What do you mean when you say AS is part of who you are?

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Andrejake
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23 Jan 2015, 5:43 am

Well, because IT IS part o who i am.
The way i see things, the way i listen and interpret things, the way i relate to others, the way i fix my problems, the way i think.
I can't think of any single part of my life that isn't at some level influenced by AS.



Rocket123
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23 Jan 2015, 11:49 am

I was diagnosed (with Asperger’s) as an adult, at age 50.

I wouldn’t say that AS is part of who I am. Rather, I would say that I am who I am and who I have always been.

AS is simply a label which means that the struggles I have – in being who I am and how I think and how I process information and respond to stimuli and how I relate to others -- are not as unique as I thought. That others in this wacky world share these struggles. If others didn’t share these struggles, a label wouldn’t exist.

I guess it's comforting, to know I am not alone. But that does not define me. It just explains things.

Please note, my thoughts on this matter likely change, depending upon the day (and my mood). Also, there definitely are some positives to this state of being. But in this social world, the negatives probably outweigh the positives.



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23 Jan 2015, 12:55 pm

Rocket123 wrote:
I guess it's comforting, to know I am not alone. But that does not define me. It just explains things.


That's my point. On the other hand, I'm afraid a label could screw up my chances for successful love-and-marriage life; that's why I'm not eager to obtain it. Besides, doesn't it cost a fortune just to get diagnosed?

Jono wrote:
Asperger's is not just about behaviours, it's about the fact that we perceive the world very differently from NT's

Sweetleaf wrote:
I feel its a part of who I am as its a neurological condition I was born with and has effect on how I experience the world, so not really something I can separate myself from.

SmokedFull wrote:
Aspergers is more than just missing social cues, its looking at the world in a different way to the neurotypical way


I hear what you're trying to say. But can you please specify what you mean by that? In what way an Aspie's perception of the world is different from an NT's? I've thought that every individual has his or her own unique way of experiencing the world, regardless of their alleged mental condition. Besides none of us really knows how anyone else perceives the world. So, why do each of you think that your perception of the world is necessarily similar to that of your fellow Aspie but not of an NT? Please try to be as descriptive as possible.

kreftiekortie wrote:
If somebody asks me directions and I have to direct them to a "numbered" train, I still call it the IRT, even though it's now an outmoded name. The lower letter trains were the IND, and the upper letter trains were the BMT.


For your record, the names of IRT, BMT, and IND are not as outmoded as you think. These are three distinct parts of the subway system, and these historic names are still in use inside the agency for operating purposes.



gamerdad
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23 Jan 2015, 2:56 pm

New-Yorker wrote:
I'm afraid a label could screw up my chances for successful love-and-marriage life; that's why I'm not eager to obtain it. Besides, doesn't it cost a fortune just to get diagnosed?

Diagnosis isn't for everyone. For some of us, it's very helpful. It gives some validation and confirmation of the things we suspect makes us different. It puts a name to something undefined and helps us identify the parts that didn't make any sense, which in turn helps us learn how to deal with them better.

But others are more secure in their knowledge of themselves. They feel they already know who they are, and don't feel the need to get a 3rd party to confirm that for them. People should make the choice that works best for them. If you have the knowledge and information you feel you need to cope with your struggles, then more power to you.
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I hear what you're trying to say. But can you please specify what you mean by that? In what way an Aspie's perception of the world is different from an NT's? I've thought that every individual has his or her own unique way of experiencing the world, regardless of their alleged mental condition. Besides none of us really knows how anyone else perceives the world. So, why do each of you think that your perception of the world is necessarily similar to that of your fellow Aspie but not of an NT? Please try to be as descriptive as possible.

I don't think it's a matter of thinking that my perception is similar to other aspies as it's a matter of thinking that it's just profoundly influenced by ASD. There are a lot of things that influence my perception of the world; my genetics, upbringing, experiences... and my ASD. The sum total of those things is what makes me the person that I am. Other people on the spectrum share the ASD component, but not the rest. So I don't think I see the world the same or even that similarly to how they do, because there's a lot that we don't share. But that doesn't change the fact that ASD is still a significant part of why I see the world the way I do, and I would be very different without it.



Rocket123
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23 Jan 2015, 3:51 pm

New-Yorker wrote:
Rocket123 wrote:
I guess it's comforting, to know I am not alone. But that does not define me. It just explains things.


That's my point. On the other hand, I'm afraid a label could screw up my chances for successful love-and-marriage life; that's why I'm not eager to obtain it.

