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CockneyRebel
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11 Aug 2017, 7:51 am

If somebody ever asks what you want on your spaghetti, you could sing "One meatball, that's all." :wink:


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adriantesq
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11 Aug 2017, 8:12 am

[quote="SaveFerris
We could go back and forth , but I'm feeling less & less understood the more I stay on this forum , I think it's time for a break :roll:[/quote]

No, no, no - SaveFerris - don't leave me - you and I have only just met - we both have sharp corners we still have to file down - and I still don't know how to use the freakin quote button properly ! !



Last edited by adriantesq on 11 Aug 2017, 8:17 am, edited 1 time in total.

adriantesq
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11 Aug 2017, 8:15 am

I lived with my mother’s maternal grandfather from 3½ days of age to 3½ years of age. He took care of me while my parents were at work and at evening classes after work, 6 days a week, Mondays-Saturdays.

He home-schooled me by teaching me to read and write, and do math, arts and sciences, to Oxbridge University entrance exam standard, but never to speak. I remember him as always being a deaf mute, but I have a niggling suspicion that this was by psychological choice.

I say this because he had a radio switched on all day, every day, from which I learned BBC English speaking and singing, and instrumental and orchestral music, that he must have been able to hear or otherwise experience, as he communicated words and concepts by telepathy and images and objects by telekinesis, into my head, relating to the auditory sounds that the radio transmission meant.

It stemmed from his childhood, which was feral. His mother was autistic, so ran away with him the day he was born, afraid her parents would take him away from her, and raised him in a stone culvert under a road on her parent’s estate, near the house, so she seldom if ever spoke to him, and kept him from crying out, lest anyone discover their whereabouts. We have a family propensity to die in the face of danger and come back to life when the coast is clear, and he taught me how, so someone taught him, and that could only have been his mother, because he had no other human contact, until he was much older.

She died very early in his life, and he was raised by animals, birds and insects, and remained hidden thus from his grandparents and their estate visitors and workers, until he fell in love with his mother’s younger sister, in her youth, when she was orphaned after his grandparents passed away, when he heard her weeping with grief for them. He was about 66 by then, but looked about half that age due to his feral life style and she fell head over heels in love with him as he comforted her in her grief.

They married and had children, all girls, I believe, but he had no birth certificate, so, whoever married them, another relative, probably another ancestor of an infamous Welsh forger of identification documentation, Iolo Morgannwg, I have no doubt, as this is his blood line inheritance also, manufactured one for him, by forging an entry in the family bible which had belonged to the grandparents, as they were both dead, and could not therefore deny it.

He home-schooled his children, the same as home-schooled me, and his wife may have gotten him to speak to teach them, but she died young, in a house fire in 1914, after the first at least had been home-schooled, and never spoke again, according to what I was told by my mother, whom he also home-schooled, and her eldest aunt, his first born daughter, before he died, when I was 4½ years old.

I believe he suffered severe ear drum injury from an air pressure wave explosion caused by the explosives shed of the quarry on our family estate blowing up one time he was looking after me. I was in the library of the estate manager’s house when it happened so I suffered less injury than he did, as he was outside in the open when the shed blew up. I recall that one of his grandsons was burned so severely he almost died from the skin damage, but it was caused by a petrol explosion of a nearby November 5th bonfire.


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IstominFan
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11 Aug 2017, 8:39 am

I am verbal and I sing. I have been told I have a nice singing voice. Singing makes me feel good.



EzraS
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11 Aug 2017, 8:44 am

SaveFerris wrote:
EzraS wrote:
SaveFerris wrote:
EzraS wrote:
I'm primarily nonverbal but I sing parts of songs at random, like while riding in a car. They say I have a good singing voice.


So do you think you could have a conversation if the right songs were played at the right time and you just sang along?

e.g. You missed the postman and he was walking away so you play The Marvelettes - Please Mr. Postman "wait a minute Mister Postman "


lol I love those kinds of jokes.


