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outerspacenik
Yellow-bellied Woodpecker
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Joined: 1 May 2013
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Posts: 69
Location: Sydney, Australia

01 Aug 2019, 5:46 pm

Wow! It is so interesting to read my cancer story seven years later. And all your very kind and empathic responses to it. THANK YOU. My good news is that i am now CANCER FREE. I had a second cancer, thyroid, which spread to the sheath of my carotid artery. The one in our necks that is felt to see if we are dead or alive. I received the good news on my birthday last June. So i have to make the most of the time God has given me to make the most of the rest of my life. Back to my 2013 cancer posts when i was being given radiotherapy i instinctively knew was wrong, i changed hospitals. The radiographer there agreed with me that radiotherapy was not appropriate. The cancer cells had not yet formed a mass. So he put me on a pill called Arimidex which blocks the estrogen that feeds hormonal cancers. Some women have a bad reaction to this and suffer menopausal symptoms but i did not. I am a devout Catholic and prayed to our first Australian saint Mary Mackillop for her intercession with God on my behalf. I hear of many cures when i attend her memorial chapel. I believe i am one of them.



SharonB
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01 Aug 2019, 8:06 pm

outerspacenik wrote:
My good news is that i am now CANCER FREE


Congratulations!! ! It's good to read that ultimately you did assert and advocate for yourself. I had a medical condition and moved on past two doctors that didn't "work" for me. I even cancelled a surgery four days beforehand because it didn't "feel" right. No regrets here either.

Wishing you joy.



outerspacenik
Yellow-bellied Woodpecker
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Joined: 1 May 2013
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Posts: 69
Location: Sydney, Australia

01 Aug 2019, 8:56 pm

Thank you SharonB. Wishing you joy too. With a previous surgery i didn't follow my feelings of doubt and fear and tried to get out of it when in anaethetists table. Ended up with huge scar above my lip. Learnt my lesson from that. Don't trust doctors to look after you. Look after yourself.



ASPartOfMe
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02 Aug 2019, 3:08 am

As an autistic cancer survivor myself I am glad you made it and can still contribute to wrong planet.


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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Persephone29
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Joined: 14 Jun 2019
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Location: Everville

02 Aug 2019, 5:47 am

Hi, I'm a cancer survivor. Hodgkin's Lymphoma in my chest, two big tumors which responded very well to chemo and no radiation because of he location (heart/lungs). I did not yet know I had Asp at the time of my dx. though. I remember treatment being a very overwhelming and confusing time. My ordinarily excellent memory was replaced with forgetfulness and what seemed like apathy. I do not envy you and the choices you are faced with and I have often wondered what I would do were I to relapse. It would definitely depend n the type of cancer and the odds, 5 year survival rate, etc... Then again,maybe it wouldn't. People can say what they think they will do, but no one knows for sure until it's real.

I am thinking of you. I'm sure this is such a stressful time. Go YOU, whatever you decide, you are a warrior! :ninja:


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Neurocognitive exam in May 2019, diagnosed with ASD, Asperger's type in June 2019.