How many pages was your written assessment?

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How many pages was your written assessment?
0 (I was told about my diagnosis verbally) 15%  15%  [ 5 ]
1-5 pages 39%  39%  [ 13 ]
6-10 pages 24%  24%  [ 8 ]
11-15 pages 9%  9%  [ 3 ]
16-20 pages 6%  6%  [ 2 ]
21-25 pages 0%  0%  [ 0 ]
More than 25 pages 6%  6%  [ 2 ]
Total votes : 33

iliketrees
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06 Feb 2017, 12:15 pm

The letter to my GP with details of the diagnosis was 3 pages and I assume it's this one you mean, but my longest assessment I think is my needs assessment which has 19 pages.



kraftiekortie
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06 Feb 2017, 2:33 pm

You've done pretty well despite all this.



League_Girl
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06 Feb 2017, 5:03 pm

I have never seen my assessment where there were scores and stuff. But from my psychiatrist he has written a few reports about me and one of them was about 4-5 pages long and the there was like two and then the other was one page and that is all I have from him. I don't know if there was anymore but they are printed copies than original copies.

I also have a thick folder about me and those are all my medical records from over the years and my school medical records and IEP reports. It would take more than three hours to read through it all and lot of them are duplicates because copies have been made before.


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MentalIllnessObsessed
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06 Feb 2017, 10:39 pm

Greetings. Mine was 26 pages. 15 pages were for the written portion and 11 pages were the scores on test. Mine was not just autism diagnosis testing. It also included learning disabilities, AD/HD (I don't think this section was thorough enough), and mental illness (barely touched it, since I was seeing a psychiatrist or just saw a psychiatrist at the time).
Written part:
1-3 Introduction/History
4-7 Learning Disabilities
7-11 Autism Spectrum Disorder
11-12 Summary of Assessment (includes diagnosis)
12-15 Recommendations (ie therapies I should be in, accommodations for school, etc.)

Scores:
1 How Scoring Works
2-10 Learning Disability Scores
5-8 AD/HD and Executive Functions Scores (also considered under LD for attention and EF)
10-11 Autism Spectrum Disorder Scores

So you see, mine would be shorter if you looked just at my autism spectrum disorder diagnosis, but I was diagnosed with a learning disability at the time too, so there were more tests, scores, and recommendations.

I wish the AD/HD part wasn't so highly relied on how my parent and teacher see me, since I do well in school obviously means that I can't have AD/HD (sarcasm, and I know I can). My mom and teacher both didn't report working memory problems, but yet I have working memory problems. The psychologist also didn't check any executive functions that didn't fully relate to autism (she checked problem solving/concept recognition and cognitive flexibility, processing speed, fluency, and efficiency, and response inhibition). I wished that she did check more stuff related to AD/HD other than working memory like planning, organization, stuff like this. Working memory was only flagged because I did the WAIS-IV, and scored a 9th and 16th percentile on two of the four working memory tests, which is considered a concern.

The other thing was they barely touched on mental illness because they said that if I had a psychiatrist that they would have done a good job screening, but yet my teacher reported depression symptoms in me (like persistent depressive disorder for me now) and my psychiatrist didn't know it, and the report mentions this, but nothing was done about it.

So many things were thoroughly examined in my assessment, while others were not in my opinion.

I feel I will need to do another thing like this to see if I have AD/HD or not (not as detailed for sure though).



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06 Feb 2017, 11:13 pm

AspieUtah wrote:
EzraS wrote:
I've have accumulated a rather thick folder.

Do you mean you have more than one written assessment? I wondered if I should have included a poll answer to include that possibility. Anyway, do you believe that your assessment(s) is accurate or missing the target in some ways?


I've had ongoing evaluations since my original diagnosis for things like school placement and therapies. My original diagnosis of being severely autistic and what limitations and inabilities I would have long term, turned out to be overestimated in some areas. I think these days they have me pretty well figured out as best they can. I have screwy neurology.



248RPA
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06 Feb 2017, 11:26 pm

26 pages
11 pages of writing and 15 pages of scores
It was humbling to read.

MentalIllnessObsessed wrote:
I wish the AD/HD part wasn't so highly relied on how my parent and teacher see me, since I do well in school obviously means that I can't have AD/HD (sarcasm, and I know I can). My mom and teacher both didn't report working memory problems, but yet I have working memory problems.

Finally, someone else who thinks this way!


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liveandrew
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07 Feb 2017, 2:01 am

kraftiekortie wrote:
If I had the assessment (it was done in 1964), I would be very glad. It would answer many questions.

Isn't it part of your medical history? If so your GP should have a copy in your files, no matter the age of the report.

10 pages for my diagnosis report (a copy was sent to my GP) plus a separate 3 page report that I can show to my employer.


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07 Feb 2017, 4:29 am

Mine was about 10 pages of mistakes, lies, exaggerations and unfair stereotypes.

Yes, I am traumatized. You can tell, right?

LOL.



AspieUtah
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07 Feb 2017, 9:33 am

EzraS wrote:
...I have screwy neurology.

Nah. You showed them, EzraS! Hehe.


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kraftiekortie
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07 Feb 2017, 9:37 am

I have no idea who my doctor was in 1964. He's probably been dead a long time.



MentalIllnessObsessed
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07 Feb 2017, 11:16 pm

248RPA wrote:
26 pages
11 pages of writing and 15 pages of scores
It was humbling to read.
MentalIllnessObsessed wrote:
I wish the AD/HD part wasn't so highly relied on how my parent and teacher see me, since I do well in school obviously means that I can't have AD/HD (sarcasm, and I know I can). My mom and teacher both didn't report working memory problems, but yet I have working memory problems.

Finally, someone else who thinks this way!


