classic autism members what you should know about aspies

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EzraS
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21 Mar 2014, 10:04 am

frankieG wrote:
I also personally find it comforting to see myself as being autistic, rather than a separation via Asperger's. I dislike the term "Aspie" because I find it's too cutesy in relation to what is a serious issue.


Right. Like in the beginning I was seeing being said like aspie meant someone who had just a smidgen of autism, just a tiny dab. Like it was just a little quirk.


[sorry for the double post, got the pages mixed up]



Marybird
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21 Mar 2014, 10:18 am

KingdomOfRats wrote:
hopefuly the ICD will be following suit next year,however we all know diagnostic manuals are like old women getting ready to go out;they spend forever caking the slap on and faffing about then eventualy they manage to drag themselves out the door and thereby releasing their new look to the public [good job mum doesnt read wp to see this]. :P

8O



Last edited by Marybird on 21 Mar 2014, 11:25 am, edited 1 time in total.

felinesaresuperior
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21 Mar 2014, 11:11 am

asperger is autism, yeah.
but mild and with no speech delay, so it goes undiagnosed very often, which is very bad for the person who doesnt know what's going on, and why he's so different than other people.
the spectrum is wide, and asperger is a part of it. of course it is autism.



ASPartOfMe
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21 Mar 2014, 2:02 pm

Call it a variant, call it a subcategory Aspergers was always an Autism Spectrum disorder/condition. It said that in pretty much every definition written during the DSM 4 era. The only ones who disagreed in the community are supremacists deniers. So now what I am noticing is that some people instead of saying I have Aspergers are saying I am a have an Autism Spectrum disorder as a way of saying I do not have "real" Autism. As the slandered names "Aspergers"and "Aspie" fade away this will happen more often and people will start noticing. So how would this be resolved in the DSM 6 by dropping "spectrum" and just having an Autism diagnosis? When do we stop running away? When do we stop A-holes from defining us?

Lesbians still call themselves lesbians and other subcatagories despite the fact that bigots constantly point to a few man hating lesbians to try and slander that name. The anti lesbian bigots have mostly failed because the lesbians refused to allow them to succeed. The people that want to undiagnose the non classic autistic people are beginning to succeed because we are allowing them to. This is probably because unlike the lesbians and many other slandered groups many of us can't see the motives of the people who want to un diagnose us. Aspergers is officially out, once spectrum is slandered that will be officially out. After that at best there will not be many new diagnoses of people that are not "low functioning/classically autistic" at worst we will be undiagnosed. We will be back in 1955.

Forgetting conspiracy theories ASD people tend to put a premium of categories and have black and white thinking. I believe that is why the reaction of people identifying around it or the its cute nickname. "Aspie" was a form of Reappropriation a "cultural process by which a group reclaims—re-appropriates—terms or artifacts that were previously used in a way disparaging of that group". http://en.wikipedia.org/wiki/Reappropriation. This was unprecedented for diagnosis. It is not surprising that some people in that group would react inappropriately and it is certainly not surprising it would provoke a backlash. That did not make the reappropriation wrong. What was wrong in my opinion was that it something that was a positive is now tarnished probably beyond repair and that a vast majority of us apparently accepts or agrees with this. I am beyond shocked and disappointed.


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Last edited by ASPartOfMe on 21 Mar 2014, 7:01 pm, edited 7 times in total.

btbnnyr
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21 Mar 2014, 2:09 pm

I thought people were saying ASD because that is what autism is now called in DSM-5.


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ASPartOfMe
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21 Mar 2014, 2:15 pm

btbnnyr wrote:
I thought people were saying ASD because that is what autism is now called in DSM-5.


You are right. ASD is an abbreviation for "Autism Spectrum Disorders"


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21 Mar 2014, 2:27 pm

KingdomOfRats wrote:
Verdandi wrote:
I think it's more Aspies who insist on the strict division than those diagnosed with autism (under the DSM-IV).

seconded!
have never known of a genuine classic autist who campaigned against aspergers being called autism [apart from the infamously famous droopy who was very derogatory towards aspies],all autisms are forms of autism-yet have known so many aspies campaign against aspergers being associated with classic autism,as like many NTs they havent had the experience with us to see what its all about.


