Adult providers only understand mood and anxiety

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zkydz
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13 May 2016, 11:44 am

redrobin62 wrote:
^Fascinating, this business about your "living grid." Boy, did that hit a nerve with me. I navigate through cities relatively easily because I see them as just grids. How aspie of us to compartmentalize, arrange and dissect everything. Why play with a toy car when you can take it apart and see what makes it work? Why play with your blocks when you can line or stack them up as if storing them for a rainy day? Some people use maps as reference tools. I'm sure we view maps, charts, schedules and routes like novels to be read line by line. I do, anyway.

I honestly feel like one of those 'terminator' style view screens.

No, I don't see that specifically, but I literally do have a grid of sorts in my head that checks for all markers and comparative values.

What's funny about your analogy: Can't seem to do that with spaces I inhabit. I have the worst sense of direction. My dad? You could fly him for hours, blindfolded, spin him around until dizzy and he'd still find his way out of anywhere to where he wanted to go. He's got the brain of a freaking migratory bird.

goatfish57 wrote:
Aspie stare, that is great. It explains many of those "What are you looking at" reactions. Good luck with your journey
Yeah, that's the things that have been most unnerving for me. To find out all these little things that explain so much trouble. From the small everyday things to career killers. All those things you think are natural and like everybody else, well, it ain't and it's really unnerving.


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zkydz
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13 May 2016, 11:50 am

No time to quote, but here are a couple of things:

1.) There may not be other resources for many people. There are just now becoming people who are therapists that do understand and have been trained. But, for adults, they are still few and far between.

2.) Neurologists are not required if the above is met. And, the people who are leading the way are neurologist and Psych. Docs that are learning. You don't have to know all about the wiring to work with a lot of things. Understanding what a sensory overload is helps. Understanding the binary, black/white thinking helps. All of that does not require a neurologist.


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MissAlgernon
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13 May 2016, 12:02 pm

If you want to get perfectly adapted compensations of your weaknesses, you need complete assessment of how your brain works, including its biology. I got dozens of tests and even fMRIs. I even took part in experiments about specific brain areas, and as this was research, I got them all for free. I can take part in experimental therapies and be among the very first to benefit from them. I can see the results now, and i hope to benefit from new things in the future. Of course a psychiatrist is better than nothing, but I wouldn't expect half as many good results from even the best psychiatrist in the world.



goatfish57
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13 May 2016, 12:03 pm

Thanks, I really must think about the stare. Bumped an old thread to get some more information. I take mental images of my surroundings. It gives me great pleasure. If I can't look, what do I do???


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zkydz
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13 May 2016, 12:17 pm

MissAlgernon wrote:
If you want to get perfectly adapted compensations of your weaknesses, you need complete assessment of how your brain works, including its biology. I got dozens of tests and even fMRIs. I even took part in experiments about specific brain areas, and as this was research, I got them all for free. I can take part in experimental therapies and be among the very first to benefit from them. I can see the results now, and i hope to benefit from new things in the future. Of course a psychiatrist is better than nothing, but I wouldn't expect half as many good results from even the best psychiatrist in the world.

\Dunno where you got your tests done, but really, that is way outside many people's ability to pay or even locate. You can wish for that, but it ain't there.


As you said, someone trained is better than a neurologist. Simply, even that is rare these days. And, will be for a while until people really start to get it that there are adults who need this too. Not just kids.

And, it's a mess.


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BTDT
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13 May 2016, 12:38 pm

zkydz wrote:
As you said, someone trained is better than a neurologist. Simply, even that is rare these days. And, will be for a while until people really start to get it that there are adults who need this too. Not just kids.


The issue isn't understanding the need. The issue is who pays for it?

Or, to put it another way, what services can politicians cut to justify lower taxes? Or not raising them?

HARTFORD — Gov. Dannel P. Malloy ordered more than $65 million in state budget cuts Wednesday that hit social services heavily.



zkydz
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13 May 2016, 1:23 pm

BTDT wrote:
zkydz wrote:
As you said, someone trained is better than a neurologist. Simply, even that is rare these days. And, will be for a while until people really start to get it that there are adults who need this too. Not just kids.


The issue isn't understanding the need. The issue is who pays for it?.

While it is an issue.n It is not the case with me. My insurance will cover a therapist. I just have to find one that specializes in Asperger's. They are rare. But, in NYC, they are there.

But, many places are not like NYC. They just don't have the services period.


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lisa_simpson
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13 May 2016, 1:32 pm

goatfish57 wrote:
If I can't look, what do I do???

