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ImAnAspie
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22 Feb 2014, 5:13 am

I first got "picked up" in 1996 by accident. I was originally sent to a psychiatrist for depression due to an injury sustained at work.
Although I knew nothing of Asperger's back then other than the fact that it was a type of Autism, I got rather annoyed and offended by the diagnosis. It stayed in my mind for some time and I used to wonder "Could someone walk around being autistic without even knowing about it? Could it be obviously visible to people outside but I can't see it, not even in a mirror?"

It wasn't until it was picked up again, many years later when I was in a psych hospital for alcoholism & depression. When this psychiatrist mentioned it, it was like "Hang on! I've heard this before. Maybe there's something in it. Could there be?"

After that, I started to do a bit of research on it and the more I read, the less I could deny it. It was sort of like the movie, 'The Sixth Sense' where once you find out he's dead and look back over the movie, everything starts to make sense and you can see why what's been going on has been going on.

I didn't cop a real hard time at school on account I practically grew up in the library and avoided other kids. Back then in school, they weren't real' big into group activities the way they are now. You basically sat there and shut up and learnt.

I don't regret knowing - in fact, I'm really pleased I know because it explains so much of how I am - the good and the bad. It also explains a lot about my past.

For example, once someone is out of sight, they're out of mind. Family included. I just don't seem to think of keeping in contact with people. It's not intentional. It's like I've got blinkers on and once you step out of my field of vision, you're gone. I always knew this about me and for a while there, questioned if I was a terrible person for forgetting about people. Also, I've always preferred to be on my own. Even as a kid (young teenager) I couldn't wait for everyone else to go out so I could spend some time on my own.

At least now, I know I'm not a horrible person and that it's just part of the way AS has manifest itself in me.

Now, AS/Autism has become one of my Special Interests (along with Myna Birds) and I plan to do a Psychology course and try to help others on the Spectrum who are more severely affected than I am.

P.S.
Myna birds are really cool - you can teach 'em to talk and they make great pets :)


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hihowareyou
Yellow-bellied Woodpecker
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22 Feb 2014, 6:22 am

I never was officially diagnosed. I have accepted that I have atypical autism. It's really difficult to treat with meds though because I have some schizophrenia and bipolar symptoms as well. I think in many ways my depression has been what made people believe for so long that I'm just shy and depressed.

Personally i went though a period of not caring about it when people told me I was autistic. However, now that I'm trying to improve my quality of life it's been somewhat helpful to learn about coping mechanisms. The only time I was aloof was when I was a child and looking back people just laughed at me so I don't want to go back to that time.



hihowareyou
Yellow-bellied Woodpecker
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22 Feb 2014, 6:22 am

I never was officially diagnosed. I have accepted that I have atypical autism. It's really difficult to treat with meds though because I have some schizophrenia and bipolar symptoms as well. I think in many ways my depression has been what made people believe for so long that I'm just shy and depressed.

Personally i went though a period of not caring about it when people told me I was autistic. However, now that I'm trying to improve my quality of life it's been somewhat helpful to learn about coping mechanisms. The only time I was aloof was when I was a child and looking back people just laughed at me so I don't want to go back to that time.



iammaz
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22 Feb 2014, 11:53 am

I am somewhat hesitant to get an official dx for fear that i'll use that as an excuse to stop trying to fix things (which seems like a problem that some people in this thread have mentioned having also). But at the same time, I can't really deny it. So for now I walk the line between using any tricks i can pick up in here to help me get by in a world where i dont fit, but cant ask anyone else for help with.

If i ever start a thread here, it would be to ask if an official dx would be a good idea. Reading these replies so far has been useful. Thanks.



iammaz
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22 Feb 2014, 11:56 am

ImAnAspie wrote:
Myna birds are really cool - you can teach 'em to talk and they make great pets :)


Thats awesome, but birds are scary. maybe if there was a fluffy bird that felt like a cat? also it'd have to not be able to fly, and purring is good too... maybe i should get a cat. good idea!



Last2Know
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22 Feb 2014, 12:22 pm

ImAnAspie wrote:
After that, I started to do a bit of research on it and the more I read, the less I could deny it. It was sort of like the movie, 'The Sixth Sense' where once you find out he's dead and look back over the movie, everything starts to make sense and you can see why what's been going on has been going on.

Well as you can see from my user name I totally relate. I was diagnosed at 39, only because my son was being diagnosed and it hit me like a ton of bricks that that was me too. It's been 4 years since then, and I could definitely fill a page on "pros of knowing" and a page on "cons of knowing".

