How many pages was your written assessment?
I have never seen my assessment where there were scores and stuff. But from my psychiatrist he has written a few reports about me and one of them was about 4-5 pages long and the there was like two and then the other was one page and that is all I have from him. I don't know if there was anymore but they are printed copies than original copies.
I also have a thick folder about me and those are all my medical records from over the years and my school medical records and IEP reports. It would take more than three hours to read through it all and lot of them are duplicates because copies have been made before.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
MentalIllnessObsessed
Pileated woodpecker
Joined: 22 Jul 2016
Age: 26
Gender: Female
Posts: 193
Location: Ontario, Canada
Greetings. Mine was 26 pages. 15 pages were for the written portion and 11 pages were the scores on test. Mine was not just autism diagnosis testing. It also included learning disabilities, AD/HD (I don't think this section was thorough enough), and mental illness (barely touched it, since I was seeing a psychiatrist or just saw a psychiatrist at the time).
Written part:
1-3 Introduction/History
4-7 Learning Disabilities
7-11 Autism Spectrum Disorder
11-12 Summary of Assessment (includes diagnosis)
12-15 Recommendations (ie therapies I should be in, accommodations for school, etc.)
Scores:
1 How Scoring Works
2-10 Learning Disability Scores
5-8 AD/HD and Executive Functions Scores (also considered under LD for attention and EF)
10-11 Autism Spectrum Disorder Scores
So you see, mine would be shorter if you looked just at my autism spectrum disorder diagnosis, but I was diagnosed with a learning disability at the time too, so there were more tests, scores, and recommendations.
I wish the AD/HD part wasn't so highly relied on how my parent and teacher see me, since I do well in school obviously means that I can't have AD/HD (sarcasm, and I know I can). My mom and teacher both didn't report working memory problems, but yet I have working memory problems. The psychologist also didn't check any executive functions that didn't fully relate to autism (she checked problem solving/concept recognition and cognitive flexibility, processing speed, fluency, and efficiency, and response inhibition). I wished that she did check more stuff related to AD/HD other than working memory like planning, organization, stuff like this. Working memory was only flagged because I did the WAIS-IV, and scored a 9th and 16th percentile on two of the four working memory tests, which is considered a concern.
The other thing was they barely touched on mental illness because they said that if I had a psychiatrist that they would have done a good job screening, but yet my teacher reported depression symptoms in me (like persistent depressive disorder for me now) and my psychiatrist didn't know it, and the report mentions this, but nothing was done about it.
So many things were thoroughly examined in my assessment, while others were not in my opinion.
I feel I will need to do another thing like this to see if I have AD/HD or not (not as detailed for sure though).
Do you mean you have more than one written assessment? I wondered if I should have included a poll answer to include that possibility. Anyway, do you believe that your assessment(s) is accurate or missing the target in some ways?
I've had ongoing evaluations since my original diagnosis for things like school placement and therapies. My original diagnosis of being severely autistic and what limitations and inabilities I would have long term, turned out to be overestimated in some areas. I think these days they have me pretty well figured out as best they can. I have screwy neurology.
26 pages
11 pages of writing and 15 pages of scores
It was humbling to read.
Finally, someone else who thinks this way!
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Life ... that's what leaves the mess. Mad people everywhere.
Isn't it part of your medical history? If so your GP should have a copy in your files, no matter the age of the report.
10 pages for my diagnosis report (a copy was sent to my GP) plus a separate 3 page report that I can show to my employer.
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Diagnosed: Asperger's Syndrome (ICD-10)
Self-Diagnosed: Aphantasia
Your neurodiverse (Aspie) score: 152 of 200
Your neurotypical (non-autistic) score: 46 of 200
Listener of all things noisy, viewer of all things bloody, writer of all things sh*t.
Nah. You showed them, EzraS! Hehe.
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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
MentalIllnessObsessed
Pileated woodpecker
Joined: 22 Jul 2016
Age: 26
Gender: Female
Posts: 193
Location: Ontario, Canada
11 pages of writing and 15 pages of scores
It was humbling to read.
Finally, someone else who thinks this way!
Your written part and scores part are the opposite number of pages as mine (15 written, 11 scores).
