When your parents die, then you be truly alone in the world?

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Falloy
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07 Jun 2014, 1:21 pm

I have no siblings and my dad died a long time ago so when my mum dies I will have no family - or at least no family who will lift a finger to help me.

I am truly terrified.



Callista
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07 Jun 2014, 2:14 pm

You won't be alone. None of you will.

At least, not if I can help it.

If somebody needs help, somebody to talk to, advice, whatever... I'll help. We're all autistic, or close enough to it. I firmly believe we should help each other, almost like a family. A strange, introverted, far-flung family... but still, a family, and one that cares. We don't have to feel warm-and-fuzzy toward each other; nor do we have to be interested in each others' specialist subjects or interested in "hanging out" NT-style. We just have to be aware of the fact that somebody needs something, needs an ally.

The fact is, the world doesn't always treat us right. They accuse us, exclude us, and refuse us the things we need to live. When that happens, we have to step in and help each other. If it's just loneliness, we can sit there and listen.

I'm dead serious--if somebody needs help, and I can give it, I will. If I can't help, I'll at least try to find a lead toward where they might get what they need.

And I bet that most of us here feel the same way. Many don't have much energy, time, or resources to spare, but what we do have, we'll put to use, because we know what it's like to be autistic and alone and not know what to do, and we know we can't trust the world at large to protect and help us when we need it.

Do you guys feel the same way?


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pezar
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07 Jun 2014, 3:47 pm

Yes. I am 39 and my parents are almost 70. I've lived independently before and will do so again. The thing is, I will have to leave California because I can't afford to live here, right now I live with my folks but once they're gone I will have to move elsewhere. I'm already planning for it, I've got 7 months worth of debt payments to go and then I will probably buy a mobile home in a park in far southern Oregon (Medford or Roseburg) and live there. My mom doesn't want me to go but I want to get used to living alone now so it's not a big shock when they do die.



Falloy
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07 Jun 2014, 4:04 pm

Callista wrote:
You won't be alone. None of you will.

At least, not if I can help it.

If somebody needs help, somebody to talk to, advice, whatever... I'll help. We're all autistic, or close enough to it. I firmly believe we should help each other, almost like a family. A strange, introverted, far-flung family... but still, a family, and one that cares. We don't have to feel warm-and-fuzzy toward each other; nor do we have to be interested in each others' specialist subjects or interested in "hanging out" NT-style. We just have to be aware of the fact that somebody needs something, needs an ally.

The fact is, the world doesn't always treat us right. They accuse us, exclude us, and refuse us the things we need to live. When that happens, we have to step in and help each other. If it's just loneliness, we can sit there and listen.

I'm dead serious--if somebody needs help, and I can give it, I will. If I can't help, I'll at least try to find a lead toward where they might get what they need.

And I bet that most of us here feel the same way. Many don't have much energy, time, or resources to spare, but what we do have, we'll put to use, because we know what it's like to be autistic and alone and not know what to do, and we know we can't trust the world at large to protect and help us when we need it.

Do you guys feel the same way?


I do feel this way actually, quite strongly. Thank you for this post Callista.

I do think us "outsiders" should stick together, I believe in standing up for my friends and loved ones and providing real help for them when they are in need. (sadly I'm rather short of people who feel the same way about me) I think this spirit should be fostered within whatever community we have.

I'd be prepared to be there for others on WP too. I may not be able to provide an awful lot of practical help but I'll let you know you're not alone.



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07 Jun 2014, 4:41 pm

Life does have a natural cycle and as someone else mentioned you may be more ready then you think when it actually happens. Hopefully, a person can establish their own life with a family or friends, and that takes some of the sting out of it. But I know it doesn't always work out that way. In my experience a heavy loss like that is hard at first, and then slowly eases off. But with a parent it does take a while and you never really forget, but there is nothing wrong with that.



Caz72
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07 Jun 2014, 4:44 pm

both my parents are dead now. i sort of lost contact with my dad because it was clear that he didnt want a child with autism. but i was upset when my mum died, although she doesnt understand me as much as my dear husband does. my mum has always been quite a selfish sort of person, and was quite extroverted, which is wear i think i get my extrovert personality from.

but i know i will feel lost without my husband, and he will feel lost without me, and so we basicly got each other. i am so glad i met him.