Your written part and scores part are the opposite number of pages as mine (15 written, 11 scores).

I also wish they could consider my friend's scoring of me, since my friend seems to pay attention to me and my lack of attention :D . But overall, they should consider the patient's viewing of themselves and testing of signs more important than other people's viewing of the other. People can't mind read. Testing and how the person sees themselves would give a better view. I'm also not saying that getting other people's opinions on you aren't worth it though, but shouldn't be the most important thing.



AspieUtah
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08 Feb 2017, 7:36 am

MentalIllnessObsessed wrote:
...overall, they should consider the patient's viewing of themselves and testing of signs more important than other people's viewing of the other. People can't mind read. Testing and how the person sees themselves would give a better view. I'm also not saying that getting other people's opinions on you aren't worth it though, but shouldn't be the most important thing.

I arrived at my assessment armed with stacks of written clinical descriptions about myself and my behaviors, characteristics and comorbids based on known research. My written assessment refers ever so slightly to my "written and verbal account" and "long history" of myself. In fact, my diagnosticians offered to refund a part of my assessment fee beacuse I "had done so much of [their] work." I told them to "pay it forward" to the next family or adult who needed the help in their assessment.

So, yeah, I agree with the idea that adult autists should be trusted with their self-descriptions unless other evidence contradicts them.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


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08 Feb 2017, 7:50 am

4 to 5 pages. I haven't seen it for so long. My mom misplaced it too many times, including at least more than 2 copies of it.

I feel somehow it's incomplete. And my diagnostician doesn't do any labels, so he probably do most of it orally.


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09 Feb 2017, 7:18 am

AspieUtah wrote:
MentalIllnessObsessed wrote:
...overall, they should consider the patient's viewing of themselves and testing of signs more important than other people's viewing of the other. People can't mind read. Testing and how the person sees themselves would give a better view. I'm also not saying that getting other people's opinions on you aren't worth it though, but shouldn't be the most important thing.

I arrived at my assessment armed with stacks of written clinical descriptions about myself and my behaviors, characteristics and comorbids based on known research. My written assessment refers ever so slightly to my "written and verbal account" and "long history" of myself. In fact, my diagnosticians offered to refund a part of my assessment fee beacuse I "had done so much of [their] work." I told them to "pay it forward" to the next family or adult who needed the help in their assessment.

So, yeah, I agree with the idea that adult autists should be trusted with their self-descriptions unless other evidence contradicts them.


For me, I didn't arrive with any papers. Mainly because I was afraid to do so. The whole assessment significantly increased my anxiety and dealing with new people was horrible too.

Many of the AD/HD signs in my report were said to be caused by anxiety. Example, "Difficulties managing anxiety may make it harder for her to "feel in control" and this, thus, could fuel attention concerns". And then when I reported problems with hyperactivity/impulsivity (apparently), they said it was because I wasn't active enough (my mom says I'm not, when normally I walk at least 10000 steps everyday) and anxiety. And then they also said my working memory issues were caused by my anxiety. All of these symptoms are AD/HD symptoms, but apparently all caused by anxiety. I really don't know.



AspieUtah
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09 Feb 2017, 7:58 am

MentalIllnessObsessed wrote:
AspieUtah wrote:
MentalIllnessObsessed wrote:
...overall, they should consider the patient's viewing of themselves and testing of signs more important than other people's viewing of the other. People can't mind read. Testing and how the person sees themselves would give a better view. I'm also not saying that getting other people's opinions on you aren't worth it though, but shouldn't be the most important thing.

I arrived at my assessment armed with stacks of written clinical descriptions about myself and my behaviors, characteristics and comorbids based on known research. My written assessment refers ever so slightly to my "written and verbal account" and "long history" of myself. In fact, my diagnosticians offered to refund a part of my assessment fee beacuse I "had done so much of [their] work." I told them to "pay it forward" to the next family or adult who needed the help in their assessment.

So, yeah, I agree with the idea that adult autists should be trusted with their self-descriptions unless other evidence contradicts them.

For me, I didn't arrive with any papers. Mainly because I was afraid to do so. The whole assessment significantly increased my anxiety and dealing with new people was horrible too.

Many of the AD/HD signs in my report were said to be caused by anxiety. Example, "Difficulties managing anxiety may make it harder for her to "feel in control" and this, thus, could fuel attention concerns". And then when I reported problems with hyperactivity/impulsivity (apparently), they said it was because I wasn't active enough (my mom says I'm not, when normally I walk at least 10000 steps everyday) and anxiety. And then they also said my working memory issues were caused by my anxiety. All of these symptoms are AD/HD symptoms, but apparently all caused by anxiety. I really don't know.

At my first (mis)diagnosis, my diagnostician told me jokingly that "if someone shows up at our clinic for any reason, we always just diagnosis anxiety." Two weeks later, she diagnosed me with Generalized Anxiety Disorder and Obsessive-Compulsive Personality Disorder not the Autism Spectrum Disorder about which I had prepared my evidence. Hmmm. Since then, I have become quite cynical about most private clinicians. My second diagnosis was far more professional. In fact, the diagnosticians at my second diagnosis actually apologized for the previous clinic's list of mistakes.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


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09 Feb 2017, 6:50 pm

Mine was eighteen pages long, with my actual diagnosis written on page 15. My report went over my background and reported difficulties, then charted my scores on all the tests I took and had written explanations for what the scores meant, then the diagnosis page, and the last three pages were recommendations for follow-up treatment and supports, like specific therapies, a suggestion to try anxiolytics (I barely missed a diagnosis of generalized anxiety disorder), books to read (which I'd already read), and suggested supports for my work and school. It was very thorough, and I felt the information was very accurate and both matched what I'd told the diagnostician, and fit with my personal experiences (as far as the test scores went).


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