How does having a label change who you are? Maybe it changes your perspective of why you are who you are. But, I doubt others will see you differently, particularly if you don’t tell them that you have this label. And, by and large, there are few reasons to share this label with others (unless you need support).



androbot01
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23 Jan 2015, 3:53 pm

A label is a word used to describe something. You can call an apple a pear, but its still an apple.



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23 Jan 2015, 5:42 pm

New-Yorker wrote:
It has been a popular line of thinking among Aspies that it's not worthwhile changing anything in your personality because Asperger Syndrom is a significant part of what you are. I would like to know what you mean by that. Is it your beliefs? Your behavior and habits? Your childhood memories? If it's behavior, then I don't see why many Aspies don't want to at least try acting in accordance with the generally accepted social norms if doing so means winning the society's acceptance, which, in turn, means better life. This is the way the world works: the majority makes the rules and everyone is measured against those rules, no matter whether the rules themselves make sense or not. There are exceptions where following the rules can be compromised: it can be due to a religious belief; or, it can be because not following them makes you happier and more fulfilled. But in most cases the reward the society offers for complying to its rules is just too tempting to forego.

And if it's your viewpoints or your childhood experiences that makes Asperger's part of who you are, then I need some explanation why you think so. Why do you think a remedy from Asperger's (if it ever becomes available) would kill your current self and make you someone else? Do you think your basic core character traits will disappear simply because your brain becomes enhanced with ability to read social cues? I don't see why.

For the record, I suspect having something like Asperger's but I don't want to be diagnosed because that would put a permanent clinical label on me, which I intend to avoid at all costs. Instead, I firmly believe in my capability of learning the society's rules and abiding to them, even if those rules are contrary to my "natural" inclination.


Autism is not a label.
An autism diagnosis is a label.
Autism is not viewpoints, experience, childhood memories, beliefs, behavior, or personality.
It is a physical brain difference that you are born with that affects how you experience the world through sensory input and an impaired social instinct.
Autism is part of who you are because you cannot separate yourself from your brain.
This does not mean you cannot learn society's rules.



CockneyRebel
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23 Jan 2015, 8:13 pm

It colours my pea-flavoured way of looking at the world. It also colours the way that I am towards people, being kind and gentle to them and living to the golden rule. It also colours my musical tastes because I had a lot of time to explore different genres of music during my high school years while my peers were partying and getting drunk. It also makes my interests more lively as if they're part of my personality.


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23 Jan 2015, 8:20 pm

I'm a married man. I've had quite a few relationships.

Before there was such thing as an "Asperger's" diagnosis, I've had more than one woman state that "something is missing" in me. My wife believes the same thing--that there's "something missing" in me. She stays with me, though (even though I, at times, think about divorce).

There are many diagnosed autistics who are married on this site. Many have kids, too.

I am, in some ways, pretty blatantly "Aspie."

I think many women go beyond "labels." They see the person underneath.

I don't think an autism diagnosis will preclude you, New-Yorker, from a satisfying, long-term relationship



androbot01
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23 Jan 2015, 8:28 pm

kraftiekortie wrote:
... I've had more than one woman state that "something is missing" in me. My wife believes the same thing--that there's "something missing" in me.

Their loss. There's nothing missing. No piece whose absence destroys the puzzle.



kraftiekortie
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23 Jan 2015, 11:39 pm

Thanks, Androbot



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24 Jan 2015, 12:04 am

Autism is part of me in the sense that its how my brain is wired, it impacts every aspect of my being, how I interpret the sensory information I take in, how I process info in my head, how I relate to others etc. However, if I could remove the autism in me I would. Sure it would mean adjusting to a different way of seeing things, processing things etc, however if it meant less sensory overload, less mental shutdowns preventing my normal functioning, less interpersonal issues, if it meant I could have a conversation with someone in a busy environment without having to watch their mouth to understand what they are saying, if it meant faces make sense to me, and I could read body language and social cues, and understand relationships on more than just an intellectual level, if it meant I could better handle deviations from routine or what I was expecting, etc, then yeah I'd ditch the ASD. So much energy goes into working around the ASD, working with the ASD, figuring out how to play my strengths to compensate for my weaknesses. I dont see how the benefits of ASD outweigh the disadvantages. So, I guess, in summary, its part of who I am in the sense that its how I'm wired, its the only way of being that I've ever known, however for me, that doesn't mean I wouldn't change that if I could.


