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What is your label?
Asperger's 72%  72%  [ 63 ]
Classic Autism (including HFA) 10%  10%  [ 9 ]
PDD-NOS 14%  14%  [ 12 ]
NLD (without an ASD) 0%  0%  [ 0 ]
Elsewhere on the autism spectrum (whatever else they put on there) 3%  3%  [ 3 ]
Other neurological disability: e.g. Williams 1%  1%  [ 1 ]
Total votes : 88

XFilesGeek
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30 Mar 2013, 6:47 pm

Officially DXed with.......

1. Aspergers Disorder.

2. ADHD.

3. Depression.

4. Adjustment Disorder.

Ta-dah!!


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30 Mar 2013, 6:52 pm

One does wonder if there is an issue with WHEN the DX was. It was my (unsourced) understanding that Asperger's was a more accepted DX in some circles later than Autism or PDD-NOS.


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aghogday
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31 Mar 2013, 1:29 am

rapidroy wrote:
Tyri0n wrote:
AgentPalpatine wrote:
Fnord wrote:
Labels dismiss human identity.


And also create divisions where there should'nt be (AS, HFA, PDD-NOS).


The term "aspie" is a little exclusionary since they only make up 9% of the autism population vs. 47% for PDD-NOS (my label) or NLD (1% of the general population).


Aspie 9%, our polls not working out that way, and for folks using the DSM PDD-NOS is only going to go down. Also asperger will still be in the ICD and others, i'm not entirely sure what guide I was Dxed with(Canada) other then I got asperger syndrome.


9% is the percentage of Asperger's assessed in the CDC supported research that provides statistics of ASD among 8 year old children, most of who are under individual education plan's in the school system (approx. 90%).

Autism online communities are opposite in representation of the spectrum, where Aspergers, to date, is usually by far the majority diagnosis of individuals participating followed by PDDNOS, then Autistic Disorder.

It is a common misconception that all language development delays and impairments are necessarily associated with more severe types of Autism. Part of this is propagated by the DSMIV exclusion of clinically significant language development delays.

Language development delays are common in the condition of Hyperlexia and Pragmatic Language Impairment. Both of these conditions may be associated with ASD's.

The Gillberg criteria not only allows for language development delays and/or speech impairment as part of that criteria for Asperger's syndrome, it is a mandatory criterion for a diagnosis of Asperger's. This continues in areas of the world that will continue to use that criteria instead of DSM5 or the new ICD11 standards for ASD's.

Individuals diagnosed after childhood with verbal capabilities that have a history of language development delay are often diagnosed with PDDNOS, instead of Asperger's syndrome., per DSMIV exclusion of language development delay.

And they are also often diagnosed with PDDNOS, because they either do not have all the usual clinical behavioral impairments that are observed, either because they never had them or they have adapted as no longer presenting what is expected as observable behavioral impairments in Autistic Disorder or Asperger's Syndrome.

The DSM5 criteria no longer includes language development delays in the basic criteria or the exclusion of language development delays. However, the criteria is much more restrictive in the three mandatory required criterion elements in Social Communication than either PDDNOS or Asperger's Syndrome., per DSMIV standards or ICD10 standards.

Interestingly, technically, the new DSM5 criteria is actually less restrictive per RRBI's, as the chair of the DSM5 committee has clarified that RRBI's can be met by history alone, if adaptation has occurred where they no longer present as clinically significant behavioral impairments. This includes the new DSM5 RRBI criterion element of sensory hypo/hyper sensitivity to the environment.

Asperger's is being replaced, to date, per ICD11beta revision in what is currently described as Social Reciprocity Disorder, similar to the new DSM5 Autism Spectrum Disorder, but without a criterion for RRBI's.

This new described ICD11beta revision disorder is substantially different than the new Social Communication Disorder in the DSM5, as the new DSM5 disorder is considered a communication disorder associated with pragmatic language impairment, instead of one of Autism Spectrum disorder of impairment in reciprocal social-communication.

Among the estimated 20% of individuals currently sub-clinically assessed with HFA in childhood with a language development delay, many of those individuals would also meet a diagnosis of Asperger's syndrome under the Gillberg Criteria.

If the Gillberg criteria were used in the areas of the world where people are responding in this poll who were assessed with either PDDNOS or HFA, a number of those individuals likely would have been diagnosed with Asperger's syndrome, instead.

On the other hand, the individuals with either no language development delays and/or speech impairments and no clinically significant assessed motor development problems which is also a mandatory criterion element in the Gillberg criteria would not likely be diagnosed with Asperger's syndrome.

Instead, they might be diagnosed with PDDNOS in those countries where the ICD10 standards for PDDNOS and Autistic Disorder are used in conjunction with the Gillberg Criteria for Asperger's sydrome.

Most ironically, after all is said and done, the Gillberg criteria for Asperger's syndrome, with mandatory requirement for language development delay and/or speech impairment, and motor development impairment, will remain a more restrictive criteria in capturing an actual neurodevelopmental disorder assessed as inherent impairment than the new DSM5 criteria which assesses individuals by observed behavioral impairment.

It appears that ICD11 standards may keep the development delays as part of that criteria for Autistic Disorder.