I think it's really what you do with the information, you get out of it what you put into it. If I were being as proactive for myself as I am being for my son (getting supports, social connections, etc.) I'd probably be in a much better place. But for me I am embarrassed to say that I've let it lead to a lot of hopelessness for me. I hung on to "one day I'll wake up normal" for a long time. I'm just REALLY tired of struggling to fit in and make friends. In the "Mommy world" it's even much harder. Every time I even feel a hint of not fitting in or being misjudged, I run away and think "here we go again, I am a hopeless Aspie". That also has to do with my parents, who are very unhealthy people, and my mother especially, decided she didn't want to have a "social freak" for a daughter. So it ended our relationship, which admittedly was awful to begin with. :(

My husband and kids still love me very, very much. I'm just not sure how much I love myself right now. If I didn't have the diagnosis, I'd still probably be trying to figure out what's wrong with me though.



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22 Feb 2014, 4:02 pm

em_tsuj wrote:
I wish I had had an official diagnosis earlier. It would have saved me from wasting my 20's on a career field that is extremely stressful for me because of my AS (and doesn't pay anything). I could have kept going with the computer science thing and be financially independent right now. Until I got my official diagnosis, there was this layer of denial, thinking I could overcome and get better if I just worked hard enough, adapted myself to whatever situation I was in. I also had this shame because I couldn't do it, thought I was a failure. Now that I have a diagnosis, I am happier than I have ever been in my entire life. I am also less stressed out. I'm done with trying to be normal. That is an impossible goal. I can only learn to live with my limitations. But learning to live with my limitations only became possible after I admitted that I had them.


This really resonates with me. I made some poor very poor career decisions in my 20’s and 30’s, probably because I didn’t really understand my limitations. I didn’t understand how important “social stuff” was in the work place. Then again, had I better understood my limitations, I might not have made other decisions (like getting married) which seemed to turn out OK.

em_tsuj wrote:
When I was a kid, I knew I was different but couldn't explain it. Everybody knew I was different and treated me different. I hated myself for being different. I did ridiculous things to try to be "normal". I was depressed and nothing made the depression get any better. My AS symptoms were treated like a moral problem (laziness, just being an as*hole, or stupid). Now things are different. I just can't imagine going back to not knowing. I feel so much better compared to a couple of years ago when I didn't have an official diagnosis.


The same here. Interestingly, this “uneasy” feeling of being different lasted with me until I was diagnosed.

em_tsuj wrote:
I have to agree with DevilKisses about being diagnosed as a child. That would have severely handicapped me. I know me and I know my parents. I would have been treated with kid gloves instead of learning how to adapt to life. I would have lowered my expectations for myself and used it as an excuse. Not getting diagnosed until I was an adult has made me feel like I should try to be as functional as possible because I am so used to trying to take care of myself. I am just more realistic about what I can and can't do.


This is probably true for me as well. I probably would have lowered my expectations and not accomplished certain things that I did. I would have tried ever fewer things than I did, assuming that I wouldn’t have been successful (as opposed to trying them and then quitting them soon thereafter, realizing I wouldn’t be successful).



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22 Feb 2014, 5:08 pm

GivePeaceAChance wrote:
I am glad to know and finally have a thing to connect why I have felt "alien" all of my life. I was not diagnosed until almost 50, someone who knew about suspected me and hinted at it and I ignored it for a while until I was a crime victim and I finally exploded and asked for help. I am not getting anything to really work with it but at least I am learning that I am not alone.


Our stories are scarily similar. My former boss told me he thought a I had a little bit of autism and I ignored it. Years later becoming a crime victim led to a series of events that ended up with me being diagnosed.


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


ImAnAspie
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22 Feb 2014, 8:30 pm

One thing I will say I didn't like about finding out was that I also used to think I was an alien. Even my sister says I'm an alien. I kind of liked being different. I guess I'm still different (to most). I'm just not unique any more. And I'm terrestrial. Mwaaaaa

It still feels like I'm on an alien planet. :cry:


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Formally diagnosed in 2007.

Learn the simple joy of being satisfied with little, rather than always wanting more.



em_tsuj
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22 Feb 2014, 8:38 pm

llerrd wrote:
That question crossed my mind for a second but I am truly glad I finally know whats been plaguing me my entire life.