It wasn't a joke but I think you knew that , sorry if I offended you , clearly I have no idea what selective mutism is really like.


No I honestly thought it was a joke and it honestly gave me a good laugh. I don't mind people joking around with me. My family does it all the time because they know I get a kick out of it.



kraftiekortie
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11 Aug 2017, 1:13 pm

You've made lots of friends here, Mr. Ferret.



naturalplastic
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11 Aug 2017, 1:46 pm

SaveFerris wrote:
EzraS wrote:
I'm primarily nonverbal but I sing parts of songs at random, like while riding in a car. They say I have a good singing voice.


So do you think you could have a conversation if the right songs were played at the right time and you just sang along?

e.g. You missed the postman and he was walking away so you play The Marvelettes - Please Mr. Postman "wait a minute Mister Postman "


I love ferrets...in the springtime....

I love ferrets in the fall

Why,...

oh why...

do I love ferrets?

Because.... I dunno...they get rid of the mice in the tool shed....



naturalplastic
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11 Aug 2017, 1:47 pm

Sorry.But I just cant get that outta my head now.



PhosphorusDecree
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11 Aug 2017, 1:58 pm

I stutter when I speak, but not when I sing. As a teenager, I was obsessed with Gilbert & Sullivan patter songs because singing them I could get out these rapid torrents of words without stuttering or repeating myself. ("From the Greengrocer-Tree you get grapes and green pea / Cauliflowers, pineapples and cranberries / While the Pastry Cook Plant cherry brandy will grant / Apple puffs and three-corners and Banburies....")


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naturalplastic
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11 Aug 2017, 2:04 pm

Have heard that before. Folks who stutter say they don't stutter when they sing. Probably a common thing.



AlexWelshman
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11 Aug 2017, 2:55 pm

I was singing before I could talk too.



bb400guy
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11 Aug 2017, 4:20 pm

EzraS wrote:
bb400guy wrote:

I can tell you are a great dad for a child with autism. My dad has always been a great dad to me in learning so much about autism and how to work with me and all that. It makes a difference even if your kid doesn't express it. It means a lot.

You described the way of viewing others very well. Between 8 and 10 I started becoming more responsive and acknowledging my parents more. But even these days I still do not demonstrably reciprocate affection or really interact. More like just respond and react. They have probably done RDI with me or if not something similar I'm sure. I lose track of all the different stuff and forget what it's called. My parents have always been very involved in treating my autism. Not trying to "fix me" but just trying to help me best they can and it makes a difference. I feel understood and that means a lot.

I know my singing is just parroting words. It's an interesting quirk but not much else beyond that.


This made my day! :D :D :D


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will@rd
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11 Aug 2017, 5:56 pm

bb400guy wrote:
Maybe I can offer some information that may help (or not). My son is now 5 years old, he said a few words at around 16 months and then stopped. I've only heard a few words since then. None of these words have ever been directed at me or other people, rather they seem to be his own internal speech (thoughts) spoken out loud. For example:

@ 16 Months: waiting at the front door to leave our house - "Go. I go".
@ 3 Years: at daycare he fell backwards onto a toy and hurt himself, the daycare staff said he clearly cried - "Mommy, mommy".
@ 4 years: at the table in front of a birthday cake - "cake".
@ 4-5 years: and a rare occasion when he's upset about something he'll say - "nah, nah, nah", he clearly means "no".

These few times I've heard his voice demonstrates that he has not discovered or developed an understanding that he is a separate person from other people, that we all have individual minds and this is why we communicate to each other. From what I can tell (and have learned thru RDI), he sees me (people) on an instrumental level or as an object - he knows I'm daddy vs. a stranger, but only on a visual level.