I was diagnosed in midlife, initially assessed with Asperger's syndrome but it was changed to PDDNOS after the diagnosing professional found out I had a language development delay until age 4. It was the hyperlexic variety of language development delay with precocious reading ability.

I was engaged in the world around me, according to my mother, with or without speech. That did not raise the Autism flag back in those days. Instead it was I would talk when I was ready. I was also late in other developmental milestones, but it was not a big deal back in those days.

I provided more than enough details here, I think, that one currently cannot assess severity of limitation in functioning by ASD subtype of diagnostic label alone.

Interestingly, that becomes more accurately assessed per severity levels of 1, 2 or 3, per one general DSM5 label of ASD diagnosis.


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aghogday
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31 Mar 2013, 1:39 am

Looking back at the poll, and in light of the information I presented in the last post, it would have been interesting if an option would have been added for Classic Autism (including HFA) and Classic Autism (excluding HFA). I suspect most would report Classic Autism (including HFA).


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31 Mar 2013, 1:51 am

I'm PDD-NOS and AS and neurologically impaired. Differing diagnosis have been given over the years form differing sources. I think in my case it could possibly be said that I am on the high end of PDD-NOS and on the lower end of Aspergers.

As far as communication on the internet goes, in alt.support.autism, there was a person there who had very severe autism.
This is her posting profile:
http://groups.google.com/groups/profile ... ccej3woxEQ

And this is a video she made of herself:
https://www.youtube.com/watch?v=JnylM1hI2jc

See how she's moving her hands in the begging of that video? Now THAT'S autistic stemming.



Dillogic
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31 Mar 2013, 1:53 am

Autistic Disorder with the DSM-IV-TR (psychiatrist; thought I was AS though, but he couldn't overlook the early history); HFA from that
AS with Gillberg's (clinical psychologist)



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31 Mar 2013, 4:10 am

Fnord wrote:
Labels dismiss human identity.


That's not in the DSM. :?

I'm joking! I'm joking!"

According to what I last heard from my psychiatrist, mine is "some kind of autism, most likely Asperger's".


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pokerface
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31 Mar 2013, 3:45 pm

Official diagnosis: severe aspergers.



aghogday
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01 Apr 2013, 12:52 am

briankelley wrote:
I'm PDD-NOS and AS and neurologically impaired. Differing diagnosis have been given over the years form differing sources. I think in my case it could possibly be said that I am on the high end of PDD-NOS and on the lower end of Aspergers.

As far as communication on the internet goes, in alt.support.autism, there was a person there who had very severe autism.
This is her posting profile:
http://groups.google.com/groups/profile ... ccej3woxEQ

And this is a video she made of herself:
https://www.youtube.com/watch?v=JnylM1hI2jc

See how she's moving her hands in the begging of that video? Now THAT'S autistic stemming.


Yes, Amanda Baggs is also a member of this website that hasn't been in active discussion for sometime, posting under a different user name here.

Coincidentally, she is back in the Autism Community News today, that I just read on another website before visiting here today. For anyone that might know her on a personal basis, here is a link to that news, that appears to warrant some concern for her health and welfare.

https://www.facebook.com/thinkingpersonsguidetoautism


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01 Apr 2013, 1:01 am

Thank you for the update, aghogday.



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01 Apr 2013, 2:03 am

Verdandi wrote:
Thank you for the update, aghogday.


You are welcome. I'm glad you found the comment, you are one of the individuals that came to mind that I knew would be concerned.


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Last edited by aghogday on 02 Apr 2013, 3:16 pm, edited 1 time in total.

daydreamer84
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01 Apr 2013, 2:17 am

XFilesGeek wrote:
Officially DXed with.......

1. Aspergers Disorder.

2. ADHD.

3. Depression.

4. Adjustment Disorder.

Ta-dah!!


I could give you a run for your money. :lol: Officially diagnosed with:

1.Asperger's Syndrome

2.NVLD

3.ADD (before they changed it to subtype of ADHD)

4.Generalized Anxiety Disorder.



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01 Apr 2013, 3:00 am

daydreamer84 wrote:
XFilesGeek wrote:
Officially DXed with.......

1. Aspergers Disorder.

2. ADHD.

3. Depression.

4. Adjustment Disorder.

Ta-dah!!


I could give you a run for your money. :lol: Officially diagnosed with:

1.Asperger's Syndrome

2.NVLD

3.ADD (before they changed it to subtype of ADHD)

4.Generalized Anxiety Disorder.


Officially:

1. PDD-NOS

2. Asperger's Syndrome (apparently)

3. NLD

4. Generalized Anxiety Disorder

5. Dysthymia

6. Major Depressive Disorder, Recurring

7. AvPD

Unofficially:

1. Sensory Processing Disorder

2. Bipolar/Cyclothymia



howzat
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01 Apr 2013, 9:37 am

Asperger's Syndrome



nessa238
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01 Apr 2013, 9:42 am

Asperger's Syndrome - a diagnosis I didn't seek out

It's a meaningless diagnosis in my opinion as there's no support for it;
the only use I can see for the label is to get you off a longer sentence if you kill someone as you can claim
you weren't in full control of your actions



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01 Apr 2013, 10:15 am

Many have labeled me Oddball. Some have labeled me Weirdo. Lately it's been upgraded to Eccentric.