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Rocket123
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24 Jan 2015, 1:20 pm

Marybird wrote:
Autism is not a label.
An autism diagnosis is a label.
Autism is not viewpoints, experience, childhood memories, beliefs, behavior, or personality.
It is a physical brain difference that you are born with that affects how you experience the world through sensory input and an impaired social instinct.
Autism is part of who you are because you cannot separate yourself from your brain.
This does not mean you cannot learn society's rules.

This is a wonderful answer (much better than mine).

I suppose this is where I am uncertain precisely where autism ends and my own unique brain functioning begins. I fully get that, ever since I can remember, my mind worked “differently” than others. But this difference extends beyond simply “how I experience the world through sensory input and an impaired social instinct”. I think differently than others (e.g., I don’t process emotions well, as they are way too volatile). I process information differently than others (e.g., I am excessively detailed oriented). There are other differences (that I cannot think of this minute). Is that caused by autism? Or, is that simply how my brain adapted to survive because of having autism? I have no idea.



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24 Jan 2015, 1:47 pm

I had an example of the way I process things just now. In my Sunday newspaper, there are puzzles, and one of them is a grid of nine letters which are scattered randomly, to solve the puzzle you have to figure out the nine letter word that they make. I looked at the grid and the letters spontaneously formed the word in a millisecond: hypocrisy. My subconscious mind instantly perceived the underlying sense in the pattern and reconfigured it into the word.

I've never known an NT who could do this; their brains just don't generally have that bias to subliminal recognition that works are high speed, in my experience. So AS is very much a part of who I am, because sensation and perception are very much part of how we function as human beings and individuals. I wouldn't change this for any sum of money.

The same functionality enabled me to solve maths problems at school with a speed that astonished the maths master, and he genuinely wanted to know how I could do it, which I could not explain as I did not know then why I had those abilities.

I wake up in the morning and even before I am fully conscious I am aware of patterns - the sound of the wind, which direction is it is coming from, which birds are singing, where they are... so for me ASD is very much a way of being, perceiving, living - even though I have been scoffed at here before for saying that for me, it is the way I live my life... not by conscious choice but because of innate wiring and neurology which affects sensation and perceptual ability.

The downside is that when/if I am very exhausted or ill or hyperstressed, I can't turn this huge input off, and those days are difficult, the overload can be so intense that I just want to retreat completely into a dark soundless place and sleep, I need peace at all costs. The older I get, the more acute these hypersensory abilities become, the pattern detection is good, the overload can be very challenging.



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24 Jan 2015, 2:03 pm

Learning and following the rules of society is not only possible for people with Asperger's it's also of paramount importance to gain anything from society at all.

The caveat here is that even though we learn and obey we are still rejected and still underachieving. Only the truly remarkable of us has taken that completely out of the equation to become super-autistics (Temple Grandin).

This goes beyond autism, however. This goes to basic personality, is autism really personality? I don't think so. I believe our beliefs about ourselves shape our personality in addition to environmental factors. There is a biological "make-up" if you will that does dictate our basic personality-- there was a good National Geographic magazine dedicated to personality. In summary, there are factors of a personality-- extro/introvert, etc. that are actually genetic. One can be an outgoing person with autism and one could be an introverted Aspie, etc. there are no rules only "tendencies".

Much of today's psychotherapy is aimed at enhancing strengths of personality and understanding how and why we do things/have habits and how to change those to become what we want to see in ourselves. It takes a tremendous amount of self-focus, understanding and WILLINGNESS to explore this that the vast majority of the population don't undertake this task, unless they have a "disorder" or something that interferes with their daily functioning.

To take a look at who you are and what makes you tick is just not on the typical person's radar of what to do. More like what the Kardashians did on the latest show --- endless distractions from the heart of the matter.

TLDR: I believe I am who I am because of the choices I've made given the circumstances I have been through. Having a form of autism gives me certain strengths and limits to which I have to be aware of however I also have the free will and choice to form myself however I choose for better or worse. I don't feel like an "Aspie" because I've only known myself and only have interacted with suspected fellow Aspies rather than real diagnosed ones (with one exception).



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24 Jan 2015, 2:30 pm

B19 wrote:
I am hypersensitive to sound (as well as having green eyes!). This has both advantages (music) and disadvantages (noise is magnified and things like leaf blowers or a door suddenly slamming when caught by the wind) can be extremely unpleasant, splitting my concentration and actually upsetting me physically.

These kind of sensory issues tend to be overlooked by those who see AS about being entirely about "behaviour".
I tend to be most affected by sounds made by people, especially talking, far more than mechanical sounds. (Not even two strokes or large gas turbines.)