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08 Jun 2014, 12:08 am

I'm totally alone in the world.


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auntblabby
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08 Jun 2014, 12:12 am

I was largely alone until I found wrong planet :)



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08 Jun 2014, 7:14 am

I use to have thoughts like this, as I am very close to my mother and would often fear what would happen to her. I was even scared when she got appendicitis last year and that she may die from it (she survived, thank goodness).

But now that I have my fiancé, I know that I have someone who will take care of me and know that I'm not alone. I also have my brother and my cousins, which make me feel less alone than I really am.


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08 Jun 2014, 7:51 am

When my parents die, I will feel a new found sense of freedom. I think I'll feel less alone. They won't be able to patronize me anymore.


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08 Jun 2014, 11:39 am

CockneyRebel wrote:
When my parents die, I will feel a new found sense of freedom. I think I'll feel less alone. They won't be able to patronize me anymore.


This, only replace patronize with "find fault with".


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Swordfish210
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08 Jun 2014, 3:50 pm

LoveNotHate wrote:
Does anyone fear this? I do.

EDIT: My mom tells me, "What is going to happen to you when I am gone? I worry about you".


My mom told me the exact same thing a few months back. She made me promise to go talk to my brother if anything ever happened to her. It made me realize that she is not just my mom, but also my caregiver and that I am only able to live independently because I can talk to her every day and obtain her advice. She is my Watson.


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08 Jun 2014, 4:31 pm

When my Mum dies I may be alone, but I am trying my best to make sure I'm not whilst she is still alive.


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08 Jun 2014, 8:35 pm

Nope.

Haven't seen my mother since I was 14, she's been effectively dead to me for over half my entire life. Lost my old man a few years ago, and even though he was loved very much and missed terribly I'm lucky enough to have a bunch of decent siblings.
Being the oldest, I call dibs on dying first. No way am I burying any of my brothers and sisters! First born privilege.

Lucky enough to have the odd friend or two also.


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StarsInMyMargarita
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08 Jun 2014, 9:12 pm

My mom, dad, and grandma are my only friends, and the thought of losing them is terrifying. My mom and grandma are visiting family out of country, and not having them every day, not being able to say everything I need to say, is saddening me a little. I can feel a huge difference when I'm at home being lonely and when I go visit my dad for the day.

I have four siblings, but there's only two I regularly talk to. My brothers... my sisters are too much. My youngest brother is 10, though. Eh.



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08 Jun 2014, 9:31 pm

Callista wrote:
You won't be alone. None of you will.

At least, not if I can help it.

If somebody needs help, somebody to talk to, advice, whatever... I'll help. We're all autistic, or close enough to it. I firmly believe we should help each other, almost like a family. A strange, introverted, far-flung family... but still, a family, and one that cares. We don't have to feel warm-and-fuzzy toward each other; nor do we have to be interested in each others' specialist subjects or interested in "hanging out" NT-style. We just have to be aware of the fact that somebody needs something, needs an ally.

The fact is, the world doesn't always treat us right. They accuse us, exclude us, and refuse us the things we need to live. When that happens, we have to step in and help each other. If it's just loneliness, we can sit there and listen.

I'm dead serious--if somebody needs help, and I can give it, I will. If I can't help, I'll at least try to find a lead toward where they might get what they need.

And I bet that most of us here feel the same way. Many don't have much energy, time, or resources to spare, but what we do have, we'll put to use, because we know what it's like to be autistic and alone and not know what to do, and we know we can't trust the world at large to protect and help us when we need it.

Do you guys feel the same way?


This is a nice sentiment. Those of us at least who have been struck by the loss of a loved one should be willing to lend a sympathetic ear to those who are suffering. I could only really talk to a psychiatrist in my time of need, I didn't want to burden my friends and family with the madness of my grief. If I knew about this place (or my ASD!) back then I might have rinsed the Haven to death with some horribly sick rants.

This is something that everyone goes through though, ASD or otherwise. Anyone can be devastated by loss, learning to cope with it is just a sad part of growing up.

That said, my usually black and totally inappropriate humour doesn't really qualify as a helpful grief counselling aid for most people.


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