperger syndrome, as if these two are approximately equally distributed.

I imagine that more autobbiographical accounts have been published by people identifying themselves as having an Asperger syndrome diagnosis than any other diagnosis, but I have not counted them.

Google NGrams and feature films show amazing growth in the use of the term Asperger since about 1993 - Asperger runs at about half the frequency of autism in British English: http://books.google.com/ngrams/graph?co ... g=1&share=

I made a graph of feature films, and it is broadly similar. I was counting TV references and there were more Asperger references than autism references, but my own TV viewing is not an even sample.

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30 Mar 2013, 5:54 pm

My diagnostic report says "there is enough data and confirmatory biographical details to support a diagnosis of Asperger's Disorder for [Tyri0n]" and then later it says "[Tyri0n] does not currently exhibit enough of the behavioral characteristics to qualify for a current diagnosis of Asperger's Disorder or High-Functioning Autism; however, given his history of isolation in childhood, history of language delay, and persistent social difficulties, a diagnosis of PDD-NOS is warranted."

So I guess I'm not sure what I have. Sounds like maybe both? I usually identify as Asperger's when I got to meetup groups and as PDD-NOS when seeking medical treatment.

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30 Mar 2013, 6:01 pm

DVCal wrote:

Being labeled as low functioning does not actually mean someone is unable to participate in places like this. My understanding is that many actually do participate online, but this forum is not particularly welcoming.

Check out the documentary "Wretches and Jabberers" for some examples.

Quote:

Anyone who is able to communicate on a place like wrong planet is not low functioning, maybe mild functioning, but not low. So low functioning people are left out.

This is a stereotype, and not true. It's a "no true Scotsman" fallacy.

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30 Mar 2013, 6:04 pm

cyberdad wrote:

As of January 1 2013 PDD-NOS and Aspergers are a redundant diagnosis. It's like a black person discussing what kinds of racist names their ancestors used to be called when walking down the street.

Sorry correction...1 May 2013...you guys can keep calling yourselves PDD-NOS

Per your example, it's nothing like that at all, and there are many valid reasons to discuss such things after they're no longer in current usage.

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30 Mar 2013, 6:20 pm

Oh, you know, please keep in mind that AS, infantile autism (autistic disorder) and atypical autism (which isn't identical in use to PDD-NOS but quite close) will still be in use for at least another two years. Maybe longer than that, depending on what the final draft of the ICD will look like eventually.

On an international forum such as this one, there'll be people whose diagnosis will have stayed the same (the name and defintion will still be valid). That might get confusing but I hope it's not going to turn into an issue.

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30 Mar 2013, 7:08 pm

http://www.ncbi.nlm.nih.gov/pubmed/14726723

Quote:

Specifying PDD-NOS: a comparison of PDD-NOS, Asperger syndrome, and autism.

METHOD:

Two hundred sixteen children with autism, 33 with AS, and 21 with PDD-NOS were compared on measures of level of functioning (communication, daily living and social skills, IQ, and age of acquisition of language) and on various symptoms of autism (impaired communication and reciprocal social interaction and a preference for repetitive and stereotyped activities).
RESULTS:

In terms of level of functioning measures, the PDD-NOS children had scores that were between those of the children with autism and those of the children with AS. In contrast, the PDD-NOS group had fewer autistic symptoms, especially repetitive stereotyped behaviors, than both the autism and AS groups (chi2 = 11.06, p =.004). Children with PDD-NOS could be placed into one of three subgroups: a high-functioning group (24%) who resembled AS but had transient language delay or mild cognitive impairment; a subgroup resembling autism (24%) but who had late age of onset or too severe cognitive delays or were too young to potentially meet the full diagnostic criteria for autism; and a group (52%) not fulfilling the criteria for autism because of fewer stereotyped and repetitive behaviors.
CONCLUSIONS:

With some revision to current diagnostic criteria, a more homogenous atypical group with significant impairments in social-communication but fewer repetitive behaviors can be differentiated from the more nonspecific PDD-NOS group. This differentiation may lead to better reliability in diagnosis and to further progress in studies of etiology.

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31 Mar 2013, 11:11 am

Tyri0n wrote:

Your diagnostic report at least tries to clarify it and give a reason. Mine does not. I was given the following contradicting information verbally: 'You can differentiate between an Asperger's and a PDD-NOS easily.' and 'We just can not know by the available information.' (after they interviewed me and my parents, administered tests, and was provided several related material evidences such as photos, sound recordings, even some school materials).

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31 Mar 2013, 11:17 am

StuartN wrote:

OJani wrote:

You see, this is a problem. No surprise that Temple Grandin suggested keeping the term Asperger's and autism and dropping the rest, by broadening both. Maybe the new ASD dx will fare even better.

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31 Mar 2013, 11:31 am

Quote:

Children with PDD-NOS could be placed into one of three subgroups:

a high-functioning group (24%) who resembled AS but had transient language delay or mild cognitive impairment;

I had no language delay, I don't have cognitive impairment of any kind.

Quote:

a subgroup resembling autism (24%) but who had late age of onset or too severe cognitive delays or were too young to potentially meet the full diagnostic criteria for autism;

Age of onset was typical for Asperger's. (Severe behavioral issues at age 7, symptoms present from early age in retrospect.)

Quote:

and a group (52%) not fulfilling the criteria for autism because of fewer stereotyped and repetitive behaviors.

For autism, perhaps. For Asperger's, no.

By the way, I couldn't figure out what professionals think of the minimum level of RRB for AS, or if they have a particular criteria for that. It seems very hard to determine what exactly constitutes an "all-encompassing special interest(s)". Recently I asked another professional about it but received no further clarification.

So, all in all, apparently I don't fit in any of the so-frequently-cited sub-groups of PDD-NOS.

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31 Mar 2013, 4:29 pm

OJani wrote:

Your diagnostic report at least tries to clarify it and give a reason. Mine does not. I was given the following contradicting information verbally: 'You can differentiate between an Asperger's and a PDD-NOS easily.' and 'We just can not know by the available information.' (after they interviewed me and my parents, administered tests, and was provided several related material evidences such as photos, sound recordings, even some school materials).

The bolded part actually made me laugh. Not at your plight, but at their ignorance.

In the US, whether you get PDD-NOS or AS as a diagnosis seems to depend more on where you go for your diagnosis than it does on your actual presentation. I wouldn't be surprised if something similar were true elsewhere.

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