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Bodyles
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06 Apr 2014, 3:03 am

Ok, so I'm not sure if this is relevant or not, but I have a suggestion.

California & the Federal Government offer different types of services & benefits & such to disabled people based on level of need and the services/benefits you're looking for.
I'm not personally familiar with all of these services, however, I've inferred from some of the things the OP has said in her posts that she probably, at the very least, wants help getting & keeping a job either now or when she's done with school, which is something I am personally familiar with.

In terms of that, there's actually a great California state agency called The Department of Rehabilitation, whose sole purpose is to help people with diabilities, any and all disabilities, get & keep a job.
Although I eventually quit the job I got with the help of the program they set me up with I kept it for well over a year, learned a lot, and got into my current field & have started a career to some extent.

You might want to look into them if that's something you're interested in doing at some point.

Hope you find what you're looking for. :)



starkid
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06 Apr 2014, 3:43 pm

bleh12345 wrote:
Starkid, did the psychologist administer an ADOS test among other types of tests? I was wondering because it's possible you are higher functioning, and even with the ADOS test, lack of experience in diagnosing higher functioning people can screw up peoples' results.

In his notes (they didn't give me any official documents), he said that he used ADOS Module 4, but I have no way of knowing because I don't know what the ADOS is like. I don't trust that psychologist at all; there were a lot of errors and misconceptions in what he wrote about me. I'm trying to get referred to the STAND autism clinic in Sacramento.
Quote:
I'm wondering if the psychologist didn't have a bias for lower functioning people and missed you. Have you thought about a second opinion?

I'm sure the whole organization has a bias for lower functioning people; in order to receive services, a person has to not only have an ASD diagnosis, but fit their separate functioning criteria. They sent me a copy and it is rather strict. Also, I came across this online:

http://blog.sfgate.com/lshumaker/2012/0 ... d-support/

(see the Regional Center item in part 1). Apparently, I'm not the only one who found their diagnostic process unsuitable.



bleh12345
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06 Apr 2014, 4:20 pm

Ahh, yes. That they only do eligibility assessments means you might have been missed. You are probably higher functioning. I'm glad you are contacting another organization. I hope you get a FULL assessment soon, starkid!



Bodyles
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08 Apr 2014, 1:01 am

Having looked into this a bit in my area (Orange County, CA), I find it interesting that on the RCOC eligibility criteria it only says 'diagnosed' before 18 one place and the rest of the stuff say it has to have 'manifested' before that.
I'm guessing that they mean that you must have significant proof of symptoms going back before the age of 18, but so'nt actually need to have been diagnosed by that point.

Also, apparently under Cali law it's these criteria & not the diagnosis itself that dertermines elegibility, unless you're diagnosed with classic Autism from the DSM-IV or a few other developmental disabilities that are categorically eligible:
"
§54001. Substantial Disability.


(a) “Substantial disability” means:

(1) A condition which results in major impairment of cognitive and/or social functioning, representing sufficient impairment to require interdisciplinary planning and coordination of special or generic services to assist the individual in achieving maximum potential; and

(2) The existence of significant functional limitations, as determined by the regional center, in three or more of the following areas of major life activity, as appropriate to the person's age:

(A) Receptive and expressive language;

(B) Learning;

(C) Self-care;

(D) Mobility;

(E) Self-direction;

(F) Capacity for independent living;

(G) Economic self-sufficiency.

(b) The assessment of substantial disability shall be made by a group of Regional Center professionals of differing disciplines and shall include consideration of similar qualification appraisals performed by other interdisciplinary bodies of the Department serving the potential client. The group shall include as a minimum a program coordinator, a physician, and a psychologist.

(c) The Regional Center professional group shall consult the potential client, parents, guardians/conservators, educators, advocates, and other client representatives to the extent that they are willing and available to participate in its deliberations and to the extent that the appropriate consent is obtained.

(d) Any reassessment of substantial disability for purposes of continuing eligibility shall utilize the same criteria under which the individual was originally made eligible.
"

I'd be willing to bet that I should qualify, not that I necessarily would.
Having looked up the specifics of each area I fall woefully short & suffer significant impairment in terms of my functionality in areas C, F, and G.

It's extremely important to note, however, that each regional center determines its own criteria for eligibility within its own interpretation of the law.
Since the judicial rulings in terms of these things have been mixed, there's apparently no hard & fast rules in terms of who they take & who they don't.
Add that to the fact the assessments can and do tend to vary significantly from assesor to assesor, despite the many efforts made to ensure a certain fairness & uniformity in terms of the assessments, and it seems likely that unless a person is obviously, outwardly impaired in various ways which can't be disputed or interpreted as being something else that they'd be turned away, for financial reasons if nothing else, even if they technically fit all the criteria in terms of functional impairments.
Like me for instance.
I can easily show that I have substantial functional difficulties caused by my autism, which there's plenty of evidence for from before I turned 18, in at least three of the seven major areas of life activity.
However, I'm intelligent, articulate, even a bit witty, and I've learned how to deal with a wide range of social interactions quite well to the point where in many situations no one ever notices anything the least be weird or off about me.
I can even deal with eye contact fairly well on a limited basis these days.
I'd bet that based on that stuff they'd turn me away, even though I technically meet their definition of having a substantial disability based on the criteria above.

Of course, I haven't applied for services through them yet so I could certainly be wrong, and to be honest I'm not sure there's much they could do to really help me at this point so I probably won't unless it seems imperative for some reason at some future date.



bleh12345
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08 Apr 2014, 7:58 pm

Thanks for sharing your experiences and information, Bodyles.

It seems wrong that they can't have some sort of uniform eligibility, but what can you do. I'm also intellectual, however, I still need a lot of help with social skills. I have no idea how one could possibly get this help when they are an adult unless they pay a lot of money out of pocket.

I've asked others to help me with social skills, and they pretty much just tell me "When someone does this, it means... " OK, well that's nice, but it's a bit different than being face to face with someone. Also, there seem to be a LOT of exceptions to social rules, which further complicates matters.

I guess people like me won't get much help. :cry: