Carer discriminating my autism.

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grahamguitarman
Velociraptor

Joined: 19 Mar 2013
Age: 64
Gender: Male
Posts: 458

21 Jul 2013, 8:03 am

SteelMaiden wrote:

I do internet shopping, but the carer keeps telling me to go to Asda (I had a severe meltdown there a while ago and nearly had security deal with me - I haven't gone there alone and without noise-cancelling headphones since).

I missed this the first time I read the thread. What the hell is wrong with internet shopping? Its a normal part of modern living! If its ok for busy NT's to do this then why not someone with an ASD?

To me internet shopping is the most logical solution to not being able to cope with supermarket shopping, and should be encouraged as an alternative for those with ASD. That way you can concentrate better on those things that can't be so easily resolved. Having any ASD is all about management, and not trying to cure that which cannot be cured!

_________________
Autistic dad to an autistic boy and loving it - its always fun in our house

I have Autism. My communication difficulties mean that I sometimes get words wrong, that what I mean is not what comes out.

Panddora
Pileated woodpecker

Joined: 27 Feb 2013
Gender: Female
Posts: 199

21 Jul 2013, 1:20 pm

KingdomOfRats wrote:

make an official complaint about what the staff said to the manager of the house,its usualy always management@nameofcompanyhere.etc ,if are bothered about making the complaint;ask keyworker to do it instead or get a advocacy service involved, MIND do it but they might not understand the autism side so well, and NAS do it but they may not understand the mental health side as well as MIND do.
they can support with telling that staff to fcuk off in a profesional way,companies tend to listen to profesionals more.
every organisation;regardless of the condition now support service users under a PCP; http://en.wikipedia.org/wiki/Person-centred_planning
this means every service user has their likes,dislikes,good things about them,life etc planned exactly as it shoud be;they may have helped make it if they have the capacity,it shoud all be on paper.
so things like 'unable to cope with noise','hates discos' etc shoud be on there and those staff shoud be respecting it,ask the keyworker have got if woud be able to make a PCP with him/her.

supported living is independant living anyway,it is to help independant people live a life with as much of their input as possible- with support, they shoud not be saying horrible things like that to anyone in this day and age.

In theory this is absolutely correct. The supported tenancy person should be challenged as they do not appear to be trying to understand your needs and work with you appropriately. Whether they would take note of a complaint and make some effort is another matter. The danger here is being labelled as a troublemaker so you would need professional support to go ahead with this.

A person centred plan is perfect. However, these are usually done in learning disability and although easy enough to do, even in learning disability few workers use them where I live.

What is really important, though, is that people should not be expecting you to live by their standards. It appears they are trying to make you conform to a way of life that is not how you want to live.

Why are you felt not to be ready for independent living? If you had a list of the objections and you - with the people on this forum - devised ways of overcoming these, then surely he should listen?

SteelMaiden
Veteran
Veteran

Joined: 19 Aug 2006
Age: 36
Gender: Female
Posts: 3,722
Location: London

23 Jul 2013, 4:37 am

Thanks for the input everyone.

I have complained before and the carers used emotional blackmail to get me to retract the complaint. The carers said things like "you're like a daughter to us, we care so much about you, why did you complain when we're trying our hardest to help you?" and then they would act extremely cold towards me.

I will try harder to move out of here with my keyworker's help. My keyworker is an OT from the mental health team and she is good.

They said I'm not ready to move out because I "can't communicate properly" and that I can't use shopping centres, banks, post offices, etc. alone. They said I'm not trying hard enough and that I "need to integrate with other people".

I just want to go into a flat of my own, with support from my mental health team, and the NAS. I WANT TO GET OUT OF HERE I HATE IT.

The PCP sounds useful but I bet that the carers here will ignore it and try to make me "normal".

I will ask about Direct Payments to fund me a support worker from the NAS, like the full-time NAS support worker I have at university. The carer here said "the council don't have money to give you support, you have to learn how to manage on your own when you move out, they won't hold your hand".

*I'm really angry*

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I am a partially verbal classic autistic. I am a pharmacology student with full time support.

AspiePride12345
Butterfly

Joined: 20 Oct 2013
Gender: Male
Posts: 15

21 Oct 2013, 3:35 pm

That's awful did you sort it out?

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