For me it's difficult to see the distinction. I see lists of AS traits and autism traits and I have traits from both (and I think that is generally true, not just for me). I see people insisting on Asperger's as necessarily separated because they do not want to be associated with the stigma of "autism" but then if the label is too stigmatized, why is it okay for some people to still receive it?

Also, while on many occasions long before I started investigating the possibility of being autistic, it was my interaction with an autistic child (nonverbal) who first prompted me to at least think seriously about it, and an autistic woman's blog that convinced me that I was very likely autistic. Even then it took another three years to really accept the possibility. But interactions with Aspies rarely led me to consider this as a possibility.

Mainly what the above means is that it is fairly difficult for me to see how I am not autistic and "just an Aspie." I don't even identify myself as an Aspie because the word tastes wrong to me.

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hopefuly the ICD will be following suit next year,however we all know diagnostic manuals are like old women getting ready to go out;they spend forever caking the slap on and faffing about then eventualy they manage to drag themselves out the door and thereby releasing their new look to the public [good job mum doesnt read wp to see this]. :P


:D I'm glad I actually understood this (the first time I heard "slap" in that context it confused the heck out of me).



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21 Mar 2014, 3:22 pm

KingdomOfRats wrote:
Verdandi wrote:
I think it's more Aspies who insist on the strict division than those diagnosed with autism (under the DSM-IV).

seconded!


thirded!


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21 Mar 2014, 3:53 pm

^ Absoutely. I am seriously proud.



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21 Mar 2014, 3:59 pm

KingdomOfRats wrote:

hopefuly the ICD will be following suit next year,]. :P


ICD 11 release has been moved back to 2017 http://www.who.int/classifications/icd/factsheet/en/. I would be shocked if Aspergers is in there. They like to keep some similarity with the DSM to avoid confusion. While in my very small minority view that is still bad I find the ICD beta a lot better then the DSM 5 because it has more subcategories that should lead to more targeted treatment. I would hope when the final version comes out adult autism is specifically mentioned and not just alluded to.

http://apps.who.int/classifications/icd ... f437815624

Beta as of 3/21/14
Autism spectrum disorder is characterized by persistent deficits in reciprocal social interaction and social communication, and by a range of restricted, repetitive, inflexible patterns of behaviour and interests and sensory sensitivities that may change in character during development. These deficits are usually a pervasive feature of the individual’s functioning in all settings, although they may vary in degree according to the social or educational context. In many cases development is abnormal in infancy, although this may only become evident in retrospect. Symptoms usually emerge during early childhood, but deficits may not become fully manifest until social demands exceed limited capacities.

Inclusions
kanner's syndrome
Autistic disorder
Infantile: autism
Kanner syndrome
Infantile: psychosis

Exclusions
autistic psychopathy

All Index Terms
Autism spectrum disorder
Childhood autism
kanner's syndrome
Autistic disorder
Infantile: autism
Kanner syndrome
autistic
autistic disorder of childhood onset


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Last edited by ASPartOfMe on 21 Mar 2014, 4:28 pm, edited 3 times in total.

vickygleitz
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21 Mar 2014, 4:08 pm

sharky, you are 39 and about to get your drivers license. That is wonderful. I know that there are many Autistic people [including self] who cannot drive and shouldn't. But, I am also fairly certain that there are some of us who do not drive but possibly could if the circumstances were right. And the tips to make it more doable.

Please, will you share details? I mean EXTREME details. It could help so many of us [maybe me if I was younger and healthier]



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21 Mar 2014, 4:11 pm

I call myself an Aspie or say I have Aspergers because that's what I was told. Inside my head, it makes no sense, autism is autism for me anyway. I know some people with Aspergers and no conscious struggle to speak or communicate consider themselves to have Aspergers not autism, and can see their point. If the distinction matters to them, I don't see where they shouldn't call themselves what they like. But for me, I'm just going along with what I'm told to cell myself!

I think the distinction is a distraction from coming together.



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21 Mar 2014, 4:16 pm

Quote:
I'm glad I actually understood this (the first time I heard "slap" in that context it confused the heck out of me).