I also wish they could consider my friend's scoring of me, since my friend seems to pay attention to me and my lack of attention
I arrived at my assessment armed with stacks of written clinical descriptions about myself and my behaviors, characteristics and comorbids based on known research. My written assessment refers ever so slightly to my "written and verbal account" and "long history" of myself. In fact, my diagnosticians offered to refund a part of my assessment fee beacuse I "had done so much of [their] work." I told them to "pay it forward" to the next family or adult who needed the help in their assessment.
So, yeah, I agree with the idea that adult autists should be trusted with their self-descriptions unless other evidence contradicts them.
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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
4 to 5 pages. I haven't seen it for so long. My mom misplaced it too many times, including at least more than 2 copies of it.
I feel somehow it's incomplete. And my diagnostician doesn't do any labels, so he probably do most of it orally.
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MentalIllnessObsessed
Pileated woodpecker
Joined: 22 Jul 2016
Age: 26
Gender: Female
Posts: 193
Location: Ontario, Canada
I arrived at my assessment armed with stacks of written clinical descriptions about myself and my behaviors, characteristics and comorbids based on known research. My written assessment refers ever so slightly to my "written and verbal account" and "long history" of myself. In fact, my diagnosticians offered to refund a part of my assessment fee beacuse I "had done so much of [their] work." I told them to "pay it forward" to the next family or adult who needed the help in their assessment.
So, yeah, I agree with the idea that adult autists should be trusted with their self-descriptions unless other evidence contradicts them.
For me, I didn't arrive with any papers. Mainly because I was afraid to do so. The whole assessment significantly increased my anxiety and dealing with new people was horrible too.
Many of the AD/HD signs in my report were said to be caused by anxiety. Example, "Difficulties managing anxiety may make it harder for her to "feel in control" and this, thus, could fuel attention concerns". And then when I reported problems with hyperactivity/impulsivity (apparently), they said it was because I wasn't active enough (my mom says I'm not, when normally I walk at least 10000 steps everyday) and anxiety. And then they also said my working memory issues were caused by my anxiety. All of these symptoms are AD/HD symptoms, but apparently all caused by anxiety. I really don't know.
I arrived at my assessment armed with stacks of written clinical descriptions about myself and my behaviors, characteristics and comorbids based on known research. My written assessment refers ever so slightly to my "written and verbal account" and "long history" of myself. In fact, my diagnosticians offered to refund a part of my assessment fee beacuse I "had done so much of [their] work." I told them to "pay it forward" to the next family or adult who needed the help in their assessment.
So, yeah, I agree with the idea that adult autists should be trusted with their self-descriptions unless other evidence contradicts them.
For me, I didn't arrive with any papers. Mainly because I was afraid to do so. The whole assessment significantly increased my anxiety and dealing with new people was horrible too.
Many of the AD/HD signs in my report were said to be caused by anxiety. Example, "Difficulties managing anxiety may make it harder for her to "feel in control" and this, thus, could fuel attention concerns". And then when I reported problems with hyperactivity/impulsivity (apparently), they said it was because I wasn't active enough (my mom says I'm not, when normally I walk at least 10000 steps everyday) and anxiety. And then they also said my working memory issues were caused by my anxiety. All of these symptoms are AD/HD symptoms, but apparently all caused by anxiety. I really don't know.
At my first (mis)diagnosis, my diagnostician told me jokingly that "if someone shows up at our clinic for any reason, we always just diagnosis anxiety." Two weeks later, she diagnosed me with Generalized Anxiety Disorder and Obsessive-Compulsive Personality Disorder not the Autism Spectrum Disorder about which I had prepared my evidence. Hmmm. Since then, I have become quite cynical about most private clinicians. My second diagnosis was far more professional. In fact, the diagnosticians at my second diagnosis actually apologized for the previous clinic's list of mistakes.
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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
StarTrekker
Veteran
Joined: 22 Apr 2012
Age: 33
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant
Mine was eighteen pages long, with my actual diagnosis written on page 15. My report went over my background and reported difficulties, then charted my scores on all the tests I took and had written explanations for what the scores meant, then the diagnosis page, and the last three pages were recommendations for follow-up treatment and supports, like specific therapies, a suggestion to try anxiolytics (I barely missed a diagnosis of generalized anxiety disorder), books to read (which I'd already read), and suggested supports for my work and school. It was very thorough, and I felt the information was very accurate and both matched what I'd told the diagnostician, and fit with my personal experiences (as far as the test scores went).
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"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!