Look at your cell phone :P That's what I do when I don't know where to look at


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zkydz
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13 May 2016, 1:38 pm

lisa_simpson wrote:
goatfish57 wrote:
If I can't look, what do I do???

Look at your cell phone :P That's what I do when I don't know where to look at
Nobody said you can't look. It's the appropriateness of it. Learning to be aware.

An example of our typical black and white/binary thinking is that 'staring inappropriately' does not mean 'Do not look.'

And, I do understand. It's why my life is a living hell right now. I need to be taught that. In five minutes of tutoring on conversational face time, (and more practice....do not think it's fully solved, but I have a handle on it now) things were much better than 6 weeks of "how do you feel."

Next time that gets asked...."Pissed off" is the answer. Maybe they need to hear that.

But, I can tell you this. Mr. 'Zkydz on his best behaviour' no longer an option.


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beneficii
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13 May 2016, 1:54 pm

I had made very clear to my therapist that I wasn't interested in talking about how I felt and was more interested in practical solutions (I was homeless, after all). Thankfully, he got the message and would even jokingly pretend to ask "How does that make you feel?" when I spoke of something distressing, which helped break the tension.


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zkydz
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13 May 2016, 2:11 pm

beneficii wrote:
I had made very clear to my therapist that I wasn't interested in talking about how I felt and was more interested in practical solutions (I was homeless, after all). Thankfully, he got the message and would even jokingly pretend to ask "How does that make you feel?" when I spoke of something distressing, which helped break the tension.
Oh man...that is great news!! And, the fact that he listened and has a sense of humour really is a nice touch.

I do need the CBT. But, I also need the practical first.

But, I really do need it. HUGE abandonment issues....for instance abandoned on US 41 in St. Augustine by my mother because I was tired of being a punching bag for her husband. Fortunately, I did make it back to my Dad's....but, it does kinda stick with you.

So, yeah...CBT needed. Practical first though because I gotta get back to work.

And, on a personal note....how's things going beneficii? I remember you going through a very tough time. Things better?


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BTDT
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13 May 2016, 2:12 pm

They are cutting services in Hartford. But, if you have insurance that will cover it, there is a new autism center in Central Connecticut.



zkydz
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13 May 2016, 2:29 pm

So, on the idea of practical and how illuminating it can be.

I'm re-watching last night's "The Blacklist". It's nothing but talking heads for a while in the beginning. So, I just realized I instinctively, even while watching TV, usually look at the 'nose/mouth' area.

So, I do it naturally. But, just a little while with the right person and I find out it's ok after all to do it the way I want to do it naturally.

For me, understanding mechanisms makes all the differences. I now have one coping mechanism that I understand and can employ. Outside feedback helps me learn in a way I cannot do internally. I've proven that for 55 years LOL

But, that one little thing actually made my day better today.


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spinelli
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13 May 2016, 8:35 pm

About those state roads in Florida. You don't want to walking on those as an adult let alone a child. The alligators and snakes as well as the weirdos FL is known are scary. You are lucky to have made it.



zkydz
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13 May 2016, 8:57 pm

spinelli wrote:
About those state roads in Florida. You don't want to walking on those as an adult let alone a child. The alligators and snakes as well as the weirdos FL is known are scary. You are lucky to have made it.
The gators are not that bad, really. Of course, spending so much time in that part of the country, I guess you get used to it. The flip side, being around gators, snakes and other critters don't phase me a bit. Cities, in small does are ok, but otherwise drive me nutso.

But, the weirdos, yeah... I was prime cut at that time. But I was 14, with a suitcase in a polyester leisure suit on a hot June day. LOL

But, I made it to my dad's by way of hitchhiking to a bus station. One of the few times I wasn't in the presence of someone trying to maul me.


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goatfish57
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14 May 2016, 4:00 am

zkydz wrote:
lisa_simpson wrote:
goatfish57 wrote:
If I can't look, what do I do???

Look at your cell phone :P That's what I do when I don't know where to look at
Nobody said you can't look. It's the appropriateness of it. Learning to be aware.

An example of our typical black and white/binary thinking is that 'staring inappropriately' does not mean 'Do not look.'

And, I do understand. It's why my life is a living hell right now. I need to be taught that. In five minutes of tutoring on conversational face time, (and more practice....do not think it's fully solved, but I have a handle on it now) things were much better than 6 weeks of "how do you feel."

Next time that gets asked...."Pissed off" is the answer. Maybe they need to hear that.

But, I can tell you this. Mr. 'Zkydz on his best behaviour' no longer an option.


Thanks, It is all about being subtle and aware. I really needed to think about how I observe the world and how I might be perceived. A few small changes may be enough.

Your insight is very helpful


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