UK slang at its finest,verdandi. :P
mum furiously slaps the stuff on for ages;guess thats where the term comes from,she goes well overboard with it though.
turned up at mums today to fix the computer viruses and even though we were coming in the morning she complained that we shoud have phoned as she hadnt put any makeup on or her best clothes...ahhhh crazy NT wimin. :P
instead,have installed team viewer and am fixing it from the comforts of home instead without having to see mum piling on the 'pollyfiller'. :lol:


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21 Mar 2014, 4:27 pm

I have driven since I was 17 and for me the aspie in me even extends to driving. I make it a point to drive when there is little or no traffic. I loath highways because they typically are crowded with many road rage types and inconsiderate drivers around. If I get tailgated or someone is driving rather nutty I actually talk to them 8O or nag as if they can hear me. Yea strange I know.

Another thing is my fear of heights. I think that is why I freak out driving over any bridges with anything other than a short span. Those going some distance over water, valleys, or rivers freak me out. If I can avoid them I will. I just want to close my eyes until I am off the bloody thing.. :?



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21 Mar 2014, 5:55 pm

vickygleitz wrote:
sharky, you are 39 and about to get your drivers license. That is wonderful. I know that there are many Autistic people [including self] who cannot drive and shouldn't. But, I am also fairly certain that there are some of us who do not drive but possibly could if the circumstances were right. And the tips to make it more doable.

Please, will you share details? I mean EXTREME details. It could help so many of us [maybe me if I was younger and healthier]


I had to learn in a different way to regular people.

There are no extreme details it was one simple thing I learned here and here is what it is.

Before I could learn any rules on the road I had to learn how to physically handle the car first clutch and gear changing being the difficult thing to master.

You might think something so simple would not make much difference but it makes all the difference to somebody on the spectrum.

I broke the learning process into steps and I told my instructor about my autism and I informed him what I needed to learn each lession.



sharkattack
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21 Mar 2014, 6:35 pm

EzraS wrote:
It all confuses me to tell the truth. About what is what. The one thing I know is that up until last year I was in a special school that was almost entirely kids on the spectrum. And no one ever differentiated us between classic autism kids and asperger kids (at least no where we could hear it). It wasn't until I started going online that I started seeing those terms being used.
I thought there was supposed to be a noteworthy difference between classic and aspergers. When I see a thread addressed to aspies, I feel like it does not include me. Which seems silly now that I think about it. And with me personally I don't know how much of my disabilities are from autism and how much are from dysparxia.

I'd like to go back to the way things were in school, where none of us said "you are a this and I am a that"
The one thing we could all say is, "we all know why we are here".


Autism has a number of traits and very few people with Autism have all the traits and the mixed bag of traits we get can vary in severity.

I did not have a speech delay and food textures are not a problem for me they are the only two traits I do not have.

Not having the speech delay a whole generation slipped through the net and did not get diagnosed in childhood.

This was later call Aspergers Syndrome.


I was bullied in school and never had friends I was called things like ret*d and so on.

I already felt like rubbish so I tried to hide things like my poor hand writhing and poor spelling.

My clumsiness was another thing that I tried to hide.

People who have felt they are on the bottom of the heap might not really want to admit to themselves they have Autism and maybe they think Aspie sounds better with people like Bill Gates and Steve Jobs said to have traits.

The new classification of ASD Autism Spectrum Disorder makes much more sense and that is what is written on my diagnosis that I got a year ago.

The first time I ever came across the term Autism what the movie rain man a total idiot that could remember the phone book there was no way I could think that was what I had.

It turns out that was the Hollywood version of Autism however the movie does have a great soundtrack.

This is a great documentary showing an autism school in the UK.

Watch out for a few of the people with the Aspergers diagnosis and see how disabled they are.

There is a kid obsessed with Star Wars and then an older teen obsessed with bus routes who I will guess will really struggle for the rest of his life.

By the way Star Wars is one of my obsessions I mean SPECIAL INTERESTS. :lol:


Anyway here is the documentary.







:lol: :lol: [youtube]http://www.youtube.com/watch?v=j86bjw_jHsM[/youtube]