So I'm 44 and have felt extremely outside and different my entire life. I can't believe it took this long to be diagnosed. I am an art professor at a University and have been working here for just a year and a half. The reason I was diagnosed with aspergers? I guess I don't know why but I struggle to even talk about it. Typing is much easier. I have forever had "abilities" that set me dramatically apart from others. After getting here I was so busy that I stopped sculpting. There was so much paperwork, shop work etc, there always has been. Something started happening. It was like this "ability" I had let out my whole life (secretly as possible) began to misbehave when I tried to cork it up. There was nothing I could do about it. I stopped being able to have interpersonal relationships, which of course were hard enough for me to have in the first place. The professionals first saw the obvious Savant Syndrome when I went in to see them. Within 5 minutes of the first visit I guess it was obvious. I had no idea that's what all that information I had was. All my art, everything I am is a product of this Aspergers Syndrome. It didn't take long before they saw that too. I suppose I was high enough functioning that I hid it well and no one noticed. Of course now I realize why my family has moved 15 times in the 22 years I have been married. Though I have a PhD level degree I cant keep a job to save my life. My family has been ridiculously supportive believing in me all this time. I have taught at 5 different colleges all with the same outcome. I just cant do the busywork and I am perceived as lazy or uncaring or irresponsible. I realize now why the failure. I thought I would be able to eventually "push the right button" or "flip the right switch" and I would eventually get it. After all if I whizzed through college (I should have just gone to college and skipped the entire destructive secondary ed thing) why would I not buzz great out of college the same way? After much thought I am now quitting my six figure job because it is making me extremely sick and very unhappy. The school has been very kind and has allowed me out of contract and given me time to get my affairs in order. I am moving back west and buying a plot of land. I'm going to be a sculptor. What I should have been all along. Anyone done this before? I'm quite nervous. My art is......complicated and involves lots of machinery and moving parts. No math, no measuring. I just know where everything goes measurements and all. Don't know how. Its just in my head. While others were making smaller pieces of art and doing moderately sized shows I built a roller-coaster for bowling balls, 50 ft long 20 ft wide and over two stories high called the "Bowler Coaster". The obsessive part of the Savant thing I suppose. The only problem I am having is, everyone including my counselors are excited about the Savant part and for me its just been the source of every nightmare I have ever had. When I was young everyone wanted to be different. Being different to me was being different than what I was and that meant being the same so I could be accepted. I am happy though. I have a loving family and am very blessed. I am just in the dark about making this jump, and yea the university is willing to accommodate some of my "differences" but I truly have to be able to do at least some parts well enough to be of use and I'm not. Let me know if you know anything. Thanks


I don't know anything about the art business, but I am interested in seeing what your sculptures look like. I'm sure you will be a success!



ImAnAspie
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22 Feb 2014, 9:24 pm

Quote:
While others were making smaller pieces of art and doing moderately sized shows I built a roller-coaster for bowling balls, 50 ft long 20 ft wide and over two stories high called the "Bowler Coaster".

I don't know anything about the art business, but I am interested in seeing what your sculptures look like. I'm sure you will be a success!


Me too. I wanna see the Bowler Coaster. Can you upload some pics or even better, a video of it in action?


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Your Aspie score: 151 of 200
Your neurotypical (non-autistic) score: 60 of 200

Formally diagnosed in 2007.

Learn the simple joy of being satisfied with little, rather than always wanting more.



llerrd
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23 Feb 2014, 1:55 am

I will have a website up n running in abt a month. Until then if anyone wants to see the "Bowler Coaster" you can search it on the web. Its not hard to find. You could probably find a bunch of my other artwork too. Have fun.



llerrd
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23 Feb 2014, 1:56 am

I will have a website up n running in abt a month. Until then if anyone wants to see the "Bowler Coaster" you can search it on the web. Its not hard to find. You could probably find a bunch of my other artwork too. Have fun.



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23 Feb 2014, 4:18 am

llerrd wrote:
Let me know if you know anything. Thanks

I have an MFA in painting and couldn't make a go of it teaching at University level. But that was then...

Selling art, making a living off what you create is totally social job. It is being a small business, a sole proprietorship. It is a very "chore" driven job. Plus it couldn't be more clubby, because you need a dealer (a deal maker) who is on your side. That is a gallery, and galleries are art stores, and for a good career you have to move through many of them... and travel, and make sellers and buyers love you and your work. Being a working artist is like being, a salesperson, a purveyor, and the factory.

Your students like you, enjoy you (from what little I can find... but I am seeing smiling engaged students)... I would encourage you to stay in your job. Hire a secretary (life coach, acupuncturist, water carrier, guru, yoga master, trainer, psychologist, whoever you need who can help you solve this dilemma. Surely you arent the first person to have troubles doing these "chores," and it seems like your university is willing to deal with your difficulties (they may be enamored with the Savant part? :). But there are serious hurdles going from a six-figure job, to owning a plot of land, and going into business by yourself making sculptures... at 44. Just my 2¢s.


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