A child cannot just start at speech, but rather communication must develop first, and the initial stage is a baby slowly developing this awareness of self from others typical between 6-9 months. As it develops, they first become aware of their parents emotions and are drawn to looking at them for their emotions and often "borrow" them (parents smile, baby smile etc). In RDI this called Emotional-Sharing-Communication and its targeted in therapy first, before speech. It must develop before speech, otherwise a child misses this developmental step and may learn to speak (attain words) but not the ability to communicate so they don't talk to people or their speech is limited to asking for things rather than taking an interest in another person mind/emotions.

After learning this and becoming really aware of it, I'm often consciously thinking about just how much my and other NT minds (I don't have ASD) take in and respond to while people are in conversation with each other. Speech or language is a very small part or end result of all the other things our NT minds subconsciously do.

Another way of trying to explain this - I would not hold a coffee cup in my hand and talk to it/look for emotions from it - why? Because my mind knows there is no other mind to talk to or give emotions in the coffee cup. Although this may sound silly (or even unintentionally offensive to some) this separate mindful awareness is exactly what's in effect with my son, but just in an relationally opposite way as he only sees me like I see the coffee cup, as an object. Our emotional sharing communication isn't there because this separate mindful awareness is absent in my son's mind. This is why my son is unaware/shows no response when I pretend to cry in front of him or after giving him tickles/scratches (which he loves) does not give them to me when I ask him.

When a child's mind doesn't discover the above or their therapy neglects to actively develop this, they go on thru life without all the interactive everyday situations with other people that shapes their mind to have the ability to commutate with other people. This leaves them with altered or atypical neurological development which in turn impedes their ability to communicate. Over a lifetime this can be devastating.

Ezra S, you can sing, but singing is not communicating with other people, and this may be why you can't talk to other people. Or maybe this is not it at all, and yet another ASD therapy is wrong, but this is the best explanation I've come across to explain what I'm experiencing with my son at home and it might help you. Maybe you could try to go thru all the online RDI material on their website, it takes a while (2 years for me!), but it really helped explain ASD at its core. Self-awareness is never a bad thing.

On a personal note, Ezra S, as I became aware of my son and his ASD I read thru many of your post and they gave me a deeper understanding of how ASD impacts a person (your profile seems to match my sons). From what I've read about you and your thoughts and how you can communicate thru this forum, you've given me a lot of positive hope for my son and that one day we too can communicate with each other. Talk/text/gestures doesn't really matter to me, anyway we can do it is good with me. And even if this never happens, my son will always be good with me.

-BB400GUY


Fascinating. 8O

I do sometimes think of people as not much more than coffee cups - or CG characters. Intellectually, I have learned this is not the case, and yet...

This explains so much about my inability to connect with other human beings in long-term, or fulfilling emotional relationships. :chin:


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SaveFerris
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11 Aug 2017, 7:26 pm

EzraS wrote:
SaveFerris wrote:
EzraS wrote:
SaveFerris wrote:
EzraS wrote:
I'm primarily nonverbal but I sing parts of songs at random, like while riding in a car. They say I have a good singing voice.


So do you think you could have a conversation if the right songs were played at the right time and you just sang along?

e.g. You missed the postman and he was walking away so you play The Marvelettes - Please Mr. Postman "wait a minute Mister Postman "


lol I love those kinds of jokes.


It wasn't a joke but I think you knew that , sorry if I offended you , clearly I have no idea what selective mutism is really like.


No I honestly thought it was a joke and it honestly gave me a good laugh. I don't mind people joking around with me. My family does it all the time because they know I get a kick out of it.


I've PM'ed you dude , I'm just having a hissy fit , ignore my sillyness :roll:


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SaveFerris
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11 Aug 2017, 7:57 pm

Raleigh wrote:
I often sing lyrics for conversation.
And I think in song lyrics.
I was just thinking, "What would I do without your smart mouth?"


What I should of replied earlier with was
The song in my head was " You Raleigh got me goin' , You got me so I don't know what I'm doin' "


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AshtenS
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11 Aug 2017, 9:45 pm

I frequently talk to myself in song and I sometimes like to sing the same lyrics over and over again just for fun. I usually stutter when I talk but apparently I sing pretty good.